Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review
Abstract
1. Introduction
2. Methods
2.1. Search Strategy
2.2. Study Selection
2.3. Data Extraction
3. Results
3.1. Database Search Results
3.2. Study and Participants’ Characteristics
3.3. Main Findings
3.3.1. Theme 1: Communication
3.3.2. Theme 2: Cultural Safety
3.3.3. Theme 3: Access to Services
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Author and Year | Timeline | Indigenous People * | State | Remoteness | Type of Cancer | Main Research Interest |
---|---|---|---|---|---|---|
Anderson, 2021 [18] | 2017 | 75 | NT | 65/75 relocated for treatment | All | Accessibility of cancer treatment services |
Bell, 2021 [19] | 2019 | 15 | QLD | Metropolitan (n = 12) Regional (n = 3) | All | Support needs |
Green, 2018 [21] | 2016 | 24 | VIC, NT, NSW | Metropolitan (n = 5) Regional (n = 10) Remote (n = 9) | All | Experience in cancer care |
Lyford, 2018 [22] | - | 3 | WA | Regional (n = 3) | Rare type | Underrepresentation of regional services |
Marcusson-Rababi, 2019 [23] | 2017 | 8 | QLD | Disadvantaged areas (n = 7) | Gynaecological | Women’s experience of cancer care |
McGrath, 2013a [24] | 2011 | 12 | NT | Remote (n = 12) | Vulvar | Experience of relocation for cancer treatment |
McGrath, 2013b [25] | Treatment of cancer | |||||
McGrath, 2015 [26] | Treatment of cancer | |||||
McMichael, 2000 [27] | 1998–1999 | - | QLD | Included urban, rural and remote areas participants | Breast | Treatment and post-treatment care and support of cancer. |
Meiklejohn, 2017 [28] | 2015–2016 | 21 | QLD | Major city (n = 12) Regional (n = 4) Remote (n = 5) | All | Follow-up cancer care and management |
Treloar, 2013 [40] | 2008–2011 | 22 | NSW | - | NR | Cancer care process |
Newman, 2017 [29] | 6 | Engaging with a cancer treatment | ||||
Reilly, 2018 [30] | 2015–2016 | 29 | SA | Urban (n = 11) Regional (n = 3) Remote (n = 18) | All | Cancer and care coordination |
Ristevski, 2020 [31] | - | 3 | VIC | Regional (n = 3) | NR | Survivorship care models |
Sariman, 2022 [32] | - | 10 | QLD | Regional (n = 8) Remote (n = 2) | NR | Experience of cancer |
Shahid, 2009a [34] | 2006–2007 | 14 | WA | Mostly rural and remote | NR | Access to cancer services |
Shahid, 2009b [36] | Participation in cancer care | |||||
Shahid, 2010 [33] | Cancer and cancer services | |||||
Shahid, 2011 [35] | Access to cancer care services | |||||
Thompson, 2011 [39] | Participation in cancer treatment | |||||
Taylor, 2020 [38] | 2015–2018 | 5 | WA | Urban (n = 1), Regional (n = 2), Remote (n = 1) | NR | Respect for healthcare |
Taylor, 2021 [37] | Experience of cancer services | |||||
Willis, 2011 [41] | 2008 | 3 | NSW, SA, VIC, NT | Rural (n = 3) | Gynaecological | Expectations of clinical care |
(A) Communication | |
Sub-Themes | Specific Issues That Cause Difficulty (Reference) |
Language and literacy | |
Understanding of the hospital environment | |
Understanding of cancer care pathways |
|
Lack of information |
|
(B) Cultural safety | |
Sub-Themes | Specific Issues That Cause Difficulty (Reference) |
Trust in the system | |
Privacy | |
Racism | |
(C) Access to services. | |
Sub-Themes | Specific Issues That Cause Difficulty (Reference) |
Long waiting time | |
Availability of services at follow-up | |
Coordination between services |
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Sanjida, S.; Garvey, G.; Ward, J.; Bainbridge, R.; Shakeshaft, A.; Hadikusumo, S.; Nelson, C.; Thilakaratne, P.; Hou, X.-Y. Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review. Int. J. Environ. Res. Public Health 2022, 19, 16947. https://doi.org/10.3390/ijerph192416947
Sanjida S, Garvey G, Ward J, Bainbridge R, Shakeshaft A, Hadikusumo S, Nelson C, Thilakaratne P, Hou X-Y. Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review. International Journal of Environmental Research and Public Health. 2022; 19(24):16947. https://doi.org/10.3390/ijerph192416947
Chicago/Turabian StyleSanjida, Saira, Gail Garvey, James Ward, Roxanne Bainbridge, Anthony Shakeshaft, Stephanie Hadikusumo, Carmel Nelson, Prabasha Thilakaratne, and Xiang-Yu Hou. 2022. "Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review" International Journal of Environmental Research and Public Health 19, no. 24: 16947. https://doi.org/10.3390/ijerph192416947
APA StyleSanjida, S., Garvey, G., Ward, J., Bainbridge, R., Shakeshaft, A., Hadikusumo, S., Nelson, C., Thilakaratne, P., & Hou, X.-Y. (2022). Indigenous Australians’ Experiences of Cancer Care: A Narrative Literature Review. International Journal of Environmental Research and Public Health, 19(24), 16947. https://doi.org/10.3390/ijerph192416947