Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018
Abstract
:1. Introduction
2. Materials and Methods
3. Results
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Disclaimer
References
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Data System Type | Definition | Examples | Example System |
---|---|---|---|
Disease notification | Reporting of certain diseases or other health-related conditions by a specific group, as specified by law, regulation, or agreement | Notifiable disease case reports, notifications for adverse effects from medications or vaccines, sentinel reporting of conditions | Childhood Blood-Lead Poisoning Surveillance System (CBLS) |
Periodic prevalence survey | A periodic or recurrent investigation designed to obtain specific information about a population of interest | HIV seroprevalence surveys, population-based health surveys | Behavioral Risk Factor Surveillance System (BRFSS) |
Registry/vital record | Permanent record of persons or events | Disease registries (e.g., cancer or birth defects registries), immunization registries, vital event registries (e.g., birth and death records). | National Program of Cancer Registries (NPCR) |
Multiple sources | A combination of the above-mentioned sources | National Quitline Data Warehouse (NQDW) |
All Systems (n = 51) | System Encompassed both Males and Females (n = 48) | Female-Specific System (n = 3) | |
---|---|---|---|
No. (%) | No. (%) | No. (%) | |
Collected data on sex-related variables | |||
Sex | 48 (94.1%) | 45 (93.8%) | 3 (100%) |
Sexual orientation | 9 (17.7%) | 9 (18.8%) | 0 (0%) |
Gender identity | 3 (5.9%) | 3 (6.3%) | 0 (0%) |
Collected data on additional demographic variables | |||
Age | 51 (100%) | 48 (100%) | 3 (100%) |
Race/ethnicity | 40 (78.4%) | 37 (77.1%) | 3 (100%) |
Type of system | |||
Disease notifications | 27 (52.9%) | 25 (52.1%) | 2 (66.7%) |
Periodic prevalence surveys | 17 (33.3%) | 16 (33.3%) | 1 (33.3%) |
Registries/vital records | 6 (11.8%) | 6 (12.5%) | 0 (0%) |
Multiple sources | 1 (2.0%) | 1 (2.1%) | 0 (0%) |
Disease Notifications (n = 27) | Periodic Prevalence Surveys (n = 17) | Registries/Vital Records (n = 6) | Multiple Sources (n = 1) | |
---|---|---|---|---|
No. (%) | No. (%) | No. (%) | No. (%) | |
Collected data on sex-related variables | ||||
Sex | 24 (88.9%) | 17 (100%) | 6 (100%) | 1 (100%) |
Sexual orientation | 2 (7.4%) | 7 (41.2%) | 0 (0%) | 0 (0%) |
Gender identity | 0 (0%) | 3 (17.7%) | 0 (0%) | 0 (0%) |
Collected data on additional demographic variables | ||||
Age | 27 (100%) | 17 (100%) | 6 (100%) | 1 (100%) |
Race/ethnicity | 17 (63.0%) | 16 (94.1%) | 6 (100%) | 1 (100%) |
Number of demographic variable types collected 2 | ||||
1 | 3 (11.1%) | 0 (0%) | 0 (0%) | 0 (0%) |
2 | 7 (25.9%) | 1 (5.9%) | 0 (0%) | 0 (0%) |
3 | 15 (55.6%) | 9 (52.9%) | 6 (100%) | 1 (100%) |
4 | 2 (7.4) | 4 (23.5%) | 0 (0%) | 0 (0%) |
5 | 0 (0%) | 3 (17.7%) | 0 (0%) | 0 (0%) |
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Kress, A.C.; Asberry, A.; Taillepierre, J.D.; Johns, M.M.; Tucker, P.; Penman-Aguilar, A. Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018. Int. J. Environ. Res. Public Health 2021, 18, 12189. https://doi.org/10.3390/ijerph182212189
Kress AC, Asberry A, Taillepierre JD, Johns MM, Tucker P, Penman-Aguilar A. Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018. International Journal of Environmental Research and Public Health. 2021; 18(22):12189. https://doi.org/10.3390/ijerph182212189
Chicago/Turabian StyleKress, Alissa C., Asia Asberry, Julio Dicent Taillepierre, Michelle M. Johns, Pattie Tucker, and Ana Penman-Aguilar. 2021. "Collection of Data on Sex, Sexual Orientation, and Gender Identity by U.S. Public Health Data and Monitoring Systems, 2015–2018" International Journal of Environmental Research and Public Health 18, no. 22: 12189. https://doi.org/10.3390/ijerph182212189