Sexual Health Education for Young Adults Diagnosed with Severe Mental Illness, Intellectual Disability, and Autism: A Pilot Study on the eITPoSA Psycho-Educational Intervention
Abstract
:1. Introduction
Importance of Comprehensive Sexuality Education (CSE)
2. Materials and Methods
2.1. Design of the Study and Participants
2.1.1. Ethics
2.1.2. Participants
Inclusion Criteria
2.1.3. Procedures
2.2. Materials
2.2.1. Structure and Content of the eITPoSa Program
2.2.2. Educational Materials and Tools
- All About Your Body—Pauline Oud [53];
- Sexuality Explained to Children—Arturo Martin and El Taller, illustrated by Tatio Viana [54];
- The Little Atlas of Intimacy: Vulva, Vagina, Period and More—Mathilde Baudy and Tiphaine Dieumegard, illustrated by Mathilde Baudy; [55]
- The Little Atlas of Intimacy: Penis, Testicles, Erections and More—Mathilde Baudy and Tiphaine Dieumegard, illustrated by Mathilde Baudy [56].
2.2.3. The Circles
- Purple circle (private circle): focuses on personal boundaries, reinforcing that the individual is the most important person and has control over their personal space;
- Blue circle (hug circle): includes close relationships, such as family and friends, emphasizing consent and mutual affection;
- Green circle (faraway circle): covers extended family and friends, promoting appropriate social gestures like hugs and pats on the back;
- Yellow circle (handshake circle): represents acquaintances, encouraging gestures such as handshakes to maintain comfortable social distances;
- Orange circle (wave circle): pertains to distant acquaintances, highlighting the appropriateness of non-intrusive gestures like waving;
- Red circle (stranger circle): includes strangers, reinforcing that physical contact should be avoided unless in a professional or emergency context.
2.3. Mesures
2.3.1. Monitoring and Evaluation Grids
2.3.2. Qualitative Data Collection
2.3.3. Feedback Survey
2.4. Data Processing and Statistical Analyses
2.4.1. Data Cleaning
2.4.2. Statistical Analyses
3. Results
3.1. Descriptive Statistics
3.2. Pre–Post Analysis and ANCOVA
3.3. Qualitative Analysis and Additional Discoveries
3.3.1. Language and Sexual Knowledge
3.3.2. Autonomy and Personal Hygiene
3.3.3. Perception of Relationships and Intimacy
3.4. Participants Feedback
4. Discussion
Limitations and Future Research
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Abbreviations
ASD | Autism spectrum disorder |
CSE | Comprehensive sexuality education |
ID | Intellectual disability |
PSRs | Parasocial relationships |
SMI | Severe/serious mental illness |
Appendix A
Behaviors and Attitudes |
|
People to classify |
|
References
- Barker, L.C.; Vigod, S.N.; Hussain, Z.; France, J.; Rodriguez, A.; Lubotzky-Gete, S.; Berkhout, S.; Dmytryshyn, R.; Dunn, S.; Gupta, R.; et al. Sexual health experiences of women and non-binary people with early psychosis: Qualitative study. BJPsych Open 2023, 9, e146. [Google Scholar] [CrossRef] [PubMed]
- Grachev, K.; Santoro Lamelas, V.; Gresle, A.S.; de la Torre, L.; Pinazo, M.J.; on behalf of the InSPIRES Consortium. Feminist contributions on sexual experiences of women with serious mental illness: A literature review. Arch. Women’s Ment. Health 2022, 25, 853–870. [Google Scholar] [CrossRef] [PubMed]
- Kanfiszer, L.; Davies, F.; Collins, S. I was just so different: The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships. Autism 2017, 21, 661–669. [Google Scholar] [CrossRef] [PubMed]
- Roden, R.C.; Schmidt, E.K.; Holland-Hall, C. Sexual health education for adolescents and young adults with intellectual and developmental disabilities: Recommendations for accessible sexual and reproductive health information. Lancet Child Adolesc. Health 2020, 4, 699–708. [Google Scholar] [CrossRef]
- Mamali, F.; Chapman, M.; Lehane, C.; Dammeyer, J. A national survey on intimate relationships, sexual activity, and sexual satisfaction among adults with physical and mental disabilities. Sex. Disabil. 2020, 38, 469–489. [Google Scholar] [CrossRef]
- Hache-Labelle, C.; Abdel-Baki, A.; Lepage, M.; Laurin, A.S.; Guillou, A.; Francoeur, A.; Bergeron, S.; Lecomte, T. Romantic relationship group intervention for men with early psychosis: A feasibility, acceptability and potential impact pilot study. Early Interv. Psychiatry 2021, 15, 753–761. [Google Scholar] [CrossRef]
- Anex, A.; Dürrigl, M.; Matthys, A.; Felber, S.; Medvedeva, T.; Cleary, R.; Clesse, C. Guidelines, policies, and recommendations regarding the sexuality of individuals with severe mental disorders in psychiatric units, institutions, and supported housing across Europe: A systematic review. Arch. Sex. Behav. 2023, 52, 121–134. [Google Scholar] [CrossRef]
- Gruber, M.; Alexopoulos, J.; Doering, S.; Feichtinger, K.; Friedrich, F.; Klauser, M.; Hinterbuchinger, B.; Litvan, Z.; Mossaheb, N.; Parth, K.; et al. Personality functioning and self-disorders in individuals at ultra-high risk for psychosis, with first-episode psychosis and with borderline personality disorder. BJPsych Open 2023, 9, e150. [Google Scholar] [CrossRef]
- Palomer Music, M.; Berger Correa, B.; Romero Rojas, V.; Lizama, M. Qué saben de pubertad, relaciones de pareja y reproducción, un grupo de jóvenes chilenos con Síndrome de Down. Siglo Cero 2022, 53, 21–39. [Google Scholar] [CrossRef]
- Pehlivan, N.; Brown, E.; Sanchez, A.Y.A.; McMillan, F.; Moore, D.; Bhaduri, A.; Monson, K.; Badcock, P.; Thompson, K.; Killackey, E.; et al. What impact does illness severity have on the sexual health of young people affected by mental health disorders? A comparison of inpatients and outpatients. Australas. Psychiatry 2022, 30, 705–711. [Google Scholar] [CrossRef]
- de Jager, J.; McCann, E. Psychosis as a barrier to the expression of sexuality and intimacy: An environmental risk? Schizophr. Bull. 2017, 43, 236–239. [Google Scholar] [CrossRef] [PubMed]
- Mogavero, M.C.; Hsu, K.-H. Dating and courtship behaviors among those with autism spectrum disorder. Sex. Disabil. 2019, 38, 355–364. [Google Scholar] [CrossRef]
- Maggio, M.G.; Calatozzo, P.; Cerasa, A.; Pioggia, G.; Quartarone, A.; Calabrò, R.S. Sex and sexuality in autism spectrum disorders: A scoping review on a neglected but fundamental issue. Brain Sci. 2022, 12, 1427. [Google Scholar] [CrossRef] [PubMed]
- Pecora, L.A.; Hooley, M.; Sperry, L.; Mesibov, G.B.; Stokes, M.A. Sexuality and gender issues in individuals with autism spectrum disorder. Psychiatr. Clin. N. Am. 2020, 44, 111–124. [Google Scholar] [CrossRef]
- Swango-Wilson, A. Meaningful Sex Education Programs for Individuals with Intellectual/Developmental Disabilities. Sex Disabil. 2011, 29, 113–118. [Google Scholar] [CrossRef]
- Andreassen, K.; Quain, J.; Castell, E. Stop leaving people with disability behind: Reviewing comprehensive sexuality education for people with disability. Health Educ. J. 2024, 83, 830–840. [Google Scholar] [CrossRef]
- Higgins, A.; Barker, P.; Begley, C.M. Sexual health education for people with mental health problems: What can we learn from the literature? J. Psychiatr. Ment. Health Nurs. 2006, 13, 687–697. [Google Scholar] [CrossRef]
- Sladden, T.; Philpott, A.; Braeken, D.; Castellanos-Usigli, A.; Yadav, V.; Christie, E.; Gonsalves, L.; Mofokeng, T. Sexual Health and Wellbeing through the Life Course: Ensuring Sexual Health, Rights and Pleasure for All. Int. J. Sex. Health 2021, 33, 565–571. [Google Scholar] [CrossRef]
- McCann, E.; Marsh, L.; Brown, M. People with intellectual disabilities, relationship and sex education programmes: A systematic review. Health Educ. J. 2019, 78, 885–900. [Google Scholar] [CrossRef]
- Sala, G.; Hooley, M.; Attwood, T.; Mesibov, G.B.; Stokes, M.A. Autism and Intellectual Disability: A Systematic Review of Sexuality and Relationship Education. Sex Disabil. 2019, 37, 353–382. [Google Scholar] [CrossRef]
- Shibuya, F.; Estrada, C.A.; Sari, D.P.; Takeuchi, R.; Sasaki, H.; Warnaini, C.; Kawamitsu, S.; Kadriyan, H.; Kobayashi, J. Teachers’ conflicts in implementing comprehensive sexuality education: A qualitative systematic review and meta-synthesis. Trop. Med. Health 2023, 51, 18. [Google Scholar] [CrossRef] [PubMed]
- United Nations Education Scientific and Cultural Organization (UNESCO). The Journey Towards Comprehensive Sexuality Education: Global Status Report; UNESCO: Paris, France, 2021. [Google Scholar]
- Michielsen, K.; Brockschmidt, L. Barriers to sexuality education for children and young people with disabilities in the WHO European region: A scoping review. Sex Educ. 2021, 21, 674–692. [Google Scholar] [CrossRef]
- Murphy, C.; Lincoln, S.; Meredith, S.; Cross, E.M.; Rintell, D. Sex education and intellectual disability: Practices and insight from pediatric genetic counselors. Sex. Disabil. 2016, 25, 552–560. [Google Scholar] [CrossRef] [PubMed]
- Sinclair, J.; Unruh, D.; Lindstrom, L.; Scanlon, D. Barriers to sexuality for individuals with intellectual and developmental disabilities: A literature review. Educ. Train. Autism Dev. Disabil. 2015, 50, 3–15. [Google Scholar]
- Saxe, A.; Flanagan, T. Unprepared: An appeal for sex education training for support workers of adults with developmental disabilities. Sex. Disabil. 2016, 34, 443–454. [Google Scholar] [CrossRef]
- Adams Rueda, H.; Linton, K.F.; Williams, L.R. School social workers’ needs in supporting adolescents with disabilities toward dating and sexual health: A qualitative study. Child. Sch. 2014, 36, 79–90. [Google Scholar] [CrossRef]
- Bolin, S.J.; Adams Rueda, H.; Linton, K.F. Grand challenges in school social work: Collaboration and constraint in school social workers’ sexuality support for children with disabilities. Child. Sch. 2018, 40, 25–33. [Google Scholar] [CrossRef]
- de Reus, L.; Hanass-Hancock, J.; Henken, S.; van Brakel, W. Challenges in providing HIV and sexuality education to learners with disabilities in South Africa: The voice of educators. Sex Educ. 2015, 15, 333–347. [Google Scholar] [CrossRef]
- Louw, J.S. A qualitative exploration of teacher and school staff experiences when teaching sexuality education programmes at special needs schools in South Africa. Sex. Res. Soc. Policy 2017, 14, 425–433. [Google Scholar] [CrossRef]
- Johnson, R.L.; Sendall, M.C.; McCuaig, L.A. Primary schools and the delivery of relationships and sexuality education: The experience of Queensland teachers. Sex Educ. 2014, 14, 359–374. [Google Scholar] [CrossRef]
- Duffy, B.; Fotinatos, N.; Smith, A.; Burke, J. Puberty, health and sexual education in Australian regional primary schools: Year 5 and 6 teacher perceptions. Sex Educ. 2013, 13, 186–203. [Google Scholar] [CrossRef]
- Pownall, J.D.; Jahoda, A.; Hastings, R.P. Sexuality and sex education of adolescents with intellectual disability: Mothers’ attitudes, experiences, and support needs. Intellect. Dev. Disabil. 2012, 50, 140–154. [Google Scholar] [CrossRef] [PubMed]
- Adams Rueda, H.; Bolin, S.J.; Linton, K.F.; Williams, L.R.; Pesta, E. Social workers’ roles in supporting the sexual and relational health of children with disabilities. Child Adolesc. Soc. Work 2017, 34, 493–505. [Google Scholar] [CrossRef]
- Graff, H.J.; Moyher, R.E.; Bair, J.; Foster, C.; Gorden, M.E.; Clem, J. Relationships and Sexuality: How is a Young Adult with an Intellectual Disability Supposed to Navigate? Sex Disabil. 2018, 36, 175–183. [Google Scholar] [CrossRef]
- Chrastina, J.; Večeřová, H. Supporting Sexuality in Adults with Intellectual Disability—A Short Review. Sex Disabil. 2020, 38, 285–298. [Google Scholar] [CrossRef]
- Costanza-Chock, S. Design Justice: Community-Led Practices for Inclusive Education; MIT Press: London, UK, 2018. [Google Scholar]
- Martinelli, D.; Galipò, R.; Meli, P.; Farinella, M.; Chinelli, A.; Palamara, A.T.; Suligoi, B.; Oldrini, M.; Colaprico, L.; Tavoschi, L. Implementing a school-based comprehensive sexual health education intervention in Italy: Experiences from the field. Eur. J. Public Health 2022, 32 (Suppl. S3), ckac129.742. [Google Scholar] [CrossRef]
- Chinelli, A.; Galipò, R.; Meli, P.; Bellini, S.; Catucci, N.; Farinella, M.; Paparatto, G.; Musco, A.; Martinelli, D.; Tavoschi, L. Comprehensive sexuality education in Italy: Results from a pilot activity. Eur. J. Public Health 2023, 33 (Suppl. S2), ckad160.787. [Google Scholar] [CrossRef]
- Cassar, J. Sun, Sea, and Sex: A Comparative Study of Sexuality Education Policies in Southern Europe. In Social Welfare Issues in Southern Europe; Brown, M., Briguglio, M., Eds.; Routledge: London, UK, 2022; pp. 140–159. [Google Scholar]
- Chinelli, A.; Salfa, M.C.; Cellini, A.; Ceccarelli, L.; Farinella, M.; Rancilio, L.; Galipò, R.; Meli, P.; Camposeragna, A.; Colaprico, L.; et al. Sexuality education in Italy 2016-2020: A national survey investigating coverage, content and evaluation of school-based educational activities. Sex Educ. 2022, 23, 756–768. [Google Scholar] [CrossRef]
- Lo Moro, G.; Bert, F.; Cappelletti, T.; Elhadidy, H.S.M.A.; Scaioli, G.; Siliquini, R. Sex education in Italy: An overview of 15 years of projects in primary and secondary schools. Arch. Sex. Behav. 2023, 52, 1653–1663. [Google Scholar] [CrossRef]
- Ginevra, M.C.; Nota, L.; Stokes, M.A. The differential effects of Autism and Down’s syndrome on sexual behavior. Autism Res. 2016, 9, 131–140. [Google Scholar] [CrossRef]
- Coyle, K.; Anderson, P.; Laris, B.A.; Barrett, M.; Unti, T.; Baumler, E. A Group Randomized Trial Evaluating High School FLASH, a Comprehensive Sexual Health Curriculum. J. Adolesc. Health 2021, 68, 686–695. [Google Scholar] [CrossRef] [PubMed]
- Winges-Yanez, N. Discourse Analysis of Curriculum on Sexuality Education: FLASH for Special Education. Sex Disabil. 2014, 32, 485–498. [Google Scholar] [CrossRef]
- Ward, K.M.; Atkinson, J.P.; Curtis, A.; Smith, C.A.; Windsor, R. A Friendships and Dating Program for Adults with Intellectual and Developmental Disabilities: A Formative Evaluation. Intellect. Dev. Disabil. 2013, 51, 22–32. [Google Scholar] [CrossRef] [PubMed]
- United Nations Education Scientific and Cultural Organization (UNESCO). International Technical Guidance on Sexuality Education; UNESCO: Paris, France, 2018; Available online: https://cdn.who.int/media/docs/default-source/reproductive-health/sexual-health/international-technical-guidance-on-sexuality-education.pdf?sfvrsn=10113efc_29&download=true (accessed on 28 April 2025).
- Ministero della Sanità Italiano. ICD-10. In Classificazione Statistica Internazionale delle Malattie e dei Problemi Sanitari Correlati: 10ª Revisione; Istituto Poligrafico e Zecca dello Stato: Roma, Italy, 2016; Volume 3. [Google Scholar]
- Ministero del Lavoro; della Salute e delle Politiche Sociali. Classificazione delle Malattie, dei Traumatismi, degli Interventi Chirurgici e delle Procedure Diagnostiche e Terapeutiche, Manuale ICD-9-CM versione italiana; Istituto Poligrafico e Zecca dello Stato: Roma, Italy, 2007. [Google Scholar]
- American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 5th ed.; American Psychiatric Publishing: Washington, DC, USA, 2013. [Google Scholar]
- American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 4th ed.; American Psychiatric Publishing, Inc.: Washington, DC, USA, 2000. [Google Scholar]
- McFarland, B.; Bryant, L.; Wark, S.; Morales-Boyce, T. Adaptive interviewing for the inclusion of people with ID in qualitative research. J. Appl. Res. Intellect. Disabil. 2024, 37, e13182. [Google Scholar] [CrossRef]
- Oud, P. Tutto Quell Oche Devo Sapere sul Mio Corpo; Clavis: Heist-op-den-Berg, Belgium, 2018. [Google Scholar]
- Martin, A.; Taller, E.; Viana, T. La Sessualità Spiegata ai Bambini; Chiara Edizioni: Paratico, Italy, 2023. [Google Scholar]
- Baudy, M.; Dieumegard, T. Il Mio Primo Libro Dell’intimità. Lei; Gallucci Editore: Rome, Italy, 2022. [Google Scholar]
- Baudy, M.; Dieumegard, T. Il Mio Primo Libro Dell’intimità. Lui; Gallucci Editore: Rome, Italy, 2022. [Google Scholar]
- Walker-Hirsch, L.; Champagne, M.P. The circles concept: Social competence in special education. Educ. Leadersh. 1991, 49, 65–67. [Google Scholar]
- Champagne, M.P.; Walker-Hirsch, L.W. Circles: A self-organization system for teaching appropriate social/sexual behavior to mentally retarded/developmentally disabled persons. Sex. Disabil. 1982, 5, 172–174. [Google Scholar] [CrossRef]
- American Psychological Association (Ed.) APA Handbook of Intellectual and Developmental Disabilities; American Psychological Association: Washington, DC, USA, 2022; Volume 1. [Google Scholar]
- Heward, W.L. Exceptional Children: An Introduction to Special Education; Pearson: London, UK, 2013. [Google Scholar]
- Knight, V.F.; Sartini, E.C. A comprehensive literature review of evidence-based practices for students with autism spectrum disorders. Educ. Train. Autism Dev. Disabil. 2014, 49, 383–395. [Google Scholar]
- Siegel, L.S.; Brayne, E. Practices in the assessment of children with disabilities. Can. J. Sch. Psychol. 2008, 23, 61–77. [Google Scholar]
- Odom, S.L.; Horner, R.H.; Snell, M.E.; Blacher, J. Handbook of Developmental Disabilities; Guilford Press: New York, NY, USA, 2009. [Google Scholar]
- Schalock, R.L.; Verdugo, M.A. Handbook on Quality of Life for Human Service Practitioners; American Association on Mental Retardation: Silver Spring, MD, USA, 2002. [Google Scholar]
- Alberto, P.A.; Troutman, A.C. Applied Behavior Analysis for Teachers; Pearson: London, UK, 2012. [Google Scholar]
- Lenz, B.K.; Deshler, D.D. Teaching Content to All: Evidence-Based Inclusive Practices in Middle and Secondary Schools; Pearson: London, UK, 2004. [Google Scholar]
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef]
- Smirnov, N. Table for estimating the goodness of fit of empirical distributions. Ann. Math. Stat. 1948, 19, 279–281. [Google Scholar] [CrossRef]
- Smirnov, N. Estimate of deviation between empirical distribution functions in two independent samples. Bull. Mosc. Univ. 1939, 2, 3–16. [Google Scholar]
- Shapiro, S.S.; Wilk, M.B. An analysis of variance test for normality (complete samples). Biometrika 1965, 52, 591–611. [Google Scholar] [CrossRef]
- Faught, B.M.; Moore, G.; Hande, K.A.; Walker-Hirsch, L. Social boundaries in young adult females with down syndrome as a foundation for sexuality education. Am. J. Sex. Educ. 2020, 15, 426–443. [Google Scholar] [CrossRef]
- Löfgren-Mårtenson, L. “Hip to be Crip?” About Crip Theory, Sexuality and People with Intellectual Disabilities. Sex Disabil. 2013, 31, 413–424. [Google Scholar] [CrossRef]
- Vinciguerra, G.; Iacomini, S.; Villani, E.; Artoni, V.; Cavallini, F. Developing the psychosexual knowledge of two adolescents with Special Educational Needs through a psycho-educational training. J. Clin. Dev. Psychol. 2022, 4. [Google Scholar] [CrossRef]
- Cappelletti, T.; Lo Moro, G.; Elhadidy, H.; Bert, F.; Scaioli, G.; Siliquini, R. Sexual education in the school setting: An overview of the Italian situation. Eur. J. Public Health, 2022; 32, (Suppl. S3), ckac131.441. [Google Scholar] [CrossRef]
- Cooper, S.-A.; Smiley, E.; Morrison, J.; Williamson, A.; Allan, L. Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. Br. J. Psychiatry 2007, 190, 27–35. [Google Scholar] [CrossRef]
- Morgan, V.A.; Leonard, H.; Bourke, J.; Jablensky, A. Intellectual disability co-occurring with schizophrenia and other psychiatric illness: Population-based study. Br. J. Psychiatry 2008, 193, 364–372. [Google Scholar] [CrossRef]
- Deb, S.; Thomas, M.; Bright, C. Mental disorder in adults with intellectual disability. 1: Prevalence of functional psychiatric illness among a community-based population aged between 16 and 64 years. J. Intellect. Disabil. Res. 2001, 45(Pt. 6), 495–505. [Google Scholar] [CrossRef] [PubMed]
- Keshtkarjahromi, M.; Palvadi, K.; Shah, A.; Dempsey, K.R.; Tonarelli, S. Psychosis and Catatonia in Fragile X Syndrome. Cureus 2021, 13, e12843. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Dykens, E.M. Psychiatric and behavioral disorders in persons with Down syndrome. Ment Retard Dev Disabil Res Rev. 2007, 13, 272–278. [Google Scholar] [CrossRef] [PubMed]
- Van Duin, E.D.; Goossens, L.; Hernaus, D.; da Silva Alves, F.; Schmitz, N.; Schruers, K.; Van Amelsvoort, T. Neural correlates of reward processing in adults with 22q11 deletion syndrome. J. Neurodev. Disord. 2016, 8, 25. [Google Scholar] [CrossRef] [PubMed]
- Wadell, P.M.; Hagerman, R.J.; Hessl, D.R. Fragile x syndrome: Psychiatric manifestations, assessment and emerging therapies. Curr. Psychiatry Rev. 2013, 9, 53–58. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Kaufmann, W.E.; Cortell, R.; Kau, A.S.; Bukelis, I.; Tierney, E.; Gray, R.M.; Cox, C.; Capone, G.T.; Stanard, P. Autism spectrum disorder in fragile X syndrome: Communication, social interaction, and specific behaviors. Am. J. Med. Genet. A 2004, 129, 225–234. [Google Scholar] [CrossRef] [PubMed]
Case | Range of Age | Type of Disability/ Diagnosis | Educational Qualification | Relationship Status | Living Status | First Intercourse | Previous Training |
---|---|---|---|---|---|---|---|
F1 | Between 25 and 30 years | Delusional disorder in subject with mental retardation and obsessive-compulsive personality traits | High school diploma | In a romantic relationship | Parental unit | No | No |
F2 | Between 25 and 30 years | Delusional disorder in subject with mental retardation and obsessive-compulsive personality traits | High school diploma | In a romantic relationship | Parental unit | No | No |
F3 | Between 25 and 30 years | Behavioral disorder in subject with average-grade intellectual disability | High school diploma | In a romantic relationship | Parental unit | No | No |
F4 | Between 25 and 30 years | Medium-severe mental retardation from birth asphyxia | High school diploma | Single | Parental unit | No | No |
F5 | Between 31 and 40 years | Down syndrome | High school diploma | In a romantic relationship | Parental unit | No | No |
F6 | Between 25 and 30 years | Medium-severe intellectual disability | High school diploma | In a romantic relationship | Parental unit | No | No |
F7 | Between 25 and 30 years | Autism | High school diploma | Single | Parental unit | No | No |
F8 | Between 18 and 24 years | Autistic disorder | High school diploma | Single | Parental unit | No | No |
M1 | Between 25 and 30 years | Fragile X syndrome with psychotic symptoms | High school diploma | In a romantic relationship | Parental unit | No | No |
M2 | Between 31 and 40 years | Williams syndrome with mild intellectual disability | High school diploma | In a romantic relationship | Parental unit | No | No |
M3 | Between 25 and 30 years | Down syndrome | High school diploma | In a romantic relationship | Parental unit | No | Yes |
M4 | Between 31 and 40 years | Down syndrome | High school diploma | In a romantic relationship | Parental unit | No | No |
M5 | Between 18 and 24 years | Schizophrenic-type graft psychosis | High school diploma | Single | Parental unit | No | No |
M6 | Between 18 and 24 years | Medium-severe intellectual disability | High school diploma | In a romantic relationship | Parental unit | No | No |
M7 | Between 25 and 30 years | Moderate to severe intellectual disability and obsessive-compulsive disorder with psycho-emotional immaturity | High school diploma | Single | Parental unit | No | No |
Module | Title | Content Description | Specific Learning Objectives | Materials | Measurement Tools |
---|---|---|---|---|---|
One | Discovering Our Body and the Body of the Other | This module introduces sexual development, focusing on the physical and psychological changes that occur in the bodies of men and women. It explains the anatomy and functions of the male and female genital organs as well as the concept of intimate and private body parts. |
| Printed and laminated images from the DESEM 1 project activity books. Books: All About Your Body [53]; Sexuality Explained to Children [54]; The Little Atlas of Intimacy: Vulva, Vagina, Period and More [55]; The Little Atlas of Intimacy: Penis, Testicles, Erections and More [56]. |
|
Two | What Are the Genital Organs For? An Introduction to Affectivity and Sexuality | This module explores the first experiences of sexual intimacy, the mechanics of penetrative genital sex, and the process of pregnancy. It addresses parental responsibilities, LGBTQI+ sexuality, non-normative sexual practices (such as masturbation and intimacy without genital involvement), and prevention of sexually transmitted infections (STIs). |
| Printed and laminated images from the DESEM 1 project activity books. Books: Sexuality Explained to Children [54]; The Little Atlas of Intimacy: Vulva, Vagina, Period and More [55]; The Little Atlas of Intimacy: Penis, Testicles, Erections and More [56]. |
|
Three | Support for Acquiring Privacy: Education on Private Places and Spaces. | This module teaches the distinction between public and private spaces, emphasizing appropriate behaviors in each setting. It introduces strategies for maintaining privacy in private spaces. |
| Printed and laminated images from the DESEM 1 project activity books. |
|
Four | Support for Acquiring Privacy: Education on Protecting Personal Privacy | This module focuses on personal boundaries and the concept of body as personal space. It covers the importance of consent in personal space interactions, abusive intimate behaviors, and ways to prevent and counteract such behaviors. It also educates about positive, healthy intimate relationships and the right to decline unwanted sexual encounters or approaches. |
| Printed and laminated images from the DESEM project activity books. Books: The Little Atlas of Intimacy: Vulva, Vagina, Period and More [55]; The Little Atlas of Intimacy: Penis, Testicles, Erections and More [56]. |
|
Five | Personal Boundaries and Levels of Relationship: Working on the Circles. | This module uses the “Circles” tool to help participants visualize and understand the different levels of relationships based on trust, intimacy, and care. It teaches personal boundaries and how to behave appropriately according to the closeness and nature of each relationship. |
|
|
|
Six | Taking Care of Your Body as a Sign of Self-Love: Support for Hygiene and Personal Care | This module emphasizes the importance of hygiene and personal care, particularly for intimate areas, to prevent discomfort and illness. It teaches independent washing techniques and personal care routines, including menstruation management and alternative menstrual products. Information about sexual health services and contraceptive methods are given. |
| Printed and laminated images from the DESEM project activity books. Books: Sexuality Explained to Children [54]; The Little Atlas of Intimacy: Vulva, Vagina, Period and More [55]; The Little Atlas of Intimacy: Penis, Testicles, Erections and More [56]. |
|
Module 1—Discovering Our Body and the Body of the Other Grid Activity 1.3. | ||||||
Instructions: Place an X in the box corresponding to the correct answers given. In case of “I don’t know” or an incorrect answer, transcribe the responses provided by each participant. Gestures indicating body parts should also be considered as given responses. Indicate, in addition, whether this is a pre-intervention or post-intervention recording. Question to ask: Which body parts are generally considered private or intimate? Assessment: Pre-intervention [ ]; Post-intervention [ ] | ||||||
Participant Code | Face | Genitals | Breast | Buttocks | Don’t know/Incorrect answer | Score |
__/4 | ||||||
__/4 |
Open Question | |
---|---|
Module 1: Discovering Our Body and the Body of the Other. |
|
Module 2: What Are the Genital Organs For? An Introduction to Affectivity and Sexuality |
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Module 6: Taking Care of Your Body as a Sign of Self-Love: Support for Hygiene and Personal Care |
|
n | M (SD) Pre-Test | M (SD) Post Test | t | df | p | 95%CI | Cohen’s d | |
---|---|---|---|---|---|---|---|---|
Educational Intervention and Training Program on Sexuality and Affectivity (eITPoSA) | 12 | 63.27% (11.47%) | 93.42% (6.50%) | 12.94 | 11 | 0.000 | [25.02%; 35.27%] | 3.7 |
n | M (SD) Pre-Test | M (SD) Post Test | t | df | p | 95%CI | Cohen’s d | |
---|---|---|---|---|---|---|---|---|
Body knowledge | 12 | 31.43% (25.18%) | 86.65% (23.98%) | 15.61 | 59 | 0.000 | [48.13%; 62.28%] | 2.0 |
Genital sexuality | 12 | 15% (34.81%) | 90% (24.00%) | 15.08 | 59 | 0.000 | [65.05%; 84.94%] | 1.9 |
Privacy awareness | 10 | 82.94% (25.106%) | 98.75% (7.16%) | 4.92 | 59 | 0.000 | [9.37%; 22.23%] | 0.6 |
Privacy protection | 10 | 86.11% (29.65%) | 95.95% (14.45%) | 2.69 | 32 | 0.011 | [2.40%; 17.28%] | 0.4 |
Hygiene and personal care | 12 | 47.27% (38.23%) | 96.36% (12.06%) | 4.64 | 10 | 0.001 | [25.53%; 72.64] | 1.4 |
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Belluzzo, M.; Giaquinto, V.; Esposito, C.; De Alfieri, E.; Amodeo, A.L. Sexual Health Education for Young Adults Diagnosed with Severe Mental Illness, Intellectual Disability, and Autism: A Pilot Study on the eITPoSA Psycho-Educational Intervention. Sexes 2025, 6, 21. https://doi.org/10.3390/sexes6020021
Belluzzo M, Giaquinto V, Esposito C, De Alfieri E, Amodeo AL. Sexual Health Education for Young Adults Diagnosed with Severe Mental Illness, Intellectual Disability, and Autism: A Pilot Study on the eITPoSA Psycho-Educational Intervention. Sexes. 2025; 6(2):21. https://doi.org/10.3390/sexes6020021
Chicago/Turabian StyleBelluzzo, Miriam, Veronica Giaquinto, Camilla Esposito, Erica De Alfieri, and Anna Lisa Amodeo. 2025. "Sexual Health Education for Young Adults Diagnosed with Severe Mental Illness, Intellectual Disability, and Autism: A Pilot Study on the eITPoSA Psycho-Educational Intervention" Sexes 6, no. 2: 21. https://doi.org/10.3390/sexes6020021
APA StyleBelluzzo, M., Giaquinto, V., Esposito, C., De Alfieri, E., & Amodeo, A. L. (2025). Sexual Health Education for Young Adults Diagnosed with Severe Mental Illness, Intellectual Disability, and Autism: A Pilot Study on the eITPoSA Psycho-Educational Intervention. Sexes, 6(2), 21. https://doi.org/10.3390/sexes6020021