Emotional Labor in Pediatric Palliative Care: A Scoping Review
Abstract
:1. Introduction
2. Materials and Methods
2.1. Eligibility Criteria
2.2. Search Strategy
2.3. Sources of Evidence Selection
2.4. Data Extraction
2.5. Data Analysis and Presentation
3. Results
3.1. Characteristics of the Publications
3.2. Characterization of Healthcare Professionals’ Emotional Labor
3.2.1. Healthcare Professionals’ Emotional Experience
3.2.2. Relational Context Involved
3.2.3. Managing Professional and Personal Boundaries
3.2.4. Intrapersonal Strategies of Emotional Labor
3.2.5. Social and Organizational Strategies of Emotional Labor
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Public Involvement Statement
Guidelines and Standards Statement
Use of Artificial Intelligence
Acknowledgments
Conflicts of Interest
References
- Connor, S.; Downing, J.; Martson, J. Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis. J. Pain. Symp. Man. 2017, 53, 171–177. [Google Scholar] [CrossRef] [PubMed]
- Global Atlas of Palliative Care, 2nd ed.; Worldwide Palliative Care Alliance: London, UK, 2020; Available online: https://thewhpca.org/resources/global-atlas-of-palliative-care-2nd-ed-2020/ (accessed on 10 October 2024).
- Knaul, F.M.; Farmer, P.E.; Krakauer, E.L.; De Lima, L.; Bhadelia, A.; Jiang Kwete, X.; Arreola-Ornelas, H.; Gómez-Dantés, O.; Rodriguez, N.M.; Alleyne, G.A.O.; et al. Alleviating the Access Abyss in Palliative Care and Pain Relief—An Imperative of Universal Health Coverage: The Lancet Commission Report. Lancet 2018, 391, 1391–1454. [Google Scholar] [CrossRef] [PubMed]
- Radbruch, L.; De Lima, L.; Knaul, F.; Wenk, R.; Ali, Z.; Bhatnaghar, S.; Blanchard, C.; Bruera, E.; Buitrago, R.; Burla, C.; et al. Redefining Palliative Care—A New Consensus-Based Definition. J. Pain. Symp. Man. 2020, 60, 754–764. [Google Scholar] [CrossRef]
- Brighton, L.; Selman, L.; Bristowe, K.; Edwards, B.; Koffman, J.; Evans, C. Emotional Labour in Palliative and End-of-life Care Communication: A Qualitative Study with Generalist Palliative Care Providers. Patient Educ. Couns. 2019, 102, 494–502. [Google Scholar] [CrossRef]
- Mann, S. A Health-Care Model of Emotional Labor: An Evaluation of the Literature and Development of a Model. J. Health Organ. Manag. 2005, 19, 304–317. [Google Scholar] [CrossRef]
- Hochschild, A. The Managed Heart: Commercialization of Human Feeling; University of California Press: Berkely, CA, USA, 1983. [Google Scholar]
- Badolamenti, S.; Sili, A.; Caruso, R.; Fida, R. What Do We Know About Emotional Labour in Nursing? A Narrative Review. Br. J. Nurs. 2017, 26, 48–53. [Google Scholar] [CrossRef]
- Smith, P. Guest Editorial: Compassion and Smiles: What’s the Evidence? J. Res. Nurs. 2008, 13, 367–370. [Google Scholar] [CrossRef]
- Smith, P. The Emotional Labour of Nursing Revisited: Can Nurses Still Care? 2nd ed.; Palgrave Macmillan: London, UK, 2012. [Google Scholar]
- Theodosius, C. Emotional Labour in Health Care: The Unmanaged Heart of Nursing; Routledge: London, UK, 2008. [Google Scholar]
- Riley, R.; Weiss, M. A Qualitative Thematic Review: Emotional Labour in Healthcare Settings. J. Adv. Nurs. 2016, 72, 6–17. [Google Scholar] [CrossRef]
- Henderson, A. Emotional Labor and Nursing: An Under-Appreciated Aspect of Caring Work. Nurs. Inq. 2001, 8, 130–138. [Google Scholar] [CrossRef]
- Gray, B.; Smith, P. Emotional Labor and the Clinical Settings of Nursing Care: The Perspectives of Nurses in East London. Nurse Educ. Pract. 2009, 9, 253–261. [Google Scholar] [CrossRef]
- Smith, P.; Gray, B. Emotional Labour of Nursing Revisited: Caring and Learning 2000. Nurse Educ Pract. 2001, 1, 42–49. [Google Scholar] [CrossRef] [PubMed]
- Tafjord, T. Managing Strong Emotions: Nurses’ Recognition and Responses to Personal Emotions when Approaching Parents with Cancer and Their Dependent Children. Qual. Health Res. 2021, 31, 926–941. [Google Scholar] [CrossRef] [PubMed]
- Diogo, P.; Costa, A.I.; Almeida, T. Trabalho Emocional em Enfermagem: Uma Revisão Scoping sobre os Contextos de Cuidados Pediátricos. Pensar Enferm. 2020, 24, 43–64. [Google Scholar] [CrossRef]
- Diogo, P.M.J.; de Freitas, B.H.B.M.; da Costa, A.I.L.; Gaíva, M.A.M. Care in Pediatric Nursing from the Perspective of Emotions: From Nightingale to the Present. Rev. Bras. Enferm. 2021, 74, e20200377. [Google Scholar] [CrossRef]
- Peters, M.D.J.; Godfrey, C.; McInerney, P.; Munn, Z.; Tricco, A.C.; Khalil, H. Scoping Reviews (2020). In JBI Manual for Evidence Synthesis; Aromataris, E., Lockwood, C., Porritt, K., Pilla, B., Jordan, Z., Eds.; JBI: Adelaide, Australia, 2024; Available online: https://synthesismanual.jbi.global (accessed on 10 January 2025). [CrossRef]
- Tricco, A.C.; Lillie, E.; Zarin, W.; O’Brien, K.K.; Colquhoun, H.; Levac, D.; Moher, D.; Peters, M.D.J.; Horsley, T.; Weeks, L.; et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. Ann. Intern. Med. 2018, 169, 467–473. [Google Scholar] [CrossRef]
- Peters, M.D.J.; Godfrey, C.M.; Khalil, H.; McInerney, P.; Parker, D.; Soares, C.B. Guidance for Conducting Systematic Scoping Reviews. Int. J. Evid. Based Health 2015, 13, 141–146. [Google Scholar] [CrossRef]
- Page, M.J.; McKenzie, J.E.; Bossuyt, P.M.; Boutron, I.; Hoffmann, T.C.; Mulrow, C.D.; Shamseer, L.; Tetzlaff, J.M.; Akl, E.A.; Brennan, S.E.; et al. The PRISMA 2020 Statement: An Updated Guideline for Reporting Systematic Reviews. BMJ 2021, 372, 71. [Google Scholar] [CrossRef]
- Brimble, M.J.; Anstey, S.; Davies, J.; Dunn, C. An Exploration of Managing Emotional Labour and Maintaining Professional Integrity in Children’s Hospice Nursing. Int. J. Palliat. Nurs. 2024, 30, 180–188. [Google Scholar] [CrossRef]
- Gengler, A.M. “The medicine is the Easy Part”: Pediatric Physicians’ Emotional Labor in End-of-Life Care. Qual. Res. Health 2023, 4, 100324. [Google Scholar] [CrossRef]
- Brimble, M. How do Children’s Nurses Working in Hospices Manage Emotional Labour and Professional Integrity in Long-term Relationships with Parents? BMC Support. Palliat. Care 2023, 13, A20. [Google Scholar] [CrossRef]
- Bian, W.; Cheng, J.; Dong, Y.; Xue, Y.; Zhang, Q.; Zheng, Q.; Song, R.; Yang, H. Experience of Pediatric Nurses in Nursing Dying Children—A Qualitative Study. BMC Nurs. 2023, 22, 1–7. [Google Scholar] [CrossRef]
- Rawlings, D.; Winsall, M.; Yin, H.; Devery, K. “Holding Back my own Emotions”: Evaluation of an Online Education Module in Pediatric End-of-Life Care. J. Child. Health Care 2022, 28, 116–131. [Google Scholar] [CrossRef] [PubMed]
- Erel, B.; Büyük, E.T. The Effect of Emotional Labor Levels on the Attitudes of Neonatal Intensive Care Nurses Towards Palliative Care. J. Med. Palliat. Care 2021, 2, 40–46. [Google Scholar] [CrossRef]
- Uhrecký, B.; Gurňáková, J.; Marcinechová, D. ‘We Ought to be Professionals’: Strategies of Intrapersonal and Interpersonal Emotion Regulation of Emergency Medical Services Professionals in Confrontation with the Death of a Newborn in Simulated Task. Qual. Health Res. 2021, 31, 2364–2377. [Google Scholar] [CrossRef] [PubMed]
- Diogo, P.; Vilelas, J.; Rodrigues, L.; Almeida, T. Emotional Nursing Labour in the Childcare at the End-of-Life and Their Family: A Systematic Review. Int. J. Nurs. 2014, 1, 65–67. [Google Scholar] [CrossRef]
- Cricco-Lizza, R. 2014. The Need to Nurse the Nurse: Emotional labor in Neonatal Intensive Care. Qual. Health Res. 2014, 24, 615–628. [Google Scholar] [CrossRef]
- Restrepo, M.; Pilgrim, S. Proceedings of the Tenth Annual College of Education & GSN Research Conference; Plakhotnik, M.S., Nielsen, S.M., Pane, D.M., Eds.; Florida International University: Miami, FL, USA, 2011; pp. 192–199. Available online: https://digitalcommons.fiu.edu/cgi/viewcontent.cgi?article=1185&context=sferc (accessed on 30 November 2024).
- Maunder, E.Z. Emotion Management in Children’s Palliative Care Nursing. Indian. J. Palliat. Care 2008, 14, 45–50. [Google Scholar] [CrossRef]
- Kelly, D.; Ross, S.; Gray, B.; Smith, P. Death, Dying and Emotional Labour: Problematic Dimensions of the Bone Marrow Transplant Nursing Role? J. Adv. Nurs. 2000, 32, 952–960. [Google Scholar] [CrossRef]
- Smith, P. The Emotional Labour of Nursing: How Nurses Care? Macmillan: London, UK, 1992. [Google Scholar]
- Polit, D.; Beck, C. Essentials of Nursing Research: Appraising Evidence for Nursing Practice, 10th ed.; Wolkers Kluwer: New York, NY, USA, 2022. [Google Scholar]
- Diogo, P. Modelo de Trabalho Emocional em Enfermagem Pediátrica; LisbonPress: Lisboa, Portugal, 2023. [Google Scholar]
- Taylor, J.; Smith, P.; Taylor, J. A Hermeneutic Phenomenological Study Exploring the Experience Health Practitioners Have When Working with Families to Safeguard Children and the Invisibility of the Emotions Work Involved. J. Clin. Nurs. 2017, 26, 557–567. [Google Scholar] [CrossRef]
- Grandey, A.A. When ‘The Show Must Go On’: Surface Acting and Deep Acting as Determinants of Emotional Exhaustion and Peer-rated Service Delivery. Acad. Man. J. 2003, 46, 86–96. [Google Scholar]
- Grandey, A.A. Emotion Regulation in the Workplace: A New Way to Conceptualize Emotional Labor. J. Occup. Health Psychol. 2000, 5, 95–110. [Google Scholar] [PubMed]
- Gray, B. The Emotional Labor in Nursing 1: Exploring the Concept. Nurs. Times 2009, 105, 26–29. [Google Scholar] [PubMed]
- Brotheridge, C.M.; Grandey, A.A. Emotional Labor and Burnout: Comparing Two Perspectives of “People Work”. J. Vocat. Behav. 2002, 60, 17–39. [Google Scholar] [CrossRef]
- Schoenbine, D.; Gerhart, J.; McLean, K.A.; de Bettencourt, J.; Dadrass, F.; Molina, E.; Hoerger, M.; Alonzi, S.; Kent, P. Attending Patient Funerals as a Follow-up Practice of Pediatric Oncologists. Illn. Crisis Loss 2023, 31, 168–174. [Google Scholar] [CrossRef]
- Lichtenthal, W.G.; Sweeney, C.R.; Roberts, K.E.; Corner, G.W.; Donovan, L.A.; Prigerson, H.G.; Wiener, L. Bereavement Follow-up after the Death of a Child as a Standard of Care in Pediatric Oncology. Pediatr. Blood Cancer 2015, 62, S834–S869. [Google Scholar] [CrossRef]
- Smith, P.; Brennan, G.; Mansilla-Castillo, D.; Adhikari, R. Perspectives: This House Believes that a Natural Facet of Nursing Work is that it Depletes Nurses’ Wellbeing. J. Res. Nurs. 2021, 26, 264–271. [Google Scholar] [CrossRef]
Database | Search Strategy |
---|---|
MEDLINE Complete | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
CINAHL Complete | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Psychology and Behavioral Sciences Collection | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Web of Science | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Scopus | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
JBI OVID | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Scielo | (Emotional Labor OR Emotional Labour) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Lilacs | (Emotional labor OR Emotional Labour) AND (Pediatric Palliative Care OR Paediatric Palliative Care) |
PubMed | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Biomed Central | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Science Direct | (Patient Care Team) AND (Emotional Labor) AND (Pediatric Palliative Care) |
British Library Collection | (Emotional Labor OR Emotional Labour) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
Open Access Theses and Dissertations (OATD) | (Emotional Labor) AND (Pediatric Palliative Care) |
Open Access Scientific Repository of Portugal (RCAAP) | (Nurses OR Physicians OR Social Workers OR Psychologists OR Patient Care Team) AND (Emotion Work OR Emotional Management OR Emotional Regulation OR Emotional Labour OR Emotional Labor) AND (Pediatric Palliative Care OR Paediatric Palliative Care OR End-of-life) |
ResearchGate | (Emotional Labor OR Emotional Labour) AND (Pediatric Palliative Care OR Paediatric Palliative Care) |
Google Scholar | (Nurses OR Physicians OR Psychologists OR Social Workers OR Palliative Care Team) AND (Emotional Labor OR Emotional Labour) AND (Pediatric Palliative Care OR Paediatric Palliative Care) |
Author(s), Year, Country | Article Title | Methodology | Participants | Aim | Main Results | Suggestions and Limitations |
---|---|---|---|---|---|---|
Mandy J. Brimble, Sally Anstey, Jane Davies, Catherine Dunn [23] 2024 United Kingdom | “An exploration of managing emotional labour and maintaining professional integrity in children’s hospice nursing” | Narrative interpretive approach | A purposive sample of 6 children’s nurses working in a children’s hospice setting | To investigate how children’s hospice nurses manage emotional labour and professional integrity in their long-term relationships with parents | Three themes were identified: purposeful positioning (creating a psychological space between myself and work, managing empathy and emotional self-regulation); balancing personability and professionalism (I am a friendly professional, I am not their friend; managed self-disclosure); coping with and counterbalancing emotional labour (job satisfaction, positivity and fun, exceptional peer support). All themes were indicative of and built upon emotional intelligence constructs, such as self-awareness, self-regulation, empathy, social skills, and intrinsic motivation. Innate features of children’s hospice work were important for perpetuating motivation and satisfaction. | Emotional intelligence is key to managing emotional labour and professional integrity in children’s hospice nursing because can enhance relational skills. Emotional intelligence can be taught, and raising awareness is essential. Supporting well-being interventions for nurses, such as building/rebuilding resilience, is critical. |
Amanda M. Gengler [24] 2023 USA | “The medicine is the easy part”: Pediatric physicians’ emotional labor in end of life | Inductive grounded theory approach | 12 physicians caring for children with life-threatening medical conditions at two children’s hospitals | To illustrate the potential personal costs of emotional labor for physicians, the strategies used by physicians to perform it most effectively, and the resources that facilitated efforts to care | Findings: (1) Physician’s emotional labor: Strategic relationship-building; (2) Physicians’ emotional labor: “Laying black crepe” conceptualized themselves as most responsible for helping families through the dying process; (3) Physician’s emotional labor: Mitigating disparities in care, emotional labor as a tool that could help physicians to combat the potential for marginalized families to feel less comfortable or confident in their care; (4) “I wish there were more of me”: Balancing emotional labor and personal well-being. They learned to maintain the emotional reserves they needed for themselves and their families; (5) (Re)producing a new emotional culture in medicine. Physicians conceptualize the work as a fundamental responsibility to the children and families in their care despite believing that their formal medical training fails to prepare them for this component of their jobs. | Lower patient caseloads, longer appointment times, explicit worktime for physicians to complete notes and respond to patient messages, emotion-focused mentoring relationships between junior and senior physicians, and flexibility for physicians engaging in actions that support families at the end of life could contribute to enhancing relationships between providers and patients. |
Mandy J. Brimble [25] 2023 United Kingdom | How do children’s nurses working in hospices manage emotional labour and professional integrity in long-term relationships with parents? | Thematic analysis | 6 registered children’s nurses, employed at children’s hospice | To develop an understanding of how children’s hospice nurses maintain professional integrity whilst providing long-term practical, emotional, social, and spiritual care to parents and explore coping strategies used by children’s hospice nurses to manage emotional labor. | Nurses used a range of strategies to manage their relationship with parents. In terms of their emotions (purposeful positioning) and interactions (balancing personability and professionalism). Nurses revealed other children’s hospice-specific factors that helped them cope with their role (coping with and counterbalancing emotional labor). Findings were indicative of children’s hospice nurses’ using and building emotional intelligence. | Nurses used emotional intelligence to engage emotionally with parents whilst managing the level of involvement and maintaining a sense of separation. |
Weina Bian, Junxiang Cheng, Yue Dong, Ying Xue, Qian Zhang, Qinghua Zhend, Rui Song, Hongwei Yang [26] 2023 China | Experience of pediatric nurses in nursing dying children—a qualitative study | Descriptive qualitative study | 10 nurses from the pediatric, pediatric emergency, and neonatology departments. | To explore pediatric nurses’ challenges and effective coping strategies in caring for dying children | Themes were generated: stressors: negative emotions, such as sadness, dismay, and anxiety; helplessness; questioning rescue behavior, making nurses constantly recall the rescue process; fear of communication; and lack of workforce for night rescue. Stress consequences: compassion fatigue; burnout; changes in life attitudes. Coping strategies: self-regulation such as self-mediation, releasing their pressure by watching music, watching TV, reading books, and slowly forgetting the experience of rescuing the children. Nurses will not talk about it with their families. Some mentioned finding friends to communicate with; leadership approval and no accountability, nurses want support from a leader. | Nursing managers should pay attention to the feelings of nurses who care for dying children. Moreover, it provides some information for the development of nurses and the formulation of relevant policies. |
Deb Rawlings, Megan Winsall, Huahua Yin, Kim Devery [27] 2022 Australia | “Holding back my own emotions”: Evaluation of an online education module in pediatric end-of-life care | Multi-method approach | Nurses, doctors, and allied health professionals | To evaluate online education modules and explore learners’ views on challenges faced when caring for a dying child and their family in a hospital setting | Quantitative findings: the post-evaluation ranks of learners’ perceived knowledge, skill, attitude, and confidence were statistically significantly higher compared to the pre-evaluation level. Qualitative findings: themes were organized into two categories: dealing with emotions (managing own emotions; providing adequate emotional support and comfort; witnessing the emotions and grief of families; unfairness and unnaturalness of the death of a child; identifying as a parent; feeling helpless or inadequate) and communicating effectively (answering questions, not knowing what to say; being honest about the child’s prognosis; discussing goals of care, respect, and incorporating the family’s needs and wishes) | More education is needed about pediatric end-of-life care. Clinicians refer that managing their emotions and recognize professional and personal boundaries are difficult. Debriefing with colleagues, and organizational support, such as clinical supervision, reflection, and references on self-care are important. |
Beyzanur Erel and Esra Tural Büyük [28] 2021 Turkey | The effect of emotional labor levels on the attitudes of neonatal intensive care nurses towards palliative care | Correlational, cross-sectional, and descriptive design | 96 nurses employed in the neonatal intensive care unit | To determine the effect of emotional labor levels of neonatal nurses on their attitudes toward palliative care | Among the NICU nurses, who participated in the study, 61.3% stated that they did not receive training in palliative care, and 84% did not find their knowledge about palliative care sufficient. A statistically significant and negative correlation was found between the surface-acting sub-dimension of the ELS and the resources sub-dimension of the NPCAS, and a statistically significant and positive correlation was found between the expression of naturally felt emotions sub-dimension of the ELS and the clinicians sub-dimension of NPCAS. Nurses suppressed their real emotions while providing palliative care and behaved superficially. Moreover, it was determined that they displayed a positive attitude towards knowing and cooperating with neonatal palliative care practices. Nurses stated that the institutional support provided to them was not sufficient. | Training on emotional resilience, communication, and emotional labor should be provided. This training should be implemented regularly and continuously, including creative drama, simulation, and role-play methods. In-service training should be provided for nurses to increase their awareness of neonatal palliative care. Guidelines should be developed. |
Branislav Uhrecký, Jitka Gurňáková, Denisa Marcinechová [29] 2021 Slovak Republic | ‘We Ought to be Professionals’: Strategies of Intrapersonal and Interpersonal Emotion Regulation of Emergency Medical Services Professionals in Confrontation With the Death of a Newborn in Simulated Task | Inductive and deductive approaches were combined | 48 crew leaders (30 males, 18 females) from the Czech and Slovak Republic | To explore the emotion regulation strategies in a simulated task that focused on these skills | The results are structured into three sections—the affective reactions of paramedics, intrapersonal emotion regulation strategies, and interpersonal emotion regulation strategies. Intrapersonal emotional regulation includes focusing on the task (attentional narrowing, deliberate concentration, vigilance, and distancing for the scene), distancing and detachment (emotional distancing, detachment, and professionalism), and cognitive framing (positive framing, attribution to external factors, and accepting attitude). Interpersonal emotion regulation includes distraction, allowing visual contact, pretending to provide medical care, providing information, allowing space to grief, and cognitive reframing. | Regarding interpersonal emotion regulation strategies, some of them were contradictory to the optimal procedure that was proposed, such as not allowing the mother to have visual contact with her child and directing her attention elsewhere. |
Paula Diogo, José Vilelas, Luiza Rodrigues, Tânia Almeida [30] 2014 Portugal | Emotional Nursing Labour in the Childcare at the End-of-Life and Their Family: A Systematic Review | Systematic Review | Nurses | To systematize scientific evidence about the emotional labor of nurses in the process of childcare at the end of life and their families | Emotional labor has focused on nurses themselves, as they are affected by the emotional responses of the clients and the need to manage these emotions in their care practice. The performance of emotional labor is characterized as a component of the care process, as a key competence in caring, as a stressful experience in confronting the suffering of the client, and as a regulation of own emotions. | This study revealed a gap in knowledge regarding the concept of nursing emotional labor in death situations, due to the reduced number of and the lack of attention to training nurses. |
Roberta Cricco-Lizza [31] 2014 USA | The Need to Nurse the Nurse: Emotional Labor in Neonatal Intensive Care | Ethnographic approach | 114 nurses in the neonatal intensive care unit | To inductively capture the emotional labor of nurses and explore their coping strategies during their everyday care in the neonatal intensive care unit | Nurses reported three sources of emotional demands. On a personal level, they had unique concerns originating from their private life. On a professional level, they experienced emotional challenges arising from their daily care of babies and parents. They had to deal with stressors from the demands of the organization. Nurses used individual strategies when they were outside of the hospital: exercise, rest, recreational diversions, and spiritual renewal. Nurses used multiple mechanisms to cope with troubling emotions in the workplace: talking with the sisterhood of nurses, being a super nurse, using social talk and humor to defuse intensity, taking breaks, offering flexible aid, withdrawing from emotional pain, transferring out of the unit, attending memorial services, and reframing loss to find meaning in work. | The study contributes to the development of interventions for nurses and ultimately facilitate Neonatal Intensive Care nurses’ nurturance of stressed families. These have implications for staff retention, job satisfaction, and care delivery. |
Monica Restrepo, Shanna Pilgrim [32] 2011 USA | Caring for the Caregiver: Emotional Challenges of Pediatric Palliative Care Nurses | Literature Review | Pediatric palliative care nurses (PPC nurses) | This paper looks at how PPC nurses cope with caregiver emotions within the conceptual framework of emotional labor and emotional intelligence | Emotional labor allows PPC nurses to put on an appropriate face through surface acting when dealing with difficult and traumatic situations when caring for dying children and their families; the frequency of interaction and intensity of emotions plays a unique role with PPC nurses; Emotional dissonance resonates strongly in PPC nursing; Emotional intelligence allows nurses to acknowledge their emotions, rather than suppress their emotions; the use of emotional labor is an explicit tool for self-protection and how emotional intelligence could be useful in ameliorating the backside of those stored emotions. | Pediatric palliative care nursing programs benefit from implementing training and education components that include emotional labor and emotional intelligence. |
Eryl Zac Maunder [33] 2008 United Kingdom | Emotion management in children’s palliative care nursing | Literature Review | Nurses | To explore emotional labor involved for nurses providing palliative care for children/young people living with life-limiting illnesses/conditions and their families | It highlights the challenges nurses face in managing their emotions when caring for children/young people and their families and explores strategies to enable nurses to cope with this aspect of their role without compromising their well-being. It suggests that emotional labor within nursing goes largely unrecorded and remains undervalued by managers and healthcare services. | When work conditions to support emotional labor are good, and the nursing team is encouraged to work to their areas of expertise, the nurses feel better supported. |
Characteristics | Number of Publications |
---|---|
Year of Publication | Number of Publications |
2024 | 1 |
2023 | 3 |
2022 | 1 |
2021 | 2 |
2020 | 0 |
2019 | 0 |
2018 | 0 |
2017 | 0 |
2016 | 0 |
2015 | 0 |
2014 | 2 |
2013 | 0 |
2012 | 0 |
2011 | 1 |
2010 | 0 |
2009 | 0 |
2008 | 1 |
Country | Number of Publications |
United States of America | 3 |
United Kingdom | 3 |
Portugal | 1 |
Turkey | 1 |
Australia | 1 |
Slovak Republic | 1 |
China | 1 |
Type of Publications | Number of Publications |
Qualitative Studies | 6 |
Descriptive qualitative study | |
Ethnographic approach | |
Grounded theory | |
Thematic analysis | |
Inductive and deductive approach | |
Narrative interpretative approach | |
Quantitative Study | 1 |
Mixed Methods Study | 1 |
Systematic Literature Review | 1 |
Literature Review | 2 |
Type of Healthcare Professionals * | Number of Publications |
Nurses | 9 |
Physicians | 3 |
Other Healthcare Professionals | 1 |
Emergency Medical Services Professionals (Paramedic/Paramedic Driver) | 1 |
Context of Pediatric Palliative Care * | Number of Publications |
Neonatal Intensive Care Unit | 3 |
Pediatric Department | 2 |
Children’s Hospice | 2 |
Emergency Department | 1 |
Simulated Task | 1 |
Without Reference | 3 |
Emotions Experienced | References |
---|---|
Burnout, grief, and stress | [32] |
Sadness, dismay, and anxiety | [26,32] |
Feeling of helplessness | [26] |
Feeling of powerlessness | [27] |
Overwhelmed | [29] |
Frustration and anger | [32] |
Suffering | [27] |
Relationship’s Characteristics | References |
---|---|
Close and supportive | [30,31] |
Intentional and intimate | [23,24,25] |
Healthcare professional like a family member | [33] |
Planned and strategic | [24] |
Confidence | [23,24] |
Support Provided | References |
Meeting the child’s and the parents’ needs | [27,33] |
Providing emotional support and comfort | [24,27] |
Venting concerns | [31] |
Offering empathy and compassion | [27] |
Providing a mental break and distraction | [31] |
Information, guidance, emotional, instrumental, and financial support | [30] |
Open and effective communication | [27,30] |
Characteristics | References |
---|---|
Maintaining personal and professional boundaries | [27,33] |
Maintaining professional integrity | [25] |
Balancing personability and professionalism | [23,25] |
Balancing emotional labor and personal well-being | [24] |
Tension between commitment to the client’s support and personal emotional care | [24] |
Strategies Used to Deal with Own Emotions Arising from the Care of Children and Parents | References |
---|---|
Avoiding becoming overwhelmed | [27,29] |
Hiding personal sadness | [27] |
Suppressing real emotions and behaving superficially | [28] |
Putting an appropriate face | [32] |
Keeping emotional distance | [30] |
Distancing from affective responses | [29] |
Building an emotional barrier | [33] |
Indifference | [30] |
Task orientation and super-efficient attention to the child | [29,31,33] |
Compartmentalization | [24,27,31] |
Cognitive reinterpretation | [28] |
Finding a positive meaning | [30,31] |
Making memories | [23] |
Attending memorial services | [24,31] |
Service transference | [31] |
Self-care practices | References |
Exercise, rest, reading a book, listening to music, watching TV | [26,31] |
Taking breaks | [31] |
Seeking spiritual strategies | References |
Self-meditation, religion, faith, spiritual restoration, spiritual renewal | [26,30,31] |
Social and Organizational Strategies | References |
---|---|
Support from friends or colleagues | [26] |
Support from the team | [23,30,33] |
Support from managers/leaders | [26,31] |
Use of humor | [31,33] |
Professional development strategies | References |
Education and training programs | [24,28,31] |
Debriefing sessions | [31] |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Costa, A.I.L.d.; Barros, L.; Diogo, P. Emotional Labor in Pediatric Palliative Care: A Scoping Review. Nurs. Rep. 2025, 15, 118. https://doi.org/10.3390/nursrep15040118
Costa AILd, Barros L, Diogo P. Emotional Labor in Pediatric Palliative Care: A Scoping Review. Nursing Reports. 2025; 15(4):118. https://doi.org/10.3390/nursrep15040118
Chicago/Turabian StyleCosta, Ana Inês Lourenço da, Luísa Barros, and Paula Diogo. 2025. "Emotional Labor in Pediatric Palliative Care: A Scoping Review" Nursing Reports 15, no. 4: 118. https://doi.org/10.3390/nursrep15040118
APA StyleCosta, A. I. L. d., Barros, L., & Diogo, P. (2025). Emotional Labor in Pediatric Palliative Care: A Scoping Review. Nursing Reports, 15(4), 118. https://doi.org/10.3390/nursrep15040118