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Article

Good Practice Data Linkage (GPD): A Translation of the German Version

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Institute for Social Medicine and Health Systems Research (ISMHSR), Medical Faculty, Otto von Guericke University Magdeburg, 39120 Magdeburg, Germany
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Department of Social Work, Health and Media, Magdeburg-Stendal University of Applied Sciences, 39114 Magdeburg, Germany
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Institute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich-Heine-University Düsseldorf, 40225 Dusseldorf, Germany
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Institute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich-Heine-University Düsseldorf, 40225 Dusseldorf, Germany
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TMF—Technology, Methods, and Infrastructure for Networked Medical Research, 10117 Berlin, Germany
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Techniker Krankenkasse, Healthcare Management, 22305 Hamburg, Germany
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PMV Research Group, University of Cologne, 50931 Cologne, Germany
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Epidemiological Cancer Registry of Lower Saxony, Register Center, 26121 Oldenburg, Germany
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Leibniz Institute for Prevention Research and Epidemiology—BIPS Department Biometry and Data Management, 28359 Bremen, Germany
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Berlin-Brandenburg Myocardial Infarction Registry e. V., 10317 Berlin, Germany
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Center for Evidence-Based Healthcare (ZEGV), University Hospital and Faculty of Medicine Carl Gustav Carus, Technical University of Dresden, 01307 Dresden, Germany
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IGES Institut GmbH, 10117 Berlin, Germany
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Institute for Public Health and Nursing Research (IPP), University of Bremen, 28359 Bremen, Germany
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Department of Applied Health Sciences, University of Health Bochum, 44801 Bochum, Germany
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Institute for Community Medicine, Department SHIP-KEF, Greifswald University Medical Center, 17475 Greifswald, Germany
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Central Research Institute for Ambulatory Healthcare in Germany (Zi), Department of Data Science and Healthcare Analyses, 10587 Berlin, Germany
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Institute of Medical Sociology, Health Services Research and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, 50933 Cologne, Germany
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DAK Gesundheit, Health Services Research and Innovation, 20097 Hamburg, Germany
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Center for Health Economics Research Hanover (CHERH), Leibniz University Hanover, 30159 Hanover, Germany
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Faculty of Medicine and Health Sciences, Department of Healthcare Research, Carl von Ossietzky University Oldenburg, 26129 Oldenburg, Germany
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Author to whom correspondence should be addressed.
This is a translated version, with slight modifications, of the following document already published in German: March, S.; Andrich, S.; Drepper, J.; Horenkamp-Sonntag, D.; Icks, A.; Ihle, P.; Kieschke, J.; Kollhorst, B.; Maier, B.; Meyer, I.; et al. Gute Praxis Datenlinkage (GPD) [Good Practice Data Linkage]. Gesundheitswesen 2019, 81, 636–650, doi:10.1055/a-0962-9933.
Int. J. Environ. Res. Public Health 2020, 17(21), 7852; https://doi.org/10.3390/ijerph17217852
Received: 17 September 2020 / Revised: 16 October 2020 / Accepted: 22 October 2020 / Published: 27 October 2020
(This article belongs to the Section Digital Health)
The data linkage of different data sources for research purposes is being increasingly used in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to provide methodological guidelines and recommendations for research projects that have been consented to across different German research societies. Another aim is to endow readers with a checklist for the critical appraisal of research proposals and articles. This Good Practice Data Linkage (GPD) was already published in German in 2019, but the aspects mentioned can easily be transferred to an international context, especially for other European Union (EU) member states. Therefore, it is now also published in English. Since 2016, an expert panel of members of different German scientific societies have worked together and developed seven guidelines with a total of 27 practical recommendations. These recommendations include (1) the research objectives, research questions, data sources, and resources; (2) the data infrastructure and data flow; (3) data protection; (4) ethics; (5) the key variables and linkage methods; (6) data validation/quality assurance; and (7) the long-term use of data for questions still to be determined. The authors provide a rationale for each recommendation. Future revisions will include new developments in science and updates of data privacy regulations. View Full-Text
Keywords: record linkage; guidelines; standard; personal data; health services research; epidemiology record linkage; guidelines; standard; personal data; health services research; epidemiology
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MDPI and ACS Style

March, S.; Andrich, S.; Drepper, J.; Horenkamp-Sonntag, D.; Icks, A.; Ihle, P.; Kieschke, J.; Kollhorst, B.; Maier, B.; Meyer, I.; Müller, G.; Ohlmeier, C.; Peschke, D.; Richter, A.; Rosenbusch, M.-L.; Scholten, N.; Schulz, M.; Stallmann, C.; Swart, E.; Wobbe-Ribinski, S.; Wolter, A.; Zeidler, J.; Hoffmann, F. Good Practice Data Linkage (GPD): A Translation of the German Version. Int. J. Environ. Res. Public Health 2020, 17, 7852. https://doi.org/10.3390/ijerph17217852

AMA Style

March S, Andrich S, Drepper J, Horenkamp-Sonntag D, Icks A, Ihle P, Kieschke J, Kollhorst B, Maier B, Meyer I, Müller G, Ohlmeier C, Peschke D, Richter A, Rosenbusch M-L, Scholten N, Schulz M, Stallmann C, Swart E, Wobbe-Ribinski S, Wolter A, Zeidler J, Hoffmann F. Good Practice Data Linkage (GPD): A Translation of the German Version. International Journal of Environmental Research and Public Health. 2020; 17(21):7852. https://doi.org/10.3390/ijerph17217852

Chicago/Turabian Style

March, Stefanie, Silke Andrich, Johannes Drepper, Dirk Horenkamp-Sonntag, Andrea Icks, Peter Ihle, Joachim Kieschke, Bianca Kollhorst, Birga Maier, Ingo Meyer, Gabriele Müller, Christoph Ohlmeier, Dirk Peschke, Adrian Richter, Marie-Luise Rosenbusch, Nadine Scholten, Mandy Schulz, Christoph Stallmann, Enno Swart, Stefanie Wobbe-Ribinski, Antke Wolter, Jan Zeidler, and Falk Hoffmann. 2020. "Good Practice Data Linkage (GPD): A Translation of the German Version" International Journal of Environmental Research and Public Health 17, no. 21: 7852. https://doi.org/10.3390/ijerph17217852

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