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Quality of Life in Cohabitants of Patients with Hidradenitis Suppurativa: A Cross-sectional Study
Article

Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs

1
Hidradenitis Suppurativa Clinic, Dermatology Department, Hospital Universitario Virgen de las Nieves, 18014 Granada, Spain
2
TECe19-Clinical and Translational Dermatology Investigation Group, Instituto de Investigación Biosanitaria Granada, 18012 Granada, Spain
3
European Hidradenitis Suppurativa Foundation (EHSF), 06847 Dessau-Roßlau, Germany
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2020, 17(23), 8808; https://doi.org/10.3390/ijerph17238808
Received: 25 October 2020 / Revised: 20 November 2020 / Accepted: 25 November 2020 / Published: 27 November 2020
(This article belongs to the Special Issue Inflammatory Diseases and Its Impact on Quality of Life)
Little is known about the impact of hidradenitis suppurativa (HS) on patients’ sexuality. The aim of this research is to investigate the impact of HS on several previously unexplored aspects of sexuality. In March 2018, we conducted a crowd-sourced cross-sectional online survey hosted by the Spanish association of patients with HS (ASENDHI) and available in Spanish. A panel of experts and patients from ASENDHI designed various questions in order to explore the extent to which HS influenced participants’ sex lives. The final sample consisted of 386 participants, 79.27% (306/386) of which were women and 20.73% (80/306) of which were men. Seventy-seven point one percent (236/306) of women and 67.5% (54/80) of men were in stable relationships; the rest of the participants were single. Forty-seven point nine percent (185/386) admitted to feeling fear of rejection. Pain was the symptom that most interfered with sexual relations in women and suppuration in men. Forty-four point three percent (171/386) of the participants considered themselves to be less attractive than average. Considering the participants in a stable relationship, women described receiving more emotional support from their partners, while men received more help with lesion dressing in intimate areas. Seventy-one point four percent (207/290) of participants stated that HS negatively affected their relationship. Among single patients, women experienced greater fear of rejection and were less willing to meet new people because of HS. Ninety-four point three percent (66/70) of women and 80.8% (21/26) of men stated that HS had a negative influence on their chances of having a relationship or sexual relations. In conclusion, HS has a significant, unrecognized and misunderstood impact on sexuality which must be addressed. View Full-Text
Keywords: hidradenitis suppurativa; cross-sectional studies; sexual health; sexual behavior; quality of life hidradenitis suppurativa; cross-sectional studies; sexual health; sexual behavior; quality of life
MDPI and ACS Style

Cuenca-Barrales, C.; Molina-Leyva, A. Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs. Int. J. Environ. Res. Public Health 2020, 17, 8808. https://doi.org/10.3390/ijerph17238808

AMA Style

Cuenca-Barrales C, Molina-Leyva A. Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs. International Journal of Environmental Research and Public Health. 2020; 17(23):8808. https://doi.org/10.3390/ijerph17238808

Chicago/Turabian Style

Cuenca-Barrales, Carlos, and Alejandro Molina-Leyva. 2020. "Sexuality in Patients with Hidradenitis Suppurativa: Beliefs, Behaviors and Needs" International Journal of Environmental Research and Public Health 17, no. 23: 8808. https://doi.org/10.3390/ijerph17238808

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