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J. Pers. Med. 2018, 8(4), 35; https://doi.org/10.3390/jpm8040035

Patient and Provider Perspectives on a Decision Aid for Familial Hypercholesterolemia

1
Department of Cardiovascular Medicine, Mayo Clinic, Rochester, MN 55905, USA
2
Center for Science of Health Care Delivery, Mayo Clinic, Rochester, MN 55905, USA
*
Author to whom correspondence should be addressed.
Received: 27 September 2018 / Revised: 30 October 2018 / Accepted: 31 October 2018 / Published: 4 November 2018
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Abstract

Familial Hypercholesterolemia (FH) is an inherited disorder associated with increased cardiovascular risk that requires patients to make multiple impactful decisions regarding the management of their condition. Patient decision aids (PDAs) can facilitate shared decision-making (SDM) and enable patients to make choices that are concordant with their goals and values. To inform the development of a PDA for patients with FH, we employed a qualitative inductive approach and focus group discussions with patients, physicians, and genetic counselors. We explored and analyzed the perceptions and understanding of these stakeholders related to a PDA for FH and identified important concepts to include in the PDA. Categories emerging from focus group discussions included: (a) perceptions of a PDA related to FH; (b) discussion about the content of a PDA related to FH; and (c) SDM. In general, stakeholders were in favor of developing tools which can inform and individualize discussion about genetic testing and treatment options for FH. Physicians valued a tool that facilitates knowledge transfer to FH patients. Patients desired a tool to help them understand the genetic aspects of and treatment options related to FH. Genetic counselors emphasized the inclusion of visual aids to support discussion with patients. Potential barriers to and facilitators of PDA implementation were identified. The input of various stakeholders will inform the development of a prototype tool that will be iteratively tested before implementation in the clinical setting. View Full-Text
Keywords: patient decision aid; shared decision-making; familial hypercholesterolemia; focus group discussions patient decision aid; shared decision-making; familial hypercholesterolemia; focus group discussions
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).
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Farwati, M.; Kumbamu, A.; Kochan, D.C.; Kullo, I.J. Patient and Provider Perspectives on a Decision Aid for Familial Hypercholesterolemia. J. Pers. Med. 2018, 8, 35.

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