Patient and Clinician Experiences with Sharing Data Visualizations Integrated into Mental Health Treatment
Abstract
:1. Introduction
2. Materials and Methods
2.1. Procedures
2.2. MindLAMP and Cortex
2.3. Researcher Characteristics
2.4. Semi-Structured Interviews
2.5. Data Analysis
3. Results
3.1. Patient-Focused Results
3.1.1. Quantitative Results
3.1.2. Most/Least Meaningful Visuals
3.1.3. Graph Literacy Survey
3.1.4. Thematic Analysis
3.2. Clinician-Focused Results
4. Discussion
4.1. General
4.2. Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Sample Characteristics | N (%) | Mean | SD | |
---|---|---|---|---|
Age (years), mean (SD) | 37 | 10.7 | ||
Gender | ||||
Male | 5 (50%) | |||
Female | 5 (50%) | |||
Race | ||||
White | 8 (80%) | |||
Asian | 2 (20%) | |||
Total | 10 |
Visual Type | Example |
---|---|
Passive Data Bar Graphs | |
Correlation Matrices | |
Calendar Charts | |
Longitudinal Symptom Graphs | |
Radar Plots |
Yes (%) | No (%) | |
---|---|---|
Understood the visualizations | 9 (90%) | 1 (10%) |
Found the visualizations meaningful | 9 (90%) | 1 (10%) |
Found the data/visualizations accurate | 9 (90%) | 1 (10%) |
Theme | Quote |
---|---|
Prompt reflection and action | I like that they just create a record and show trends because with depression and anxiety you can get into a little bit of a fog sometimes and they just show like I said the trends and they can also show milestones and if you’re feeling like you’re doing better and you’re actually doing better and not just in your head |
The various surveys were really helpful to see like the trends within those because I had a lot of personal things going on during this time that I was in this that were really stressful in different ways and being able to see how those outside events were like directly related like if I went back and looked at the timing was helpful | |
I mean it shows on a screen something that I might not even notice is happening or so it’s good to see it like that. If it’s not good stuff I change it–my ways or whatever–to be better so it’s definitely interesting to see it | |
Again, I guess because it just defines when you are feeling something at the moment you don’t really maybe can define it but then when you look back you can think about it a little bit more and try to understand what’s happening | |
Validation and motivation | It was just incredibly validating. It just confirmed that my response was consistent to the sort of severity of the circumstances. |
The graphs just kind of proved it to me that the sleep disturbances were really affecting how the depression affected me during the day. […] So that was important when I saw that sleep was definitely a big effect on the long COVID and the depression and everything. | |
Need for digital navigator | I’ve done these kinds of surveys before. Not very often, but I’ve had my data collected before because I’m quite the complicated patient. People like to study me. I think this one [study] was very nice though because I got a very good explanation of the data afterwards. And that made the difference. That it wasn’t straining to figure out what all the information meant |
Thank you for taking the time to go through the results. Especially the last three charts so now I feel like my life has changed, so thank you. | |
I mean like it’s definitely helpful if someone can explain what the graph means for you and maybe can point out, maybe you have this problem sleeping at this like this particular time period |
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Share and Cite
Chang, S.; Gray, L.; Alon, N.; Torous, J. Patient and Clinician Experiences with Sharing Data Visualizations Integrated into Mental Health Treatment. Soc. Sci. 2023, 12, 648. https://doi.org/10.3390/socsci12120648
Chang S, Gray L, Alon N, Torous J. Patient and Clinician Experiences with Sharing Data Visualizations Integrated into Mental Health Treatment. Social Sciences. 2023; 12(12):648. https://doi.org/10.3390/socsci12120648
Chicago/Turabian StyleChang, Sarah, Lucy Gray, Noy Alon, and John Torous. 2023. "Patient and Clinician Experiences with Sharing Data Visualizations Integrated into Mental Health Treatment" Social Sciences 12, no. 12: 648. https://doi.org/10.3390/socsci12120648
APA StyleChang, S., Gray, L., Alon, N., & Torous, J. (2023). Patient and Clinician Experiences with Sharing Data Visualizations Integrated into Mental Health Treatment. Social Sciences, 12(12), 648. https://doi.org/10.3390/socsci12120648