Next Article in Journal
The Prevalence of Dyslexia in Primary School Children and Their Chinese Literacy Assessment in Shantou, China
Previous Article in Journal
Profile of Self-Reported Physical Tasks and Physical Training in Brazilian Special Operations Units: A Web-Based Cross-Sectional Study
Open AccessArticle

Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease

by 1 and 2,*
1
College of Nursing, The Catholic University of Korea, Seoul 06591, Korea
2
College of Nursing, Research Institute of Nursing Science, Ajou University, Suwon 16499, Korea
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2020, 17(19), 7134; https://doi.org/10.3390/ijerph17197134
Received: 1 September 2020 / Revised: 25 September 2020 / Accepted: 28 September 2020 / Published: 29 September 2020
(This article belongs to the Section Health Behavior, Chronic Disease and Health Promotion)
Mothers of children with complex congenital heart disease face unique challenges and emotional burdens, while their children go through physical and psychological difficulties during disease progression. In this study, we aimed to explore the in-depth experiences and feelings of mothers facing the prognosis of their children with complex congenital heart disease that was surgically corrected. This is a descriptive qualitative study. We conducted semi-structured, face-to-face interviews with 12 mothers of children with complex congenital heart disease at a tertiary hospital in Seoul, Korea. The interview data were analyzed by content analysis. Participants were mothers aged between 40–58 years whose children were diagnosed with complex congenital heart disease which was surgically corrected. Based on the content analysis, the mothers’ experiences and feelings were categorized as immense suffering and adapting to a new life. Under the main categories, the concepts included feeling of abandonment, anxiety with potentially losing their children, having hope, seeking reassurance, being encouraged, and trying to embrace the situation. Mothers who cared for their children with complex congenital heart disease expressed emotions that changed sequentially alongside physical and psychosocial changes in the children. The results of this study are valuable for understanding the experiences and emotions of mothers facing the prognosis of their children with complex congenital heart disease in order to aid in the development of programs that support these mothers. View Full-Text
Keywords: congenital heart defects; mothers; caregivers; emotions; qualitative research congenital heart defects; mothers; caregivers; emotions; qualitative research
MDPI and ACS Style

Lee, S.; Ahn, J.-A. Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease. Int. J. Environ. Res. Public Health 2020, 17, 7134. https://doi.org/10.3390/ijerph17197134

AMA Style

Lee S, Ahn J-A. Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease. International Journal of Environmental Research and Public Health. 2020; 17(19):7134. https://doi.org/10.3390/ijerph17197134

Chicago/Turabian Style

Lee, Sunhee; Ahn, Jeong-Ah. 2020. "Experiences of Mothers Facing the Prognosis of Their Children with Complex Congenital Heart Disease" Int. J. Environ. Res. Public Health 17, no. 19: 7134. https://doi.org/10.3390/ijerph17197134

Find Other Styles
Note that from the first issue of 2016, MDPI journals use article numbers instead of page numbers. See further details here.

Article Access Map by Country/Region

1
Search more from Scilit
 
Search
Back to TopTop