OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease
Abstract
:1. Introduction
2. Methods
2.1. Study Design
2.2. Sample Selection
2.3. Procedure
2.4. Questionnaire
2.5. Data Analysis
2.6. Data Confidentiality
3. Results
4. Discussion
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
References
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Characteristics | N | % |
---|---|---|
Age | ||
40–44 years | 347 | 13.8 |
45–49 years | 329 | 13.0 |
50–54 years | 321 | 12.7 |
55–59 years | 342 | 13.6 |
60–64 years | 335 | 13.3 |
65–69 years | 331 | 13.1 |
70 years or over | 517 | 20.5 |
Educational Level | ||
Elementary/no studies | 414 | 16.4 |
Primary/secondary education | 1154 | 45.8 |
Higher education | 954 | 37.8 |
General Population | 1109 | 44.0 |
Carers of chronic patients | 140 | 12.6 # |
Non-carers of chronic patients | 969 | 87.4 # |
Chronic Patients | 1413 | 55.0 |
Carers of other chronic patients | 325 | 23.0 # |
Non-carers of other chronic patients | 1088 | 76.0 # |
With 1 disease | 772 | 54.6 # |
With 2 diseases | 370 | 26.2 # |
With 3 or more diseases | 271 | 19.2 # |
With pain | 550 | 38.9 # |
No pain | 863 | 61.1 # |
With hospitalisation ‡ | 357 | 25.3 # |
No hospitalisation | 1056 | 74.7 # |
With pharmacological treatment | 1225 | 86.7 # |
No pharmacological treatment | 188 | 13.3 # |
Diseases Referred to by the Respondents * | ||
High blood pressure | 542 | 21.5 |
Arthritis/arthrosis | 477 | 18.9 |
Mood disorders (depression/anxiety) | 262 | 10.4 |
Type 1/2 diabetes | 248 | 9.8 |
Respiratory diseases (COPD/asthma) | 151 | 6.0 |
Non-valvular atrial fibrillation/heart failure | 89 | 3.5 |
Other | 212 | 8.4 |
Body Mass Index ** | ||
General population | 1109 | 100.0 |
≤24.9 kg/m2 | 542 | 48.9 |
25–29.9 kg/m2 | 434 | 39.1 |
≥30 kg/m2 | 133 | 12.0 |
Chronic patients | 1413 | 100.0 |
≤24.9 kg/m2 | 506 | 35.8 |
25–29.9 kg/m2 | 619 | 43.8 |
≥30 kg/m2 | 288 | 20.4 |
Total population | 2522 | 100.0 |
≤24.9 kg/m2 | 1048 | 41.6 |
25–29.9 kg/m2 | 1053 | 41.8 |
≥30 kg/m2 | 421 | 16.7 |
Having Chronic Diseases Has a Significant or Quite Significant Effect on the Following Aspects | Chronic Patients | General Population | Total | ||
---|---|---|---|---|---|
Carer (n = 325) | Non-Carer (n = 1088) | Carer (n = 140) | Non-Carer (n = 969) | ||
They affect mood | 55.5% | 45.3% * | 71.5% * | 64.2% * | 55.5% |
They involve making sacrifices, for example not being able to consume certain foods or drinks (salt, alcohol, etc.) | 58.5% | 46.0% * | 70.0% * | 62.20% * | 55.3% |
They involve loss of quality of life | 51.0% | 46.8% * | 65.3% * | 58.9% * | 53.1% |
They force you to radically change your lifestyle | 54.1% | 44.2% * | 66.3% * | 60.2% * | 53.0% |
They increase the risk of serious events such as heart attack, stroke, etc. | 51.5% | 44.0% * | 58.4% * | 51.7% | 48.8% |
They increase the risk of early death | 47.6% | 40.4% * | 58.0% * | 53.7% * | 47.5% |
They lead to situations of dependency at a younger age | 47.8% | 39.6% * | 64.9% * | 53.8% * | 47.5% |
They cause professional difficulties/restrictions | 44.0% | 28.9% * | 56.4% * | 54.6% * | 46.6% |
They make you withdrawn and lose the will to do things | 45.4% | 38.5% * | 59.4% * | 58.2% * | 46.3% |
They have a negative effect on social relationships/friendships | 31.0% | 25.7% * | 42.1% * | 38.2% * | 32.2% |
They have a negative effect on family relationships | 31.6% | 23.3% * | 40.7% * | 38.5% * | 31.2% |
Implications of Having a Chronic Disease with Which the Respondents Agree Strongly or Quite Strongly | High Level of Information | Average Level of Information | Low Level of Information | |||
---|---|---|---|---|---|---|
Chronic Disease (%) | General Population (%) | Chronic Disease (%) | General Population (%) | Chronic Disease (%) | General Population (%) | |
They increase the risk of serious events such as heart attack, stroke, etc. | 63.6 # | 52.8 * | 28.5 | 33.1 | 7.9 | 14.1 |
They lead to situations of dependency at a younger age | 64.6 # | 53.6 * | 25.4 | 31.3 | 10.0 | 15.1 |
They force you to radically change your lifestyle | 61.7 # | 53.1 * | 29.3 | 32.6 | 9.0 | 14.3 |
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Casariego, E.; Cebrián-Cuenca, A.M.; Llisterri, J.L.; Micó-Pérez, R.M.; Orozco-Beltran, D.; Otero-Cacabelos, M.; Román-Sánchez, P.; Sáez, F.J. OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease. Int. J. Environ. Res. Public Health 2019, 16, 39. https://doi.org/10.3390/ijerph16010039
Casariego E, Cebrián-Cuenca AM, Llisterri JL, Micó-Pérez RM, Orozco-Beltran D, Otero-Cacabelos M, Román-Sánchez P, Sáez FJ. OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease. International Journal of Environmental Research and Public Health. 2019; 16(1):39. https://doi.org/10.3390/ijerph16010039
Chicago/Turabian StyleCasariego, Emilio, Ana M. Cebrián-Cuenca, José Luis Llisterri, Rafael Manuel Micó-Pérez, Domingo Orozco-Beltran, Mercedes Otero-Cacabelos, Pilar Román-Sánchez, and Francisco José Sáez. 2019. "OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease" International Journal of Environmental Research and Public Health 16, no. 1: 39. https://doi.org/10.3390/ijerph16010039
APA StyleCasariego, E., Cebrián-Cuenca, A. M., Llisterri, J. L., Micó-Pérez, R. M., Orozco-Beltran, D., Otero-Cacabelos, M., Román-Sánchez, P., & Sáez, F. J. (2019). OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease. International Journal of Environmental Research and Public Health, 16(1), 39. https://doi.org/10.3390/ijerph16010039