Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses
Abstract
1. Introduction
2. Methods
3. Intersectionality and Minority Stress Model as a Grounding Framework
4. 2SLGBTQIA+ Migrants as Unpaid Caregivers
5. Care Circles
5.1. Chosen Family
5.2. Health Care Provider Training
5.3. Support Groups
5.4. SOGIESC Data Collection
6. Future Research
7. Implications for Policy Makers
8. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Abbreviations
2SLGBTQIA+ | Two-Spirit, lesbian, gay, bisexual, transgender, queer, intersex, asexual, and the + stands for identities and orientations not named in the acronym, yet equally important. |
UCs | Unpaid caregivers |
SOGIESC | Sexual orientation, gender identity and expression, and sex characteristics. |
References
- Collins, P.H. Intersectionality as Critical Social Theory; Duke University Press: Durham, NC, USA, 2019. [Google Scholar] [CrossRef]
- Crenshaw, K. Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color. Stanf. Law Rev. 1991, 43, 1241–1299. [Google Scholar] [CrossRef]
- Registered Nurses’ Association of Ontario Promoting 2SLGBTQI+ Health Equity: A Best Practice Guideline. 2021. Available online: https://rnao.ca/bpg/guidelines/promoting-2slgbtqi-health-equity (accessed on 13 June 2025).
- Haghiri-Vijeh, R. Experiences of LGBTQI+ migrants with nurses and other healthcare professionals in Canada. Nurs. Forum 2022, 57, 1184–1192. [Google Scholar] [CrossRef]
- Joseph, N. Focusing on Intersectionality Can Better Support LGBTQ+ Caregivers—CHCS Blog. Center for Health Care Strategies. 2023. Available online: https://www.chcs.org/focusing-on-intersectionality-can-better-support-lgbtq-caregivers/ (accessed on 13 June 2025).
- Hall, S.; Hubbard Murdoch, N.; Dyck, D.; Stacey, A. Queer caregiving with older adults: A scoping review of the lived experiences of LGBTQ+ family and friend caregivers. Soc. Sci. Humanit. Open 2025, 11, 101324. [Google Scholar] [CrossRef]
- Stinchcombe, A.; Oueis, J.; Wilson, K.; Wright, D.K. Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers. Dementia 2025, 24, 214–234. [Google Scholar] [CrossRef] [PubMed]
- Gipson, L.; Roman, C.; Joseph, N.; Flatt, J.; Center for Health Care Strategies. LGBTQ+ Caregivers: Challenges, Policy Needs, and Opportunities; Center for Health Care Strategies, Inc.: Hamilton, NJ, USA, 2023; Available online: https://www.chcs.org/resource/lgbtq-caregivers-challenges-policy-needs-and-opportunities/ (accessed on 13 June 2025).
- Lipinski, E.; Wilson, K.; Kortes-Miller, K.; Stinchcombe, A. The power of story: Bringing 2SLGBTQ+ digital stories into gerontology settings. Gerontol. Geriatr. Educ. 2023, 44, 540–553. [Google Scholar] [CrossRef]
- Comeau, D.; Johnson, C.; Bouhamdani, N. Review of current 2SLGBTQIA+ inequities in the Canadian health care system. Front. Public Health 2023, 11, 1183284. [Google Scholar] [CrossRef] [PubMed]
- Kensington Senior Living. Unmasking the Overlooked Challenges of LGBTQ+ Dementia Caregiving—Kensington Senior Living. 2024. Available online: https://kensingtonseniorliving.com/lgbtq-caregiver (accessed on 13 June 2025).
- Tan, K.R.; Waters, A.R.; Chen, Q.; Hendricks, B.A.; Coombs, L.A.; Kent, E.E. Inequities Among Cancer Caregivers with Diverse Identities: A Review of the Literature and Future Directions. Curr. Oncol. Rep. 2023, 25, 803–812. [Google Scholar] [CrossRef]
- Sukhera, J. Narrative Reviews in Medical Education: Key Steps for Researchers. J. Grad. Med. Educ. 2022, 14, 418–419. [Google Scholar] [CrossRef]
- Family Caregiver Alliance. Special Concerns of LGBTQ+ Caregivers. 2015. Available online: https://www.caregiver.org/resource/special-concerns-lgbt-caregivers/ (accessed on 13 June 2025).
- Crenshaw, K. Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics. Univ. Chic. Leg. Forum 1989, 1989, 8. Available online: http://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8 (accessed on 13 June 2025).
- Kelly, C.; Kasperavicius, D.; Duncan, D.; Etherington, C.; Giangregorio, L.; Presseau, J.; Sibley, K.M.; Straus, S. ‘Doing’ or ‘using’ intersectionality? Opportunities and challenges in incorporating intersectionality into knowledge translation theory and practice. Int. J. Equity Health 2021, 20, 187. [Google Scholar] [CrossRef]
- Cole, E.R. Intersectionality and research in psychology. Am. Psychol. 2009, 64, 170–180. [Google Scholar] [CrossRef] [PubMed]
- Ivanov, B. Intersectionality of Gender, Race, Class, Sexuality, Disability and Other Social Identities in Shaping the Experiences and Opportunities of Marginalized Groups in Ukraine. Int. J. Gend. Stud. 2024, 9, 61–74. [Google Scholar] [CrossRef]
- Gopaldas, A. Intersectionality 101. J. Public Policy Mark. 2013, 32, 90–94. Available online: https://www.jstor.org/stable/43305317 (accessed on 13 June 2025). [CrossRef]
- D’elio, F. Intersectionality in LGBTI Advocacy. State-Spons. Homophobia 2015, 18–22. Available online: https://www.sexualrightsinitiative.org/sites/default/files/resources/files/2019-04/Intersectionality%20in%20LGBTI%20Advocacy.pdf (accessed on 13 June 2025).
- Meyer, I.H. Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychol. Bull. 2003, 129, 674–697. [Google Scholar] [CrossRef] [PubMed]
- Allison, K.; Power, R.; Ussher, J.M.; Perz, J.; Hawkey, A.; Parton, C.; Watson, L.; Hickey, M.; Dowsett, G.W.; Anazodo, A.; et al. “Queer people are excellent caregivers, but we’re stretched so very thin”: Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers. BMC Cancer 2024, 24, 36. [Google Scholar] [CrossRef]
- Shiu, C.; Muraco, A.; Fredriksen-Goldsen, K. Invisible Care: Friend and Partner Care Among Older Lesbian, Gay, Bisexual, and Transgender (LGBT) Adults. J. Soc. Soc. Work. Res. 2016, 7, 527–546. [Google Scholar] [CrossRef]
- Stall, N.M.; Kim, S.J.; Hardacre, K.A.; Shah, P.S.; Straus, S.E.; Bronskill, S.E.; Lix, L.M.; Bell, C.M.; Rochon, P.A. Association of Informal Caregiver Distress with Health Outcomes of Community-Dwelling Dementia Care Recipients: A Systematic Review. J. Am. Geriatr. Soc. 2019, 67, 609–617. [Google Scholar] [CrossRef]
- Government of Canada, Statistics Canada. Display Definitions—Classification of Cisgender, Transgender and Non-Binary—1-Cisgender Person. 2021. Available online: https://www23.statcan.gc.ca/imdb/p3VD_f.pl?Function=getVD&TVD=1326715&CVD=1326716&CLV=0&MLV=2&D=1 (accessed on 13 June 2025).
- The Britannica Dictionary. Heterosexual. 2025. Available online: https://www.britannica.com/dictionary/heterosexual (accessed on 13 June 2025).
- Sage. The Legal Documents Every LGBT Older Adult Needs. National Resource Center on LGBTQ+ Aging. 2011. Available online: https://lgbtagingcenter.org/library/item/the-legal-documents-every-lgbt-older-adult-needs/ (accessed on 13 June 2025).
- Kittle, K.R.; Lee, R.; Pollock, K.; Song, Y.; Wharton, W.; Anderson, J.G.; Dowling, N.M.; Flatt, J.D. Feasibility of the Savvy Caregiver Program for LGBTQ+ Caregivers of People Living with Alzheimer’s Disease and Related Dementias. Int. J. Environ. Res. Public Health 2022, 19, 15102. [Google Scholar] [CrossRef]
- Harris, L. The Psychosocial Experiences of African American Sexual and Gender Minority Caregivers of People with Dementia. TRACE: Tennessee Research and Creative Exchange. 2021. Available online: https://trace.tennessee.edu/utk_graddiss/6971 (accessed on 13 June 2025).
- Ismail, M.; Hammon, N.G.; Wilson, K.; Stinchcombe, A. Canadians who care: Social networks and informal caregiving among lesbian, gay and bisexual older adults in the Canadian longitudinal study on aging. Int. J. Aging 2020, 91, 299–316. [Google Scholar] [CrossRef]
- Di Lorito, C.; Bosco, A.; Peel, E.; Hinchliff, S.; Dening, T.; Calasanti, T.; de Vries, B.; Cutler, N.; Fredriksen-Goldsen, K.I.; Harwood, R.H. Are dementia services and support organisations meeting the needs of Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers of LGBT people living with dementia? A scoping review of the literature. Aging Ment. Health 2021, 26, 1912–1921. [Google Scholar] [CrossRef]
- Fredriksen-Goldsen, K.; Shuman, A.; Jen, S.; Jung, H.H. Stress and Resilience among Sexual and Gender Diverse Caregivers. Res. Aging 2023, 45, 654–665. [Google Scholar] [CrossRef] [PubMed]
- Canadian Centre for Caregiving Excellence. Giving Care: An Approach to a Better Caregiving Landscape in Canada. Canadian Caregiving Canada. 2022. Available online: https://canadiancaregiving.org/wp-content/uploads/2022/11/CCCE_Giving-Care.pdf (accessed on 13 June 2025).
- Kim, S.; Feyissa, I.F. Conceptualizing “Family” and the Role of “Chosen Family” within the LGBTQ+ Refugee Community: A Text Network Graph Analysis. Healthcare 2021, 9, 369. [Google Scholar] [CrossRef] [PubMed]
- Rosa, W.E.; Banerjee, S.C.; Maingi, S. Family caregiver inclusion is not a level playing field: Toward equity for the chosen families of sexual and gender minority patients. Palliat. Care Soc. Pract. 2022, 16, 263235242210924. [Google Scholar] [CrossRef] [PubMed]
- Gort, A.M.; Mingot, M.; Gomez, X.; Soler, T.; Torres, G.; Sacristán, O.; Miguelsanz, S.; Nicolas, F.; Perez, A.; de Miguel, M.; et al. Use of the Zarit scale for assessing caregiver burden and collapse in caregiving at home in dementias. Int. J. Geriatr. Psychiatry 2007, 22, 957–962. [Google Scholar] [CrossRef]
- Strini, V.; Prendin, A.; Cerrone, V.; Schiavolin, R.; de Barbieri, I.; Andretta, V.; Fortino, L.; Santella, B.; Franci, G.; Capunzo, M.; et al. Scale of Assessment of Caregiver Care Burden of People with Dementia: A Systematic Review of Literature. Transl. Med. UniSa 2023, 25, 38–49. [Google Scholar] [CrossRef]
- Robinson, B.C. Validation of a caregiver strain index. J. Gerontol. 1938, 38, 344–348. [Google Scholar] [CrossRef]
- Morgan, E.; Dyar, C.; Feinstein, B.A.; Rose-, K. Sexual and gender minority differences in likelihood of being a caregiver and levels of caregiver strain in a sample of older adults. J. Homosex. 2024, 71, 2287–2299. [Google Scholar] [CrossRef]
- Singh, M.D.; Thirsk, L. LoBiondo-Wood and Haber’s Nursing Research in Canada: Methods, Critical Appraisal, and Utilization, 5th ed.; Elsevier: Toronto, ON, Canada, 2022; ISBN 978-0-323-77898-5. [Google Scholar]
- Knaifel, E.; Rubinstein, L. Intersectionality and Caregiving: The Exclusion Experience and Coping Resources of Immigrant Women Caring for a Family Member with Severe Mental Illness. Qual. Health Res. 2025, 35, 611–625. [Google Scholar] [CrossRef]
- Valenti, K.; Katz, A. Needs and Perceptions of LGBTQ Caregivers: The Challenges of Services and Support. J. Gay Lesbian Soc. Serv. 2014, 26, 70–90. [Google Scholar] [CrossRef]
- Haghiri-Vijeh, K. “I firmly believe we can do better!”: 2SLGBTQI+ migrants’ call to improve healthcare services for older adults. In Proceedings of the Rainbow Health Ontario (RHO) 2022 Symposium: LGBT2SQ Health in Focus, Virtual (International Audience), 25 February 2022; Available online: https://sharedhealthmb.ca/events/rho-2022-symposium-lgbt2sq-health-in-focus/ (accessed on 13 June 2025).
- Jurček, A.; Downes, C.; Keogh, B.; Urek, M.; Sheaf, G.; Hafford-Letchfield, T.; Buitenkamp, C.; van der Vaart, N.; Higgins, A. Educating health and social care practitioners on the experiences and needs of older LGBT+ adults: Findings from a systematic review. J. Nurs. Manag. 2021, 29, 43–57. [Google Scholar] [CrossRef] [PubMed]
- Stenberg, J.; Hjelm, K. Migrant informal caregiver perceptions and experiences of caring for a family member with dementia: A systematic review and thematic synthesis. J. Clin. Nurs. 2023, 32, 2178–2192. [Google Scholar] [CrossRef] [PubMed]
- Kelly-Brown, J.; Palmer Kelly, E.; Obeng-Gyasi, S.; Chen, J.; Pawlik, T.M. Intersectionality in cancer care: A systematic review of current research and future directions. Psycho-Oncol. 2022, 31, 705–716. [Google Scholar] [CrossRef]
- Chien, W.-T.; Norman, I. The effectiveness and active ingredients of mutual support groups for family caregivers of people with psychotic disorders: A literature review. Int. J. Nurs. Stud. 2009, 46, 1604–1623. [Google Scholar] [CrossRef] [PubMed]
- Nguyen, A.; Lau, B.D. Collecting Sexual Orientation and Gender Identity Information: Filling the Gaps in Sexual and Gender Minority Health. Med. Care 2018, 56, 205–207. [Google Scholar] [CrossRef]
- Tamí-Maury, I.; Millett, T.J. Recommendations and Implementation Considerations for the Routine Collection of Sexual Orientation and Gender Identity Data in Research and Practice. Am. J. Public Health 2024, 114, 777–781. [Google Scholar] [CrossRef]
- Atwal, P.M.S. Understanding the kaleidoscope: Culturally competent LGBTQIA+ elder care through intersectionality. J. Nurse Pract. 2025, 21, 105337. [Google Scholar] [CrossRef]
- Stall, N.M.; Campbell, A.; Rochon, P.A. Words matter: The language of family caregiving. J. Am. Geriatr. Soc. 2019, 67, 2008–2010. [Google Scholar] [CrossRef]
- Sullivan-Bolyai, S.; O’Neil, W.; Boucher, J.; Coco, A.; Dowd-Foley, D.; Dumas, V.; Fravlin, G.; Pellegrini, L. Interprofessional nursing students coming together through an academic interprofessional practice partnership experience: Are you a caregiver? Teach. Learn. Nurs. 2023, 18, e98–e104. [Google Scholar] [CrossRef]
- Baril, A.; Silverman, M. “We’re still alive, much to everyone’s surprise”: The experience of trans older adults living with dementia in an ageist, cisgenderist, and cogniticist society. J. Aging Stud. 2024, 68, 101208. [Google Scholar] [CrossRef]
- DeJong, A.; Swerhun, K.; Brink, P.; Martin, L. Palliative care service provision and use among 2SLGBTQAI+ individuals: A scoping review. BMC Palliat. Care 2024, 23, 243. [Google Scholar] [CrossRef]
- Fredrikson-Goldsen, K.; Jen, S.; Emlet, C.A.; Kim, H.-J.; Jung, H.H. Key determinants of physical and psychological health-related quality of life over time among midlife and older LGBTQ and sexual and gender-divers caregivers. Gerontologist 2023, 63, 751–761. [Google Scholar] [CrossRef]
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Haghiri-Vijeh, R.; Coatsworth-Puspoky, R.; Ramesh, H.; Shakibai, A.; Dullius, W.R.; Allan, M. Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses. Healthcare 2025, 13, 1533. https://doi.org/10.3390/healthcare13131533
Haghiri-Vijeh R, Coatsworth-Puspoky R, Ramesh H, Shakibai A, Dullius WR, Allan M. Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses. Healthcare. 2025; 13(13):1533. https://doi.org/10.3390/healthcare13131533
Chicago/Turabian StyleHaghiri-Vijeh, Roya, Robin Coatsworth-Puspoky, Harish Ramesh, Arvin Shakibai, Willian Roger Dullius, and Marcus Allan. 2025. "Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses" Healthcare 13, no. 13: 1533. https://doi.org/10.3390/healthcare13131533
APA StyleHaghiri-Vijeh, R., Coatsworth-Puspoky, R., Ramesh, H., Shakibai, A., Dullius, W. R., & Allan, M. (2025). Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses. Healthcare, 13(13), 1533. https://doi.org/10.3390/healthcare13131533