Identifying Parents with Cognitive Difficulties: How Child Welfare Services Enable Timely and Appropriate Support
Abstract
1. Introduction
1.1. Identifying Parents with Cognitive Difficulties
1.2. Previous Research
2. Method
2.1. Data Collection and Analysis
2.2. Ethical Considerations
3. Results
3.1. Identification Shaped by Definitions
Previously, when I thought of cognitive difficulties, it was very easy to think someone was in the lower range, almost approaching a kind of intellectual impairment. However, now I am more likely to think about PTSD, or a sort of temporary cognitive reduction, based on their life situation.[Informant 1; PTSD refers here to post-traumatic stress disorder]
It is not necessary for a present diagnosis. If they cannot manage to follow routines or structure their everyday life, then we must take that seriously, even if they seem very resourceful on the surface.[Informant 12]
They nod and agree with everything. However, you returned, and nothing has changed. It is as if they cannot translate our discussion into action.[Informant 4]
It is not that they do not want to, but they are unable to hold onto what we have said. We can go through the same thing over and over again, and it is like starting from scratch each time.[Informant 13]
It is not always the case that they are cognitively weak. It can be everything else they carry, the chaos, the trauma, all the things happening at once. Moreover, that makes it hard to absorb anything new.[Informant 9]
They might come across as very competent in a meeting. However, when we are at their home, it is a different story; there is no follow-through. Things are not in place. Then you start to understand what is happening.[Informant 5]
I have worked with several parents who were depressed or struggling mentally. Moreover, when stress builds up, cognitive functions such as memory, learning, and even basic planning are impaired. It is like they are underwater.[Informant 14]
At first, it was not easy to spot. It is something you would grow into after working with them over time. You start to feel that something is not settling the way it should.[Informant 10]
It is not one conversation that tells you. It is a fact that you are not getting any development over time. That is when you start to connect the dots.[Informant 6]
Even if people are not cognitively impaired when they come to a meeting with us in child welfare, they become that way because they are so anxious sitting in front of us.[Informant 14]
Just by meeting us, they often go into survival mode […] That is when guidance is ineffective.[Informant 13]
3.2. Identification Through Relational Insights
Concerns do not arise from a single issue; instead, they stem from multiple issues. It is when you have been in contact for a while and you get a feeling that something is not connecting the way it should.[Informant 6]
If I have worked with them a bit, I start to see patterns. Forgetting things, repeating the same questions, or not following up after they seemed to understand.[Informant 11]
At the office, they get along well. However, when we visit them at home, nothing is in place. No routines. No follow-up. That is when it starts to make more sense.[Informant 4]
When I am in their home, I notice things I miss in meetings. Like how easily they lose track of what we have talked about, or how tasks we agreed on have not begun.[Informant 15]
We explain things again and again, but it does not seem to sink in. Moreover, that is when I stop thinking it is just stress or a misunderstanding; something else is going on.[Informant 10]
We try different approaches, give reminders, and make it more accessible. However, when we still do not see progress, it is as if something is getting in the way of learning.[Informant 14]
You cannot always see this. However, when we start talking, things like: Have you also noticed this? That is when it becomes clearer. We put the pieces of the picture together.[Informant 2]
It is reassuring to hear that others have had similar experiences. Then it is not just your concern, but it becomes something we can work from.[Informant 7]
3.3. Identification Through Patterns of Response
We sometimes have to repeat ourselves again and again. Say the same thing in different ways. Simplify it.[Informant 13]
You also need to simplify things and make them more comprehensible. Moreover, even if people are not cognitively impaired, they can come across that way in meetings with us, simply because they are so anxious.[Informant 14]
Many [parents] learn to say the right things, but nothing really happens.[Informant 12]
One indication for me is when a family or a parent has received guidance, but nothing moves forward. There is no change.[Informant 13]
They [parents with cognitive difficulties] are also very concrete and literal. More so than others.[Informant 5]
You almost have to show it. Not only verbalize it.[Informant 10]
They reply “oh yes”, but then they forget the next time.[Informant 8]
You see that nothing really changes, and they struggle, for instance, with memory. […] Then you go deeper, and that is when you realize, no, they are struggling in those areas.[Informant 1]
We do not say cognitive difficulties. We discussed what is challenging and what might make things easier.[Informant 6]
If you say something like ‘cognitive challenges’, people tend to shut down. You lose them. It is better to discuss the struggles they face in their everyday lives.[Informant 12]
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
- Adolfsson, Päivi, Helena Lindstedt, Gunnel Janeslätt, and Karin Jöreskog. 2023. A father, nevertheless: Self-confident but resigned fathers with children in foster care. Journal of Intellectual Disabilities 29: 271–88. [Google Scholar] [CrossRef]
- Angevaren, Maaike, Geert Aufdemkampe, H. J. J. Verhaar, A. Aleman, and Luc Vanhees. 2008. Physical activity and enhanced fitness to improve cognitive function in older people without known cognitive impairment. Cochrane Database of Systematic Reviews 3: CD005381. [Google Scholar] [CrossRef]
- Aunos, Marjorie, and Laura Pacheco. 2013. Changing Perspective: Workers’ Perceptions of Inter-Agency Collaboration With Parents With an Intellectual Disability. Journal of Public Child Welfare 7: 658–74. [Google Scholar] [CrossRef]
- Aunos, Marjorie, and Maurice A. Feldman. 2007. Assessing Parenting Capacity in Parents with Intellectual Disabilities. In Des infants à protéger, des adultes à aider: Deux univers à rapproacher. Edited by Claire Chamberlain, Sophie Léveillé and Nico Trocmé. Quebec: Presses de l’Université du Québec. [Google Scholar]
- Aunos, Marjorie, Maurice A. Feldman, and Georgette Goupil. 2008. Mothering with intellectual disabilities: Relationship between social support, health and well-being, parenting and child behaviour outcomes. Journal of Applied Research in Intellectual Disabilities 21: 320–30. [Google Scholar] [CrossRef]
- Azar, Sandra T., Michael T. Stevenson, and David R. Johnson. 2012. Intellectual Disabilities and Neglectful Parenting: Preliminary Findings on the Role of Cognition in Parenting Risk. Journal of Mental Health Research in Intellectual Disabilities 5: 94–129. [Google Scholar] [CrossRef] [PubMed]
- Booth, Tim, David McConnell, and Wendy Booth. 2005a. Temporal discrimination and parents with learning difficulties in the child protection system. British Journal of Social Work 36: 997–1015. [Google Scholar] [CrossRef]
- Booth, Tim, Wendy Booth, and David McConnell. 2005b. The Prevalence and Outcomes of Care Proceedings Involving Parents with Learning Difficulties in the Family Courts. Journal of Applied Research in Intellectual Disabilities 18: 7–17. [Google Scholar] [CrossRef]
- Braun, Virginia, and Victoria Clarke. 2021. Thematic Analysis. A Practical Guide. London: Sage Publications Ltd. [Google Scholar]
- Bredal, Anja, Bente Heggem Kojan, Marianne Nilsen, Gaute Skrove, Anita Skårstad Storhaug, and Carolina Øverlien. 2023. Barnevernstjenestens arbeid med vold og overgrep. NOVA Rapport nr. 16/23. Oslo: Velferdsinstituttet NOVA. [Google Scholar]
- Brinkmann, Svend, and Steinar Kvale. 2014. InterViews. In Learning the Craft of Qualitative Research Interviewing. New York: SAGE Publications, Inc. [Google Scholar]
- Budd, Karen, and Stephen Greenspan. 1984. Mentally retarded mothers. In Behaviour Modification with Women. Edited by Elaine A. Blelchman. New York: Guildford Press, pp. 477–506. [Google Scholar]
- Carlson, Stephanie M., Philip D. Zelazo, and Susan Faja. 2013. Executive function. I. In The Oxford Handbook of Developmental Psychology. Oxford: Oxford University Press, vol. 1, pp. 706–43. [Google Scholar]
- Choate, Peter W., and Sandra Engstrom. 2014. The ‘Good Enough’ Parent: Implications for Child Protection. Child Care in Practice 20: 368–82. [Google Scholar] [CrossRef]
- Cleaver, Hedy, and Donald Nicholson. 2007. Parental Learning Disability and Children’s Needs: Family Experiences and Effective Practice. London: Jessica Kingsley Publishers. [Google Scholar]
- Conley, Cory. 2003. A review of parenting capacity assessment reports. Ontario Association of Children’s Aid Societies (OACAS) Journal 47: 16–22. [Google Scholar]
- Coren, Esther, Manuela Thomae, and Jo Hutchfield. 2011. Parenting Training for Intellectually Disabled Parents: A Cochrane Systematic Review. Research on Social Work Practice 21: 432–41. [Google Scholar] [CrossRef]
- Creswell, John W., and Cheryl N. Poth. 2018. Qualitative Inquiry and Research Design: Choosing Among Five Approaches, 4th ed. New York: Sage Publications, Inc. [Google Scholar]
- De Bellis, Michael D. 2001. Developmental traumatology: The psychobiological development of maltreated children and its implications for research, treatment, and policy. Developmental Psychopathology 13: 537–61. [Google Scholar] [CrossRef]
- De Bellis, Michael D., and Matcheri S. Keshavan. 2003. Sex differences in brain maturation in maltreatment-related pediatric posttraumatic stress disorder. Neuroscience and Behavioral Reviews 27: 103–17. [Google Scholar] [CrossRef]
- Denzin, Norman K., and Yvonna S. Lincoln. 2011. Introduction: The discipline and practice of qualitative research. In The Sage Handbook of Qualitative Research, 4th ed. Edited by Norman Denzin and Yvonna Lincoln. London: Sage Publications, Inc. [Google Scholar]
- Dowdney, Louise, and David Skuse. 1993. Parenting provided by adults with mental retardation. Child Psychology & Psychiatry & Allied Disciplines 34: 25–47. [Google Scholar] [CrossRef]
- Drange, Nina, Øyvind M. Nernæs, Simen Markussen, Inger Oterholm, Oddbjørn Raaum, and Tor Slettebø. 2021. Report Subproject 1: Descriptive Analyses—Children and Families in the Child Welfare System. Frisch Report No. 4. Oslo: The Frisch Centre for Economic Research. [Google Scholar]
- Feldman, Maurice A. 2002. Parents with Intellectual Disabilities and Their Children: Impediments and Supports. In Ethical Dilemmas: Sexuality and Developmental Disability. Edited by Dorothy M. Griffiths, Debbie Richards and Paul Federoff. Kingston: NADD Press, pp. 255–92. [Google Scholar]
- Feldman, Maurice A., and Marjorie Aunos. 2010. Comprehensive Competence-Based Parenting Capacity Assessment for Parents with Learning Difficulties. Kingston: NADD Press. [Google Scholar]
- Feldman, Maurice A., and Marjorie Aunos. 2020. Recent trends and future directions in research regarding parents with intellectual and developmental disabilities. Current Developmental Disorders Reports 7: 173–81. [Google Scholar] [CrossRef] [PubMed]
- Feldman, Maurice A., and Muhammad Tahir. 2016. Skills Training for Parents with Intellectual Disabilities. In Handbook of Evidence-Based Practices in Intellectual and Developmental Disabilities. Evidence-Based Practices in Behavioral Health. Edited by Nirbhay Singh. Cham: Springer. [Google Scholar] [CrossRef]
- Gaskin, Erin H., John R. Lutzker, Daniel B. Crimmins, and Linda Robinson. 2012. Using a digital frame and pictorial information to enhance the SafeCare® parent-infant interactions module with a mother with intellectual disabilities: Results of a pilot study. Journal of Mental Health Research in Intellectual Disabilities 5: 187–202. [Google Scholar] [CrossRef] [PubMed]
- Gonzalez, Elizabeth, and Jennifer Forister. 2020. Conducting qualitative research. In Introduction to Research and Medical Literature, 5th ed. Edited by J. Glenn Forister and J. Dennis Blessing. Charlotte: Information Age Publishing, Inc. [Google Scholar]
- IASSID Special Interest Research Group on Parents and Parenting with Intellectual Disabilities. 2008. Parents labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 21: 296–307. [Google Scholar] [CrossRef]
- Kojan, Bente Heggem, and Anita Skårstad Storhaug. 2021. Child Welfare and Socioeconomic Inequality—Connections, Understandings, and Responsibility. Report Series in Social Work, Report No. 6. NTNU; Oslo: NTNU. [Google Scholar]
- Koolen, Joyce, Wietske Van Oorsouw, Lisbeth Verharen, and Petri Embregts. 2020. Support needs of parents with intellectual disabilities: Systematic review on the perceptions of parents and professionals. Journal of Intellectual Disabilities 24: 559–83. [Google Scholar] [CrossRef]
- Lightfoot, Elizabeth, Katharine Hill, and Traci LaLiberte. 2011. Prevalence of children with disabilities in the child welfare system and out-of-home placement: An examination of administrative records. Children and Youth Services Review 33: 2069–75. [Google Scholar] [CrossRef]
- Lipsky, Michael. 1980. Street-Level Bureaucracy: Dilemmas of the Individual in Public Services. New York: Russell Sage Foundation. [Google Scholar]
- Llewellyn, Gwynnyth, David McConnell, and Luisa Ferronato. 2003. Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse, and Neglect 27: 235–51. [Google Scholar] [CrossRef] [PubMed]
- Llewellyn, Gwynnyth, Rannveig Traustadottir, David McConnell, and Hanna Bjorg Sigurjonsdottir. 2010. Parents with Intellectual Disabilities: Past, Present, and Future. Hoboken: John Wiley & Sons. [Google Scholar]
- Madigan, Sheri, Raela Thiemann, Audrey-Ann Deneault, R. M. Pasco Fearon, Nicole Racine, Julianna Park, Carole A. Lunney, Gina Dimitropoulos, Serena Jenkins, Tyler Williamson, and et al. 2025. Prevalence of Adverse Childhood Experiences in Child Population Samples: A Systematic Review and Meta-Analysis. JAMA Pediatrics 179: 19–33. [Google Scholar] [CrossRef]
- McConnell, David, and Gwynnyth Llewellyn. 2002. Stereotypes, parents with intellectual disability, and child protection. Journal of Social Welfare and Family Law 24: 297–317. [Google Scholar] [CrossRef]
- McConnell, David, Marjorie Aunos, Laura Pacheco, Amber Savage, Lyndsay Hahn, and Maurice Feldman. 2021. Screening for parental intellectual disability: A first step in planning and delivering equitable support services? Journal of Family Social Work 24: 282–98. [Google Scholar] [CrossRef]
- McConnell, David, Mourice Feldman, Marjorie Aunos, and Narasimha Prasad. 2011. Parental cognitive impairment and child maltreatment in Canada. Child Abuse, and Neglect 35: 621–32. [Google Scholar] [CrossRef]
- McHugh, Elaine, and Mikaela Starke. 2020. Investigating the feasibility and fidelity of the Parenting Young Children Program in Sweden. Evaluation and Program Planning 80: 101702. [Google Scholar] [CrossRef]
- Molander, Anders. 2016. Discretion in the Welfare State. Abingdon: Taylor & Francis. [Google Scholar]
- Norlin, Jerry, and Eva Randell. 2022. Social workers’ perceptions of assessing the parental capacity of parents with intellectual disabilities in child protection investigations. Journal of Intellectual Disabilities 27: 976–93. [Google Scholar] [CrossRef] [PubMed]
- O’Brien, Bridget C., Ilene B. Harris, Thomas J. Beckman, Darcy A. Reed, and David A. Cook. 2014. Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine 89: 1245–51. [Google Scholar] [CrossRef]
- Rubin, Herbert J., and Irene S. Rubin. 2012. Qualitative Interviewing: The Art of Hearing Data, 2nd ed. Thousand Oaks: SAGE Publications, Inc. [Google Scholar]
- Sigurjónsdóttir, Hanna Björg, and James Gordon Rice. 2017. “Framed”: Terminating the parenting rights of parents with intellectual disability in Iceland. Journal of Applied Research in Intellectual Disabilities 30: 543–52. [Google Scholar] [CrossRef] [PubMed]
- Slayter, Elspeth M., and Jordan Jensen. 2019. Parents with intellectual disabilities in the child protection system. Children and Youth Services Review 98: 297–304. [Google Scholar] [CrossRef]
- Tøssebro, Jan, Turid Midjo, Veronika Paulsen, and Berit Berg. 2014. Parents with Cognitive Difficulties—Prevalence and Challenges. Research Report. Oslo: NTNU Social Research. [Google Scholar]
- Tøssebro, Jan, Turid Midjo, Veronika Paulsen, and Berit Berg. 2017. Prevalence, Trends, and Custody Among Children of Parents with Intellectual Disabilities in Norway. Journal of Applied Research in Intellectual Disabilities 30: 533–42. [Google Scholar] [CrossRef]
- Wade, Cathrine, Gwynnyth Llewellyn, and James Matthews. 2008. Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disability 21: 351–66. [Google Scholar] [CrossRef]
- Zeitlin, Wendy, Astraea Augsberger, Trupti Rao, Danielle Weisberg, and Noor Toraif. 2020. Measuring Parenting Skills: Validating the Skills Assessment for Parents with Intellectual Disability. Journal of Evidence-Based Social Work 18: 235–48. [Google Scholar] [CrossRef] [PubMed]
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Gerdts-Andresen, T.; Hegdahl-Galterudhøgda, A. Identifying Parents with Cognitive Difficulties: How Child Welfare Services Enable Timely and Appropriate Support. Soc. Sci. 2025, 14, 625. https://doi.org/10.3390/socsci14110625
Gerdts-Andresen T, Hegdahl-Galterudhøgda A. Identifying Parents with Cognitive Difficulties: How Child Welfare Services Enable Timely and Appropriate Support. Social Sciences. 2025; 14(11):625. https://doi.org/10.3390/socsci14110625
Chicago/Turabian StyleGerdts-Andresen, Tina, and Anita Hegdahl-Galterudhøgda. 2025. "Identifying Parents with Cognitive Difficulties: How Child Welfare Services Enable Timely and Appropriate Support" Social Sciences 14, no. 11: 625. https://doi.org/10.3390/socsci14110625
APA StyleGerdts-Andresen, T., & Hegdahl-Galterudhøgda, A. (2025). Identifying Parents with Cognitive Difficulties: How Child Welfare Services Enable Timely and Appropriate Support. Social Sciences, 14(11), 625. https://doi.org/10.3390/socsci14110625

