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Abstract

The Veituberi Approach Transforming RHD Through Patient Leadership and Lived Experience †

1
Heart Heroes Fiji, Suva, Fiji
2
Cure Kids Fiji Rheumatic Heart Disease Support Programme, Cure Kids Fiji, Suva, Fiji
3
Pacific Rheumatic Heart Disease (RHD) Program, The Kids Research Institute Australia, Perth, WA 6009, Australia
*
Author to whom correspondence should be addressed.
Presented at the 22nd Lancefield International Symposium on Streptococci and Streptococcal Diseases, Brisbane, Australia, 1–5 June 2025.
Proceedings 2025, 124(1), 14; https://doi.org/10.3390/proceedings2025124014
Published: 14 August 2025

1. Background

Rheumatic heart disease (RHD), a complication of untreated Strep A infections, is a major global health concern. In Fiji, sub-optimal treatment adherence due to limited access and awareness has led to an increasing RHD burden. Heart Heroes Fiji (HHF) developed veituberi, a culturally based approach combining nurturing support and motivational interviewing. This patient-led approach uses lived experience to improve engagement and adherence, while working with existing health, indigenous community structures, and youth networks.

2. Approach

Veituberi, meaning “to guide and assist,” represents an indigenous concept emphasizing nurturing relationships and empowering growth. HHF implements veituberi through three interconnected pathways:
  • Veisikovi: Advocates conduct structured home visits to build trust and allow space for confidential discussions about treatment, challenges, and family-specific solutions.
  • Veitalanoa: Trained champions engage with newly diagnosed patients and families through culturally appropriate dialog to address fears, explain treatments, and share success stories.
  • Veitauraki: Community-based workshops combine health education with cultural practices to facilitate talanoa sessions, skill-building exercises, and peer support.
The implementation of this scheme relies on a network of champions, volunteers, and family members with shared lived experiences. This approach emphasizes cultural connection and the awareness of community wisdom. The program includes regular upskilling for volunteers, coordination with local healthcare providers, and feedback from community members to improve effectiveness.

3. Significance

Veituberi demonstrates a culturally sensitive approach integrated with healthcare. Unlike Western medical approaches, veituberi builds trust by speaking the local language, both literally and figuratively. Veituberi uses existing community networks and seeks to build a sustainable system that can improve RHD prevention, management, health policies, and patient outcomes.

Author Contributions

Conceptualization, E.K. and J.K.; methodology, E.K.; software, E.K.; validation, M.M., J.K.-M. and J.K.; formal analysis, E.K.; investigation, E.K.; resources, E.K.; data curation, E.K. and M.Y.; writing—original draft preparation, E.K.; writing—review and editing, M.M., J.K.-M. and J.K.; visualization, J.K.; supervision, J.K.; project administration, E.K. All authors have read and agreed to the published version of the manuscript.

Funding

J.K.-M.: E.K., M.Y. and M.M. are supported by the New Zealand Ministry of Foreign Affairs and Trade through the Cure Kids Fiji Rheumatic Heart Disease Support Programme. J.K. and the Pacific RHD Program is supported by the Australian Government and implemented by The Kids Research Institute Australia (an affiliate of the University of Western Australia).

Institutional Review Board Statement

Not applicable.

Informed Consent Statement

Not applicable.

Data Availability Statement

The datasets presented in this article are not readily available because the data are part of an ongoing study. Requests to access the datasets should be directed to the corresponding author.

Conflicts of Interest

The authors declare no conflict of interest.
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Share and Cite

MDPI and ACS Style

Kala, E.; Yalimaiwai, M.; Mow, M.; Kailawadoko-Matanaicake, J.; Kado, J. The Veituberi Approach Transforming RHD Through Patient Leadership and Lived Experience. Proceedings 2025, 124, 14. https://doi.org/10.3390/proceedings2025124014

AMA Style

Kala E, Yalimaiwai M, Mow M, Kailawadoko-Matanaicake J, Kado J. The Veituberi Approach Transforming RHD Through Patient Leadership and Lived Experience. Proceedings. 2025; 124(1):14. https://doi.org/10.3390/proceedings2025124014

Chicago/Turabian Style

Kala, Erini, Marika Yalimaiwai, Maria Mow, Jimaima Kailawadoko-Matanaicake, and Joseph Kado. 2025. "The Veituberi Approach Transforming RHD Through Patient Leadership and Lived Experience" Proceedings 124, no. 1: 14. https://doi.org/10.3390/proceedings2025124014

APA Style

Kala, E., Yalimaiwai, M., Mow, M., Kailawadoko-Matanaicake, J., & Kado, J. (2025). The Veituberi Approach Transforming RHD Through Patient Leadership and Lived Experience. Proceedings, 124(1), 14. https://doi.org/10.3390/proceedings2025124014

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