Next Article in Journal
Communication by Mothers with Breast Cancer or Melanoma with Their Children
Next Article in Special Issue
Neural Tube Defects, Folic Acid and Methylation
Previous Article in Journal
Arsenic Resistance and Prevalence of Arsenic Resistance Genes in Campylobacter jejuni and Campylobacter coli Isolated from Retail Meats
Previous Article in Special Issue
Risk of Spina Bifida and Maternal Cigarette, Alcohol, and Coffee Use during the First Month of Pregnancy
Article

Insights from Parents about Caring for a Child with Birth Defects

1
NBDPN Parent Advisory Group, 8150 N. Central Expwy., M2248, Dallas, TX 75206, USA
2
NBDPN Parent Advisory Group, 11 Michael Townsend Court, Newark, DE 19702, USA
3
NBDPN Parent Advisory Group, 601 N 300 W, Spanish Fork, UT 84660, USA
4
NBDPN Parent Advisory Group, 3122 Wilder St., Raleigh, NC 27607, USA
*
Author to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2013, 10(8), 3465-3482; https://doi.org/10.3390/ijerph10083465
Received: 7 June 2013 / Revised: 26 July 2013 / Accepted: 29 July 2013 / Published: 7 August 2013
(This article belongs to the Special Issue Birth Defect Prevention)
Birth defects affect 1 in 33 babies. Having a child with a birth defect impacts the whole family. Parents of children who have birth defects face unique challenges and desire to make life better for their kids. They also want to help to prevent birth defects in the future. Some of the challenges parents face involve communication with healthcare professionals, quality of life issues, creating awareness and advocating for research and funding, finding resources and support, and helping teens transition to appropriate, specialized adult care. This paper addresses these issues and their sub-issues, provides examples, and makes suggestions for improvement and research. View Full-Text
Keywords: birth defects; parents; quality of life; communication; transition of care; prevention; advocacy; awareness; NBDPN birth defects; parents; quality of life; communication; transition of care; prevention; advocacy; awareness; NBDPN
MDPI and ACS Style

Lemacks, J.; Fowles, K.; Mateus, A.; Thomas, K. Insights from Parents about Caring for a Child with Birth Defects. Int. J. Environ. Res. Public Health 2013, 10, 3465-3482. https://doi.org/10.3390/ijerph10083465

AMA Style

Lemacks J, Fowles K, Mateus A, Thomas K. Insights from Parents about Caring for a Child with Birth Defects. International Journal of Environmental Research and Public Health. 2013; 10(8):3465-3482. https://doi.org/10.3390/ijerph10083465

Chicago/Turabian Style

Lemacks, Jodi, Kristin Fowles, Amanda Mateus, and Kayte Thomas. 2013. "Insights from Parents about Caring for a Child with Birth Defects" International Journal of Environmental Research and Public Health 10, no. 8: 3465-3482. https://doi.org/10.3390/ijerph10083465

Find Other Styles

Article Access Map by Country/Region

1
Only visits after 24 November 2015 are recorded.
Back to TopTop