A Systematic Review of Literature on Caregiving Preparation of Adult Children
Abstract
:1. Introduction
2. Methods
2.1. Search Strategy
2.2. Inclusion and Exclusion Criteria
2.3. Data Collection
2.4. Data Analysis
3. Results
3.1. Conceptualisations of Care Preparation
3.2. Prevalence of Care Preparation
3.3. Influencing Factors and Consequences of Caregiving Preparation
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Schoeni, R.F.; Cho, T.-C.; Choi, H. Close enough? Adult child-to-parent caregiving and residential proximity. Soc. Sci. Med. 2022, 292, 114627. [Google Scholar] [CrossRef]
- Wettstein, G.; Zulkarnain, A. How much long-term care do adult children provide. Issue Brief 2017, 17-11, 1–5. [Google Scholar]
- National Alliance for Caregiving. 2020 Report Caregiving in the U.S. Available online: https://www.caregiving.org/wp-content/uploads/2021/01/full-report-caregiving-in-the-united-states-01-21.pdf (accessed on 5 May 2023).
- Li, F.; Otani, J. Financing elderly people’s long-term care needs: Evidence from China. Int. J. Health Plan. Manag. 2018, 33, 479–488. [Google Scholar] [CrossRef] [Green Version]
- Cicirelli, V.G. Measure of filial anxiety regarding anticipated care of elderly parents. Gerontologist 1988, 28, 478–482. [Google Scholar] [CrossRef]
- Morais, D.M.D.C.B.; Faria, C.M.G.M.; Fernandes, L.P.N.S. Intergenerational Caregiving: The Role of Attachment and Mental Representation of Caregiving in Filial Anxiety of Middle-Aged Children. J. Intergener. Relatsh. 2019, 17, 468–487. [Google Scholar] [CrossRef]
- Bai, X.; Liu, C.; Song, Y.; Sörensen, S. Adaptation and Validation of the Preparation for Future Care Needs Scale for Chinese Older Adults in Hong Kong. Gerontologist 2022, 62, e357–e368. [Google Scholar] [CrossRef]
- Boerner, K.; Carr, D.; Moorman, S. Family relationships and advance care planning: Do supportive and critical relations encourage or hinder planning? J. Gerontol. Ser. B Psychol. Sci. Soc. Sci. 2013, 68, 246–256. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Sörensen, S.; Webster, J.D.; Roggman, L.A. Adult attachment and preparing to provide care for older relatives. Attach. Hum. Dev. 2002, 4, 84–106. [Google Scholar] [CrossRef]
- Sörensen, S.; Pinquart, M. Preparation for future care needs: Styles of preparation used by older Eastern German, United States, and Canadian women. J. Cross-Cult. Gerontol. 2000, 15, 349–381. [Google Scholar] [CrossRef] [PubMed]
- Sörensen, S.; Pinquart, M. Developing a Measure of Older Adults’ Preparation for Future Care Needs. Int. J. Aging Hum. Dev. 2001, 53, 137–165. [Google Scholar] [CrossRef] [PubMed]
- Sörensen, S.; Chapman, B.P.; Duberstein, P.R.; Pinquart, M.; Lyness, J.M. Assessing Future Care Preparation in Late Life: Two Short Measures. Psychol. Assess. 2017, 29, 1480–1495. [Google Scholar] [CrossRef] [PubMed]
- Bromley, M.C.; Blieszner, R. Planning for Long-Term Care: Filial Behavior and Relationship Quality of Adult Children with Independent Parents. Fam. Relat. 1997, 46, 155–162. [Google Scholar] [CrossRef] [Green Version]
- Brown, T.K. The Process of Becoming a Caregiver to an Aging Parent a Qualitative Study. Ph.D. Thesis, Idaho State University, Pocatello, ID, USA, 2000. [Google Scholar]
- Conway-Turner, K.; Karasik, R. Adult Daughters’ Anticipation of Care-Giving Responsibilities. J. Women Aging 1993, 5, 9–114. [Google Scholar] [CrossRef]
- Conway-Turner, K.; Karasik, R. The impact of work status on adult daughters’ early and future caregiving. J. Community Psychol. 1997, 25, 505–512. [Google Scholar] [CrossRef]
- Fowler, C.; Afifi, W.A. Applying the Theory of Motivated Information Management to adult children’s discussions of caregiving with aging parents. J. Soc. Pers. Relatsh. 2011, 28, 507–535. [Google Scholar] [CrossRef]
- Fowler, C.; Fisher, C.L. Attitudes Toward Decision Making and Aging, and Preparation for Future Care Needs. Health Commun. 2009, 24, 619–630. [Google Scholar] [CrossRef]
- Gui, T.; Koropeckyj-Cox, T. “I Am the Only Child of my Parents:” Perspectives on Future Elder Care for Parents among Chinese Only-Children Living Overseas. J. Cross-Cult. Gerontol. 2016, 31, 255–275. [Google Scholar] [CrossRef]
- Hansson, R.O.; Nelson, R.E.; Carver, M.D.; NeeSmith, D.H.; Dowling, E.M.; Fletcher, W.L.; Suhr, P. Adult children with frail elderly parents: When to intervene? Fam. Relat. 1990, 39, 153–158. [Google Scholar] [CrossRef]
- Lieberman, G.L. Children of the elderly as natural helpers: Some demographic differences. Am. J. Community Psychol. 1978, 6, 489–498. [Google Scholar] [CrossRef]
- Miller, S. Adult children’s information deficiencies and risk aversion regarding LTCI purchase for elderly parents: A multi case study. Int. J. Teach. Case Stud. 2015, 6, 20–34. [Google Scholar] [CrossRef]
- Myers, D.R.; Roff, L.L.; Harris, H.W.; Klemmack, D.L.; Parker, M.W. A Feasibility Study of a Parent Care Planning Model with Two Faith-Based Communities. J. Relig. Spiritual. Aging 2005, 17, 39–53. [Google Scholar] [CrossRef]
- Paulson, D.; Bassett, R. Prepared to care: Adult attachment and filial obligation. Aging Ment. Health 2016, 20, 1221–1228. [Google Scholar] [CrossRef] [PubMed]
- Radina, M.E. Mexican American siblings caring for aging parents: Processes of caregiver selection/designation. J. Comp. Fam. Stud. 2007, 38, 143–168. [Google Scholar] [CrossRef]
- Sörensen, S. Predictors of anticipating caregiving in multigeneration families: An exploratory study. J. Appl. Gerontol. 1998, 17, 499–520. [Google Scholar] [CrossRef]
- Sörensen, S.; Zarit, S.H. Preparation for Caregiving: A Study of Multigeneration Families. Int. J. Aging Hum. Dev. 1996, 42, 43–63. [Google Scholar] [CrossRef] [PubMed]
- Stolee, P.; Zaza, C.; Sharratt, M.T. Later Life Care Planning Conversations for Older Adults and Families. J. Appl. Gerontol. 2014, 33, 710–736. [Google Scholar] [CrossRef]
- Yoo, G.J.; Kim, B.W. Remembering Sacrifices: Attitude and Beliefs Among Second-generation Korean Americans Regarding Family Support. J. Cross-Cult. Gerontol. 2010, 25, 165–181. [Google Scholar] [CrossRef]
- Sörensen, S. Preparation for Caregiving: The Dimensions, Antecedents, and Consequences of Thinking Ahead in Multi-Generation Families. Ph.D. Thesis, The Pennsylvania State University, State College, PA, USA, 1994. [Google Scholar]
- Aspinwall, L.G.; Taylor, S.E. A stitch in time: Self-regulation and proactive coping. Psychol. Bull. 1997, 121, 417. [Google Scholar] [CrossRef]
- Karasik, R.J.; Conway-Turner, K. Role of siblings in adult daughters’ anticipation of caregiving. J. Adult Dev. 1995, 2, 257–263. [Google Scholar] [CrossRef]
- Bradley, S.; Miller, J.; Murtha, B.; Parkinson, J.; Horst, S. Filial anxiety among adult children: An exploratory study of planning behaviors. Praxis 2008, 8, 37–45. [Google Scholar]
- Day, R.D. Introduction to Family Processes, 5th ed.; Routledge: London, UK, 2010. [Google Scholar]
- Merton, R.K. Anticipatory socialization. In Role Theory: Concepts and Research; Biddle, B.J., Thomas, E.J., Eds.; John Wiley: New York, NY, USA, 1966; pp. 347–350. [Google Scholar]
- Aspinwall, L.G. Future-Oriented Thinking, Proactive Coping, and the Management of Potential Threats to Health and Well-Being. In The Oxford Handbook of Stress, Health and Coping; Oxford University Press: New York, NY, USA, 2011. [Google Scholar]
Characteristics of Reviewed Literature (N = 18) | N | % |
---|---|---|
Source of literature | ||
| 15 | 83.3% |
| 3 | 16.7% |
Method | ||
| 8 | 45.5% |
| 1 | 4.5% |
| 4 | 22.7% |
| 4 | 22.7% |
| 1 | 4.5% |
Author (Year) | Participants | Method | Findings |
---|---|---|---|
Bromley and Blieszner (1997) [13] | 169 adult children who were aged 20–59 and mostly White, highly educated, and female | Mail questionnaire survey | More than 80% of the adult children considered the future dependency needs of their still-healthy parent. The age, gender, personal authority, and family stressors of the adult children were associated with their caregiving anticipation. Preliminary planning and making final decisions rarely occurred. Family stressors and personal authority were related to the likelihood of conducting discussions. |
Brown (2000) [14] | 8 caregivers or caregiver-to-be, aged 40–60 years | Qualitative interviews and focus group | The process included three components, namely awareness, decisions, and thinking ahead, which influenced and were influenced by the feelings of participants. |
Conway-Turner and Karasik (1993) [15] | 103 adult daughters aged 30–55 years (mean age, 37 years) | Face-to-face questionnaire survey | In this study, 99% of the participants considered the possibility of providing care to their ageing mothers, 68.3% considered it either frequently or almost daily. The mean age at which they started to consider caregiving was 28 years. The proximity between mother and daughter, the health status of one’s daughter, and the age of the mother were associated with caregiving anticipation. |
Conway-Turner and Karasik (1997) [16] | 103 adult daughters aged 30–55 years (mean age, 37 years) | Face-to-face questionnaire survey | The daughters were more prone to anticipate providing care when a long-term crisis occurred than when a short-term crisis occurred. More than 90% of the daughters anticipated providing advice or information if a crisis occurred, whereas financial assistance or hiring others to help their mothers was anticipated more frequently in response to a long-term crisis. |
Fowler and Afifi (2011) [17] | 173 adult children aged >40 years (mean age, 47.44 years) | Experiment | Filial anxiety was correlated with the likelihood of engaging in discussions with parents regarding their preferences for future care and coping efficacy. |
Fowler and Fisher (2009) [18] | 128 adult children aged >40 years; 113 nonrelated parents aged >60 years | Face-to-face questionnaire survey | Attitudes toward shared autonomy and ageing anxiety, concerns about the negative effects of caregiving, and perceptions of a limited future were associated with caregiving preparation. |
Gui and Koropeckyj-Cox (2016) [19] | 20 Chinese young adults aged 23–31 years | Qualitative interviews | Some migrant adult children planned to settle down in Canada and bring their parents over, whereas others planned to return to China. The adult children were expected to take care of their parents in the future but also to consider their dilemmas. |
Hansson et al. (1990) [20] | 242 adult children (median age, 40 years) | Qualitative interviews and face-to-face questionnaire survey | In this study, 82% of the participants seriously considered issues and concerns related to caring for their older parents. A parent’s health crisis, perceptions of vulnerability associated with a parent’s psychological adjustment, personality, and support resources were associated with caregiving anticipation; 71% of the adult children intervened at some point, but such interventions were normally conducted in a supportive and conservative manner. |
Lieberman (1978) [21] | 807 adult children aged 20–70 years | Face-to-face questionnaire survey | The adult children’s age, gender, race, and social class were associated with their awareness of future caregiving. |
Miller (2015) [22] | 12 adult children aged 25–44 years | Case study | Information deficiency was the major barrier to the adult children’s long-term care planning for their older parents. |
Myers et al. (2004) [23] | 19 adult children (mean age, 53 years) from Alabama site; 11 adult children (mean age, 49 years) and 31 ageing parents (mean age, 74 years) from Texas site | Face-to-face questionnaire survey | Adult children and ageing parents rated several domains of parent care readiness, including the medical, legal–insurance–financial, family–social, and spiritual–emotional domains. The adult children’s emphasis on the domain of care preparation could differ from that of their ageing parents, but both generations still emphasised reconciliation within their families. |
Paulson and Bassett (2016) [24] | 165 women prospective caregivers aged 45–65 years | Online questionnaire survey | Filial obligation fully mediated the association between close attachment style and caregiving preparation. |
Radina (2007) [25] | 10 Mexican American sibling dyads | Qualitative interviews | The preparation process for parent care among Mexican Americans comprised the three conceptual components of caregiver selection/designation, anticipation, and planning. |
Sörensen (1998) [26] | 33 multigenerational families comprising grandmothers, mothers, and daughters | Qualitative interviews and face-to-face questionnaire survey | Few of the participants made concrete caregiving plans. The planners were more satisfied with the amount of discussion and planning that they engaged in with their family than the nonplanners were. The daughters’ discussion of future caregiving with their family members was predicted by their internal locus of control and the mother’s age. |
Sörensen, Webster, and Roggman (2002) [9] | 141 adult children (mean age, 48.7 years) | Face-to-face questionnaire survey | Attachment style was associated with caregiving preparation, which in turn was associated with feelings of preparedness. |
Sörensen and Zarit (1996) [27] | 33 multigenerational families comprising grandmothers, mothers, and daughters | Qualitative interviews and a face-to-face questionnaire survey | The daughters’ anticipation of household helping was predicted by their relationship with their own daughters, and affective solidarity moderated the association between filial responsibility and the daughters’ anticipation of household helping. |
Stolee et al. (2014) [28] | 24 older adults; 24 family members; 23 health and social service professionals; 3 representatives of key stakeholders | Qualitative interviews | The adult children believed that later-life care planning conversations alleviate the anxiety of older adults toward future care arrangements, thereby helping these older adults to establish a sense of control and access family support. Planning helped a family to learn about appropriate care arrangements. This awareness led to increased calmness among the families, helping them to alleviate their doubts and eliminate their stress and potential conflicts. The adult children required information to make informed choices but had limited access to information. Initiating conversations early could reduce barriers to effective decision-making. |
Yoo and Kim (2010) [29] | 124 adult children of immigrants aged 22–57 years | Qualitative interviews and a face-to-face questionnaire survey | The adult children felt a strong sense of responsibility toward their ageing parents, and they were prepared to support their parents’ financial, healthcare, and long-term care needs. Although both daughters and sons expressed the desire to care, daughters were more likely than sons to engage in in-depth discussions with their parents to clarify their concerns and worries. |
Author (Year) | Conceptualisations/Measurements |
---|---|
Bromley and Blieszner (1997) [13] | The decision-making process comprises four activities, namely considering, discussing, preliminary planning, and making a final decision. (1) Considering refers to whether an adult child has ever considered their parents’ future needs with respect to conditions that may limit the parents’ ability to live independently. (2) Discussing refers to whether an adult child has discussed their concerns with their parents. (3) Preliminary planning refers to activities involving obtaining information, asking for advice, or making arrangements for services if one’s parents cannot live independently. (4) Making a final decision refers to whether a plan is in place for the future care of one’s parents when necessary. |
Brown (2000) [14] | Caregiving preparation comprises four main categories and several subcategories: (1) Child feelings refer to the feelings of an adult child regarding various decisions, emotional experiences, and expectations, and their feelings in regard to recognising change and loss. (2) Expectations refer to the expectations of an adult child’s parents and the adult child’s own expectations, roles, actions involving thinking ahead, feelings, and expectations. (3) Decisions refer to an adult child’s feelings regarding their decisions and their awareness of their parents’ feelings, emotional well-being, and physical well-being. (4) Recognition of change and loss refers to positive focus, family involvement, and comparisons. |
Conway-Turner and Karasik (1993) [15]; Conway-Turner and Karasik (1997) [16] | In these studies, the planning and adjustment inventory was used. This inventory comprises information on when and how frequently the daughters investigated in these studies considered caring for their mothers (e.g., types of assistance, including financial assistance, emotional support, and help with daily living, frequency at which assistance is provided for short- and long-term illnesses, and likelihood of providing assistance). |
Fowler and Afifi (2011) [17] | This study is based on the theory of motivated information management, which pertains to the decisions of individuals to seek out or avoid information regarding particular issues. The measurements used in this study include the importance of an issue (i.e., ‘knowing my parents’ future care preferences is essential’), the uncertainty discrepancy related to parental eldercare preferences (i.e., ‘how certain do you want to be about your parents’ preferences for their future care, and how certain are you about your parents’ preferences for their future care?’), outcome expectations (i.e., understanding the beliefs of respondents regarding the consequences of discussing future care with their parent that they identified at the beginning of the survey conducted in the study; the relevant items include ‘asking my parents what they think talking about this issue would lead to’ and ‘talking with my parents about what this issue would lead to’), and information-seeking behaviour (the level of information they had sought from their parents about care preferences (e.g., ‘how many questions have you posed to your parents regarding their preferences for care?’)). |
Fowler and Fisher (2009) [18] | The four items from the ‘becoming aware’ subscale and four items from the ‘gathering information’ subscale of Sorensen and Pinquart’s (2001) measure of preparation for future care needs. Items of the original versions for older parents were reworded and applied to adult children (e.g., ‘the thought that my parent may need help or care in the future comes up a lot for me’). ‘Discussion of future care needs’ were measured by asking adult children to report on how much they had discussed with their parent a range of issues pertaining to future care needs. |
Gui and Koropeckyj-Cox (2016) [19] | The expected care arrangements made by adult children for their parents. |
Hansson et al. (1990) [20] | This study discussed the following concepts: (1) Participant-generated insights into processes (e.g., ‘if you have started to think about parent-caregiving issues, what was the event or moment that caused you to start to think along these lines?’ ‘what do you feel is the ‘right’ or ‘best’ time to begin sharing in or involving yourself in the decisions of your parents?’ and ‘what areas in your parents’ life are you monitoring more closely these days?’). (2) The likelihood of intervention index (i.e., the likelihood that a participant would intervene should problems arise across 6 domains (i.e., health, home maintenance, transportation, emotional support, finance, and bureaucratic mediation). (3) Elderly parent consciousness (i.e., a 12-item Likert scale that assesses the level of consciousness regarding ageing parents (e.g., the extent to which a participant had begun to think seriously about a parent’s changing needs, problems in activities of daily living, difficulties in living independently, etc.)). (4) The family involvement index (i.e., the extent to which a participant is now involved in providing care for their parents). |
Lieberman (1978) [21] | This study discussed: (1) the perception of parent change (declining physical, psychological, and economic function), (2) the degree of parent concern (the extent to which a participant found parental changes to be challenging to cope with and sought help for them), and (3) the orientation of the participants toward behaviours related to parental ageing (measured using 25 items, including ‘asking your parents to confide in you more often when things are bothering them’ and ‘complaining to your brother or sister that you are taking too much of the burden of caring for your parents’). |
Miller (2015) [22] | This study explored questions pertaining to the awareness of factors relating to long-term care planning and to risk aversion. It also examined how these concepts affected the way in which a participant advised their parents on the concept of long-term care planning (e.g., ‘how aware are you of the costs of long-term care in nursing homes, home healthcare settings, assisted care living communities, and adult day care?’ and ‘how confident are you in your financial ability to assist your parents in paying for long-term care if they need it?’). |
Myers et al. (2005) [23] | A 50-item parent care readiness assessment instrument was used, covering the medical, legal–insurance–financial, family–social, and spiritual–emotional domains. |
Paulson and Bassett (2016) [24] | Sörensen and Pinquart’s Preparation for Future Care Short Form (2002) was used (e.g., ‘I have gathered information about options for providing future help or care to my parent in the future’). |
Radina (2007) [25] | The model employed in this study comprises two primary components: (1) decision-making and (2) the caregiver socialisation/preparation process. |
Sörensen (1998) [26] | Guided by Sörensen’s [30] conceptual framework for caregiving preparation, this study examined the anticipation of caregiving, exploring whether a participant had anticipated: (a) their mother’s need for help with household tasks and (b) their mother’s need for help with personal care. It also examined (c) a family anticipation of providing care to the mother in the family. |
Sörensen, Webster, and Roggman (2002) [9] | In this study, preparation for future caregiving is defined as the mental and physical actions involved in anticipating, making decisions, making concrete plans, and engaging in role socialisation relating to providing care for an older person in the future (Sörensen, [26]). Care planning was measured using the 14-item scale of the short form of Sörensen and Pinquart’s [11] Preparation for Future Care Needs Model. |
Sörensen and Zarit (1996) [27] | Guided by Sörensen’s [30] conceptual framework of preparation for caregiving, the questions asked in this study were: (1) ‘Have you ever thought about what would happen if your mother needed help with household tasks like cooking or doing laundry or shopping?’ (2) ‘Have you ever thought about what would happen if your mother got sick and needed help with personal care like getting out of bed, taking a bath, or dressing herself?’ (3) ‘Have you/your family ever talked about what might happen if your mother needed help with household tasks or personal care?’ (4) ‘Have you and/or your family made any concrete plans in case your mother needs help with personal care or household tasks?’ (5) ‘How satisfied are you with the amount of discussion in your family about how to care for you if you ever needed it?’ (6) ‘How satisfied are you with the amount of planning in your family about how to care for you if you ever needed it?’ |
Stolee et al. (2014) [28] | In this study, three overarching themes were derived from interviews, namely role considerations, practical considerations, and emotional considerations. Under each of these themes, older adults, family members, and healthcare providers contributed different ideas. |
Yoo and Kim (2010) [29] | In this study, the following key themes were derived through the application of grounded theory: (1) adult children were likely to talk about caring for their ageing parents in the future as a form of repayment for the care and support that they received from their parents while they were growing up, (2) adult children were concerned about the language and financial barriers faced by their ageing parents, and (3) adult daughters often felt more pressure to consider the details of their parents’ future caregiving needs. |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Liu, C.; Hu, J.; Bai, X. A Systematic Review of Literature on Caregiving Preparation of Adult Children. Int. J. Environ. Res. Public Health 2023, 20, 6295. https://doi.org/10.3390/ijerph20136295
Liu C, Hu J, Bai X. A Systematic Review of Literature on Caregiving Preparation of Adult Children. International Journal of Environmental Research and Public Health. 2023; 20(13):6295. https://doi.org/10.3390/ijerph20136295
Chicago/Turabian StyleLiu, Chang, Jing Hu, and Xue Bai. 2023. "A Systematic Review of Literature on Caregiving Preparation of Adult Children" International Journal of Environmental Research and Public Health 20, no. 13: 6295. https://doi.org/10.3390/ijerph20136295
APA StyleLiu, C., Hu, J., & Bai, X. (2023). A Systematic Review of Literature on Caregiving Preparation of Adult Children. International Journal of Environmental Research and Public Health, 20(13), 6295. https://doi.org/10.3390/ijerph20136295