End-Users and Caregivers’ Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review
Abstract
:1. Introduction
2. Method
2.1. The Systematic Review
2.1.1. Search Strategy, Criteria, and Approach
2.1.2. Assessment of Involvement in the Full Texts
2.1.3. Quality Assessment of Included Articles
2.2. The Questionnaire
3. Results
3.1. The Systematic Review
3.1.1. Characteristics of Included Articles
3.1.2. Involvement in the Included Articles
3.1.3. Content of the Involvement in the Included Articles
3.2. The Questionnaire
4. Discussion
4.1. Description of the Participants’ Involvement in the Health Interventions Analyzed
4.2. Increase of Participants’ Involvement in Geriatric Institutions Health Interventions
4.3. Limitations of This Review
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
References
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Points | Items | Needs Assessment | Leadership | Organization | Resources Mobilization | Management |
---|---|---|---|---|---|
1 point | Researchers are the unique decision makers about the interventions | ||||
2 points | Both researchers and end-users are involved in the item | ||||
3 points | End-users are the main decision makers for all items | ||||
Total of the five items | XXX |
Participants | Number of Articles |
---|---|
Residents + nurses | 4 articles |
Residents + relatives | 2 articles |
Relatives + nurses + physicians | 1 article |
Residents + nurses+ physicians | 1 article |
Physicians + nurses | 11 articles |
TOTAL | 19 articles |
Respondents | Verbatim |
---|---|
Corresponding Author A from Germany | “The study took part between 2004 and 2010. The intervention was developed in 2006 and 2007. At this time, the involvement of end users and participants in developing interventions was not common in Germany. So, we did not involve any residents and nurses in developing the intervention. But some of our team members were nurses (I for example).” |
Corresponding Author B from Switzerland | “Thanks for your mail and interest. We did not involve older people in the design and management of the intervention.” |
Corresponding Author C from USA | “To quickly answer your questions, nursing staff were not involved in the design of the intervention—a third party company designed and implemented the program. The third party managed the training and implementation for xx years.” |
Corresponding Author D from the Netherlands | “Staff of research did the education component of the interventions (teaching, newsletter, etc.)” |
Corresponding Author E from the Netherlands | “There was a lot of work and consultations that were done in the design and creation of the videos, including long-term care staff, administrators, and people living with HIV. In terms of the brief evaluation to inform the implementation and dissemination of the videos, we had a member of our team (who is an author on the paper) who was a nursing home administrator. He was involved in the design of the evaluation. In terms of implementing the training at the different homes as discussed in the paper we reached out to the individual nursing homes and worked with their staff to help facilitate the education sessions.” |
Corresponding Author F from the Netherlands | “Yes, dual sensory impaired older adults, nurses, and care professionals (specialized in dual sensory impairment) were involved in the choice of the primary outcome measure and in the development of the intervention. To determine the primary outcome of the intervention, a focus group of dual sensory impaired older adults and their care professionals was asked ‘to identify the key aim of the psychosocial intervention’. Also, the group received and examined a variety of outcome measures. After discussion, they advised that social participation should be assigned as the primary outcome of the intervention. We performed a try-out in two different care facilities, discussed and collected the reactions and advices of the older adults and nurses, and adjusted the intervention.” |
Corresponding Author G from the Netherlands | “The intervention comprised the … tools (development described by …) and improvement suggestions based on direct family feedback.” |
Corresponding Author H from South Korea | “The health coaching program is that recipients actively join the intervention and finally set their own goals. Therefore, recipients involved the intervention. Qualified coaches formed rapports with recipients. Coaches gave recipients individual or group education. During the training, the coaches kept encouraging participants to set their own goals. It is an important intervention in the health coaching program to set and practice goals by oneself. Facilities provided a place for group training.” |
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Ahouah, M.; Rothan-Tondeur, M. End-Users and Caregivers’ Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review. Int. J. Environ. Res. Public Health 2019, 16, 2812. https://doi.org/10.3390/ijerph16162812
Ahouah M, Rothan-Tondeur M. End-Users and Caregivers’ Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review. International Journal of Environmental Research and Public Health. 2019; 16(16):2812. https://doi.org/10.3390/ijerph16162812
Chicago/Turabian StyleAhouah, Mathieu, and Monique Rothan-Tondeur. 2019. "End-Users and Caregivers’ Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review" International Journal of Environmental Research and Public Health 16, no. 16: 2812. https://doi.org/10.3390/ijerph16162812