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18 pages, 286 KiB  
Article
Insights from Parents about Caring for a Child with Birth Defects
by Jodi Lemacks, Kristin Fowles, Amanda Mateus and Kayte Thomas
Int. J. Environ. Res. Public Health 2013, 10(8), 3465-3482; https://doi.org/10.3390/ijerph10083465 - 7 Aug 2013
Cited by 56 | Viewed by 14388
Abstract
Birth defects affect 1 in 33 babies. Having a child with a birth defect impacts the whole family. Parents of children who have birth defects face unique challenges and desire to make life better for their kids. They also want to help to [...] Read more.
Birth defects affect 1 in 33 babies. Having a child with a birth defect impacts the whole family. Parents of children who have birth defects face unique challenges and desire to make life better for their kids. They also want to help to prevent birth defects in the future. Some of the challenges parents face involve communication with healthcare professionals, quality of life issues, creating awareness and advocating for research and funding, finding resources and support, and helping teens transition to appropriate, specialized adult care. This paper addresses these issues and their sub-issues, provides examples, and makes suggestions for improvement and research. Full article
(This article belongs to the Special Issue Birth Defect Prevention)
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