Fostering Collective Approaches in Supporting Perinatal Mental Healthcare Access for Migrant Women: A Participatory Health Research Study
Abstract
:1. Introduction
2. Research Methods
2.1. Research Design and Methodology
2.2. Sampling and Participants
2.3. Data Collection
2.4. Data Analysis
3. Results
3.1. Building Capability and Capacity
3.1.1. Enhancing Education and Training
Professional development for people working in the area and utilising key stakeholders(Online World Café 2).
Professionals need to be understanding of cultural difference as without understanding they can’t support(Online World Café 1).
There is a need to be aware of differing cultural practices around perinatal and postnatal care and respect for cultural norms in a scientific way for better outcomes(Online World Café 1).
Not having the information for nurses about us, about our concerns and what we might need as refugees. It was surprising for me that they didn’t know about me and made assumptions. In my home country there is a mental health stigma; whereas here it isn’t…you mention Mental Health and we don’t speak anymore(Online World Café 3).
I was asked about my mental health at every check-up and every call(Online World Café 3).
Trauma informed approach to care- women who have been through migration and associated trauma. Utilising a trauma informed approach to perinatal mental healthcare care has helped women to situate their experience within the context of that trauma and knowledge of this can provide relief(Online World Café 3).
3.1.2. Cultivating Cross Agency Networking and Collaborative Working
A lot of people are falling through the gaps or {have the} potential to fall through the gaps(Online World Café 1).
The importance of sharing and defining what our roles are and informing people what each service provides and we can all be very protective of our own areas. We need to share more—there is a need for better interprofessional communication and sharing of expertise. We must not work in our silos anymore(Online World Café 3).
Collective approach to perinatal mental health is needed and being more aware of the services that are available so I can refer women to these services(Online World Café 1).
Create greater awareness among organisations of the need to support migrant women around the types of supports available and how to access them(Online World Café 2).
3.1.3. Fostering Authentic Engagement
People owning the challenges and difficulties rebuilding the relationship and being present for the individual—people have lost trust from their origin countries so building that authenticity is essential (there are always system problems and things don’t always go to plan) but you are there to support them is important and that you can listen. Many healthcare professionals are trained ‘to do’ and not just ‘to listen’ or to confront delays and inaction in the system(Online World Café 2).
Human connection—not just information and skills—attachment dynamic between someone in distress and someone responding to the woman’s distress works(Online World Café 3).
Relationships with medical authorities can be daunting(Online World Café 3).
Health care professionals only meet women for a quick snapshot—little time to spend time dialoguing with women—we need more time for health care professionals to spend time with women. Health care professionals don’t have a relationship with migrant women—so they need to be aware of the need to assess migrant women and give time and give support(Online World Café 1).
People can slip through the cracks when an interpreter should have been used but was not. The person ends up being much sicker(Online World Café 3).
The interpreter needs to have a background in the woman’s culture. Emotional distress can get lost in translation. Support for the interpreter(Online World Café 3).
3.2. Empowering Migrant Women
3.2.1. Raising Awareness among Migrant Women
The challenge for women to present themselves and the need for support and education and awareness of supports and services. The need for healthcare professionals to educate and inform women about services and supports(Online World Café 3).
Helping women to support themselves, their wellbeing and mental health and {encouraging engagement with} wellbeing support groups is essential. Building capacity with women to help access support, reaching out to the communities and social prescribing(Online World Café 3).
Translated information on perinatal mental health conditions, symptoms, accessing services specific for different cultural needs and the information {should be} developed with migrant women for migrant women(Online World Café 1).
The need for information leaflets but these need to be in different languages to avoid language barriers(Online World Café 3).
Use of videos and social media(Online World Café 1).
3.2.2. Guidance on Navigating Services
We are overwhelmed(Online World Café 3)
A lot of people support different things… it is complicated! A directory to navigate would be helpful(Online World Café 2).
The need for awareness and the need for somebody to talk to—the need for healthcare professionals to work more in community—have workshops and information to educate women on services and supports so they are more aware—inter-relations with people living in direct provision the need for outreach(Online World Café 3).
The need for awareness of supports but also how can we encourage access and engagement and how can we ensure appropriate care. How are services being communicated and having processes in place to support. It is not enough to just have the services, we need more touch points and services needs to be so supportive—what is said needs to be communicated effectively(Online World Café 2).
No ideas how to access healthcare services(Online World Café 1).
When we need help you often don’t know who to contact or what help you need. We need to share a database of supports available. The majority of women don’t know of the services that are available. Women are not aware of the services or who to ask for help and how to access the help. There is a need for a directory of what services are available(Online World Café 3).
We need to create flyers/posters and information so migrant women know where to access and understand how to access support and services for perinatal mental illness(Online World Café 2).
3.2.3. Nurturing Networking Opportunities and Peer Community Supports
Peer support is important where women have opportunities to share perspectives and experiences with women from different cultures—this social support is important and provides social networks outside of healthcare professionals(Online World Café 3).
Because of language barrier 4 weeks after delivery and started to experience psychosis and reached out to a preacher(Online World Café 1).
Informal care can’t be overemphasized…when people feel comfortable to talk at that point(World Café 3).
4. Discussion
5. Strengths and Limitations
6. Recommendations for Practice
7. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Howard, L.; Khalifeh, H. Perinatal mental health: A review of progress and challenges. World Psychiatry 2020, 19, 313–327. [Google Scholar] [CrossRef]
- Fawcett, E.J.; Fairbrother, N.; Cox, M.L.; White, I.R.; Fawcett, J.M. The prevalence of anxiety disorders during pregnancy and the postpartum period: A multivariate Bayesian meta-analysis. J. Clin. Psychiatry 2019, 80, 18r12527. [Google Scholar] [CrossRef] [PubMed]
- Stein, A.; Pearson, R.M.; Goodman, S.H.; Rapa, E.; Rahman, A.; McCallum, M.; Howard, L.M.; Pariante, C.M. Effects of perinatal mental disorders on the fetus and child. Lancet 2014, 384, 1800–1819. [Google Scholar] [CrossRef]
- Anderson, F.M.; Hatch, S.L.; Comacchio, C.; Howard, L.M. Prevalence and risk of mental disorders in the perinatal period among migrant women: A systematic review and meta-analysis. Arch. Womens Ment. Health 2017, 20, 449–462. [Google Scholar] [CrossRef] [Green Version]
- Watson, H.; Harrop, D.; Walton, E.; Young, A.; Soltani, H. A systematic review of ethnic minority women’s experiences of perinatal mental health conditions and services in Europe. PLoS ONE 2019, 14, e0210587. [Google Scholar] [CrossRef] [PubMed]
- Fellmeth, G.; Plugge, E.; Faze, M.; Oo, M.M.; Pimanpanarak, M.; Phichitpadungtham, Y.; Wai, K.; Charunwatthana, P.; Simpson, J.A.; Nosten, F.; et al. Prevalence and determinants of perinatal depression among labour migrant and refugee women on the Thai-Myanmar border: A cohort study. BMC Psychiatry 2020, 20, 168. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Giscombe, T.; Hui, A.; Stickley, T. Perinatal mental health amongst refugee and asylum-seeking women in the UK. Ment. Health Rev. J. 2020, 25, 241–253. [Google Scholar] [CrossRef]
- International Organization for Migration (IOM). Who Is a Migrant? Glossary on Migration, IML Series No. 34. 2019. Available online: https://www.iom.int/who-migrant-0 (accessed on 24 October 2021).
- Fellmeth, G.; Fazel, M.; Plugge, E. Migration and perinatal mental health in women from low- and middle-income countries: A systematic review and meta-analysis. BJOG Int. J. Obstet. Gynaecol. 2017, 124, 742–752. [Google Scholar] [CrossRef]
- Schmied, V.; Black, E.; Naidoo, N.; Dahlen, H.G.; Liamputtong, P. Migrant women’s experiences, meanings and ways of dealing with postnatal depression: A meta-ethnographic study. PLoS ONE 2017, 12, e0172385. [Google Scholar] [CrossRef] [Green Version]
- Central Statistics Office Population and Migration Estimates. Available online: https://www.cso.ie/en/statistics/population/populationandmigrationestimates (accessed on 28 November 2021).
- HIQA Guidance on a Human Rights-Based Approach in Health and Social Care Services. Available online: https://www.hiqa.ie/sites/default/files/2019-11/Human-Rights-Based-Approach-Guide.PDF (accessed on 27 November 2021).
- Akidwa. Lets Talk Mental Health Experiences of Migrant Women. Available online: https://akidwa.ie/wp-content/uploads/2020/01/LetsTalk2.pdf (accessed on 27 November 2021).
- Huschke, S.; Murphy-Tighe, S.; Barry, M. Perinatal mental health in Ireland: A scoping review. Midwifery 2020, 89, 102763. [Google Scholar] [CrossRef]
- Higgins, A.; Downes, C.; Carroll, M.; Gill, A.; Monahan, M. There is more to perinatal mental health care than depression: Public health nurses reported engagement and competence in perinatal mental health care. J. Clin. Nurs. 2017, 27, e476–e487. [Google Scholar] [CrossRef] [Green Version]
- Noonan, M.; Jomeen, J.; Galvin, R.; Doody, O. Survey of Midwives’ perinatal mental health knowledge, confidence, attitudes and learning needs. Women Birth 2018, 31, e358–e366. [Google Scholar] [CrossRef] [PubMed]
- Carroll, M.; Downes, C.; Gill, A.; Monahan, M.; Nagle, U.; Madden, D.; Higgins, A. Knowledge, confidence, skills and practices among midwives in the republic of Ireland in relation to perinatal mental health care: The mind mothers study. Midwifery 2018, 64, 29–37. [Google Scholar] [CrossRef] [PubMed]
- Noonan, M.; Galvin, R.; Jomeen, J.; Doody, O. Public health nurses’ perinatal mental health training needs: A cross sectional survey. J. Adv. Nurs. 2019, 75, 2535–2547. [Google Scholar] [CrossRef] [Green Version]
- World Health Organization (WHO). EUR/RC66/8: Strategy and Action Plan for Refugee and Migrant Health in the WHO European Region. 2016. Available online: https://www.euro.who.int/__data/assets/pdf_file/0004/314725/66wd08e_MigrantHealthStrategyActionPlan_160424.pdf (accessed on 28 November 2021).
- Sweileh, W.M.; Wickramage, K.; Pottie, K.; Hui, C.; Roberts, B.; Sawalha, A.F.; Zyoud, S.H. Bibliometric analysis of global migration health research in peer-reviewed literature (2000–2016). BMC Public Health 2018, 18, 777. [Google Scholar] [CrossRef] [Green Version]
- Keygnaert, I.; Ivanova, O.; Guieu, A.; van Parys, A.-S.; Leye, E.; Roelens, K. What Is the Evidence on the Reduction of Inequalities in Accessibility and Quality of Maternal Health Care Delivery for Migrants? A Review of the Existing Evidence in the WHO European Region; WHO Regional Office for Europe: Copenhagen, Denmark, 2016. [Google Scholar]
- Herrera, E.A.; Mayo, C.A.; Larroca, S.G.-T. Maternal mortality among immigrant women in Europe and the USA: A Systematic Review. SN Compr. Clin. Med. 2020, 2, 16–24. [Google Scholar] [CrossRef] [Green Version]
- Heslehurst, N.; Brown, H.; Pemu, A.; Coleman, H.; Rankin, J. Perinatal health outcomes and care among asylum seekers and refugees: A systematic review of systematic reviews. BMC Med. 2018, 16, 89. [Google Scholar] [CrossRef] [PubMed]
- Sambrook Smith, M.; Lawrence, V.; Sadler, E.; Easter, A. Barriers to accessing mental health services for women with perinatal mental illness: Systematic review and meta-synthesis of qualitative studies in the UK. BMJ Open 2019, 9, e024803. [Google Scholar] [CrossRef]
- Fair, F.; Raben, L.; Watson, H.; Vivilaki, V.; van den Muijsenbergh, M.; Soltani, H. Migrant women’s experiences of pregnancy, childbirth, and maternity care in European countries: A systematic review. PLoS ONE 2020, 15, e0228378. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Rogers, H.; Hogan, L.; Homer, C.S.; Henry, A. Responding to the health needs of women from migrant and refugee backgrounds—Models of maternity and postpartum care in high-income countries: A systematic scoping review. Health Soc. Care Community 2020, 28, 1343–1365. [Google Scholar] [CrossRef] [Green Version]
- Roberts, B.; Murphy, A.; McKee, M. Europe’s collective failure to address the refugee crisis. Public Health Rev. 2016, 37, 1. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- van den Muijsenbergh, M.; LeMaster, J.; Shahiri, P.; Brouwer, M.; Hussain, M.; Dowrick, C.; Papadakaki, M.; Lionis, C.; MacFarlane, A. Participatory implementation research in the field of migrant health: Sustainable changes and ripple effects over time. Health Expect. 2020, 23, 306–317. [Google Scholar] [CrossRef] [Green Version]
- Roura, M.; Dias, S.; LeMaster, J.W.; MacFarlane, A. Participatory health research with migrants: Opportunities, challenges, and way forwards. Health Expect. 2021, 24, 188–197. [Google Scholar] [CrossRef]
- Brett, J.; Staniszewska, S.; Mockford, C.; Herron-Marx, S.; Hughes, J.; Tysall, C.; Suleman, R. Mapping the impact of patient and public involvement on health and social care research: A systematic review. Health Expect. 2014, 17, 637–650. [Google Scholar] [CrossRef]
- Muller, I.; Santer, M.; Morrison, L.; Morton, K.; Roberts, A.; Rice, C.; Williams, M.; Yardley, L. Combining qualitative research with PPI: Reflections on using the person-based approach for developing behavioural interventions. Res. Involv. Engagem. 2019, 5, 34. [Google Scholar] [CrossRef]
- Checkland, P. Soft systems methodology: A thirty-year retrospective. Syst. Res. Behav. Sci. 2000, 17, S11–S58. [Google Scholar] [CrossRef]
- Boaz, A.; Hanney, S.; Borst, R.; O’Shea, A.; Kok, M. How to engage stakeholders in research: Design principles to support improvement. Health Res. Policy Syst. 2018, 16, 60. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Brown, J.; Isaacs, D.; World Cafe Community. The World Café: Shaping Our Futures through Conversations That Matter; Berrett-Koehler: San Francisco, CA, USA, 2005. [Google Scholar]
- McFarlene, A.; Rose Galvin, R.; O’Sullivan, M.; McInerney, C.; Meagher, E.; Burke, D.; LeMaster, J.W. Participatory methods for research prioritization in primary care: An analysis of the World Café approach in Ireland and the USA. Fam. Pract. 2017, 34, 278–284. [Google Scholar] [CrossRef] [Green Version]
- Lohr, K.; Weinhardt, M.; Sieber, S. The “World Cafe” as a Participatory Method for Collecting Qualitative Data. Int. J. Qual. Methods 2020, 9, 1–15. [Google Scholar] [CrossRef]
- Pianesi, A.; Lenzo, A. The Art of Online Hosting: From PowerPoint to Powerful. Syst. Think. 2011, 22, 1–6. [Google Scholar]
- Braun, V.; Clarke, V. Thematic analysis. In APA Handbook of Research Methods in Psychology; Cooper, H., Camic, P.M., Long, D.L., Panter, A.T., Rindskopf, D., Sher, K.J., Eds.; American Psychological Association: Washington, DC, USA, 2012; Volume 2, pp. 57–71. [Google Scholar] [CrossRef]
- Pangasa, J.; Ogunsijia, O.; Elmira, R.; Ramanb, S.; Liamputtongd, P.; Burnsa, E.; Dahlena, H.G.; Schmieda, V. Refugee women’s experiences negotiating motherhood and maternity care in a new country: A meta-ethnographic review. Int. J. Nurs. Stud. 2019, 90, 31–45. [Google Scholar] [CrossRef]
- Noonan, M.; Doody, O.; Jomeen, J.; Galvin, R. Midwives’ perceptions and experiences of caring for women who experience perinatal mental health problems: An integrative review. Midwifery 2017, 45, 56–71. [Google Scholar] [CrossRef]
- Iliadou, M.; Papadakaki, M.; Sioti, E.; Giaxi, P.; Leontitsi, E.; Petelos, E.; van den Muijsenbergh, M.; Tziaferi, S.; Mastroyiannakis, A.; Vivilaki1, V.G. Addressing mental health issues among migrant and refugee pregnant women: A call for action. Eur. J. Midwifery 2019, 3, 9. [Google Scholar] [CrossRef] [PubMed]
- Viveiros, C.J.; Darling, E.K. Perceptions of barriers to accessing perinatal mental health care in midwifery: A scoping review. Midwifery 2019, 70, 106–118. [Google Scholar] [CrossRef] [PubMed]
- Jomeen, J. Psychological Context of Childbirth. In Mayes’ Midwifery, 15th ed.; Macdonald, S., Johnson, G., Eds.; Elsevier: Edinburgh, UK, 2017; pp. 186–199. [Google Scholar]
- Higgins, A.; Downes, C.; Monahan, M.; Gill, A.; Lamb, S.A.; Carroll, M. Barriers to midwives and nurses addressing mental health issues with women during the perinatal period: The Mind Mothers study. J. Clin. Nurs. 2018, 27, 1872–1883. [Google Scholar] [CrossRef] [Green Version]
- Sandall, J.; Soltani, H.; Gates, S.; Shennan, A.; Devane, D. Midwife-led continuity models versus other models of care for childbearing women. Cochrane Database Syst. Rev. 2016, 4. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Coates, D.; Foureur, M. The role and competence of midwives in supporting women with mental health concerns during the perinatal period: A scoping review. Health Soc. Care Community 2019, 27, e389–e405. [Google Scholar] [CrossRef] [Green Version]
- Villarroel, N.; Hannigan, A.; Severoni, S.; Puthoopparambil, S.; MacFarlane, A. Migrant health research in the Republic of Ireland: A scoping review. BMC Public Health 2019, 19, 324. [Google Scholar] [CrossRef]
- Ikhilor, P.O.; Hasenberg, G.; Kurth, E.; Asefaw, F.; Pehlke-Milde, J.; Cignacco, E. Communication barriers in maternity care of allophone migrants: Experiences of women, healthcare professionals, and intercultural interpreters. J. Adv. Nurs. 2019, 75, 2200–2210. [Google Scholar] [CrossRef] [PubMed]
- Fair, F.; Soltani, H.; Raben, L.; van Streun, Y.; Sioti, E.; Papadakaki, M.; Burke, C.; Watson, H.; Jokinen, M.; Shaw, E.; et al. Midwives’ experiences of cultural competency training and providing perinatal care for migrant women a mixed methods study: Operational Refugee and Migrant Maternal Approach (ORAMMA) project. BMC Pregnancy Childbirth 2021, 21, 340. [Google Scholar] [CrossRef]
- Sharma, E.; Howard, N.; Duclos, D. Navigating new lives: A scoping review and thematic synthesis of forced migrant women’s perinatal experiences. J. Migr. Health 2020, 1–2, 100014. [Google Scholar] [CrossRef] [PubMed]
- Rubin, M. Insiders’ versus ‘outsiders’: What difference does it really make? Singap. J. Trop. Geogr. 2012, 33, 303–307. [Google Scholar] [CrossRef]
- Burns, E.; Fenwick, J.; Schmied, V.; Sheehan, A. Reflexivity in midwifery research: The insider/outsider debate. Midwifery 2012, 28, 52–60. [Google Scholar] [CrossRef] [PubMed]
- International Collaboration for Participatory Health Research (ICPHR). Position Paper 1: What Is Participatory Health Research? Version: Mai 2013; International Collaboration for Participatory Health Research: Berlin, Germany; Available online: https://www.researchgate.net/publication/282808339 (accessed on 28 November 2021).
Gender | Age Range | Country of Origin | Background of Participants | Number of Years Living in Ireland | Experiences of Perinatal Mental Illness |
---|---|---|---|---|---|
Female (n − 46) Male (n − 6) | 22–29 (n − 4) 30–39 (n − 16) 40–49 (n − 26) 50–59 (n − 5) 60–65 (n − 1) | Nigeria (n − 4) Hungary (n − 1) Algeria (n − 1) China (n − 2) Ghana (n − 4) Thailand (n − 1) Somalia (n − 2) Poland (n − 2) Germany (n − 2) Albania (n − 1) Syria (n − 2) Zimbabwe (n − 2) Ireland (n − 28) | Migrant women living in Ireland (n − 12) Migrant men living in Ireland (n − 2) Representatives from NGO/community organisations that support migrant communities (n − 10) General nurse/midwife who work in hospital settings (n − 3) General nurse/midwife who work in community settings (n − 5) Perinatal mental health specialist midwives (n − 2) Mental health nurse who work in acute settings (n − 3) Social worker (n − 3) Healthcare professionals with a specific focus of supporting migrants in the community (n − 3) Community counsellors (n − 2) Linguistics/interpreter (n − 1) Doula (n − 1) Research, education, policy, practice interest (n − 5) | Up to 1 year (n − 1) 1–3 years (n − 8) 3–5 years (n − 9) Longer than 5 years (n − 34) | Personal experiences of perinatal mental illness (n − 11) Involved in supporting individuals experiencing perinatal mental illness (n − 16) Involved in caring for individuals experiencing perinatal mental illness (n − 22) No experience of perinatal mental illness or supporting/caring for an individual with perinatal mental illness (n − 3) |
Round 1 question | Share a story about when you have seen perinatal mental health services for migrant women work really well and truly be of support. |
Round 2 question | In the stories you shared and heard in the last round, what made the perinatal mental health services/supports for migrant women so effective? How might we build on those things going forward? |
Round 3 question | Building on what we have heard in the first two rounds, what is one step I/we might take to help bring these ideas into practice more often? |
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Markey, K.; Noonan, M.; Doody, O.; Tuohy, T.; Daly, T.; Regan, C.; O’Donnell, C. Fostering Collective Approaches in Supporting Perinatal Mental Healthcare Access for Migrant Women: A Participatory Health Research Study. Int. J. Environ. Res. Public Health 2022, 19, 1124. https://doi.org/10.3390/ijerph19031124
Markey K, Noonan M, Doody O, Tuohy T, Daly T, Regan C, O’Donnell C. Fostering Collective Approaches in Supporting Perinatal Mental Healthcare Access for Migrant Women: A Participatory Health Research Study. International Journal of Environmental Research and Public Health. 2022; 19(3):1124. https://doi.org/10.3390/ijerph19031124
Chicago/Turabian StyleMarkey, Kathleen, Maria Noonan, Owen Doody, Teresa Tuohy, Tony Daly, Ciara Regan, and Claire O’Donnell. 2022. "Fostering Collective Approaches in Supporting Perinatal Mental Healthcare Access for Migrant Women: A Participatory Health Research Study" International Journal of Environmental Research and Public Health 19, no. 3: 1124. https://doi.org/10.3390/ijerph19031124
APA StyleMarkey, K., Noonan, M., Doody, O., Tuohy, T., Daly, T., Regan, C., & O’Donnell, C. (2022). Fostering Collective Approaches in Supporting Perinatal Mental Healthcare Access for Migrant Women: A Participatory Health Research Study. International Journal of Environmental Research and Public Health, 19(3), 1124. https://doi.org/10.3390/ijerph19031124