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Thalassemia Reports
Volume 3
Issue 1
10.4081/thal.2013.e2
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Thalassemia Reports is published by MDPI from Volume 12 Issue 1 (2022). Previous articles were published by another publisher in Open Access under a CC-BY (or CC-BY-NC-ND) licence, and they are hosted by MDPI on mdpi.com as a courtesy and upon agreement with PAGEPress.
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Article

Can the Availability of Unrestricted Financial Support Improve the Quality of Care of Thalassemics in a Center with Limited Resources? A Single Center Study from India

by
Prantar Chakrabarti
1,*,
Vinay Kumar Bohara
1,
Sudeshna Ray
2,
Siddhartha Sankar Ray
1,
Uttam Kumar Nath
1 and
Utpal Chaudhuri
1
1
Institute of Haematology and Transfusion Medicine, 3rd Floor MCH Building, Medical College, 88, College Street, Kolkata 700073 India
2
All India Institute of Hygiene and Public Health, Kolkata 700098, India
*
Author to whom correspondence should be addressed.
Thalass. Rep. 2013, 3(1), e2; https://doi.org/10.4081/thal.2013.e2
Submission received: 3 September 2012 / Revised: 1 December 2012 / Accepted: 7 December 2012 / Published: 14 December 2012

Abstract

Comprehensive management of thalassemia demands a multidisciplinary approach, sufficient financial resources, carefully developed expertise of the care givers, as well as significant compliance on the patients’ part. Studies exploring the utility of unrestricted financing within the existing infrastructure, for the management of thalassemia, particularly in the context of a developing country, are scarce. This study aimed to assess the impact of sponsored comprehensive care compared to the routine care of thalassemics provided at Institute of Haematology and Transfusion Medicine, Kolkata, India. Two hundred and twenty patients were selected for the study and distributed in two arms. Regular monthly follow up was done including a Health Related Quality of Life (HRQoL) assessment with SF 36 v2 (validated Bengali version). Patients receiving sponsored comprehensive care showed a significant improvement in the mean hemoglobin levels and decrease in mean ferritin. HRQoL assessment revealed a better score in the physical domain though the mental health domain score was not significantly better at nine months. Unrestricted financial support in the form of comprehensive care has a positive impact on the thalassemia patients in a developing country not only in terms of clinical parameters but also in health related quality of life.
Keywords: thalassemia; financial; chelation; quality of life; SF 36 v2 thalassemia; financial; chelation; quality of life; SF 36 v2

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MDPI and ACS Style

Chakrabarti, P.; Bohara, V.K.; Ray, S.; Ray, S.S.; Nath, U.K.; Chaudhuri, U. Can the Availability of Unrestricted Financial Support Improve the Quality of Care of Thalassemics in a Center with Limited Resources? A Single Center Study from India. Thalass. Rep. 2013, 3, e2. https://doi.org/10.4081/thal.2013.e2

AMA Style

Chakrabarti P, Bohara VK, Ray S, Ray SS, Nath UK, Chaudhuri U. Can the Availability of Unrestricted Financial Support Improve the Quality of Care of Thalassemics in a Center with Limited Resources? A Single Center Study from India. Thalassemia Reports. 2013; 3(1):e2. https://doi.org/10.4081/thal.2013.e2

Chicago/Turabian Style

Chakrabarti, Prantar, Vinay Kumar Bohara, Sudeshna Ray, Siddhartha Sankar Ray, Uttam Kumar Nath, and Utpal Chaudhuri. 2013. "Can the Availability of Unrestricted Financial Support Improve the Quality of Care of Thalassemics in a Center with Limited Resources? A Single Center Study from India" Thalassemia Reports 3, no. 1: e2. https://doi.org/10.4081/thal.2013.e2

APA Style

Chakrabarti, P., Bohara, V. K., Ray, S., Ray, S. S., Nath, U. K., & Chaudhuri, U. (2013). Can the Availability of Unrestricted Financial Support Improve the Quality of Care of Thalassemics in a Center with Limited Resources? A Single Center Study from India. Thalassemia Reports, 3(1), e2. https://doi.org/10.4081/thal.2013.e2

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