Employed Caregivers’ Perceptions of Environmental Influences in Residential Dementia Care: A Qualitative Meta-Synthesis
Abstract
:1. Introduction
2. Methods
2.1. Research Paradigm
2.2. Context
2.3. Eligibility Criteria
2.4. Search and Sample Strategy
2.5. Ethical Issues Pertaining to Human Subjects
2.6. Data Collection Process
2.7. Information Sources
2.8. Selection Process
2.9. Data Extraction
2.10. Data Analysis and Synthesis
2.11. Trustworthiness and Risk of Bias
2.12. Reflexivity
3. Results
3.1. Results of Screening
3.2. Units of Study
3.3. Quality Appraisal
3.4. Theme Development
3.5. Synthesis and Interpretation
3.5.1. Working Environment: Informed Understanding
Therapeutic Optimism
Comprehending the Job Role
Competence and Confidence
Awareness of Training Needs
Strengthening Job Role Awareness in Practice
3.5.2. Lived Environment: Resistance to Change: Stability and Clarity
Cultural Backgrounds and Stigma
Managing Safety Risks
Moral Distress in Dementia Care
3.5.3. Physical and Built Environment: Impact on Overall Care Experience
Physical Environment and Quality of Life
Building and Interior Design
4. Discussion
5. Implications for Practice and Research
6. Strengths and Limitations
7. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Public Involvement Statement
Guidelines and Standards Statement
Use of Artificial Intelligence
Acknowledgments
Conflicts of Interest
Appendix A
Data Base | PubMed | CINALH | PsycINFO |
Search Terms | ((((((“residential home”[Text Word]) OR (“nursing home”[Text Word])) OR (“residential facilities”[MeSH Major Topic])) OR (“housing for the elderly”[MeSH Major Topic])) AND ((((“dementia”[MeSH Major Topic]) OR (“alzheimer disease”[MeSH Major Topic])) OR (dementia[Text Word])) OR (Alzheimer’s[Text Word]))) AND (((experiences[Text Word]) OR (attitudes[Text Word])) OR (perspectives[Text Word]))) AND (((((((((caregiver*[Text Word]) OR (nurs*[Text Word])) OR (matron[Text Word])) OR (therapist[Text Word])) OR (Manager[Text Word])) OR (“health professional”[Text Word])) OR (“care provider”[Text Word])) OR (“care professional”[Text Word])) OR (“caregivers”[MeSH Major Topic]))) AND (((“qualitative research”[MeSH Major Topic]) OR (interview*[Text Word])) OR (finding*[Text Word]) | ((MH “Nursing Homes/EI/OG/PF/ST”) OR (MH “Home Health Aides/OG/PF/EV/EI”) OR (MH “Nursing Home Patients/PF/EI”) OR “(“residential home”) OR (“nursing home) OR (“residential facilities”) OR (“housing for the elderly”)) AND ((“dementia”) OR (“alzheimer disease”) OR (dementia) OR (Alzheimer’s)) AND ((experiences) OR (attitudes) OR (perspectives)) AND ((caregiver*) OR (nurs*) OR (matron) OR (therapist) OR (Manager) OR (“health professional”) OR (“care provider”) OR (“care professional”) OR (“caregivers”)) AND ((“qualitative research”) OR (interview*) OR (finding*)) AND ((MH “Home Care Equipment and Supplies/OG/EI/ST”) OR (MH “Residential Care”) OR (MH “Caregiver Attitudes”) OR (MH “Housing for Older Persons”) OR (MH “Nursing Home Design and Construction/PF/ES/EI”) OR (MH “Residential Facilities”) OR (MH “Professional-Client Relations”) OR (MH “Professional Practice, Research-Based”) OR (MH “Caregiver Burden”) OR (MH “Home Safety”) OR (MH “Caregiver Emotional Health (Iowa NOC)”) OR (MH “Caregiver Physical Health (Iowa NOC)”) OR (MH “Health Care Delivery”)) | (residential home* OR nursing home* OR residential facilit* OR “housing for the elderly” OR Care home* OR acute care unit*) AND (dementia OR Alzheimer*) AND (caregiver* OR nurs* OR matron* OR therapist* OR Manager* OR “health professional*” OR “healthcare professional*” OR “care provider*” OR “care professional*” OR “caregiver*” OR Care Assistant*) AND (experience* OR attitude* OR perspective* OR view*) AND (qualitative OR interview*) AND la.exact(“English”) AND PEER(yes) |
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Framework | Inclusion Criteria | Exclusion Criteria |
---|---|---|
S | Nursing and allied health and social care employees in residential dementia care homes, such as unit managers, health care assistants, nursing assistants, and nurses. Inclusive of both male and female participants aged 18+ with at least 12+ months experience. There were no restrictions on the country of origin to ensure cultural sensitivity and applicability across diverse settings, identifying gaps in research by considering countries with national dementia plans [17]. | Retired staff Less than 12 months experience |
PI | Employed Caregivers’ perceptions and experiences of the environment’s influence on dementia care practice. | Exclusion criteria involved studies that did not report experiences related to the environment in dementia care. |
D | This study included qualitative approaches such as interview data, focusing on peer-reviewed, empirical studies published between 2009 and 2024. This time frame accounts for significant socio-economic events like the financial crisis of 2007–2009 and the COVID-19 pandemic, which impacted dementia care environments. These socio-economic shifts influenced funding, resources, and care practices. Therefore, urging adaptive and sustainable care models, making studies from this period particularly relevant. Research prior to 2009 may not reflect these key shifts. | Statistical data |
E | Qualitative Data and Findings Interview data | |
R | Qualitative Research | Solely Quantitative Studies |
Author and Year of Publication | Country | Study Aims | Methods of Data Collection and Analysis | Themes Found | Key Findings |
---|---|---|---|---|---|
Ref. [21] Booi, L., Sixsmith, J., Chaudhury, H., O’Connor, D., Young, M., & Sixsmith, A. (2021). | Canada | To gain insight into the everyday realities facing care aides working in long-term residential care and how they perceive society. | A qualitative ethnographic case study Semi-structured interviews Thematic Analysis | Lack of training Support Appreciation care aides felt about their role | Highlights societal ageism, gendered body care work, and the tension between relational connections needing time and economic profit. |
Ref. [22] Brannelly, T., Gilmour, J. A., O’Reilly, H., Leighton, M., & Woodford, A. (2019). | UK | To explore the experiences of care support and family members on the impact of a new care approach in a specialised unit as it shifted to an inclusive model. | Qualitative thematic approach Focus Groups Thematic Analysis | Personalised care for people with dementia. Family involvement Continuing to care Staff competence Confidence to care | Participants identified effective working methods that benefited both staff and families and reported improved well-being for individuals with dementia in the unit. |
Ref. [23] Chaudhury, H., Hung, L., Rust, T., & Wu, S. (2016). | Canada | To examine the impact of environmental renovations in dining spaces of a long-term care facility on residents’ mealtime experience and staff practice in two care units. | Ethnographic observations. Staff Survey Observational Data | Autonomy Personal control Comfort of homelike environment Conducive to social interaction increased personal support. effective teamwork | Physical environmental renovations yield positive outcomes for both residents and staff, additionally facilitating improved person-centred care for all involved. |
Ref. [24] De Boer, B., Hamers, J. P., Zwakhalen, S. M., Tan, F. E., Beerens, H. C., & Verbeek, H. (2019). | Netherlands | To explore from the perspectives of the informal caregivers of people with dementia, the positive and negative experiences with diverse types of nursing homes. | Semi-structured interviews Exploratory research design Thematic Analysis Phenomenological approach | Experiences with the care environment. The physical environment and atmosphere Activities Person-centred care Communication Staff | The experiences of caregivers in nursing homes vary based on the specific nursing home and the individual nursing staff. |
Ref. [25] Garcia, L. J., Hébert, M., Kozak, J., et al. (2012) | Canada | To explore the perceptions of family and staff members on the potential contribution of environmental factors that influence disruptive behaviours and quality of life of residents with dementia living in long-term care homes. | Qualitative Focus groups | Facility, staffing, and resident factors to consider when creating optimal environments. Human environments were seen as more important than physical environments, and flexibility was judged essential. Noise was identified as one of the most crucial factors influencing behaviour and quality of life of residents | Mnemonic for key environmental factors (CAREFUL): consistency, approach, staff-to-resident ratio, environmental design, flexibility, understanding, and noise level. |
Ref. [26] Kadri, A., Rapaport, P., Livingston, G., Cooper, C., Robertson, S., & Higgs, P. (2018). | UK | To explore how the personhood of paid carers of people with dementia can be understood by focussing on the views and experiences of care home staff. | Secondary Qualitative Analysis Interviews | Delivering PCC: issues related to dementia. Issues relating to organisation. Identity of care staff. Views of care role. | Oversight of care staff can turn care work into mere tasks, lower self-efficacy, and obstruct individual-centred care. Many care staff are not recognised individually by their employers, and the moral aspects of formal care work often go unacknowledged. |
Ref. [27] Killett, A., Burns, D., Kelly, F., Brooker, D., Bowes, A., La Fontaine, J., Latham, I., Wilson, M., & O’neill, M. (2014). | UK | What are the individual circumstances, organisational cultures, and practices most likely to encourage, or inhibit, the provision of high-quality care for older people living in residential and nursing homes? | Interviews Observations | 7 values, attitudes, and behaviours named. | Seven inter-related cultural elements were key to the importance of care quality. |
Ref. [28] Law, K., Patterson, T. G., & Muers, J. (2017). | UK | To explore the experiences of health care assistants working with people with dementia in UK residential care homes. | IPA Semi-structured interviews | The importance of relationships Something special about the role Personal commitment to the job The other side of caring | Staff should build strong, supportive relationships in their roles and have opportunities to explore their emotional responses to minimise negative effects on care provision. |
Ref. [29] Lee, S. Y., Chaudhury, H., & Hung, L. (2014). | Canada | To explored staff perceptions of the role of physical environment in dementia care facilities in affecting resident’s behaviours and staff care practice. | Focus groups | A supportive physical environment contributes positively to both quality of staff care interaction and residents’ quality of life Unsupportive physical environments contribute negatively to residents’ quality of life and thereby make the work of staff more challenging | A staff collective view that comfort, familiarity, and an organised space were essential therapeutic resources for the well-being of residents. |
Ref. [30] Midtbust, M. H., Gjengedal, E., & Alnes, R. E. (2022). | Norway | To gain a deeper understanding of nursing staff members’ experiences of moral distress while providing palliative care for residents with severe dementia in long-term care facilities. | Qualitative descriptive design Thematic Analysis In-depth interviews | Experiences of moral distress in two types: Those in which nursing staff members felt pressured to provide futile end-of-life treatment. Those who felt that they had been prevented from providing necessary care and treatment | Moral distress often arises from institutional constraints like time limits, challenging priorities, and value conflicts. |
Ref. [31] Richards, K., D’Cruz, R., Harman, S., & Stagnitti, K. (2015). | Australia | To compare these two environments in rural Australia, and their. Influence on residents’ occupational engagement. | The residential environment impact survey Observations Interviews Thematic Analysis | Comfortable environment Roles and responsibilities Getting to know the resident. More stimulation can elicit increased engagement. The home-like experience. Environmental layout. | Research shows that non-traditional dementia facilities enhance occupational involvement, leading to positive outcomes. |
Ref. [32] Talbot, R., & Brewer, G. (2015). | UK | To address the paucity of research in this area, the present study examined care assistant experiences of dementia care in British long-term residential and nursing environments. | Semi-structured interviews IPA | Psychological wellbeing of the care assistant. Barriers to effective dementia care The dementia reality Organisational issues within the care environment | The benefits of the care dyad were noted, and the organisation’s role in causing burnout and depersonalisation was emphasised. |
Ref. [33] Van Zadelhoff, E., Verbeek, H., Widdershoven, G., van Rossum, E., & Abma, T. (2011). | Netherlands | To investigate experiences of residents, their family caregivers, and nursing staff in group living homes for older people with dementia and their perception of the care process. | Naturalist design Systematic participatory observations Semi-structured interviews | Residents Family Nursing Staff | Group living homes provide opportunities for individual care, meeting residents’ needs with increased attentiveness. This aligns with Tronto’s care ethical model phases of caring about and receiving care. However, tensions arise in taking responsibility and performing self-care, as not all residents and family members can or want to do so. |
Ref. [34] Verbeek, H., Zwakhalen, S. M., van Rossum, E., Kempen, G. I., & Hamers, J. P. (2011). | Netherlands | To gain an in-depth insight into the experiences of family caregivers and nursing staff with small-scale living facilities | Interviews Survey questionnaire | Family Caregivers Positive aspects of small-scale living facilities Experiences with care service delivery Homeliness in small-scall facilities. Nursing Staff Skills Negative aspects of small-scale facilities Positive aspects of working in a small-scale living facility. Negative aspects of working in a small-scale living facility. | Both family caregivers and staff reported positive experiences with small-scale living facilities, highlighting personal attention, resident involvement, and autonomy. However, barriers include nursing staff working alone much of the day. Family caregivers in these facilities were more satisfied than those in regular wards. |
Ref. [35] Van Hoof, J., Verbeek, H., Janssen, B. M., Eijkelenboom, A., Molony, S. L., Felix, E., Nieboer, K. A., Zwerts-Verhelst, E. L., Sijstermans, J. J., & Wouters, E. J. (2016). | Netherlands | To investigate the factors influencing the sense of home of older adults living in the nursing home from the perspective of residents, relatives, and care professionals. | Focus groups. Interviews Photography as a supportive tool | Building and interior design Eating and drinking Autonomy and control Involvement of residents Engagement with others and activities Quality of care Connection with nature and outdoors Coping Organisation and facilitative of care To matter | The sense of home for nursing home residents is influenced by building design, eating and drinking, autonomy and control, involvement of relatives and others, activities, and the quality of care. |
Author and Year of Publication | Q1 | Q2 | Q3 | Q4 | Q5 | Q6 | Q7 | Q8 | Q9 | Q10 | TOTAL |
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Ref. [21] Booi, L., Sixsmith, J., Chaudhury, H., O’Connor, D., Young, M., & Sixsmith, A. (2021). | Y | Y | Y | Y | Y | Y | Y | - | Y | Y | 9 |
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Working Environment: Informed Understanding The theme of the Working Environment: informed understanding has embraced and combined important practices/concepts in healthcare such as informed decision making and informed consent, etc. Working Environment: Informed understanding has a deeper meaning in that it values the idea that information is central to Employed Caregivers, with the level of understanding being the essential element required for a positive outcome in the work environment. For example, when an informed understanding is present, the following subthemes can be successfully implemented in practice. |
Therapeutic Optimism |
Comprehending the Job Role |
Competence and Confidence |
Awareness of Training Needs |
Strengthening Job Role Awareness in Practice |
Lived Environment: Resistance to Change: Stability and Clarity Resistance to change in daily life can be attributed to certain key experiences. Employed Caregivers need for stability and clarity is influenced by the following themes found in their daily encounters. These themes contributed to difficulties in maintaining stability and clarity in the lived environment. Regular occurrences of the following subthemes increased environmental pressure, which leads to stagnation in some areas and impacts the capacity for stability and clarity. |
Cultural Backgrounds and Stigma |
Managing Safety Risks |
Moral Distress in Dementia Care |
Physical and Built Environment: Impact on overall care experience Employed Caregivers saw how the physical environment affected their work performance, which in turn influenced the overall care experience. A well-designed physical and built environment not only enhanced quality of life for residents but supported Employed Caregivers in performing their duties more effectively. Consequently, the design and layout of a room changed both the quality of care provided and the well-being of the Employed Caregivers. |
Physical Environment and Quality of Life |
Building and Interior Design |
|
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Downes, M.N.; Hemingway, S.; Simkhada, B.; King, N.; Caress, A.-L. Employed Caregivers’ Perceptions of Environmental Influences in Residential Dementia Care: A Qualitative Meta-Synthesis. Nurs. Rep. 2025, 15, 183. https://doi.org/10.3390/nursrep15060183
Downes MN, Hemingway S, Simkhada B, King N, Caress A-L. Employed Caregivers’ Perceptions of Environmental Influences in Residential Dementia Care: A Qualitative Meta-Synthesis. Nursing Reports. 2025; 15(6):183. https://doi.org/10.3390/nursrep15060183
Chicago/Turabian StyleDownes, Megan Nicola, Steve Hemingway, Bibha Simkhada, Nigel King, and Ann-Louise Caress. 2025. "Employed Caregivers’ Perceptions of Environmental Influences in Residential Dementia Care: A Qualitative Meta-Synthesis" Nursing Reports 15, no. 6: 183. https://doi.org/10.3390/nursrep15060183
APA StyleDownes, M. N., Hemingway, S., Simkhada, B., King, N., & Caress, A.-L. (2025). Employed Caregivers’ Perceptions of Environmental Influences in Residential Dementia Care: A Qualitative Meta-Synthesis. Nursing Reports, 15(6), 183. https://doi.org/10.3390/nursrep15060183