Social Participation of Adults with Spinal Cord Injury During the First Two Waves of the COVID-19 Pandemic in Canada: An Exploratory Longitudinal Study
Abstract
1. Introduction
2. Materials and Methods
2.1. Design
2.2. Participants
2.3. Data Collection
2.4. Assessment of Life Habits (LIFE-H 4.0)
2.5. Measure of Quality of the Environment (MQE)
2.6. Data Analysis
3. Results
3.1. Assessment of Life Habits (LIFE-H 4.0)
3.2. Measure of Quality of the Environment (MQE)
4. Discussion
4.1. Improvement in the Accomplishment of Certain Life Habits
4.2. Improvement of Environmental Factors and Diminution of Barriers to Social Participation
4.3. Limitations and Strengths
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Disability Language/Terminology Positionality Statement
References
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First Wave of The COVID-19 Pandemic (T1) | Second Wave of The COVID-19 Pandemic (T2) |
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Data Collection Between May and July 2020 | Data Collection Between December 2020 and April 2021 |
Protective and Isolation Measures | |
Quebec | |
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British Columbia | |
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Characteristic | n (%) |
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Age, years (mean [SD]) | 48.8 [15.1] |
Sex | |
Female | 6 (33.3) |
Male | 12 (66.7) |
Province | |
Quebec | 14 (77.8) |
British Columbia | 4 (22.2) |
Employment Status 1 | |
Employed | 3 (16.7) |
Unemployed | 9 (50.0) |
Retired | 5 (27.8) |
Highest Education Level | |
Less than high school | 0 (0.0) |
High school (started) | 6 (33.3) |
College/University (started) | 2 (11.1) |
College/University (completed) | 7 (38.9) |
Post-graduate studies | 2 (11.1) |
Annual Household Income, CAD 1 | |
<14,999 | 0 (0.0) |
15,000–29,999 | 7 (38.9) |
30,000–44,999 | 3 (16.7) |
45,000–59,999 | 3 (16.7) |
60,000–74,999 | 1 (5.5) |
>75,000 | 2 (11.1) |
Diagnosis | |
Paraplegic | 15 (83.3) |
Tetraplegic | 3 (16.7) |
Time Using Any wheelchair, years (mean [SD]) | 15.1 [13.3] |
Life Habit Category | T1-N | Median Score T1 [IQR 1,2] | T2-N | Median Score T2 [IQR] | p-Value | RTE (95% CI) 5 |
---|---|---|---|---|---|---|
Mobility | 14 | 5.2 [2.1] | 18 | 6.4 [2.4] | 0.0285 | 0.60 (0.51, 0.67) |
Associative and spiritual life | 9 | 0.0 [10.0] | 10 | 10.0 [7.5] | 0.3303 | 0.56 (0.44, 0.67) |
Housing | 14 | 7.6 [2.3] | 17 | 8.0 [2.0] | 0.6734 | 0.49 (0.41, 0.57) |
Nutrition | 14 | 8.7 [1.2] | 18 | 9.2 [0.9] | 0.0206 | 0.58 (0.51, 0.65) |
Physical fitness and physiological well-being | 14 | 7.0 [5.6] | 18 | 8.8 [2.6] | 0.1301 | 0.57 (0.48, 0.65) |
Employment | 8 | 4.5 [10.0] | 11 | 9.0 [10.0] | 0.5854 | 0.53 (0.45, 0.62) |
Recreation | 14 | 3.2 [8.5] | 17 | 10.0 [3.0] | 0.0011 | 0.60 (0.54, 0.66) |
Communication | 14 | 10.0 [0.4] | 18 | 10.0 [0.0] | 0.4926 | 0.52 (0.47, 0.58) |
Responsibilities | 14 | 9.3 [1.9] | 18 | 9.2 [1.8] | 0.4574 | 0.52 (0.45, 0.59) |
Personal care and health | 14 | 6.9 [1.2] | 18 | 8.0 [1.5] | 0.0123 | 0.58 (0.51, 0.66) |
Interpersonal relationships | 14 | 10.0 [0.4] | 18 | 10.0 [10.9] | 0.4996 | 0.48 (0.43, 0.53) |
Current activities 3 | 14 | 7.6 [1.8] | 18 | 8.1 [1.3] | 0.0652 | 0.58 (0.50, 0.64) |
Social roles 4 | 14 | 6.7 [3.6] | 18 | 9.1 [2.5] | 0.0086 | 0.58 (0.51, 0.64) |
MQE Item | T1-N | Median Score T1 [IQR 1,2] | T2-N | Median Score T2 [IQR] | p-Value | RTE (95% CI) |
---|---|---|---|---|---|---|
The availability of businesses in your community (e.g., grocery store, restaurants, hardware store, department stores, shopping malls) | 14 | −0.5 [1.0] | 18 | 2 [1.6] | 0.0013 | 0.62 (0.55, 0.69) |
Public services (fire, police, ambulance, civil protection) | 13 | 0 [1.1] | 16 | 1 [1.2] | 0.0904 | 0.57 (0.48, 0.65) |
Electronic communication services (phone, fax, email, Internet) | 14 | 2 [1] | 18 | 3 [1] | 0.0626 | 0.58 (0.50, 0.67) |
Technical aid maintenance services | 12 | 0 [1.6] | 18 | 2 [1.3] | 0.0187 | 0.60 (0.51, 0.67) |
Rules (e.g., at school, swimming pool, public places) | 14 | −1 [1.6] | 18 | 0 [1.2] | 0.0273 | 0.61 (0.51, 0.69) |
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Fortin-Bédard, N.; Nindorera, F.; Leblond, J.; Rahn, C.; Best, K.L.; Borisoff, J.; Sweet, S.N.; Arbour-Nicitopoulos, K.P.; Routhier, F. Social Participation of Adults with Spinal Cord Injury During the First Two Waves of the COVID-19 Pandemic in Canada: An Exploratory Longitudinal Study. Disabilities 2025, 5, 77. https://doi.org/10.3390/disabilities5030077
Fortin-Bédard N, Nindorera F, Leblond J, Rahn C, Best KL, Borisoff J, Sweet SN, Arbour-Nicitopoulos KP, Routhier F. Social Participation of Adults with Spinal Cord Injury During the First Two Waves of the COVID-19 Pandemic in Canada: An Exploratory Longitudinal Study. Disabilities. 2025; 5(3):77. https://doi.org/10.3390/disabilities5030077
Chicago/Turabian StyleFortin-Bédard, Noémie, Félix Nindorera, Jean Leblond, Caroline Rahn, Krista L. Best, Jaimie Borisoff, Shane N. Sweet, Kelly P. Arbour-Nicitopoulos, and François Routhier. 2025. "Social Participation of Adults with Spinal Cord Injury During the First Two Waves of the COVID-19 Pandemic in Canada: An Exploratory Longitudinal Study" Disabilities 5, no. 3: 77. https://doi.org/10.3390/disabilities5030077
APA StyleFortin-Bédard, N., Nindorera, F., Leblond, J., Rahn, C., Best, K. L., Borisoff, J., Sweet, S. N., Arbour-Nicitopoulos, K. P., & Routhier, F. (2025). Social Participation of Adults with Spinal Cord Injury During the First Two Waves of the COVID-19 Pandemic in Canada: An Exploratory Longitudinal Study. Disabilities, 5(3), 77. https://doi.org/10.3390/disabilities5030077