Moral Distress in Community and Hospital Settings for the Care of Elderly People. A Grounded Theory Qualitative Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Sampling
2.2. Structure of the Interviews
3. Results
3.1. Talking and Listening
3.1.1. Listening to the Elderly
“From the human point of view [older people] have relationship needs because often [they are] lonely people and so they often want to chat and to exchange ideas, opinions; to tell each other. And, they need attention.”[ID 6]
“Someone to explain to them how to cope with life with their illness.”[ID 3]
“Sometimes, for example, the patient would ask me to simply spend some time together, for some company.”[ID 2]
3.1.2. Dedicating Time to the Elderly
“An elderly man was, unfortunately, going to die, and I could not devote time to him. I was not close to him in such a delicate moment, when he was alone, no family and no caregiver.”[ID 1]
“My crisis is determined by the fact that the team in which I work, has many difficulties in treating people with these problems [aggressiveness]. However, I felt that in this case there was the possibility to do something more. In my opinion, if we had to go beyond the protocols that our company requires, I think we could have had better success. So, I feel a bit guilty that I was not able to make others understand that there are alternative ways of dealing with such serious problems.”[ID 11]
3.1.3. Mediating with Relatives and/or the Caregiver
“One of the situations in which we often find ourselves is having a relative who pressurizes us and says for example: ‘let’s do everything we can’, and then, the elderly person who tells you, for example, I don’t want to dialyze anymore, so you find yourself having the elderly person who is there, maybe rather weakened [by illness], that you have to tie him up, sedate him to do the dialysis session, because the patient anyway is dangerous if he tears out the needles, in the end, he bleeds to death.”[ID 3]
“It can happen that the patient’s daughter arrives, and she pretends that daddy comes down with her to have coffee, while there was a very precise program with a physiotherapist, then the patient had to have at 10 o’clock antibiotic and sometimes everything is a bit difficult for her to understand.”[ID 4]
“I also do the video calls. I have this appointment with a lady and her daughter on dementia, so two pathologies together. Over the months she has clearly worsened and therefore her daughter, unfortunately, on the phone, is often in difficulty, she cries, etc. and any talk, in short, is useless.”[ID 10]
3.2. Care Provider Well-Being
3.2.1. Feelings Described during the MD Event
“I felt the weight on my shoulders of what was happening, and I was alone. I was alone and he was alone. I mean he was alone in the sense that he didn’t have anybody, and I was alone because I had so many other patients.”[ID 1]
“There is fear, there is also fear it is latent it is not perceived no...”[ID 5]
3.2.2. Feelings after the MD Event
“I felt I was doing the right thing [leaving some nursing activities behind, to be with the patient who was dying alone].”[ID 2]
“I felt, I had confirmation of the goodwill and correctness of the method.”[ID 5]
“It happened to me [within the group, the team] to be the only one who thought that it was necessary to think about it more, maybe postpone an exam [for the elderly person] or not do it.”[ID 6]
“Of failure. I felt failed unable to even make others listen to me, so a general inability. Almost, almost I questioned my professional skills because if I was not able to convince others of the usefulness of what they were proposing I told myself maybe I was not so convincing.”[ID 11]
3.2.3. Physical Consequences
“It changed my life drastically because it made me hypertensive at the age of 40.”[ID 5]
“So, the conclusion I’m aware of hurting myself and neglecting myself because anyway the translation of the fatigue of it all was obviously to make personal life choices that undoubtedly neglected my health.”[ID 5]
“I had headaches sometimes, but not so much because of a relationship with the host, but perhaps because of the demands of the organization that became excessive, let’s say, and therefore making people understand that they become excessive sometimes gives them a headache.”[ID 10]
3.2.4. Psychological Consequences
“When I came home, I was very distracted. I had to talk to my boyfriend and so on, but I was completely somewhere else. I wasn’t connecting, I was just distracted.”[ID 1]
“It causes me a sense of depression, crying, closure towards relationships with others.”[ID 11]
3.2.5. Residual Effects after Work
“At home, I bring back practically everything. Every time I arrive home and I am a blackboard. I always have to say everything, in fact, that’s what I can’t, that is why I cannot many times detach myself. I sometimes cannot switch off when I am at work, professionally.”[ID 7]
“I think that a person who is not confronted with these situations cannot in my opinion understand much.”[ID 1]
“With friends sometimes, we respect the sense of some things maybe without entering into the specific... because maybe, I find that they have to manage relatives.”[ID 3]
3.3. Decision Making
3.3.1. Group Morality
“Having a group moral, because one can have one’s own opinion. It’s one of the things that is most disorienting for the patient and the relatives, to see conflicting opinions, so I am one who believes anyway that in the end, you have to follow the will of the leader even if you do not agree, it is something that I think is right, this concept, so I do it.”[ID 3]
“If the team has decided that there was something to be done, I accept the result also because we bring something home.”[ID 6]
“Based on the assumption that my way of dealing with these patients who have issues, that also goes to affect the work of others.”[ID 12]
3.3.2. Team Engagement
“I have only spoken with colleagues because they have experienced the situation with me...”[ID 1]
“[The right choice] has always been a collective choice, it has always been a choice so in communion with colleagues there is no fundamental choice of direction that has not been the product of consensus.”[ID 5]
“Nobody ever asked me or let me express myself. [No one] felt it was necessary for me to express how I felt about that problem, they just [told me] what I should do or what I should not do.”[ID 11]
3.3.3. Self-Perceived Weakness
“[I missed specific] Skills”[ID 1]
“On the one hand, I felt maybe too much involvement in the situation i.e., that detachment that we should have at that time was maybe a bit lost.”[ID 2]
“Probably related a little bit to the emotional aspect.”[ID 10]
3.4. Protective Factors and Potential Solutions
3.4.1. Personal Characteristics
“A strong point [during the MD event] is tranquility. If you are calm and you face problems in a serene way the other party also faces it serenely with the person.”[ID 4]
“[My strength is] making others feel good so make them maybe smile and help them if they need it.”[ID 7]
“I lived great ethical moments in my extra-professional life, as I grew up in an environment strongly oriented to attributing an ethical sense to what happens; not only in a religious environment but also in social terms: I participated in many non-religious volunteering activities in which the question was: what is the sense of what we are doing?”[ID 5]
“When I have to make these decisions [whether or not to dialyze a patient who is now terminal] I think and rethink about it, I am religious I pray about it.”[ID 3]
“I never felt the need for psychological support. I do not say it with arrogance; but because my life is rich in social relationships.”[ID 5]
3.4.2. Professional Characteristics
“Definitely the experience [is a protecting factor]. If it had happened to me the day after I started work, I would have panicked.”[ID 12]
“[During the moral distress event] Neglect a little bit what is the real nursing work from the technical point of view.”[ID 2]
3.4.3. Support from the Leaders
“A bit of a breath of benefit, of that light benefit of trust that sort of unconditional trust that the institution as authoritative wants: scientific director, my mentor, my professor, my medical director conferred in me.”[ID 5]
“Good organization and good presence from the top.”[ID 7]
3.4.4. Psychological Support
“The nursing profession that has to have psychological support, because there are some jobs that ask for it, of course, and this is one thing that is a taboo in Italy. It is supposed if you say psychologist, it sounds as if you are crazy, but it is not like that.”[ID 4]
3.4.5. Relational Skills
“I’m a big believer in personalized care.”[ID 3]
“The key [to reduce MD] is the ability to include.”[ID 5]
“[To reduce MD] you have to learn the language of older children.”[ID 8]
3.4.6. Organizational Factors
“Increasing the number of operators can be one thing that can influence a lot on this thing [preventing moral distress events].”[ID 1]
“I am grateful to a structure that has always given me clarity of purpose.”[ID 5]
“But in my opinion, it is the first thing to give everyone the gradual responsibilities they deserve.”[ID 6]
3.5. Core Category
“[What can reduce moral distress] is communication and sharing daily.”[ID 5]
4. Discussion
4.1. Scarcity of Operators vs. Responsiveness
4.2. Hard Skills and Soft Skills
4.3. Inclusion vs. Isolation
4.4. External Pressure vs. Individual Balance
4.5. Sharing Daily vs. Accumulating Frustration
5. Limitations
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Conflicts of Interest
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Characteristis | Sample |
---|---|
Gender | |
Female | 8 |
Male | 5 |
Age | |
18–34 | 5 |
35–49 | 2 |
50–69 | 6 |
Education | |
High School | 1 |
Bachelor | 8 |
Degree | 4 |
Marital Status | |
Married/living together | 7 |
Single | 4 |
Separated/divorced | 1 |
Missing | 1 |
Children | |
No children | 7 |
1 | 2 |
2 | 2 |
Missing | 2 |
Work Setting | |
Hospital | 6 |
Nursing Home | 7 |
Type of contracts | |
Full Time | 10 |
Part Time | 2 |
Missing | 1 |
Type of work | |
Certified Nursing Assistants | 2 |
Professional Educator | 1 |
Physiotherapist | 1 |
Nurse | 5 |
Physician | 3 |
Psychologist | 1 |
Years of work experience (average) | 13.5 |
Years of work experience with elderly people (average) | 11.16 |
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Villa, G.; Pennestrì, F.; Rosa, D.; Giannetta, N.; Sala, R.; Mordacci, R.; Manara, D.F. Moral Distress in Community and Hospital Settings for the Care of Elderly People. A Grounded Theory Qualitative Study. Healthcare 2021, 9, 1307. https://doi.org/10.3390/healthcare9101307
Villa G, Pennestrì F, Rosa D, Giannetta N, Sala R, Mordacci R, Manara DF. Moral Distress in Community and Hospital Settings for the Care of Elderly People. A Grounded Theory Qualitative Study. Healthcare. 2021; 9(10):1307. https://doi.org/10.3390/healthcare9101307
Chicago/Turabian StyleVilla, Giulia, Federico Pennestrì, Debora Rosa, Noemi Giannetta, Roberta Sala, Roberto Mordacci, and Duilio Fiorenzo Manara. 2021. "Moral Distress in Community and Hospital Settings for the Care of Elderly People. A Grounded Theory Qualitative Study" Healthcare 9, no. 10: 1307. https://doi.org/10.3390/healthcare9101307
APA StyleVilla, G., Pennestrì, F., Rosa, D., Giannetta, N., Sala, R., Mordacci, R., & Manara, D. F. (2021). Moral Distress in Community and Hospital Settings for the Care of Elderly People. A Grounded Theory Qualitative Study. Healthcare, 9(10), 1307. https://doi.org/10.3390/healthcare9101307