Caregiver Perceptions of an Educational Animation for Mobilizing Social Support in Kidney Transplant Access: A Qualitative Study
Abstract
1. Introduction
2. Materials and Methods
2.1. Design
2.2. Setting
2.3. Participants
2.4. Data Collection
2.5. Data Analysis
3. Results
3.1. Participant Characteristics
3.2. Qualitative Results
4. Discussion
Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
KT | Kidney transplant |
CAB | Community Advisory Board |
References
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Total (n = 26) | Caregivers of KT-Seekers (n = 17) | Caregivers of KT-Recipients (n = 9) | |
---|---|---|---|
Characteristic | % (n) | % (n) | % (n) |
Sex: Female | 73% (19) | 76% (13) | 67% (6) |
Age (years): | |||
18–49 | 38% (10) | 35% (6) | 44% (4) |
50–60 | 27% (7) | 24% (4) | 33% (3) |
More than 60 | 35% (9) | 41% (7) | 22% (2) |
Race/ethnicity: | |||
Black or African American | 23% (6) | 35% (6) | 0% (0) |
Non-Hispanic White | 68% (18) | 53% (9) | 100% (9) |
Hispanic or Latino | 4% (1) | 6% (1) | 0% (0) |
Other | 4% (1) | 6% (1) | 0% (0) |
Employment: Working | 88% (23) | 82% (14) | 100% (9) |
Income: | |||
Less than $30,000 | 12% (4) | 24% (4) | 0% (0) |
$30,000 to $50,000 | 19% (4) | 24% (4) | 0% (0) |
More than $50,000 | 46% (12) | 29% (5) | 78% (7) |
Prefer not to answer | 23% (6) | 24% (4) | 22% (2) |
College degree: | 62% (16) | 53% (9) | 78% (7) |
Relationship to the patient: | |||
Spouse | 50% (13) | 47% (8) | 56% (5) |
Sibling | 27% (7) | 29% (5) | 22% (2) |
Parent | 23% (6) | 24% (4) | 22% (2) |
Time known the patient: | |||
1–5 years | 4% (1) | 0% (0) | 11% (1) |
6–9 years | 0% (0) | 0% (0) | 0% (0) |
More than 10 years | 96% (25) | 100% (17) | 89% (8) |
Access to a smartphone: | 96% (25) | 100% (17) | 89% (8) |
Access to a computer: | 81% (21) | 76% (13) | 89% (8) |
Uses email: | 96% (25) | 94% (16) | 100% (9) |
Watches videos online: | 88% (23) | 92% (14) | 100% (9) |
Device used in this study: | |||
Computer | 19% (5) | 18% (3) | 22% (2) |
Cellphone | 54% (14) | 60% (12) | 22% (2) |
Tablet | 27% (7) | 12% (2) | 56% (5) |
Social media frequency: | |||
Less than once a week | 27% (7) | 35% (6) | 11% (1) |
Once a week or more | 73% (19) | 65% (11) | 89% (8) |
Number of close friends or others: | |||
≤3 | 54% (14) | 59% (10) | 44% (4) |
4 or more | 46% (12) | 41% (7) | 56% (5) |
Survey Item | % (n) |
---|---|
Caregiver role readiness | |
What are your thoughts about helping someone get through the kidney transplant process? | |
I am not sure how to help someone navigate the transplant process. | 0% (0) |
I am beginning to understand how to help someone navigate the transplant process. | 53% (9) |
I understand how to help someone navigate the transplant process. | 24% (4) |
I have helped someone navigate the transplant process before. | 24% (4) |
What are your thoughts about helping someone find a living kidney donor? | |
I am not sure how to help someone find a living kidney donor. | 18% (3) |
I am beginning to understand how to help someone find a living kidney donor. | 47% (8) |
I understand how to help someone find a living kidney donor. | 29% (5) |
I have helped someone find a living kidney donor. | 0% (0) |
The kidney patient does not want a living kidney donor. | 6% (1) |
What are your thoughts about donating a kidney yourself? | |
I am not thinking about being a living donor. | 76% (13) |
I am beginning to think about being a living donor. | 0% (0) |
I am seriously considering being a living donor. | 0% (0) |
I am being evaluated as a possible living donor. | 24% (4) |
I have been approved to be a donor. | 0% (0) |
Living kidney donor communication self-efficacy | |
I have all the information I need to start a conversation about living kidney donation. | |
Strongly disagree | 6% (1) |
Disagree | 12% (2) |
Agree | 18% (3) |
Strongly agree | 65% (11) |
I am comfortable discussing the option of living kidney donation with people in my life. | |
Strongly disagree | 6% (1) |
Disagree | 0% (0) |
Agree | 82% (14) |
Strongly agree | 12% (2) |
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Share and Cite
Keller, M.; Inoue, M.; Koizumi, N.; Meyo, S.; Solbu, A.; Handmacher, M.; Kayler, L. Caregiver Perceptions of an Educational Animation for Mobilizing Social Support in Kidney Transplant Access: A Qualitative Study. Transplantology 2025, 6, 17. https://doi.org/10.3390/transplantology6020017
Keller M, Inoue M, Koizumi N, Meyo S, Solbu A, Handmacher M, Kayler L. Caregiver Perceptions of an Educational Animation for Mobilizing Social Support in Kidney Transplant Access: A Qualitative Study. Transplantology. 2025; 6(2):17. https://doi.org/10.3390/transplantology6020017
Chicago/Turabian StyleKeller, Maria, Megumi Inoue, Naoru Koizumi, Samantha Meyo, Anne Solbu, Matthew Handmacher, and Liise Kayler. 2025. "Caregiver Perceptions of an Educational Animation for Mobilizing Social Support in Kidney Transplant Access: A Qualitative Study" Transplantology 6, no. 2: 17. https://doi.org/10.3390/transplantology6020017
APA StyleKeller, M., Inoue, M., Koizumi, N., Meyo, S., Solbu, A., Handmacher, M., & Kayler, L. (2025). Caregiver Perceptions of an Educational Animation for Mobilizing Social Support in Kidney Transplant Access: A Qualitative Study. Transplantology, 6(2), 17. https://doi.org/10.3390/transplantology6020017