Invisible Warriors in the Struggle Against Cancer: Social Support and Spiritual Care—A Phenomenological Study on Patient Experiences †
Abstract
1. Introduction
2. Methodology
3. Study Design
3.1. Research Team and Reflexivity
3.2. Recruitment and Participants
3.3. Validity and Reliability of the Research
3.4. Data Collection
- How did you feel when you were diagnosed with cancer?
- (a)
- Which emotions did you experience?
- (b)
- What did you think?
- (c)
- What are your experiences?
- What does the word cancer remind you of? What does it mean to you? (After the participant answers, “Is it curable? What are the effects of cancer on individuals?”).
- How did you feel when you were diagnosed with cancer? Which emotions did you experience? What did you think? What are your experiences?
- How did you initially disclose your situation, and with whom did you choose to share it first? What reactions did your spouse and/or relatives have, and how did you respond to these reactions?
- Regarding your cancer diagnosis, do you openly communicate about it? What are the reasons?
- How does society view cancer patients? What do you think about this issue?
- How did you manage the process? What are the situations that contributed positively or negatively to your successful or unsuccessful management of the process? What do you think about your sources of support in this process? Do you think you are in the process of adaptation? What are the reasons?
- What are the needs of cancer patients in the community? What would you like to have as social support?
- Why is spirituality important? What would you like to have in this regard? What gives you spiritual strength? What do you expect from nurses and society in this regard?
4. Data Analysis
Ethical Considerations
5. Results
“Cancer evokes death. It is difficult to cope. There is a treatment for some cancers; for example, I know that there are people like me who have breast cancer and recovered, but at first, you feel uneasy when you hear it.”(P2)
“The word cancer evokes words like pain, loneliness, and death. Some types of cancer can be cured, and early diagnosis is also important. This disease causes great devastation psychologically and physically in every aspect; fear, anxiety, life order changes, sometimes you can’t even dream about the future; this is a very bad thing, such as nutritional problems or sleep problems.”(P8)
“When I first learned about it, I took it normally. I made my best effort without demoralizing myself. I tried not to be defeated. I researched doctors and what to eat and drink; I tried to keep my morale high; I tried not to neglect my work and my family. But recently, I’ve started to feel tired. The fact that there was no progress and it had metastasized affected me very badly, both psychologically and socially.”(P10)
“I first told my husband about the cancer diagnosis, and then my parents found out, of course. Actually, they all gave me hope and supported me; I can’t blame them, but after a while, I started to feel that they were tired too. They don’t have complaints about me; that’s how I feel, or maybe I don’t want to be a burden on them anymore.”(P6)
“I had nausea, vomiting and hair loss; it very bad…”(P3)
“People normally hide this bad disease from their spouses, friends, and relatives, but I suddenly told my husband. I think it was better that he learnt it. After all, he was going to find out somehow, so I thought he should know and be with me. Later, it was already very bad: fatigue, weakness, I had sores in my mouth, I lost my hair… My husband was going to find out anyway…”(P6)
“I don’t want to sound demanding, but it’s better to get support instead of people feeling sorry for you. Dealing with this stuff messes with your daily life and mood–one moment you’re mad, and the next you might be happy. My friends wished me well, which was nice, but I wished they’d do more, like send flowers, call to check in or invite me for coffee. My family was always there, but some extra support from friends would’ve been great.”(P6)
“In this illness, sincerity is important. In other words, support should be given to us because our life continues as it is. We shouldn’t be looked at as if we’re going to die. Our daily lives are ongoing, and they have to go on somehow. Constantly thinking about the illness has a very negative psychological impact. So, chatting with friends, carrying on with your work, doing what you can—these are necessary.”(P2)
“Spirituality means inner peace. I think it’s important to achieve inner peace, but I haven’t found that inner peace yet. For me, some memories from my childhood help with this—thinking about the good memories and trying to feel the emotions of those moments. Daydreaming also helps. Right now, I’m a lonely person, but remembering my childhood spent in a large family environment feels good. I’m not a strongly religious person, so I won’t say much about that aspect.”(P14)
“Spirituality, for me, is being with my loved ones. Having my loved ones around gives me strength. My children, and grandchildren—I mentioned earlier that loneliness is tough, especially with this illness. So, when they’re with me, I often forget about the illness. Doctors and nurses should be more attentive and listen to patients who experience loneliness. Just asking about their well-being from time to time is enough.”(P1)
6. Discussion
6.1. Effects of Cancer
6.2. Needs of the Cancer Patient (Invisible Components)
7. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
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Domain 1: Research team and reflexivity. | |||
Personal Characteristics | |||
Number | Characteristics | Guiding Questions | Explanations |
1 | Interviewer/facilitator | Which author(s) conducted the interview or focus group? | The first author conducted the interview. |
2 | Credentials | What were the credentials of the researchers? (e.g., Ph.D., MD) | First author: Ph.D. Second author: Ph.D. |
3 | Occupation | What was their occupation during the study? | First author: Dr. Faculty Member, Psychiatric Nursing Second author: Dr. Lecturer, Psychiatric Nursing |
4 | Gender | What was the sex of the researcher? | Two researchers Female |
5 | Experience and education | What are the experiences and education levels of the researchers? | The first author has taken qualitative courses, has experience in qualitative research, and has published qualitative studies in international journals. The second author has taken qualitative courses, has experience in qualitative research, and has published qualitative studies in international journals. |
Relationships with Participants | |||
6 | Relationship status | Was there a relationship between the researcher and the participants before the training? | No relationship was established before the study. |
7 | Interviewee’s information about the interviewer | What did the participants know about the researcher, e.g., personal goals and reasons for doing the research? | Participants knew that the researcher had a doctorate in the field of mental health and diseases. |
8 | Interviewee characteristics | What characteristics of the interviewer or facilitator were reported? (e.g., bias, assumptions, reasons, and interests in research) | At the beginning of each interview, participants were informed about the purpose and objectives of the study. |
Domain 2: Study Design | |||
Theoretical Framework | |||
9 | Methodological orientation and theory | What methodological orientation was identified to support the study, e.g., discourse analysis, ethnography, phenomenology, and content analysis? | This was a qualitative study. |
Sampling | |||
10 | Sampling | How were the participants selected? (e.g., purposeful, convenience, consecutive, snowball.) | The criterion sampling method, one of the purposive sampling methods, was used. |
11 | Approach method | How were the participants reached? (e.g., face-to-face, telephone, mail.) | The time of the interviews was scheduled by the students who voluntarily agreed to participate in the study. |
12 | Sample size | How many participants were there in the study? | A total of 14 individuals were included in the study. |
13 | Exclusion | How many people refused to participate or dropped out? Reasons? | No adolescents refused to participate in the study. |
Setting | |||
14 | The setting of data collection | Where were the data collected? (e.g., home, clinic, or workplace) | Detailed information is given in the data collection section of the study. |
15 | Presence of non-participants | Was there anyone else other than the participants and the researchers? | No, there was not. |
16 | Description of the sample | What are the important characteristics of the sample? (e.g., demographic data, date) | Individuals who agreed to participate in the study were included in the study. |
Data Collection | |||
17 | Interview guide | Were questions, prompts, and guidelines provided by the authors? Were they tested in a pilot study? | Detailed information is given in the methods section. |
18 | Repeat interviews | Were repeated interviews conducted? If yes, how many? | No, they were not. |
19 | Audio/visual recording | Was audio recording or visual recording used to collect data in the research? | The responses of all individuals and the researcher’s observations were recorded. |
20 | Field notes | Were field notes taken during and/or after the interview or focus group? | Each interview lasted between 35 and 45 min. |
21 | Duration | How long were the interviews or focus groups? | Yes, it was. |
22 | Data saturation | Was data saturation discussed? | No, they were not. |
23 | Transcripts returned | Were transcripts returned to participants for comment and/or correction? | The responses of all individuals and the researcher’s observations were recorded. |
Domain 3: Analysis and Results | |||
24 | Number of data coders | How many data coders coded the data? | Two researchers and a third individual coded the data. |
25 | Description of the coding tree | Did the authors describe the coding tree? | The titles and subtitles in the results section represent the final coding tree. |
26 | Derivation of themes | Were the themes predetermined or derived from the data? | Themes were derived from the data. |
27 | Software | If any, what software was used to manage the data? | The data were analyzed manually. |
28 | Participant control | Did participants provide feedback on the findings? | No, they did not. |
Reporting | |||
29 | Quotations provided | Are participant quotes cited to illustrate themes or findings? Is each quote identified, e.g., by participant number? | Yes, they are. Participant quotes are provided to illustrate themes or findings. (e.g., participant number) |
30 | Data and findings consistent | Was there consistency between the data presented and the findings? | Yes, there was. |
31 | Clarity of the main themes | Are the main themes presented in the findings? | Yes, they are. |
32 | Clarity of subthemes | Is there a description of the different cases or a discussion of minor issues? | Yes, there is. |
Participant Number | Age | Gender | Marital Status | Education Level | Occupation | Income Level | Duration of the Illness | Type of the Illness | Place of Residence |
---|---|---|---|---|---|---|---|---|---|
P1 | 65 | Female | Single | Primary school | Housewife | Income equal to expenses | 2 years | Breast | City |
P2 | 32 | Male | Single | High school | Unemployed | Income less than expenses | 1 year | Testis | District |
P3 | 44 | Male | Married | Primary school | Self-employed | Income less than expenses | 1.5 years | Intestine | District |
P4 | 51 | Erkek | Single | Primary school | Unemployed | Income equal to expenses | 2 years | Intestine | City |
P5 | 65 | Male | Single | Primary school | Self-employed | Income equal to expenses | 3 years | Stomach | City |
P6 | 56 | Female | Single | High school | Housewife | Income less than expenses | 2 years | Breast | City |
P7 | 42 | Male | Single | Primary school | Unemployed | Income less than expenses | 2 years | Intestine | District |
P8 | 24 | Female | Single | High school | Self-employed | Income more than expenses | 1 year | Lymph gland | District |
P9 | 38 | Male | Married | High school | Civil servant | Income less than expenses | 3 years | Soft tissue | City |
P10 | 42 | Female | Single | High school | Self-employed | Income less than expenses | 5 years | Breast | City |
P11 | 31 | Male | Single | University | Unemployed | Income more than expenses | 1 year | Lymph gland | City |
P12 | 44 | Female | Married | Primary school | Unemployed | Income less than expenses | 2 years | Ovary | City |
P13 | 58 | Male | Single | Primary school | Self-employed | Income less than expenses | 7 years | Stomach | District |
P14 | 32 | Male | Married | Secondary school | Tradesman | Income less than expenses | 1 year | Testis | District |
Categories | Themes | Subthemes |
---|---|---|
1. Effects of cancer | A. Psychological effects | A1. Confusion |
A2. Loneliness | ||
A3. Anxiety | ||
A4. Fear of death | ||
A5. Learning patience | ||
A6. Weakness | ||
A7. Future anxiety | ||
A8. Sadness/unhappiness | ||
A9. Despair | ||
A10. Burnout | ||
B. Social effects | B1. Needing family support | |
B2. Fear of being alone | ||
B3. Learning to cope with side effects | ||
B4. To fight against infection | ||
C. Physical effects | C1. Fatigue | |
C2. Pain | ||
C3. Nausea | ||
C4. Fatigue | ||
C5. Hair loss | ||
C6. Weakness | ||
C7. Weight loss | ||
C8. Aphthae in the mouth | ||
C9. Sleep problems | ||
C10. Loss of appetite | ||
C11. Decreased quality of life | ||
2. Needs of the cancer patient (invisible components) | A. Social support | A1. Family support |
A2. Friend support | ||
A3. Love of pets | ||
A4. Support from neighbors | ||
A5. Believing that God is helping him | ||
B. Spiritual care | B1. Health personnel answering the questions | |
B2. Health personnel being with the individual | ||
B3. Not to be left alone | ||
B4. Getting answers to questions about death | ||
B5. Showing courtesy | ||
B6. Being able to fulfill religious worship in the hospital | ||
B6. Friendly health personnel | ||
B7. Feeling the love of a pet | ||
B8. Expecting understanding from health personnel and family members | ||
B9. Expecting empathic behavior from health personnel | ||
B10. Asking other people to pray for him/her | ||
B11. Thinking about the good old days and being happy | ||
B12. Dreaming about the future | ||
B13. Praying | ||
B14. Believing that the disease comes from God and accepting it |
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Özmaya, E.; Uzun, S. Invisible Warriors in the Struggle Against Cancer: Social Support and Spiritual Care—A Phenomenological Study on Patient Experiences. Healthcare 2025, 13, 2023. https://doi.org/10.3390/healthcare13162023
Özmaya E, Uzun S. Invisible Warriors in the Struggle Against Cancer: Social Support and Spiritual Care—A Phenomenological Study on Patient Experiences. Healthcare. 2025; 13(16):2023. https://doi.org/10.3390/healthcare13162023
Chicago/Turabian StyleÖzmaya, Esma, and Sevda Uzun. 2025. "Invisible Warriors in the Struggle Against Cancer: Social Support and Spiritual Care—A Phenomenological Study on Patient Experiences" Healthcare 13, no. 16: 2023. https://doi.org/10.3390/healthcare13162023
APA StyleÖzmaya, E., & Uzun, S. (2025). Invisible Warriors in the Struggle Against Cancer: Social Support and Spiritual Care—A Phenomenological Study on Patient Experiences. Healthcare, 13(16), 2023. https://doi.org/10.3390/healthcare13162023