Disability-Disaggregated Data Collection: Hospital-Based Application of the Washington Group Questions in an Eye Hospital in Paraguay
Abstract
:1. Introduction
2. Materials and Methods
- The WG Short Set (WG-SS) consists of a set of six single short questions on functional domains (which are seeing, hearing, walking or climbing stairs, remembering or concentrating, self-care, and communication). The questions were designed for applications in populations aged five years and older and will identify the large majority of people with disabilities. The answer options are “no difficulty”, “yes, some difficulty”, “yes, a lot of difficulty”, and “cannot do at all” (response pattern 1 according to the WG guidelines) [36].
- The WG Extended Set on Functioning (WG-ES 3) consists of the same questions as the WG-SS and adds four additional questions related to two domains of “affect” (anxiety and depression) for participants aged 13 years and older. The answer options regarding the frequency of feeling anxious or depressed are “daily”, “weekly”, monthly”, “a few times a year”, and “never”. The severity can be answered with “a little”, “a lot” and “somewhere between a little and a lot” (response patterns 5 and 6 according to WG guidelines) [36]. We excluded the “upper body” questions of the WG-ES 3 in order to improve the feasibility of the data collection [36].
2.1. Data Analysis WG-SS
2.2. Data Analysis WG-ES 3
3. Results
3.1. Short Set WG-SS
3.2. Extended Set WG-ES 3
3.2.1. Affect/Anxiety Domain
3.2.2. Affect/Depression Domain:
4. Discussion
4.1. WG-SS Results
4.1.1. Vision Domain
4.1.2. Communicating Domain
4.1.3. Remembering/Concentrating Domain
4.1.4. Self-Care Domain
4.1.5. Mobility Domain
4.1.6. Hearing Domain
4.2. WG-ES3 Results
4.3. The WG Questions in a Hospital Setting
4.4. Strengths
4.5. Limitations
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
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English | Paraguayan Spanish | Guarani | |
---|---|---|---|
1 | Do you have difficulty seeing, even if wearing glasses? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿Ves con dificultad incluso usando lentes? a. No. Veo bien. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. No veo nada. | ¿Rehecha asy piko reipururamo jepe lente? a. Nahaniri, ahecha porä b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Ndahechaiete voi |
2 | Do you have difficulty hearing, even if using a hearing aid? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿No escuchas bien, inclusive usando audífonos? a. No. Escucho bien. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. No escucho para nada. | ¿Nerehendu poraipa reipururamo jepe audífono? a. Nahaniri, ahendua porä b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Nahenduiete voi |
3 | Do you have difficulty walking or climbing steps? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿Caminas con dificultad o subes escaleras con dificultad? a. No. Camino bien. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. No puedo caminar. | ¿Reguatá asy pa o ejupi asy escalerape? a. Nahaniri, aguatá’ porä b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Ndaikatuiete aguata o ejupi escalerape |
4 | Do you have difficulty remembering or concentrating? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿Tiene dificultad para aprender o para recordar? a. No, mi inteligencia está bien. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. No puedo aprender o recordar. | ¿Hasy iko ndeve Eaprende haguá, nemandu’a, haguá? a. Nahaniri, che Ivale. b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Ndaikatuietevoi o aprendé |
5 | Do you have difficulty (with self-care such as) washing all over or dressing? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿Es difícil para vos limpiarte y vestirte solo? a. No. You puedo solo. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. No puedo hacer nada, necesito a alguien que me ayude. | ¿Hasy iko ndeve eñemopoti ha eñemonde haguá ne añó? a. Nahaniri, che ikatu che añó. b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Ndoikatuiete ajapo aikoteve che ayúda va’eräre |
6 | Using your usual (customary) language, do you have difficulty communicating, for example understanding or being understood? a. No, no difficulty b. Yes, some difficulty c. Yes, a lot of difficulty d. Cannot do it at all | ¿Es difícil para usted hablar o entender a los demás, en nuestro idioma castellano/guaraní? a. No. Capto y hablo bien. b. Si. A veces tengo dificultad. c. Si. Tengo mucha dificultad. d. Poco entiendo, no puedo hablar bien. | ¿Hasy iko ndeve eñemongeta haguá ha entende haguá oñeéva nedivepe, ha ña nde ñe’e tepe guaraní/castellano? a. Nahaniri. A pillá pora, añe’e porä b. Heë, sapy’a py’a c. Heë, aguereko hetá. d. Sa’i entende. Ndaikatuí añeë pova |
English | Paraguayan Spanish | Guarani | |
---|---|---|---|
7 | How often do you feel worried, nervous, or anxious? a. Never b. A few times a year c. Monthly d. Weekly e. Daily | ¿En qué momento te sentís muy preocupado, enojado o ansioso? a. Nunca b. De vez en cuando en el año c. De vez en cuando cada mes d. De vez en cuando cada semana e. A diario | Mba’eicha jave eñeñandú ejepy’apy, o nde pochy o nde py’a tarová? a. Mba’eicha vevo b. Sapy’a py’a Ary c. Sapy’a py’a Ary jasykuéra d. Sapy’a py’a Arapoköindy rehegua e. Tapiaite |
8 | Level of feelings when you last felt worried, nervous or anxious? a. A little b. Somewhere in between a little and a lot c. A lot | Cuando te sentías preocupado, enojado o ansioso. ¿Cómo te sentías? a. Muy poco preocupado, enojado o ansioso. b. Poco o mucho c. Muchísimo | Pe reï ramo guare ejepy’apy, o nde pochy o nde py’a tarová. ¿mba’eicha eñeñandu? a. Michimimi ejepy’apy, pochy o py’a tarová b. Michimi o Heta avei c. Heta iterei |
9 | How often do you feel depressed? a. Never b. A few times a year c. Monthly d. Weekly e. Daily | ¿En qué momento te sentís demasiado o muy deprimido? a. Nunca b. De vez en cuando en el año c. De vez en cuando cada mes d. De vez en cuando cada semana e. A diario | ¿Mba’eicha jave eñeñandú ñembyasyeterei? a. Mba’eicha vevo b. Sapy’a py’a Ary c. Sapy’a py’a Ary jasykuéra d. Sapy’a py’a Arapoköindy rehegua e. Tapiaite |
10 | How depressed you felt when last time you were depressed? a. A little b. Somewhere in between a little and a lot c. A lot | Pensando en la última vez que se sintió deprimido, ¿qué tan deprimido se sintió? a. Muy poco deprimido. b. Poco o mucho c. Muchísimo | Pe reï ramo guare ñembyasyeterei? ¿mba’eicha eñeñandu? a. Michimimi ejepy’apy, pochy o py’a tarová b. Michimi o Heta avei c. Heta iterei |
Male (n = 443) | Female (n = 556) | Total (n = 999) | ||||||
---|---|---|---|---|---|---|---|---|
Domain | N | % (95% CI) | N | % (95% CI) | N | % (95% CI) | OR (95%CI) | |
1 | Visual | 67 | 15.1 (11.9–18.8) | 97 | 17.4 (14.4–20.9) | 164 | 16.4 (14.2–18.9) | 0.85 (0.6–1.2) |
2 | Hearing | 14 | 3.2 (1.7–5.2) | 21 | 3.8 (2.4–5.7) | 35 | 3.5 (2.5–4.8) | 0.84 (0.39–1.75) |
3 | Mobility | 15 | 3.4 (1.9–5.3) | 23 | 4.1 (2.6–6.1) | 38 | 3.8 (2.7–5.2) | 0.82 (0.39–1.65) |
4 | Remembering/Concentrating | 15 | 3.4 (1.9–5.5) | 44 | 7.9 (5.8–10.5) | 59 | 5.9 (4.5–7.6) | 0.41 (0.21–0.76) |
5 | Self-care | 8 | 1.8 (0.8–3.5) | 11 | 1.4 (0.6–2.8) | 19 | 1.9 (1.1–3.0) | 0.91 (0.32–2.51) |
6 | Communicating | 45 | 10.2 (7.5–13.4) | 51 | 9.2 (7.0–11.9) | 96 | 9.6 (7.9–11.6) | 1.2 (0.72–1.74) |
Disability | 113 | 25.5 (21.5–30.0) | 163 | 29.3 (25.6–33.3) | 276 | 27.7 (24.9–30.3) | 0.83 (0.62–1.1) |
Domain | 5–19 years (n = 164) | 20–49 years (n = 328) | 50–69 years (n = 346) | ≥ 70 years (n = 161) | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
N | % (95% CI) | N | % (95% CI) | Adjusted OR (95% CI) | N | % (95% CI) | Adjusted OR (95% CI) | N | % (95% CI) | Adjusted OR (95% CI) | ||
1 | Visual | 18 | 10.9 (6.6–16.8) | 30 | 9.1 (6.3–12.8) | 0.8 (0.4–1.5) | 57 | 16.5 (12.7–20.8) | 1.6 (0.9–2.8) | 59 | 36.7 (29.2–44.6) | 4.7 (2.6–8.4) |
2 | Hearing | 2 | 1.2 (0.2–4.3) | 3 | 0.9 (0.2–2.6) | 0.8 (0.1–4.6) | 11 | 3.2 (1.6–5.6) | 2.7 (0.6–12.1) | 19 | 11.8 (7.3–17.8) | 10.8 (2.5–47.3) |
3 | Walking | 1 | 0.6 (0.02–3.4) | 3 | 0.9 (0.2–2.6) | 1.5 (0.2–14.8) | 10 | 2.9 (1.4–5.3) | 4.9 (0.6–38.4) | 24 | 14.9 (9.8–21.4) | 28.5 (3.8–213.7) |
4 | Remembering/ Concentrating | 10 | 6.1 (3.0–10.9) | 7 | 2.1 (0.9–4.3) | 0.4 (0.1–1.0) | 26 | 7.6 (5.0–10.8) | 1.3 (0.6–2.7) | 16 | 9.9 (5.8–15.6) | 1.7 (0.7–3.9) |
5 | Self-care | 4 | 2.4 (0.7–6.1) | 2 | 0.6 (0.1–2.2) | 0.2 (0.04–1.4) | 3 | 0.9 (0.2–2.5) | 0.4 (0.08–1.6) | 10 | 6.2 (3.0–11.1) | 2.6 (0.8–8.6) |
6 | Communicating | 6 | 3.6 (1.4–7.8) | 17 | 5.2 (3.1–8.2) | 1.4 (0.5–3.7) | 36 | 10.4 (7.4–14.1) | 3.0 (1.3–7.4) | 37 | 23.0 (16.7–30.3) | 7.9 (3.2–19.3) |
Disability | 26 | 15.8 (10.6–22.4) | 48 | 14.6 (11.0–19.0) | 0.9 (0.5–1.5) | 103 | 29.8 (25.0–34.9) | 2.3 (1.4–3.7) | 99 | 61.5 (53.5–69.0) | 8.5 (5.0–14.4) |
Level of Feelings Last Time You Felt Worried, Nervous or Anxious | How Often do You Feel Worried, Nervous or Anxious | |||||
---|---|---|---|---|---|---|
Daily | Weekly | Monthly | Annually | Never | Total | |
Not asked | 0 | 0 | 0 | 0 | 87 | 87 |
A little | 15 | 19 | 18 | 56 | 0 | 108 |
In between a little and a lot | 22 | 59 | 71 | 83 | 0 | 235 |
A lot | 18 | 12 | 9 | 8 | 0 | 47 |
Total | 55 | 90 | 98 | 147 | 87 | 477 |
Indicator Affect/Anxiety Domain | N | % |
---|---|---|
1 | 234 | 46.7 |
2 | 191 | 38.1 |
3 | 34 | 6.8 |
4 (category for having disability) | 18 | 3.6 |
Excluded | 24 | 4.8 |
Total | 501 | 100 |
How Depressed You Felt when Last Time You Were Depressed? | How Often do You Feel Depressed? | |||||
---|---|---|---|---|---|---|
Daily | Weekly | Monthly | Annually | Never | Total | |
Not asked | 0 | 0 | 0 | 0 | 68 | 68 |
A little | 2 | 7 | 10 | 51 | 0 | 70 |
In between a little and a lot | 13 | 26 | 48 | 86 | 0 | 170 |
A lot | 7 | 17 | 6 | 9 | 0 | 39 |
Total | 22 | 50 | 64 | 146 | 68 | 350 |
Indicator Affect/Depression Domain | n | % |
---|---|---|
1 | 214 | 42.7 |
2 | 99 | 19.8 |
3 | 30 | 6.0 |
4 (category for having disability) | 7 | 1.4 |
Excluded | 151 | 30.1 |
Total | 501 | 100 |
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Mörchen, M.; Zambrano, O.; Páez, A.; Salgado, P.; Penniecook, J.; Brandt von Lindau, A.; Lewis, D. Disability-Disaggregated Data Collection: Hospital-Based Application of the Washington Group Questions in an Eye Hospital in Paraguay. Int. J. Environ. Res. Public Health 2019, 16, 3085. https://doi.org/10.3390/ijerph16173085
Mörchen M, Zambrano O, Páez A, Salgado P, Penniecook J, Brandt von Lindau A, Lewis D. Disability-Disaggregated Data Collection: Hospital-Based Application of the Washington Group Questions in an Eye Hospital in Paraguay. International Journal of Environmental Research and Public Health. 2019; 16(17):3085. https://doi.org/10.3390/ijerph16173085
Chicago/Turabian StyleMörchen, Manfred, Olmedo Zambrano, Alexander Páez, Paola Salgado, Jason Penniecook, Andrea Brandt von Lindau, and David Lewis. 2019. "Disability-Disaggregated Data Collection: Hospital-Based Application of the Washington Group Questions in an Eye Hospital in Paraguay" International Journal of Environmental Research and Public Health 16, no. 17: 3085. https://doi.org/10.3390/ijerph16173085