Co-Design of an Educational Resource with Female Partners of Male Stroke Survivors to Support Physical Activity Participation
2. Materials and Methods
2.1. Study Design
2.2. Research Team and Reflexivity
2.3. Recruitment and Participants
2.4. Data Collection Procedures and Data Analysis
3.1. Theme 1: Managing an Unwanted and Challenging “New Life”
I’m trying to be all things. I’m not just being the housekeeper, housewife, I’m being the plumber, the painter, the lawn mower, the vege gardener, the taxi driver. The extra world is so demanding, unrelenting….it’s like running a train station. I was totally unprepared for it, and it was unrelenting, you never get a day off, you just can’t get out of it. You are absolutely out on your own….and you have got all the stress of this person…you are alone. (Participant 7, Individual Interview).
Sometimes I feel guilty, like I’ve just started going to dance group again. It’s on a Monday night after work but I feel really bad because [husband] has been at home all day by himself. He wants me to do it and I do it, but I wish I could feel just that freedom…like in the past when he went to golf, and I went and did whatever [I wanted]. (Participant 2, Focus Group A-4).
3.2. Theme 2: Inconsistent Access to Meaningful Information
We get mixed messages. People [health professionals] say, “Oh you must walk more” and then yesterday the physio came, and she said, “Don’t overdo it.” (Participant 13, Individual Interview).
Focus Group B-2 discussion
Participant 3: You’ve got to ask questions and keep asking questions if you don’t know.
Participant 8: But there’s no one really to ask. They [medical team] never took me to a room, it was just told to me [about his stroke] in the hallway, amongst all these other people. I actually got more information from getting a few books. That was the best thing.
3.3. Theme 3: Considerations for Successful PA Participation for Stroke Survivors
[The physiotherapist] gave us a lovely list of exercises and realistically I think he [stroke survivor] did them twice. It’s about your home life and achieving it all. I knew what would click with his psyche and his determination factor. It was a mission [stroke survivor feeding his cattle] but it took him from walking to walking properly, because out in the paddock he had to learn to balance when he was putting this electric fence standard in, and he was walking on uneven ground. I also thought that his social aspect of life was very important to him, so it was a matter for both physical and socially integrating him…being part of people within and around him was very beneficial for his well-being. (Participant 4, Individual Interview).
One of the other challenges is [husband’s] tiredness. So you can’t force him out of bed if he can’t cope. You’ve got to take that into account how they’re feeling because if he just says he’s too tired, well…you have to go with it. (Participant 6, Individual Interview).
He [husband] had just started walking out in the garden and getting out of the wheelchair. It had snowed and I had to go back to work. I said, “Whatever you do there is going to be more snow so don’t go outside, stay inside, don’t go outside.” He decided to go and look at the trees and plants [while I was out] and I drove up the drive and there he was stuck by the clothesline, and I don’t know how long he had been there for, and he wasn’t that well-dressed. His planning wasn’t good. Yeah, I get worried. (Participant 8, Individual Interview).
Focus Group B-2 discussion
Participant 11: Like [Participant 9], every time she takes her husband out [into the community], she goes there first and checks out the access.
Participant 4: We had a prime example of that on Thursday night where I didn’t [check accessibility prior] and some friends took us for a drink at [restaurant]….and it was so unsuitable for my partner….there was a lack of chairs and cobbled concrete to get in. The stools were all the wrong height….you know I should have gone to have a look.
Participant 8: You would have been on edge the whole time I bet.
When he starts snapping, “You haven’t had a stroke.” I think I have to back off a wee bit. I just have to take that on the cheek if he’s going to say that to me. I have to let it go over my head. But if he says he’s not going to do it he won’t do it. End of story. There’s nothing else I can do. I’ve done lots of things. I’ve said, “Look if you walk every day, just around the block, we’ll go out to lunch. So, I used to give him incentives to do it…but there is a fine line. (Participant 12, Individual Interview).
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
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Calder, A.; Sole, G.; Mulligan, H. Co-Design of an Educational Resource with Female Partners of Male Stroke Survivors to Support Physical Activity Participation. Int. J. Environ. Res. Public Health 2022, 19, 16856. https://doi.org/10.3390/ijerph192416856
Calder A, Sole G, Mulligan H. Co-Design of an Educational Resource with Female Partners of Male Stroke Survivors to Support Physical Activity Participation. International Journal of Environmental Research and Public Health. 2022; 19(24):16856. https://doi.org/10.3390/ijerph192416856Chicago/Turabian Style
Calder, Allyson, Gisela Sole, and Hilda Mulligan. 2022. "Co-Design of an Educational Resource with Female Partners of Male Stroke Survivors to Support Physical Activity Participation" International Journal of Environmental Research and Public Health 19, no. 24: 16856. https://doi.org/10.3390/ijerph192416856