‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care
Abstract
1. Introduction
2. Understanding Core Constructs of Trust
3. Trust and MND—From Our Personal Perspectives
4. Engagement and Co-Production
5. Experiences Eroding Trust
6. Experiences Facilitating Trust
7. Trust as Foundation of Person-Centred Integrated Care in MND
8. Conclusions and Future Directions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Important Terms | Definitions (Adapted by Authors) |
---|---|
Person-centred care | Focuses on understanding and responding to everyone’s unique needs, values, circumstances, and preferences. It emphasises shared decision-making, respect for individuality, holistic care, and open communication—ensuring that care is tailored to what matters most to the person receiving it [5,34]. |
Integrated care | Refers to coordinated strategies that aim to improve health outcomes by addressing fragmentation and fostering continuity across the care continuum—built on relationships of trust among providers, systems, and the people they serve [35,36]. |
Trust | A relational belief in the competence, integrity, and goodwill of another [7,8]. |
Authenticity | The quality of being genuine and aligned with one’s core values, demonstrated through consistency, sincerity, and respectful boundaries [28,37]. |
Competency | The capacity to apply knowledge, skills, and sound judgement to effectively fulfil a role or task [26,28]. |
Empathy | The capacity to emotionally understand and connect with another person’s experience—by sensing what they feel, seeing from their perspective, and responding with genuine care [28,38]. |
Kindness | Is an action that supports or uplifts another, as experienced and valued by the person receiving it [39,40]. Often described as doing good without expectations. |
Compassion | Is the emotional capacity to recognise another’s suffering through relational understanding, accompanied by a genuine motivation to alleviate that suffering through meaningful action [41]. |
Vulnerability | Is the willingness to be emotionally open or uncertain, grounded in the belief that the other person will respond with care, respect, and dignity [42,43]. |
Reciprocity | Reciprocity is the mutual exchange of support, effort, or understanding that fosters cooperation and shared benefit between individuals or groups [25]. |
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Lisiecka, D.; Dyson, N.; Malpress, K.; Smith, A.; McNeice, E.; Shack, P.; Hutchinson, K. ‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care. Healthcare 2025, 13, 1994. https://doi.org/10.3390/healthcare13161994
Lisiecka D, Dyson N, Malpress K, Smith A, McNeice E, Shack P, Hutchinson K. ‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care. Healthcare. 2025; 13(16):1994. https://doi.org/10.3390/healthcare13161994
Chicago/Turabian StyleLisiecka, Dominika, Neil Dyson, Keith Malpress, Anthea Smith, Ellen McNeice, Peter Shack, and Karen Hutchinson. 2025. "‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care" Healthcare 13, no. 16: 1994. https://doi.org/10.3390/healthcare13161994
APA StyleLisiecka, D., Dyson, N., Malpress, K., Smith, A., McNeice, E., Shack, P., & Hutchinson, K. (2025). ‘Finally, in Hands I Can Trust’: Perspectives on Trust in Motor Neurone Disease Care. Healthcare, 13(16), 1994. https://doi.org/10.3390/healthcare13161994