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Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies

1
Department of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands
2
Department of Medical Sciences, Educational Institute, University Medical Center Groningen, University of Groningen, 9700 RB Groningen, The Netherlands
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Regional Health Agency Marche Region, 60125 Ancona, Italy
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IRCCS INRCA, 60124 Ancona, Italy
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Department of Psychology & Methods, Jacobs University, 28759 Bremen, Germany
*
Authors to whom correspondence should be addressed.
Shared first authorship.
Int. J. Environ. Res. Public Health 2019, 16(21), 4300; https://doi.org/10.3390/ijerph16214300
Received: 29 August 2019 / Revised: 28 October 2019 / Accepted: 29 October 2019 / Published: 5 November 2019
(This article belongs to the Special Issue Routes to Improve Health Literacy during the Life-Course)
Patient-centred care is tailored to the needs of patients and is necessary for better health outcomes, especially for individuals with limited health literacy (LHL). However, its implementation remains challenging. The key to effectively address patient-centred care is to include perspectives of patients with LHL within the curricula of (future) healthcare providers (HCP). This systematic review aimed to explore and synthesize evidence on the needs, experiences and preferences of patients with LHL and to inform an existing educational framework. We searched three databases: PsychInfo, Medline and Cinahl, and extracted 798 articles. One-hundred and three articles met the inclusion criteria. After data extraction and thematic synthesis, key themes were identified. Patients with LHL and chronic diseases encounter multiple problems in the care process, which are often related to a lack of person-centeredness. Patient perspectives were categorized into four key themes: (1) Support system; (2) Patient self-management; (3) Capacities of HCPs; (4) Barriers in healthcare systems. “Cultural sensitivity” and “eHealth” were identified as recurring themes. A set of learning outcomes for (future) HCPs was developed based on our findings. The perspectives of patients with LHL provided valuable input for a comprehensive and person-centred educational framework that can enhance the relevance and quality of education for (future) HCPs, and contribute to better person-centred care for patients with LHL. View Full-Text
Keywords: health literacy; patient-centeredness; patient perspectives; education; learning outcomes; qualitative research health literacy; patient-centeredness; patient perspectives; education; learning outcomes; qualitative research
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Jager, M.; de Zeeuw, J.; Tullius, J.; Papa, R.; Giammarchi, C.; Whittal, A.; de Winter, A.F. Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies. Int. J. Environ. Res. Public Health 2019, 16, 4300.

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