Awareness of Care Managers Concerning Grief Care for Older Bereaved Individuals Living Alone Following the Loss of Their Spouse: A Qualitative Research †
Abstract
1. Introduction
2. Materials and Methods
2.1. Research Design
2.2. Research Participants
2.3. Data Collection Methods
2.4. Analysis Method
2.5. Ensuring Rigor
2.6. Ethical Considerations
3. Results
3.1. Overview of Research Participants (Table 1)
3.2. Care Managers’ Perceptions of Grief Care for Older People Living Alone (Table 2)
Category | Subcategory | Code |
---|---|---|
The necessity of supporting older widows and widowers | The importance of relationships with older bereaved families | Just because the same words are spoken to different people, it doesn’t mean they’ll be received in the same way. I believe that the way we reach out depends on our relationship (F8). I think that the ability to enter without hesitation is influenced by prior interactions (K3). The frequency of visits and the degree of engagement change depending on the depth of the relationship (E11). |
The necessity of assessing older bereaved individuals. | I am forced to consider the response. Each person’s situation, life, and relationships are different, and assessment is important (O9). It is difficult to judge and evaluate the level of support needed (Q18). I question whether I was able to view not only the users but also their surviving spouses comprehensively (K4). | |
The need for multidisciplinary collaboration | By entrusting areas of expertise and specialties to others, I can receive support in areas where I lack knowledge (C14). If we can connect with the same mindset, we can collaborate closely. I feel that exchanging information, even about trivial matters, is important (L18). | |
Ambivalent Emotions in Grief Care | The pain of accepting feelings | There are times when it can be painful, as it may serve as a release for stress and feelings (G7). Although all I can do is listen, I do not want to listen superficially. There are also times when I hurt myself (H2). |
The sense of security for older bereaved individuals | I realize that after visiting the older bereaved family, having tea and talking with them, I feel relieved (D9). I think it is good for those who have family support (D14). It also becomes a care for my own heart (C11). | |
Consideration of Death | Consideration of Death | I am made to think about death (A2). I am prompted to consider what is necessary to fulfill how I want to face the end (D4). It is important to talk about death from a time when one is healthy (P27). |
Loss of Relationship | I feel a sharp sensation of our relationship suddenly severing (N5). The contract has ended, but when I return to the site from that time, there is an indescribable feeling (M15). I can feel the time that will not return (I11). | |
The Necessity of Reflection | The need to reflect on grief care | By reflecting on the grief care I have provided, there are times when I feel that what I have done was good, but there are not many opportunities to do so (D29). I feel the need for a space where I can reflect and share my own story (B8). Looking back, I realize that what I did not think of as grief care was actually grief care (C12). |
The need to share grief care | I feel that if we can share our experiences with each other, the practice of grief care will progress, supporting the bereaved in their reintegration into society and preventing losses to society (C20). I hope that by sharing this experience, it will become something transformative (N10). If there is an opportunity to leverage this experience and listen to the stories of others, I would like to try (H9). | |
Challenges in Implementing Grief Care | The necessity of grief care education | I feel that as home care for the terminally ill increases, there is a growing need for knowledge and skills related to grief, but there are no opportunities to learn (D32). Since I have not received education in grief care, I am struggling with it (F9). My grief care is self-taught, and I lack confidence, so I want to study it properly (D21). |
The necessity of support systems for older bereaved individuals | I believe that if there is a support system in the community, we can provide continuous support (J7). For bereaved families who cannot accept their loss, I feel it is important to support them in finding a new life and joy, but I struggle with who should take on that role (B1). I think it is concerning to leave those who are still grieving alone, but I am troubled that I cannot visit them frequently (H4). |
3.2.1. The Necessity of Supporting Older Survivors
3.2.2. Ambivalent Emotions in Grief Care
3.2.3. Consideration of Death
3.2.4. The Necessity of Reflection
3.2.5. Challenges in Implementing Grief Care
4. Discussion
4.1. Necessity to Support Older Widows and Widowers
4.2. Ambivalent Feelings Embraced in Grief Care
4.3. Consideration of Death
4.4. Necessity for Reflection
4.5. Challenges in Implementing Grief Care
4.6. Limitations and Future Challenges of This Study
5. Conclusions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Public Involvement Statement
Guidelines and Standards Statement
Use of Artificial Intelligence
Acknowledgments
Conflicts of Interest
References
- Cabinet Office. Version of the White Paper on Aging Society. 2024; p. 4. Available online: https://www8.cao.go.jp/kourei/whitepaper/w-2024/zenbun/pdf/1s1s_01.pdf (accessed on 29 January 2025).
- Cabinet Office. Edition of the Aging Society White Paper. 2024; pp. 10–11. Available online: https://www8.cao.go.jp/kourei/whitepaper/w-2024/zenbun/pdf/1s1s_03.pdf (accessed on 29 January 2025).
- Cabinet Office. Edition of the Aging Society White Paper. 2019; p. 66. Available online: https://www8.cao.go.jp/kourei/whitepaper/w-2019/html/zenbun/s1_3_1_4.html (accessed on 29 January 2025).
- Ministry of Health, Labour and Welfare, Regarding the Establishment of Home Medical Care Systems. 2023. Available online: https://www.mhlw.go.jp/content/10800000/001146149.pdf (accessed on 29 January 2025).
- Holmes, T.H.; Rahe, R.H. The social readjustment rating scale. J. Psychosom. Res. 1967, 11, 213–218. [Google Scholar] [CrossRef] [PubMed]
- Stroebe, M.; Schut, H.; Stroebe, W. Health outcomes of bereavement. Lancet 2007, 370, 1960–1973. [Google Scholar] [CrossRef]
- Cole, M.G.; Dendukuri, N. Risk factors for depression among elderly community subjects: A systematic review and meta-analysis. Am. J. Psychiatry 2003, 160, 1147–1156. [Google Scholar] [CrossRef]
- Hongo, S.; Kondo, K.; Makino, T.; Kuze, J.; Higuchi, K.; Sugimoto, H.; Miyata, K. Support needed by caregivers in terminal care for home-dwelling elderly—A survey targeting bereaved families. Term. Care 2003, 13, 404–411. [Google Scholar]
- Suzuki, H.; Takigawa, S. Loneliness and related factors in men who have experienced the loss of a spouse. Hosp. Care Home Care 2005, 13, 238–243. [Google Scholar]
- Sugimoto, T.; Imai, K.K. Analysis of the feelings of home-dwelling elderly people who have lost a spouse. Nurs. J. Kagawa Med. Univ. 2004, 8, 37–44. [Google Scholar]
- Onishi, H.; Hirayama, M. (Eds.) Clinical Studies in Death and Life Series 2, What Has Emerged from the Bereaved Outpatient Clinic. In To Recover from the Grief of Loss; Seigakuin University Press: Saitama-ken, Japan, 2010; Volume C3311, ISBN 978-4-915832-83-3. [Google Scholar]
- Hirano, K. The role of home care nurses for elderly individuals who have provided care for their spouse at home: Insights from the narratives of elderly individuals living alone. Hosp. Care Home Care 2023, 31, 36–44. [Google Scholar]
- Chang, E.; Bidewell, J.; Hancock, K.; Johnson, A.; Easterbrook, S. Community palliative care nurse experiences and perceptions of follow-up bereavement support visits to carers. Int. J. Nurs. Pract. 2012, 18, 332–339. [Google Scholar] [CrossRef] [PubMed]
- Brownhill, S.; Chang, E.; Bidewell, J.; Johnson, A. A decision model for community nurses providing bereavement care. Br. J. Community Nurs. 2013, 18, 133–139. [Google Scholar] [CrossRef] [PubMed]
- World Health Organization (WHO). Palliative Care. 2020. Available online: https://www.who.int/news-room/fact-sheets/detail/palliative-care (accessed on 29 January 2025).
- National Health Service. Mental Health. Feelings, Symptoms and Behaviours. Available online: https://www.nhs.uk/mental-health/feelings-symptoms-behaviours/ (accessed on 10 February 2025).
- National Hospice and Palliative Care Organization. Getting Grief and Loss Support. Available online: https://www.caringinfo.org/planning/grief-and-loss/getting-grief-and-loss-support/ (accessed on 10 February 2025).
- Cruse Bereavement Support. Get Support. One to One Support. Available online: https://www.cruse.org.uk/get-support/one-to-one/ (accessed on 10 February 2025).
- Ghesquiere, A.; Bagaajav, A.; Metzendorf, M.; Bookbinder, M.; Gardner, D.S. Hospice bereavement service delivery to family members and friends with bereavement-related mental health symptoms. Am. J. Hosp. Palliat. Care 2019, 36, 370–378. [Google Scholar] [CrossRef]
- Japanese Psycho-Oncology Society; Japan Society of Cancer Supportive Care. Bereavement Care Guidelines; Kanehara Publishing: Tokyo, Japan, 2022; ISBN 978-4-307-10217-9. [Google Scholar]
- Stroebe, W.; Stroebe, M.S. Bereavement and Health: The Psychological and Physical Consequences of Partner Loss; Cambridge University Press: Cambridge, UK, 1987. [Google Scholar] [CrossRef]
- Sakaguchi, Y. Grief Care for Those Who Have Lost a Loved One; Sougensha: Tokyo, Japan, 2023; Volume 12–13, ISBN 978-4-422-32086-1. [Google Scholar]
- Seto, N.; Hirose, H.T. Grief Care and Grief Counseling: A Practical Guide to Supporting Bereavement and Grief; Nippon Hyoron Sha: Tokyo, Japan, 2023; ISBN 978-4-535-98509-4. [Google Scholar]
- Sakaguchi, Y. Introduction to Grief Studies—Learning about the Grief of Losing a Loved One; Showadō: Osaka, Japan, 2022. [Google Scholar]
- Takagi, K.; Akimoto, T. A Must-Read for Those Involved in Grief Care and Spiritual Care; Creates Kamogwa: Kyoto, Japan, 2023; Volume C3012, ISBN 978-4-86342-352-7. [Google Scholar]
- Onisi, H.; Ishida, M. Family and Bereavement Care. Jpn. Soc. Psychosom. Med. 2014, 54, 45–52. Available online: https://mol.medicalonline.jp/archive/search?jo=cv6jpsym&ye=2014&vo=54&issue=1 (accessed on 2 September 2025).
- Brodbeck, J.; Jacinto, S.; Gouveia, A.; Mendonça, N.; Madörin, S.; Brandl, L.; Schokking, L.; Rodrigues, A.M.; Gonçalves, J.; Mooser, B.; et al. A web-based self-help intervention for coping with the loss of a partner: Protocol for randomized controlled trials in 3 countries. JMIR Res. Protoc. 2022, 11, e37827. [Google Scholar] [CrossRef]
- Berntsen, G.R.; Yaron, S.; Chetty, M.; Canfield, C.; Ako-Egbe, L.; Phan, P.; Curran, C.; Castro, I. Person-centered care (PCC): The people’s perspective. Int. J. Qual. Health Care 2021, 33 (Suppl. 2), ii23–ii26. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Sillner, A.Y.; Madrigal, C.; Behrens, L. Person-centered gerontological nursing: An overview across care settings. J. Gerontol. Nurs. 2021, 47, 7–12. [Google Scholar] [CrossRef]
- Benkel, I.; Skoglund, J.; Enstedt, D.; Hård af Segerstad, Y.; Öhlén, J.; Nyblom, S. Understanding the needs for support and coping strategies in grief following the loss of a significant other: Insights from a cross-sectional survey in Sweden. Palliat. Care Soc. Pract. 2024, 18, 26323524241275699. [Google Scholar] [CrossRef]
- Riguzzi, M.; Thaqi, Q.; Lorch, A.; Blum, D.; Peng-Keller, S.; Naef, R. Contextual determinants of guideline-based family support during end-of-life cancer care and subsequent bereavement care: A cross-sectional survey of registered nurses. Eur. J. Oncol. Nurs. 2024, 70, 102555. [Google Scholar] [CrossRef]
- Louise, I.R.; Nikki, Y.Y.; Yasmine, A.A.; Laurie, S.; Mark, E.F.; Adam, M.D. The impact of bereavement support on psychological distress in family members: A systematic review and meta-analysis. Crit. Care Resusc. 2023, 23, 225–233. [Google Scholar] [CrossRef]
- Yamamoto, T. Clinical Psychology of Loss and Grief: Modal Model and Morning Work; Seishin Shobo, Ltd.: Tokyo, Japan, 2014; ISBN 978-4414400854. [Google Scholar]
- Riguzzi, M.; Thaqi, Q.; Peng-Keller, S.; Lorch, A.; Blum, D.; Naef, R. Adoption of evidence-based end- of- life and bereavement support to families in cancer care: A contextual analysis study with health professionals. J. Clin. Nurs. 2024, 33, 3599–3614. [Google Scholar] [CrossRef]
- Niino, K.; Patapoff, M.A.; Mausbach, B.T.; Liu, H.; Moore, A.A.; Han, B.H.; Palmer, B.W.; Jester, D.J. Development of loneliness and social isolation after spousal loss: A systematic review of longitudinal studies on widowhood. J. Am. Geriatr. Soc. 2025, 73, 253–265. [Google Scholar] [CrossRef] [PubMed]
- Nazlıer, E.N.Y.; Özkan, Y. An Examination of the Factors Influencing Grief Cognition and Meaning Reconstruction among Older Bereaved spouses. Death Stud. 2024, 23, 1–12. [Google Scholar] [CrossRef] [PubMed]
- Hirano, K. Methods of grief care implemented by care managers—Targeting solitary elderly individuals who have lost their spouses. J. Care Manag. 2023, 21, 66–76. [Google Scholar]
- Banner, P.; Wrubel, J.T. The Primacy of Caring: Stress and Coping in Health and Illness; Nanba, T., Ed.; Translated by 1989; Igakusyoin: Tokyo, Japan, 1999; Volume 448. [Google Scholar]
- Sato, I. Qualitative Data Analysis—Principles, Methods, Practice, 1st ed.; Shinyosha: Tokyo, Japan, 2008; ISBN 9784788510951. [Google Scholar]
- Lincoln, Y.S.; Guba, E.G. Naturalistic Inquiry; Sage Publications: Beverly Hills, CA, USA, 1985; pp. 289–331. [Google Scholar]
- Aoun, S.M.; Rumbold, B.; Howting, D.; Bolleter, A.; Breen, L.J. Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS ONE 2017, 12, e0184750. [Google Scholar] [CrossRef]
- Holtslander, L.; Baxter, S.; Mills, K.; Bocking, S.; Dadgostari, T.; Duggleby, W.; Duncan, V.; Hudson, P.; Ogunkorode, A.; Peacock, S. Honoring the voices of bereaved caregivers: A Metasummary of qualitative research. BMC Palliat. Care 2017, 16, 48. [Google Scholar] [CrossRef]
- Okamoto, F.; Hiramatsu, M. Difficulties faced by home care nurses in grief care for families of terminally ill cancer patients at home. J. Jpn. Home Care 2018, 22, 92–98. [Google Scholar]
- Sakaguchi, Y. Death and grief care in a super-aging society. J. Gerontol. Nurs. 2021, 25, 16–20. [Google Scholar]
- Pragmatic RCT to Assess the Effectiveness of an Online Self-Help Programme for Older Adults After Spousal Bereavement. Available online: https://clinicaltrials.gov/study/NCT05156346 (accessed on 2 September 2025).
- Furuse, M. The support process for terminal cancer patients by skilled care managers with basic qualifications in welfare work. Hosp. Care Home Care 2017, 25, 103–109. [Google Scholar]
- Yanagihara, K. Analysis of the ‘awareness of end-of-life care’ among care support professionals and related factors. In Bulletin of the Department of Health Sciences; Niigata University School of Medicine: Niigata, Japan, 2006; Volume 8, pp. 3–14. [Google Scholar]
- Dōzono, H.; Okada, S.; Shirasawa, M. The role of care management specialists in home terminal care for the elderly. Life Sci. Res. 2007, 6, 163–173. [Google Scholar]
- Holm, M.; Årestedt, K.; Öhlen, J.; Alvariza, A. Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care. Death Stud. 2020, 44, 531–539. [Google Scholar] [CrossRef] [PubMed]
- Redshaw, S.; Harrison, K.; Johnson, A.; Chang, E. Community nurses’ perceptions of providing bereavement care. Int. J. Nurs. Pract. 2013, 19, 344–350. [Google Scholar] [CrossRef] [PubMed]
- Shimanuki, M.; Matsui, M. Care management and perspectives on life and death in hospice care for patients with terminal cancer by certified care managers. Hosp. Home Care 2011, 19, 38–41. [Google Scholar]
- Mori, S. Revisiting perspectives on life and death. Care Manag. 2015, 17, 30–31. [Google Scholar]
- Ogasawara, C. End-of-Life Care Nursing—Fundamentals and Practice, 1st ed.; Nouvelle Hirokawa: Tokyo, Japan, 2018; pp. 30–33. ISBN 978-4-86174-074-9. [Google Scholar]
- Nagayama, H.; Ogasawara, C.; Tainaka, Y. The structure of nurses’ views on life and death related to end-of-life care—Development and verification of a scale for nurses’ views on life and death. J. Jpn. Soc. Nurs. Sci. 2021, 41, 296–304. [Google Scholar]
- Taiga, Y.; Mori, T. The process of grief work associated with the loss of the care manager’s role in home healthcare support—A study on support for elderly individuals living alone with cancer in view of end-of-life care. Bol. Aichi Prefectural Univ. Educ. Welf. 2018, 67, 11–20. [Google Scholar]
- Sugino, M.; Akiyama, S. The perspective of non-medical professionals on life and death revealed from awareness of one’s own death—Using the life and death scale by Hirai et al. Hiroshima International University. J. Nurs. 2017, 15, 31–46. [Google Scholar]
- Thaqi, Q.; Riguzzi, M.; Blum, D.; Peng-Keller, S.; Lorch, A.; Naef, R. End-of-life and bereavement support to families in cancer care: A cross-sectional survey with bereaved family members. BMC Health Serv. Res. 2024, 24, 155. [Google Scholar] [CrossRef]
- Narimatsu, J.; Tanaka, M.; Tanaka, A.; Nagao, N.; Irino, R.; Torii, J.; Nomura, M. End-of-life care management and views on life and death among care managers. J. Shikoku Assoc. Public Health 2024, 69, 139–146. [Google Scholar] [CrossRef]
- Van Baarsen, B.; Van Duijn, M.A.J.; Smit, J.H.; Snijders, T.A.B.; Knipscheer, K.P.M. Patterns of adjustment to partner loss in old age: The widowhood adaptation longitudinal study. Omega 2002, 44, 5–36. [Google Scholar] [CrossRef]
- Cohen, M.A. Bereavement groups with the elderly. J. Psychother. Indep. Pract. 2000, 1, 33–41. [Google Scholar] [CrossRef]
- Erlangsen, A.; Jeune, B.; Bille-Brahe, U.; Vaupel, J.W. Loss of partner and suicide risks among oldest old: A population-based register study. Age Ageing 2004, 33, 378–383. [Google Scholar] [CrossRef]
- Hirakawa, Y. The role and challenges of care managers in advance care planning for the elderly. Hosp. Care Home Care 2019, 27, 66–67. [Google Scholar]
- Mizobe, Y.; Matsugi, K. Current status and challenges of grief care in home nursing: A literature review. Osaka Med. Coll. Nurs. Res. 2020, 10, 70–81. [Google Scholar]
- Watanabe, A.; Tomita, S. Difficulties and educational issues faced by visiting nurses in grief care. J. Kawasaki Med. Welf. Soc. 2021, 30, 475–482. [Google Scholar] [CrossRef]
- O’Brien, B.C.; Harris, I.B.; Beckman, T.J.; Reed, D.A.; Cook, D.A. Standards for reporting qualitative research: A synthesis of recommendations. Acad. Med. 2014, 89, 1245–1251. [Google Scholar] [CrossRef] [PubMed]
Research Participants | Sex | Age | Basic Job Categories | Years of Experience as a Care Manager | Main Periods for Visiting Bereaved Families | Number of Visits to the Bereaved Family |
---|---|---|---|---|---|---|
A | Woman | In their 50 s | Caregiver | 8 years | Shortly after passing away, around the forty-ninth day. | 1–2 |
B | Woman | In their 60 s | Caregiver | 10 years and 4 months | Immediately after passing away, first anniversary of the death | 2–3 |
C | Woman | In their 60 s | Medical profession | 3 years and 3 months | Shortly after passing away, around the forty-ninth day. | 2–3 |
D | Woman | In their 60 s | Caregiver | 17 years and 1 month | Immediately after passing away, around one month later. | 1–2 |
E | Woman | In their 60 s | Caregiver | 20 years and 2 months | Immediately after passing away—the first seven days | 1–2 |
F | Woman | In their 60 s | Caregiver | 10 years | Shortly after passing away, around the forty-ninth day. | 1–2 |
G | Woman | In their 60 s | Caregiver | 11 years | Immediately after passing away—the first seven days | 1 |
H | Woman | In their 30 s | Caregiver | 7 years and 2 months | Around the forty-ninth day | 1 |
I | Woman | In their 50 s | Caregiver | 10 years and 2 months | Around the forty-ninth day | 1 |
J | Man | In their 40 s | Caregiver | 12 years | Around the forty-ninth day | 1 |
K | Woman | In their 40 s | Caregiver | 8 years and 4 months | Immediately after passing away | 1 |
L | Woman | In their 50 s | Caregiver | 6 years and 1 month | Around the forty-ninth day | 1 |
M | Woman | In their 50 s | Caregiver | 11 years and 6 months | Immediately after passing away—the first seven days | 1 |
N | Woman | In their 60 s | Caregiver | 12 years | Immediately after passing away | 1 |
O | Woman | In their 50 s | Medical profession | 20 years | Shortly after passing away, around the forty-ninth day. | 1–2 |
P | Man | In their 40 s | Caregiver | 3 years and 11 months | The first seven days after death | 1 |
Q | Woman | In their 50 s | Caregiver | 13 years and 1 month | Shortly after passing away, around the forty-ninth day. | 2 |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2025 by the author. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Hirano, K. Awareness of Care Managers Concerning Grief Care for Older Bereaved Individuals Living Alone Following the Loss of Their Spouse: A Qualitative Research. Nurs. Rep. 2025, 15, 346. https://doi.org/10.3390/nursrep15100346
Hirano K. Awareness of Care Managers Concerning Grief Care for Older Bereaved Individuals Living Alone Following the Loss of Their Spouse: A Qualitative Research. Nursing Reports. 2025; 15(10):346. https://doi.org/10.3390/nursrep15100346
Chicago/Turabian StyleHirano, Kazumi. 2025. "Awareness of Care Managers Concerning Grief Care for Older Bereaved Individuals Living Alone Following the Loss of Their Spouse: A Qualitative Research" Nursing Reports 15, no. 10: 346. https://doi.org/10.3390/nursrep15100346
APA StyleHirano, K. (2025). Awareness of Care Managers Concerning Grief Care for Older Bereaved Individuals Living Alone Following the Loss of Their Spouse: A Qualitative Research. Nursing Reports, 15(10), 346. https://doi.org/10.3390/nursrep15100346