Physiotherapy Intervention for Promoting Comfort in Palliative Care Patients: A Focus Group Study
Simple Summary
Abstract
1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. Study Setting, Participants, and Recruitment
2.3. Data Collection
2.4. Ethical Aspects
2.5. Data Analysis
2.6. Trustworthiness
3. Results
3.1. Sample Description
3.2. Themes and Subthemes
3.2.1. Challenges
“The challenge is integrating physiotherapy into the hospital care plan. Many still see our role solely in terms of rehabilitation, not in symptom relief or comfort.”(FGIH-XY-4).
“One barrier is that professionals are unaware of the benefits physiotherapy can offer both patients and families. We need to build knowledge.”(FGIH-XY-5).
“We, as physiotherapists, need to demystify the idea of who a palliative patient is. We need to shift from the mindset of ‘there’s nothing to be done’ or that a simple mobilization is enough, I must actively seek knowledge. The notion that ‘there’s nothing to be done’ is wrong, but it still exists among teams and physiotherapists.”(FGHI-XX-7).
“We face the barrier (…) of not being integrated into the team in the same way as other professional groups.”(FGIH-XY-5).
“We can only begin an intervention if there’s a physician’s request. (…) That’s why having the physiotherapist integrated into the inpatient care team would be more beneficial for the patient. When physiotherapy is delivered sporadically, there is no opportunity for proper monitoring and follow-up.”(FGIH-XY-4).
“We must work towards becoming part of the PC team, but adequate training in undergraduate and advanced education makes all the difference.”(FGHI-XX-7).
“The teams are made up of physicians and nurses. Other professionals are called in to intervene with the patient based on specific needs. The level of knowledge about what physiotherapists can do may influence whether they are referred or not.”(FGIH-XY-4; FGIH-XX-7).
“(…) The biggest issue is the lack of palliative literacy among healthcare professionals. PC is not just end-of-life care, they have no idea how it works or what the benefits are (…) There’s a major problem with clinical community literacy.”(FGI-XX-6).
“(…) Unfortunately, many patients are still referred too late and arrive at the unit in their final days (…) While intervention is possible at end of life, ideally it should begin earlier. When patients arrive in such advanced stages, with uncontrolled pain, it’s hard to even approach them due to the level of distress.”(FGI-XX-6)
“Patients are referred by the team after an initial screening (…) when we are called in, it’s often for patients in their final hours (…) they arrive at the unit and end up passing away, leaving us with the feeling that much more could have been achieved.”(FGI-XX-3).
“(…) Although I’m not formally included in a PC team, I believe we should be in communication with them so we know what the common goal is, and that’s a challenge for us, and it doesn’t always happen.”(FGC-XX-2).
“(…) Of course, in this context, we have to assess the patient’s needs on a daily basis, understand their clinical status, and adapt the intervention accordingly. Exercise is what I use in a more standardized way, adjusted to the patient’s condition, but often the patient doesn’t recognize its importance. Working with the family becomes challenging (…) especially in managing family expectations. (…) Educating the family is essential, as it allows us to share our strategies with those who will be there, empowering them to support the patient’s needs.”(FG-XX-3; FGC-XX-4).
“The family should be both active participants in care and recipients of it.”(FGC-XX-2).
“(…) Spirituality (…) can provide great comfort to patients when they see that the person in front of them isn’t afraid to talk about the meaning of life, of death, of vulnerability, and we can show that we are open to that. It can be deeply comforting, and it’s much easier when done as a team.”(FGC-XX-2).
“Although I’m not formally integrated into a PC team, I believe we should be in closer communication with the team to understand the shared goals. That would make things less challenging for us.”(FGC-XX-2).
3.2.2. Diseases
“I can speak from my professional experience in a hospital context. More than half of the patients are oncology cases (…) then neurological conditions, heart failure, cases of organ failure, and COPD.”(FGIH-XY-6).
“The overwhelming majority of cases involved terminal cancer, as well as some neurological conditions, but most, if not all, were advanced, progressive, and incurable diseases in their terminal phase.”(FGIH-XY-4).
“Oncological cases, but also numerous ALS, strokes, and dementias.”(FGI-XX-7)
“A significant focus is on oncology, head, neck, brain (glioblastomas), lung, and breast cancers (…), as well as many cases of dementia (…) and situations of severe frailty. Then there are chronic conditions, (…) COPD (…) ALS and multiple sclerosis (…) extensive hemorrhagic strokes. These are individuals in a state of vulnerability, which may not be the official reason for admission, but is often the underlying cause.”(FGI-XY-4).
“In my practice, I mainly work with respiratory conditions such as COPD, respiratory failure, neurodegenerative diseases, and some terminal oncological cases (lung and breast cancer).”(FGC-XX-2).
“In my case, I mostly deal with dementia, neurodegenerative diseases, and terminal oncological conditions such as breast and lung cancer (…) COPD, as well as cardiac and respiratory failure.”(FGC-XX-5).
“Patients present with respiratory and palliative conditions and are very elderly.”(FGC-XX-2).
“Dementia and frailty are common among the older population, particularly the very elderly.”(FGC-XX-3).
3.2.3. Signs and Symptoms
“Pain, dyspnea, fatigue/asthenia (…) decreased mobility as both a sign and a symptom—these are the main reasons why the medical team refers patients to physiotherapy.”(FGIH-XY-6).
“I mostly work with oncological cases, but increasingly with organ failure—cardiac, pulmonary, hepatic, as well as neurological conditions and ALS. These situations lead to both respiratory and digestive difficulties.”(FGIH-XY-6).
“Lack of strength, reduced functional mobility, and balance impairment.”(FGI-XY-2).
“I’d like to add depression (…) it limits movement, and our role is to work towards achievable goals that restore hope, motivation, and comfort.”(FGC-XX-5).
“I’m not sure if this fits under the category of symptom (…) but what people really feel is hopelessness, experienced in a suffering body (…) it’s truly intense, leading to depression and discouragement. We need to address this by setting short-term goals that help the body feel more pleasurable to inhabit.”(FGC-XX-3).
“Lower limb edema can cause significant discomfort (…) we can intervene with massage (…) and help maintain balance.”(FGI-XX-8).
“(…) Patients feel distressed when they lose proper motor coordination (…) due to the resulting difficulties in daily living activities and changes in gait pattern. It leads to urinary incontinence, edema, and immobility.”(FGIH-XY-4).
3.2.4. Family and Caregivers
“I used to love doing sessions with the relatives present, I really did, even if just to get the patient to engage more or to carry out a more meaningful activity for them. Having the relatives there can make the sessions more interactive (…) the presence of family is a facilitator, not a barrier.”(FGIH-XX-3).
“(…) We need to provide training to the family, some relatives want to be fully involved in the care. I wish we had more family meetings with the team in my unit to better align expectations.”(FGI-XX-7).
“It’s not easy, but it’s a beautiful process (…) the family should be active in care, but also recipients of care themselves.”(FGC-XX-2).
3.2.5. Techniques
“It can be as simple as playing a favorite song to provide comfort, or adjusting the environment so the person can watch their favorite show comfortably, read a book, or sit by the window (…) simple things that are deeply meaningful to the patient, even if not strictly physiotherapy techniques.”(FGIH-XX-7).
“Positioning, relaxation techniques and music, therapeutic exercise, mobilization, lymphatic drainage (…) energy conservation techniques.”(GFIH-XX-3)
“I use therapeutic exercise with the patient, and I can also teach it to the caregivers. It’s helpful for physical reconditioning, encouraging the patient to engage in meaningful activities and maintain autonomy in daily tasks.”(FGIH-XX-4).
“Training for a specific activity, aligned with the person’s goals, what’s meaningful to them, activities involving movement that make sense.”(FGIH-XY-5).
“All of these techniques aim to relieve dyspnea. Non-invasive ventilation strategies aren’t meant to correct respiratory failure, but to reduce the work of breathing (…) airway clearance techniques are meant to provide comfort. Positioning is used to optimize ventilation and reduce dyspnea, contributing significantly to the patient’s comfort.”(FGIH-XY-5).
“Communication is crucial, especially with specific training in palliative care. The way we say things—or don’t say them—and how we use verbal and non-verbal communication has a huge impact. Communication can be an excellent tool, or it can become a weapon with a negative impact.”(FG-XY-6).
“We can have a significant positive impact on patients experiencing anxiety and uncontrolled dyspnea through relaxation techniques.”(FGI-XX-6).
“The real difference lies in what is meaningful to the person, being able to stand up to reach for something, or simply a movement while eating. A specific position or a massage, even something as basic as a touch (…) or strength training to relieve pain.”(FGI-XX-8; FGI-XX-3).
“Simple but highly effective, positioning makes a huge difference. Our physiotherapy perspective really matters (…). If discomfort is caused by constipation, sometimes just a bit of mobilization, a few active exercises, or gait training can bring immediate relief.”(FGI-XX-6; FGI-XX-4).
“I believe every technique available to us can be applied in palliative care, depending on the patient’s goals and to alleviate symptoms—TENS, pressotherapy, bandaging, drainage… whatever we can use. Even strength training can help relieve pain.”(FGI-XX-3).
“Respiratory symptoms go beyond dyspnea, they include bronchial obstructions and other causes (…) I deal mostly with anxiety-driven dyspnea, but respiratory infections and aspiration pneumonia are the most common situations I intervene in.”(FGI-XX-6; FGI-XX-7).
“We have a distinct sensitivity when it comes to comfort, when there’s hopelessness or a lack of meaning, that’s where we step in (…) and we often do it through communication, which is our tool.”(FGI-XX-5).
“Listening is what matters. I’ve had interventions where I never physically touched the patient but spent an entire hour just listening to what they needed to share in that moment (…) and that, to me, is a valid and meaningful intervention.”(FGI-XX-4).
“Massage has had transcendent effects. I try to create the most relaxing environment possible, and the touch is compassionate—it’s about presence and intention.”(FGC-XX-3).
“For obvious reasons, dyspnea control. When someone is breathless, there is no comfort.”(FGC-XX-2).
“The goal remains to provide comfort to the patient, even if it’s just a change in position. Movement brings comfort (…) just the fact that mobility exists.”(FGC-XX-2; FGC-XX-3).
“I use more organic movements, often incorporating music and dance, dance as an expression of natural movement (…) the person may start with assisted dancing, then they begin to lead the movement themselves. This can be done lying down or standing. I use a lot of relaxing music (…) relaxation really helps with fatigue and pain.”(FGC-XX-3).
“When applied with precision and sensitivity, manual lymphatic drainage not only reduces edema and improves circulation, but also provides comfort and well-being, it’s an essential technique in palliative care.”(FGC-XX-2).
“Families should be integrated into care, as active participants in caregiving, but also as recipients of support, because caregivers often need care themselves.”(FGC-XX-4).
3.2.6. Equipment and Materials
“In terms of equipment, there wasn’t much, only what I could bring with me to the hospital room: sticks, pedal exercisers, dumbbells, balls.”(FGIH-XY-7).
“Spinal orthoses, in cases of bone tumors with bone stabilization, for example, are the most frequently used (…) when there is distal neurological dysfunction, they are also used occasionally (…) to maintain a specific position when there is associated pain.”(FGIH-XY-5; FGIH-XY-6).
“(…) Devices we have to assist with positioning (…) positioning cushions, silicone pieces that contribute significantly to ventilation management (…) equipment for secretion removal.”(FGIH-XY-5).
“We use walking aids and orthoses, these tools help provide some comfort and improve quality of life; it’s a multifactorial and individualized response.”(GFIH-XY-6).
“We rely on mechanical, electrical, and thermal devices such as TENS (…). We use weights, sticks, walking aids, creams, balls, positioning devices, oximeters, pedal exercisers (…) walking aids, ankle weights, free weights, sticks, balls, and hands.”(FGI-XX-3; FGI-XX-7; FGI-XX-8).
“If I had to name the materials I use the most… probably those related to respiratory care, like oximeters and stethoscopes. I also love working with pedal exercisers, and patients usually respond well. I often use resistance tools like weights or elastic bands, though normally I just adapt to the surrounding environment.”(FGI-XX-6).
“In my practice, I rely heavily on my hands (manual therapy). I use TENS, balls, weights, bands, heat and cold therapies, and compression devices.”(FGC-XX-4).
“In respiratory care, I use devices for cough assistance, bronchial clearance, ventilatory support, and some strength training tools.”(FGC-XX-2).
“What I use the most is music, my speaker is my real working instrument, in addition to my hands.”(FGC-XX-3).
3.2.7. Format
“I work on the wards, and I have to take care to ensure personal protection and privacy, cover the patient with a sheet, understand how the patient is feeling, whether they’re comfortable or not (…) we have to find the right balance to achieve gains.”(FGIH-XY-4).
“I think daily assessment is essential in these patients, and our intervention depends on that. (…) So, we have to strike that balance to achieve gains, maintain the patient’s quality of life, and keep them motivated.”(FGIH-XY-7).
“(…) The most important thing is symptom management (…) ensuring the patient’s comfort. If the intervention doesn’t align with that, we may need to reassess and quickly decide whether to stop or try something else.”(FGIH-XY-5).
“I prefer to ensure personal protection and privacy, (…) it´s almost impossible to be worried with the dosage”(FGIH-XY-4)
“There are no standard formulas. We ensure comfort and symptom control through a plan that reflects what is meaningful to the patient in that moment. (…) One day the patient may be doing great, the next day terribly. One day they manage an excellent walking session and then spend a week unable to move. (…) It’s about applying the evidence from other areas and adapting it to the specific reality of each patient, being sensible.”(FGI-XX-6).
“The frequency, the amount, I believe it’s a balance between what is meaningful for the person and how many sessions are needed to achieve what they need, or the time involved. It’s this link between two things: what they need and what matters to them. (…) A balance between these two, an exercise that requires a certain frequency to develop a specific skill.”(FGI-XX-8).
“The only non-pharmacological physiotherapy intervention I use that is dose-dependent is therapeutic exercise, in terms of both dosage and frequency according to patient needs.”(FGC-XX-5).
4. Discussion
4.1. Strengths and Limitations of the Study
4.2. Implications of the Study
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
PC | Palliative Care |
WHO | World Health Organization |
EIHSCP | In-Hospital Palliative Care Support Teams |
ECSCP | Community Palliative Care Support Teams |
FG | Focus Group |
Appendix A. Interview Guide
References
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Themes | Subthemes | Central Aspect of Each Theme |
---|---|---|
Challenges | Personal barriers | The theme ‘Challenges’ relates to the barriers faced by professionals. The main barriers include knowledge and training, cultural resistance, underestimation of physiotherapy’s role, poor integration within healthcare teams and services, and the absence of supportive public and financial policies. |
Organizationalbarriers | ||
Healthcare system barriers | ||
Financial and policy barriers | ||
Diseases | (a) Oncological (b) Non-oncological | The theme ‘Diseases’ and its subthemes reflect the diversity of conditions treated in PC units, where physiotherapists provide comfort in both oncological and non-oncological pathologies. |
Signs and symptoms | Digestive Physical | The theme ‘Signs and symptoms’ and its subthemes encompass the main symptoms requiring intervention in PC units. Physiotherapists contribute to patient comfort by addressing a range of physical, respiratory, psychological, digestive, and other symptoms. |
Respiratory symptoms | ||
Psychological | ||
Physical | ||
Other | ||
Family and caregivers | Collaboration Integration Requests | The theme ‘Family and caregivers’ relates to their vital role in physiotherapy within PC units, including collaboration with teams and support in the care process. |
Techniques | Pain and mobility management | The theme ‘Techniques’ refers to physiotherapeutic strategies used to relieve signs and symptoms, maintain function, and promote comfort and well-being. |
Dyspnea relief and respiratory rehabilitation | ||
Maintenance of function and autonomy | ||
Promotion of well-being and overall comfort | ||
Equipment and materials | Mobility andexercise | The theme ‘Equipment and materials’ relates to all resources used by physiotherapists in comfort-focused interventions, adapted to the type of technique and intended use. |
Positioning | ||
Respiratorytherapies andmonitoring | ||
Electrotherapy andthermotherapy | ||
Complementarytherapies | ||
Format | Setting Frequency Duration Dosage | The theme ‘Format’ refers to how physiotherapy interventions for comfort are delivered, including the care setting, session frequency, duration, and dosage. |
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Domingos, D.F.d.S.; Querido, A.; Pedrosa, V.V. Physiotherapy Intervention for Promoting Comfort in Palliative Care Patients: A Focus Group Study. Cancers 2025, 17, 2167. https://doi.org/10.3390/cancers17132167
Domingos DFdS, Querido A, Pedrosa VV. Physiotherapy Intervention for Promoting Comfort in Palliative Care Patients: A Focus Group Study. Cancers. 2025; 17(13):2167. https://doi.org/10.3390/cancers17132167
Chicago/Turabian StyleDomingos, Daniela Filipa dos Santos, Ana Querido, and Vanda Varela Pedrosa. 2025. "Physiotherapy Intervention for Promoting Comfort in Palliative Care Patients: A Focus Group Study" Cancers 17, no. 13: 2167. https://doi.org/10.3390/cancers17132167
APA StyleDomingos, D. F. d. S., Querido, A., & Pedrosa, V. V. (2025). Physiotherapy Intervention for Promoting Comfort in Palliative Care Patients: A Focus Group Study. Cancers, 17(13), 2167. https://doi.org/10.3390/cancers17132167