Experience of Family Caregivers in Long-Term Care Hospitals During the Early Stages of COVID-19: A Phenomenological Analysis
Abstract
:1. Introduction
2. Materials and Methods
2.1. Research Design
2.2. Selection of Study Participants
2.3. Data Collection
2.4. Ethical Considerations
2.5. Data Analysis
2.6. Ensuring Rigor and Researcher Preparation
3. Results
3.1. Theme 1: A Prison-like Long-Term Care Hospital Bound by Strict COVID-19 Prevention Rules
3.1.1. Difficult Visitation Processes and Limited Visiting Hours
“[The noncontact visitation] is only 10 min. Just 10 min. I can’t touch, and I was constantly watching the clock. After 10 min, I have to leave because others are waiting. So, even while looking at my mother, I feel anxious. I should ask more and see her face more. But my mother, she just cries for 10 min, and then it’s over. She cries…it’s very upsetting. Even after leaving, I feel uneasy”.(P8)
“I can’t visit in person, so all the visits are noncontact. And if I want to arrange a noncontact visit, I have to book it days in advance”.(P3)
3.1.2. Unable to Touch Parents and Blocked by a Glass Partition
“Now, since direct meetings between caregivers and patients aren’t allowed, all I can do is go and see [my mother], but it feels awkward. I really need to see and hold her hand after the meeting. But there’s this glass partition, and if not that, then we have to talk over the phone. It’s not a school or a prison. It feels more uncomfortable…. Honestly, it’s better not to see her at all. When I do, I feel uneasy for the rest of the day, and I can’t focus on work”.(P9)
“After a noncontact visit, the older adult often experiences emotional swings. Sometimes, I feel scared about visiting because I’m worried they won’t adapt”.(P3)
3.1.3. A Haven Amid COVID-19
“I believe the visitation guidelines are necessary. It’s very frustrating and hard, but that’s the only way to protect the patients in nursing homes and keep them healthy. It’s something we just have to accept”.(P1)
“There are so many vulnerable patients in the hospital, so we have to avoid infection. Normal people may not understand, but it’s the right thing to do for everyone’s safety”.(P9)
3.2. Theme 2: Growing Affection for Unreachable Parents
3.2.1. Having to Entrust Parents to Medical Staff and Caregivers Fully
“Before, I could go in and directly check on my mother’s care, which gave me peace of mind since I could see for myself. Now, I just talk to her through the glass, and I feel a bit anxious, not knowing how she’s really doing”.(P2)
“I don’t know what the caregivers are doing. I just have to trust them since I can’t go in and check for myself”.(P6)
3.2.2. The Fading Presence of Parents in Daily Life
“If I were seeing her, I’d feel emotions like guilt, but since I can’t, I’ve just become indifferent. Honestly, I think I’ve grown numb. Since I can’t see her, it’s like she’s gradually slipping away”.(P5)
3.2.3. Meaningless Screams in Confinement
“During the first year of the pandemic, my mom kept asking to go home, saying she wanted to be discharged and live at home again. She said it every day, and my brother and I took turns calling her, but it was so painful to hear”.(P6)
“When I heard that the nurses were confining the patients, even running over if the door opened, I felt guilty. I felt like I was putting my parents through unnecessary suffering by keeping them there”.(P3)
“Not being able to see us is the hardest part for them. They think we’re making excuses, that we’re lying about not being able to visit because of COVID. They start to distrust us…. It feels like my efforts aren’t being understood. When they say we’re using COVID as an excuse, it really hurts”.(P3)
3.3. Theme 3: Adapting to a New and Safer Daily Life
3.3.1. Strengthening Familial Bonds Despite Fewer Visits
“I can’t visit as often, so I feel even sorrier for her now”.(P2)
“I still regret not doing more for them when they were healthy, like buying supplements or taking them on a trip. I feel sorry about it all the time”.(P3)
“Since I can’t visit often, I worry about her more, and I feel more affectionate toward her”.(P1)
3.3.2. Creating and Anticipating New Routines
“We got my mom a smartphone for video calls, but the staff didn’t always have time to help, so I bought her a phone so we could stay in touch directly”.(P8)
“Just in case this goes on longer, I’ve already set up another phone for my mom so we can have video calls in the future”.(P3)
“My mom’s vaccinated, so I’m hoping things will loosen up, and maybe if the staff and patients all get their second doses, visitation rules will relax, too”.(P2)
“Once we’re all vaccinated, things will get better. We’ll be able to meet again, hold hands, and eat together. Things will improve soon”.(P4)
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Inclusion Criteria | Exclusion Criteria |
---|---|
Caregivers of patients admitted to long-term care hospitals for at least six months at the time of the interview. | Non-immediate family caregivers |
Only immediate family members of the patient were eligible to participate. | Caregivers of patients admitted to long-term care hospitals for less than six months were excluded. |
Characteristics of Participants (Caregiver) | Characteristics of Patients | Number of Meetings | |||||||
---|---|---|---|---|---|---|---|---|---|
(Per Month) | |||||||||
No | Sex | Age | Education | Occupation | Relationship | Sex | Hospitalization | Before | After |
Period | COVID-19 | COVID-19 | |||||||
(Year) | |||||||||
1 | Female | 51 | Bachelor’s | Employee | Daughter | Female | 12 | 12 | 4 |
2 | Female | 48 | Bachelor’s | Homemaker | Daughter | Female | 2 | 12 | 8 |
3 | Female | 54 | High-school | Homemaker | Daughter | Male | 6 | 30 | 1 |
Female | |||||||||
4 | Female | 62 | High-school | Employee | Daughter-in-law | Female | 7 | 12 | 1 |
5 | Male | 55 | Bachelor’s | Employee | Son | Female | 5 | 30 | 1 |
6 | Female | 62 | High-school | Homemaker | Daughter | Female | 9 | 6 | 1 |
7 | Female | 53 | High-school | Homemaker | Daughter | Female | 6 | 4 | 2 |
8 | Female | 54 | Bachelor’s | Homemaker | Daughter-in-law | Female | 3 | 4 | 2 |
9 | Male | 61 | High-school | Employee | Son | Female | 7 | 30 | 5 |
Categories | Theme Clusters |
---|---|
Prison-like long-term care hospital bound by strict COVID-19 prevention rules | Difficult visitation processes and limited visiting hours |
Unable to touch parents, blocked by a glass partition | |
A safe haven amidst COVID-19 | |
Growing affection for unreachable parents | Having to fully entrust parents to medical staff and caregivers |
The fading presence of parents in daily life | |
Meaningless screams in confinement | |
Adapting to a new and safer daily life | Strengthening familial bonds despite fewer visits |
Creating and anticipating new routines |
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Cha, H.-J.; Jeon, M.-K. Experience of Family Caregivers in Long-Term Care Hospitals During the Early Stages of COVID-19: A Phenomenological Analysis. Healthcare 2024, 12, 2254. https://doi.org/10.3390/healthcare12222254
Cha H-J, Jeon M-K. Experience of Family Caregivers in Long-Term Care Hospitals During the Early Stages of COVID-19: A Phenomenological Analysis. Healthcare. 2024; 12(22):2254. https://doi.org/10.3390/healthcare12222254
Chicago/Turabian StyleCha, Hye-Ji, and Mi-Kyeong Jeon. 2024. "Experience of Family Caregivers in Long-Term Care Hospitals During the Early Stages of COVID-19: A Phenomenological Analysis" Healthcare 12, no. 22: 2254. https://doi.org/10.3390/healthcare12222254
APA StyleCha, H.-J., & Jeon, M.-K. (2024). Experience of Family Caregivers in Long-Term Care Hospitals During the Early Stages of COVID-19: A Phenomenological Analysis. Healthcare, 12(22), 2254. https://doi.org/10.3390/healthcare12222254