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Article

Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers

Department of Pedagogy, Faculty of Education of Albacete, University of Castilla-La Mancha (UCLM), 02071 Albacete, Spain
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Academic Editors: Meredith Perry, Ally Calder and Tristram Ingham
Int. J. Environ. Res. Public Health 2022, 19(10), 6057; https://doi.org/10.3390/ijerph19106057
Received: 22 March 2022 / Revised: 6 May 2022 / Accepted: 12 May 2022 / Published: 16 May 2022
(This article belongs to the Special Issue Addressing Disability Inequities: Environments, Society and Wellbeing)
Background: Education plays a fundamental role in everyone’s wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. Methods: In this study we focus on how inclusive educational practice addresses students with rare diseases, looking at teachers’ knowledge and opinions in this regard. A questionnaire was administered to 574 teachers who taught in various stages of non-university education to determine their knowledge and opinions about different dimensions: conceptualization, legislation, intervention, and diagnosis. Results: The results suggested various ideas for improvement in pursuit of positive, real inclusion, such as the need to improve teachers’ knowledge and understanding of these students’ characteristics and potential, with widespread specific training being urgently needed. Conclusions: in summary, students’ rights to education without discrimination is a basic premise of an educational system, leading to the need for a complete educational response that allows each student to develop as a person. View Full-Text
Keywords: rare disease; education; inclusion; teachers; knowledge and perception rare disease; education; inclusion; teachers; knowledge and perception
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MDPI and ACS Style

García-Perales, R.; Palomares-Ruiz, A.; Ordóñez-García, L.; García-Toledano, E. Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers. Int. J. Environ. Res. Public Health 2022, 19, 6057. https://doi.org/10.3390/ijerph19106057

AMA Style

García-Perales R, Palomares-Ruiz A, Ordóñez-García L, García-Toledano E. Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers. International Journal of Environmental Research and Public Health. 2022; 19(10):6057. https://doi.org/10.3390/ijerph19106057

Chicago/Turabian Style

García-Perales, Ramón, Ascensión Palomares-Ruiz, Lydia Ordóñez-García, and Eduardo García-Toledano. 2022. "Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers" International Journal of Environmental Research and Public Health 19, no. 10: 6057. https://doi.org/10.3390/ijerph19106057

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