Abstract
This study explored the impact of an oncology palliative care clinical experience with older adults on social work learners. A three-member research team conducted a qualitative content analysis of reflective writings. 27 Master of Science in Social Work students enrolled in an interprofessional palliative oncology curriculum and completed a reflective writing assignment to summarize the clinical scenario, analyze the patient/family care provided, and describe the impact of the experience. Using a constant comparison approach based on grounded theory, the research team analyzed the reflections to come to consensus related to the overall impact of the experience. Two overarching themes (professional and personal impact) and 11 subthemes (appreciation of interdisciplinary teams, recognition of clinical skills of other disciplines, insight into clinical skills of the social worker, perception of palliative care, embracing palliative care principles, centrality of communication, importance of social support, family as the unit of care, countertransference, conflict between personal values and patient/family values, and emotional reactions) were identified. Experiential learning opportunities for social work learners in interprofessional palliative care build appreciation for and skills in applying palliative care principles including teamwork, symptom control, and advanced care planning along with a commitment to embrace these principles in future practice.
1. Introduction
As a profession founded on a strengths-based, patient-centered perspective, social workers are well-positioned to serve on palliative care teams and provide psychosocial support to patients with serious illnesses and their loved ones. This work, however, requires preparation and experience. Oncology, palliative, and hospice social workers must be trained and skilled in a variety of competencies including assessment, treatment planning, communication, interdisciplinary teamwork, pain and symptom management, and grief and bereavement care [1,2,3,4].
Training on the aforementioned competencies should begin in the classroom and extend throughout the career trajectory, with numerous options for hands-on learning and post-graduate continuing education [3,5,6,7]. However, this is often not the case. Despite calls for increased and more comprehensive education [3,5,7], little training exists in BSW (Bachelor of Social Work) or MSW (Master of Social Work)/MSSW (Master of Science in Social Work) programs for practice in palliative and end of life care [8,9,10,11].
Learners and practitioners report feeling anxious about death and dying and unprepared for tasks related to their positions and seldom receive preparation for practice within interdisciplinary teams [7,8,12,13,14,15,16,17]. As a result, interdisciplinary curricula have been developed to increase the skills and confidence of social work learners and other health disciplines to provide palliative care and/or hospice services to patients and families [15,18,19,20]. Evaluations from these interdisciplinary offerings—providing direct interactions with patients, families and other disciplines—demonstrate growth in both the professional and personal lives of learners [15,16,20,21,22]. Further review of social work learners’ perspectives is necessary to ensure interdisciplinary curricula is indeed incorporating social work tenets into the courses and training learners and future practitioners in best practices. Learners must develop skills not only to communicate and work with patients and families but also to advocate for their patients within the interdisciplinary team. Their ability to function on the team may be constrained by a history of hierarchy and turf wars [12,22]. Gaining feedback from learners about their learning experiences will help to strengthen and develop future training opportunities.
At the University of Louisville, MSSW students interested in oncology/palliative care or geriatrics enrolled in the Interdisciplinary Curriculum for Palliative Oncology Care (iCOPE) [19,20] that included didactic online modules, a clinical experience, critical reflective writing and interdisciplinary group discussion about the reflective writings. The clinical experience took place in a variety of settings including hospitals and an inpatient hospice unit, and learners shadowed experienced social workers and observed cases involving middle to older aged adults. The purpose of this study was to explore the impact of a palliative care clinical experience with older adults on social work learners through qualitative analysis of their reflective writings.
2. Materials and Methods
Twenty-seven master’s level social work students completed a palliative care clinical experience in a setting that practiced team-based palliative care between fall semester 2013 and spring semester 2016. As part of participation in the iCOPE curriculum, students wrote a critical reflection paper on one of the older adult patients observed during their clinical experience. Students were required to complete the reflection. These 27 reflections were the data used in our analysis.
Qualitative data analysis was completed using a grounded-theory (GT) approach [23], meaning that the ultimate goal was not to generate a grounded theory, but rather to employ GT techniques throughout our coding and data analysis process. In accordance with GT, we used inductive coding, memo writing to document analytic decisions, and integrated ideas and concepts without allowing any one of them to drive or constrain our findings [24]. Constant comparative analysis was used to examine contrasts among respondents, situations, and settings. Data saturation was considered to have been achieved when the same themes reoccurred, and no new insights evolved from further data analysis.
2.1. Description of Assignment
The critical reflection assignment (see Supplementary material for the full assignment description) consisted of three sections:
- A brief summary of the clinical scenario
- Critical analysis of the patient/family care provided, focusing on the interdisciplinary team approach and practice
- Description/prediction of the professional and personal impact of the experience.
Students submitted their reflections electronically. Identifying information including learner and patient names was removed prior to analysis. Approval to use the writings for research purposes was granted by the University’s Human Subject Protection Program (study approval 12.0415) prior to any study activities.
2.2. Methodological Approach
Each of the reflections was analyzed individually by each member of the research team, which consisted of a doctoral student with no affiliation to the iCOPE curriculum, and two iCOPE faculty members, neither of which were supervisors in the palliative care clinical experience. Analysis consisted of a “naïve” first reading of the first ten essays to acquaint the researcher with the data followed by a second reading in which data was read line-by-line and themes were coded using margin notations or the comment function in Word. The research team then met to develop an exhaustive list of themes identified. Consensus on the themes and subthemes was reached through peer debriefing and grouping of similar codes together. The initial codebook was created.
An additional 17 reflections were reviewed in the same manner. At this point, no new themes emerged, and no deviant themes were identified. Team members used their analysis to select data (direct quotes) which were copied/pasted into groupings by subthemes. Team members reviewed the data together, summarized the overall findings and selected exemplary quotes within each subtheme. The full team developed consensus about the overall scheme of the data and interpretation of the findings.
2.3. Ensuring Trustworthiness
Each member of the research team read all of the reflections and reviewed the analysis of other team members. Consensus regarding the coding was reached via dialogue and peer debriefing, attesting to the reliability of the overall findings.
The process of conceptualizing themes, agreeing on subthemes, and developing an overall scheme was documented at each meeting. Therefore, a clear audit trail was ensured, and the approach could be replicated.
There were several threats to trustworthiness, one being respondent bias. Because the students wrote these reflections as a required component of the curriculum, they may not have been totally truthful or may have written the paper in an effort to gain faculty approval. Because two members of the research team were involved in the creation and implementation of the iCOPE curriculum and were invested in its success, researcher bias is also a possible threat to trustworthiness. This was offset somewhat by having a third member of the research team who had no relationship to, nor history with the project.
3. Results
Eleven subthemes under the two major themes of professional and personal impact were identified.
3.1. Professional Impact
What follows is a summary of the findings related to each of the subthemes within the two themes. Following each summary are Table 1, Table 2, Table 3, Table 4, Table 5, Table 6, Table 7, Table 8, Table 9, Table 10 and Table 11 reflecting exemplary quotes for each of the subthemes.
Table 1.
Quotes related to the subtheme of appreciation of interdisciplinary teams.
Table 2.
Quotes related to the subtheme of recognition of clinical skills of other disciplines.
Table 3.
Quotes related to the subtheme of insight into social worker clinical skills.
Table 4.
Quotes related to the subtheme of perception of palliative care.
Table 5.
Quotes related to the subtheme of embracing principles of palliative care.
Table 6.
Quotes related to the subtheme of the centrality of communication.
Table 7.
Quotes related to the subtheme of importance of social support.
Table 8.
Quotes related to the subtheme of appreciation of family as the unit of care.
Table 9.
Quotes related to the subtheme of countertransference.
Table 10.
Quotes related to the subtheme of emotional reactions.
Table 11.
Quotes related to the subtheme of conflict between personal and patient/family values.
3.1.1. Appreciation of Interdisciplinary Teams
Learners often wrote about their observations of the teams and teamwork. As one learner said, it was “eye-opening” to actually observe how team members worked together in the care of a patient. Characteristics of teams noted by the learners included: cohesiveness, functionality, respect for each other and the patient, timeliness, trust, warmth, and compassion. Each team member was observed as having their own individual responsibility according to his/her scope of practice while also understanding the roles and contributions of fellow team members. The importance of both individual and team effort was noted by several students.
3.1.2. Recognition of Clinical Skills of Other Team Members/Disciplines
Team members observed by the learners included physicians, pharmacists, nurses, financial counselors, chaplains, psychologist, dietitians and social workers. For the learners, it was often the first time they observed these professionals in palliative care roles. The expertise of physicians and nurses in pain and symptom management was cited. Nurses were viewed as having the most knowledge about the physical care of the patient. The pharmacist’s role in assessing and managing medications and their side effects was an area of pharmacy practice not previously understood by some. Several learners were impressed by the communication and assessment skills of the psychologist. Both social workers and the psychologists were observed assisting with non-pharmacological symptom management.
3.1.3. Insight into Social Worker Clinical Skills
As these were social work learners, the data were rich with discussions of what learners appreciated about the role of the social worker. Insights included how well the social worker communicated with patients, families, and colleagues, how assessment questions came across as casual, yet supportive and relational conversation, and how much the social workers improved the emotional well-being of those with whom they worked, including both patients and the patients’ adult children.
3.1.4. Perception of Palliative Care
Learners were mixed in their reports on the impact of the experience on their perception of palliative care. Many reported an improved or enhanced perception, while others reported that their experience did not necessarily change their perception of palliative care, but rather strengthened their positive perception and reaffirmed their opinion that palliative care was important and essential for seriously ill patients and their families. Several commented on the need to offer palliative care earlier in the disease trajectory. Learners also expressed the importance of education—with patients, families and other health care professionals—to explain the nuances and benefits of palliative care, and how it differs from hospice care.
3.1.5. Embracing Principles of Palliative Care
Several of the learners noted that the experience either affirmed or ignited their desire to work in this social work specialty area. While not all of these learners planned to practice in palliative care, all wrote about how they planned to apply what they learned about the principles of palliative care to their future practice including embracing the family as the unit of care and treating more than just the physical, to communicating with more compassion. They also discussed a commitment to introduce palliative care sooner for all seriously ill individuals.
3.1.6. Centrality of Communication
During their clinical experience, learners observed important communication skills including: use of open-ended questions; accepting silence; immediacy of team communication; developing rapport; intra and extra team communication; team rounds; importance of family meetings with the team; and orchestrating difficult conversations. In many cases, learners also noted communication problems such as the team not meeting together with the patient, the lack of communication between physicians and other team members, delayed communication and information sharing with the patient and family, and poor communication with other teams or providers (besides the palliative or hospice team) caring for the patient.
3.1.7. Importance of Social Support
The presence or lack of adequate social support was often noted as an important consideration when working with seriously ill and dying patients. Having greater social support from family, friends and the team was viewed as critical to improving the patient’s quality of life. Patients without social support were seen as having more need of social work services as a means of providing adequate support.
3.1.8. The Family as the Unit of Care
Learners were able to observe and put into practice the core social work value of considering the person in their environment, in that the palliative team focuses on the family and not just the cancer patient as the unit of care. This was reinforced repeatedly in the observations.
3.2. Personal Impact
What follows are summaries of the findings related to each of the subthemes within the personal impact theme. Following each summary are tables reflecting exemplary quotes for each of the subthemes.
3.2.1. Countertransference
Countertransference is generally understood in social work to be the therapist’s emotional entanglement with a client. Many learners wrote about the personal challenges they faced in working with palliative care patients and the intensity of their feelings towards patients and family members. They recognized that countertransference was an important issue and shared several examples of this occurring in practice.
3.2.2. Emotional Reactions
The clinical experience generated a variety of emotional reactions. Learners described their reactions in a variety of ways including being touched, being overcome by emotions, feeling sad and heartbroken, being truly moved, being inspired, expressing feelings of fright and feeling good and fulfilled. Several commented that this was the first time they had experienced such strong emotion or observed such touching interactions between patients and their families or team members.
3.2.3. Conflict between Learner Values and Patient/Family Values
Social work learners and practitioners frequently encounter situations where personal values conflict with those of a client or family. This experience was no exception and provided an important opportunity for self-reflection and awareness.
4. Discussion
In this study, we evaluated the professional and personal impact of an oncology palliative care experience with older adults on social work learners via evaluation of their reflective writings. Most learners reported a positive oncology palliative care experience and a number identified growth in their understanding and appreciation of the critical skills demonstrated by members of the interdisciplinary team including the team social worker. It is important to note that learners had varying experience with and exposure to palliative care before placement, so preexisting perceptions of palliative care may have been enhanced, rather than developed solely from this experience. Also, only students with an interest in oncology/palliative care or geriatrics were enrolled in the curriculum, which may have also biased the primarily positive experiences.
Results were consistent with findings and recommendations by leaders in the field, including Reith and Payne [4] and Supiano and Berry [15] that experiential learning environments and opportunities for reflection help to develop skills necessary for social work learners to effectively participate on interprofessional teams These learner reflections also highlighted how social work competencies identified by Gwyther et al. [2] including assessment, interdisciplinary teamwork, and practice values such as sensitivity, examination of one’s own values about death, and willingness to work with others to provide care are developed and strengthened as a result of participating in an interprofessional curriculum.
As with other studies of interprofessional curricula, our study demonstrates that interprofessional, experiential learning can lead to increased growth in both the professional and personal lives of learners [15,16,20,21,22]. This type of experience can better prepare social work learners for the real-world scenarios they will face after graduation and begin building skills necessary for working with an interdisciplinary team. Better preparation would include more interprofessional experiences, participating in experiential learning activities, having mentors whom are experienced in palliative care and having facilitators who are well-versed in interprofessional teaching instead of historically didactic training. These types of preparation can create a larger toolbox of strategies and approaches from which social workers can draw as they work with patients and families.
The strengths of this study include the trustworthiness established by independent review of reflective writings by each team member, consensus on themes and subthemes and documentation of a clear audit trail. Limitations within this study merit discussion and consideration when interpreting findings. We were not able to use prolonged engagement with our study participants as the data were drawn from a reflective writing assignment and learners were de-identified. Triangulation of multiple sources of data was also not possible. Our sample was somewhat small and limited to students from one school of social work, though we did analyze to data saturation. Clinical experiences occurred in palliative care settings in one metropolitan area. Respondent and researcher bias (discussed in the earlier section on trustworthiness) were also potential threats to the validity of our findings.
5. Conclusions
This study supports the inclusion of experiential, interprofessional geriatric, oncology and palliative care curricula within social work programs to better prepare social work learners for their futures in practice environments. These environments are increasingly requiring interdisciplinary teamwork and the ability to face death and dying while supporting clients and families.
Supplementary Materials
The following are available online at http://www.mdpi.com/2308-3417/3/1/6/s1, critical reflective writing experience assignment description.
Acknowledgments
Funding to develop the iCOPE Curriculum was provided through a grant from the National Cancer Institute (1R25CA148005). As an invited paper, the costs of publishing in open access were waived.
Author Contributions
B.H. and T.J.S.: research design, implementation, and analysis of data. All authors: data access, analysis, and integrity. A.A.M.: preparation of the manuscript. All authors: contribution to and critical revision of the manuscript for important intellectual content.
Conflicts of Interest
The authors declare no conflict of interest.
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