1. Introduction
Expert patients are increasingly common, and their appearance and understanding are directly associated with the increased health literacy of this new group of health service users. These individuals are active in the self-management of their care, understand their own clinical conditions, and are more capable of solving simple daily issues associated with their health-disease process [
1,
2,
3,
4].
More and more, we find patients who acquire information from several sources, including television programs, the Internet, and mobile applications. They tend to share these findings with others who are in similar situations, building a network of support, coexistence, and solidarity to help one another [
2,
3,
5].
Thus, it is important for health workers to be prepared to deal with these patients and work with them as well as possible, extracting and encouraging their positive characteristics, encouraging partnerships with the activities of the service that involve the community, and helping optimize the process of acquisition and analysis of new reports [
1,
6].
As a result, sessions to train health care centers workers and bring them up to date have been common. In these sessions, they develop abilities to identify, recruit, and train expert patients to improve the care provided, standardizing user-related activities, systematizing educational practices, and proposing plans to improve the health system [
4,
7,
8,
9].
It is worth noting that most professionals involved in these activities are nurses, seeing as this class comprises most of the workforce and continuously provides several direct care activities to their patients. They have increasingly become the main actors in this context, being autonomous and increasingly valued, offering courses related to health education from undergraduate level onward and working in many sectors and complexity levels [
6,
10,
11].
Nursing also stands out due to its pedagogical side, which is proposed and encouraged in the training of these professionals and especially in the context of Primary Health Care (PHC), given that this level of care is considered to be the entryway to other services. The PHC receives a large number of people with chronic diseases and provides individual and collective educational activities to its users, being an extension of the social equipment in the community and the most accessible environment to deal with simple daily issues, related to population health [
6,
8,
9,
12,
13].
However, although PHC is the most conducive context for identifying, recruiting, and training expert patients, nurses working there lack more information and/or training on how to carry out such activities. To solve this problem, international institutions in the northern hemisphere have developed educational strategies based on partnerships between educational centers and health services, with the aim of bringing together the different experiences and realities of academia and professional practice [
1,
3,
4,
8].
Thus, it is clear that one needs to plan, encourage, and build technologies for health professional training and education. This can reduce the shortcomings of their previous educational processes, bring their knowledge up-to-date with the fast and constant changes in many different contexts, strengthen health care practices, reduce additional costs within healthcare systems, encourage self-management of care among patients, and support the elaboration or revision of public policies, so they can be in line with the specificities of present time.
As a consequence, this study was made with the following guiding questions in mind: What should be the contents of a course to train PHC nurses to educate expert patients? Which elements should make up the structure of the course? Which theoretical, philosophical, and methodological aspects should be considered and/or be a part of the elaboration of the course? Our objective was to build and validate a course to train nurses in PHC so they can educate expert patients.
2. Method
This is a methodological, quantitative study, following Pasquali’s psychometric model [
14]. This type of study is useful to produce and validate appropriate and reliable materials that can be used by other individuals [
14].
2.1. Course Development
The course was created according to three domains: literature review; theoretical, philosophical, and methodological framework; and observational visits. Based on this information, the course was elaborated and organized with the following elements: characteristics, syllabus, objectives, content, methodology, evaluation, schedule, references, and appendices (
Appendix A).
The literature review was, more specifically, a Scoping Review (ScR), and its research protocol was elaborated to guide the process of search and evaluation of studies. It was registered in the Open Science Framework (OSF) platform (DOI: 10.17605/OSF.IO/YPUVM) [
15].
The following databases were consulted in January 2022: PubMed, CINAHL, SCOPUS, Cochrane CENTRAL, Web of Science, PsycINFO, Latin American and Caribbean Health Sciences Literature (LILACS), and Educational Resources Information Center (ERIC). In regard to the gray literature, we used the CAPES Thesis and Dissertations Portal, the National Library of Australia’s Trobe (Trove), the Academic Archive Online (DIVA), the DART-Europe E-Theses Portal, the Electronic Theses Online Service (EThOS), the Open Access Scientific Repository of Portugal (RCAAP), the National ETD Portal, Theses Canada, and Theses and dissertations from Latin America.
All materials about the study object that had been published online in full were included. We excluded editorials, books, opinion articles, and theoretical essays. There was no limitation with regard to time or language. The following variables were extracted from the works found: year of publication/defense; country of origin of the research; level of evidence; population/sample and profile of the study subjects; chronic disease; self-care actions; and main results.
The scoping review aimed to map existing educational strategies and essential skills related to the training of expert patients, in addition to the activities to be performed by nurses in identifying, recruiting, and developing this patient profile, so that these findings guided the better structuring, selection, and organization of the topics covered in the course.
Our philosophical, theoretical, and methodological references included the concept of Andragogy by Roque Luiz Ludojoski [
16], David Paul Ausubel’s Theory of Meaningful Learning (TML) [
17], and Albert Bandura’s Self-Efficacy Theory [
18], respectively.
These authors were chosen because, although their reflections are different, their principles complement one another, as they allude and are compatible with the work of health professionals, since these individuals have needs, goals, experiences, and previous knowledge that are different from those of people who are still being formed as professionals.
In regard to the observational visits, they made it possible for us to observe the daily work in the institutions that develop activities involving expert patients. They were carried out in person and via remote meetings in Expert Patient Schools of Spanish autonomous regions and communities from September 2021 to May 2022, namely Cieza Health Center, Murcia Health Center, Granada Expert Patient Health Center, Valencian School of Health Studies, Seville Health Center, Madrid Health Center, and Mallorca Expert Patient Health Center.
Face-to-face and remote meetings were held at these Expert Patient Schools and in health units in the same regions that carried out initiatives and health care, educational, and managerial practices targeted at this new profile of service users. The observations also included meetings and discussions with professionals and/or patients of some of these centers; access to the materials produced there, such as videos and booklets; and others.
These moments were recorded through photographs previously authorized by those responsible for each center, based on conversations and informal reports during visits and continuous notes taken by researchers, as in a logbook. These measures helped to better understand the concept of expert patient, how the professionals involved in their formation are trained, what the educational methods are that are used, what the difficulties and potential for improvements are, and the positive results in the quality of life of users and for the health care services.
2.2. Validation Process and Selection of Judges
The content was validated using an electronic form produced in Google Forms
® (
https://forms.gle/E84XmdUZpbHeutRp6; accessed on 10 July 2022), organized in the following topics: general presentation of the research, instructions for completing the questionnaire, virtual agreement to participate in the study, and sociodemographic and labor characterization. It also included the eight sessions that comprise the course, which were evaluated using a three-point Likert scale created according to an adapted version of the criteria proposed by Pasquali [
14]. For each criterion in each session, a score of three indicated it was “adequate”; a score of two, partially adequate; and a score of one, adequate [
19].
The content was evaluated by experts with some level of knowledge, contact, and/or professional experience in PHC, tracked in March 2022 via the Lattes Platform of the National Council for Scientific and Technological Development (CNPq), according to the criteria adapted from Fehring [
20]: master’s degree in health (0 points), dissertation on PHC (1 point), research on the theme of self-care (3 points), article published in the field of PHC in a reference journal (3 points), doctorate in the field of health with a thesis on PHC (4 points), experience as a teacher (1 point), specialization in the field of PHC (2 points), totaling 14 points.
Immediately afterward, those who obtained a minimum score of up to 10 points were selected, a total of 60 judges, to whom an invitation was sent via email in order to explain the content of the survey and the importance of their participation.
In case of a positive response, another e-mail was sent with a consent form, in order to ensure that all ethical precepts were respected. After the consent form was sent back, signed by the evaluator, they were sent the evaluation form and asked to respond with the results in 20 days. For this process, a two-round Delphi Technique was used [
21] from May to August 2022.
It is worth noting that, in Delphi II, in addition to the electronic form with the topics described above, judges were sent a file that included the suggestions for change given by them in the first round, as well as our justifications for accepting these suggestions or not. We excluded any specialists from the research who did not agree to participate, did not send back the signed consent form, or did not fill in the electronic questionnaire in Delphi I.
Data were tabulated and organized in Microsoft Excel 2010. We considered all items that reached an agreement of 80% among judges and a Content Validation Coefficient (CVC) > 0.8 valid [
14,
21].
This research is in accordance with the ethical precepts of Resolution No. 466, from 12 December 2012, by the National Council of Health. It was approved by the Research Ethics Committee at the Universidade Federal do Rio Grande do Norte (UFRN) under CAAE No. 46980621.2.0000.5537. It should be noted that all confidentiality criteria were met to ensure the anonymity of participants who agreed to take part in this study, so that judges were identified by the letter J (for judge) followed by an Arabic numeral according to the order in which their evaluations were received (J1, J2, J3, etc.).
3. Results
Using content from the ScR, the theoretical framework, and the observational visits, we reached the goal of creating a course to train PHC nurses, so they can educate expert patients. It was registered in the Ministry of Education Integrated Platform and is available at
https://plataformaintegrada.mec.gov.br/recurso/360192 (accessed on 25 April 2023).
Content validation took place in two Delphi rounds, which took place from May to August 2022. Nine judges participated in Delphi I. Their sociodemographic and work characteristics are in
Table 1.
Regarding their line of work, a single participant can work with more than one topic. Thus, they may be able to discuss the development of activities with the SP (09; 45.0%), health quality management (07; 35.0%), and health technologies (05; 20.0%).
As for the evaluation of the materials according to [
14], there were agreement levels above 80% among judges in all items evaluated, with CVC values above 0.90 in Delphi I (
Table 2).
After the first Delphi round, judges’ suggestions were considered to determine whether they should be included or not, considering the justifications shown in
Table 3.
In general, the comments made by the judges aimed to clarify and enable a better refinement in the quality of the course’s structure, clarity, and content, mainly to assist in the flexibility for possible applications of this educational technology in other contexts and/or realities. In addition, all justifications and acceptances of the notes made were based on the theoretical, philosophical, and methodological references used throughout the course construction process.
After the changes were made according to the suggestions of the judges, a second Delphi round was conducted, and the same participants from the previous round were invited to participate. From the nine evaluators who participated in Delphi I, six participated in Delphi II. Their characteristics are in
Table 4.
Regarding their line of work, a single participant can work with more than one topic. Thus, they may be able to discuss the development of activities with the SP (06; 40.0%), health quality management (05; 33.3%), and health technologies (04; 26.7%).
Regarding the evaluation of the materials according to [
14], judges maintained agreement levels above 80% in all items evaluated, with a total CVC value of 0.99 in all items, except for the objectives (
Table 5).
4. Discussion
The training of nursing professionals is increasingly more appreciated, given that people seek safe and good quality health care, making it necessary to increase the self-esteem and appreciation of these workers, helping change a hospital-centered practice and the curative-focused biomedical model [
6,
22].
This takes place, mainly, through the improvement and growth of PHC assistance, as it organizes and integrates health services according to the needs of the population. It also promotes the axes that structure the health system and are based on the care process, generating effective and efficient interventions [
13,
23].
PHC conditions have been extremely important in later years, especially in the post-pandemic world, since the number of people with chronic diseases increased exponentially. Furthermore, population aging and behavior and lifestyle changes contributed to the current epidemiological landscape [
24,
25].
In this regard, universities, technical education organizations, and health services from countries such as the United Kingdom, the United States, Canada, Australia, and Spain, have formed partnerships for the technical–scientific improvement in their health workers, so they can identify, train, and form expert patients, in order to provide continuous, holistic, preventive, and effective care to these individuals [
5,
26,
27].
The search for different strategies to achieve the same goal is directly related to the multiple dimensions of patient care quality, including safety and effectiveness of care and patient-centeredness throughout the care process, so that healthcare professionals, especially nurses, show patients that they must be aware of their responsibility to themselves and be agents of change based on the results of their own actions [
28,
29,
30].
These institutions often provide courses periodically, or according to existing or apparent needs, to improve the techniques used in the teaching-learning process; to produce and share scientifically-backed materials to optimize their activities; to create new national and international collaborative efforts to replicate successful activities; and to conduct investigations to evaluate the level of effectiveness of the educational practices being conducted [
5,
26,
27].
Nonetheless, the motivation of nursing workers in regard to the contents and activities from the course is an essential element for individual or collective production. Active participation, together with the other subjects, is essential to raise prospective discussions and help significant learning [
13,
16].
To reach this result, the course must, in order to train health workers, be based on theoretical and methodological frameworks that are consistent with these individuals [
16,
17,
18], appropriately using teaching strategies and tools with a direct connection to the contents addressed [
5,
27].
An example of this includes discussions in small or large groups about experiences with potential expert patients; mental maps to organize the understanding of the concept of expert patient; simulation scenarios that encourage the development of self-care actions and the resolution of daily problems, covered by patients and optimized by nurses; interactive quizzes and/or the collective elaboration of an interactive mural showing the benefits and the aspects that help or hinder self-care activities; and other possibilities [
2,
3,
5,
26,
27].
In regard to the validation of the characteristics of the final sample in both Delphi rounds, the fact that most evaluators were female is a constant element in health throughout the years, especially in nursing. Furthermore, most participants are from this field, since it is the largest workforce in health services and is in accordance with the target audience of the course being elaborated [
6,
10].
In regard to their age group and time working in the field, although the Delphi II had 10 years less, participants were found to be experienced and have an affinity with the topics of this research, PHC, and safe care. This led to significant contributions that helped improve the quality of the structure and contents addressed in the course developed [
11,
12,
13,
22,
30].
The same explanation can be associated with the time since the graduation of the judges, which varied from 10 to 20 years, and the fact that most worked with the triad teaching, research, and direct assistance. This indicates that the suggestions have a wide scientific basis, being closer to the issues found in the context of their work, whether this work is associated with scientific projects/articles or to the practices they carry out in health care units [
13].
Nonetheless, the fact that most participants are associated with the topic of patient safety shows how important the topic is and how it must be considered in a cross-sectional way, from teaching to the activities developed by all those involved in the process of care—that is, health workers, patients/users and their families or support persons, based on the idea of providing a safer, higher-quality assistance [
30,
31].
Regarding the agreement level of the judges about the items evaluated, it was found to be uniform, as all items reached a total CVC above 0.90 since the first Delphi round. This indicates that the content was able to reach its goals. However, a Delphi II was necessary to consider the suggestions of the judges, which were relevant and increased the total CVC to 0.99 for all elements evaluated, with the exception of the objectives [
32].
The suggestions proposed included clarifying the percentage of the course that was dedicated to in-person and remote activities and clarifying the essence of the approach and the goal of the course. Seeing as this is a type of training that requires developing and evaluating practical actions from the participants, in-person activities must be the most prevalent in order to provide a dynamic environment that can encourage the performance of these activities [
23,
33].
Additionally, given that the target audience is a portion of the public who work in the PHC for 40 h a week, it is important to make clear, since the beginning, that this course is a way to improve their work practices, causing no harm. Professionals and managers of the work units are contacted beforehand, so they feel more motivated and open to active participation in the course meetings [
13,
22].
In this sense, some strategies can be implemented jointly between health services, management, and educational institutions, such as establishing a fixed annual calendar of training and capacity building focused on the theme of the expert patient for these professionals; promoting the presentation of results obtained over time after the implementation of the activities suggested during the course and how this has impacted the quality of service; or even drafting public notices that encourage innovation in techniques to promote financial resources directed at this modality in patient care [
11,
23,
28].
It is worth noting that helping promote a more receptive and interested behavior from course participants is valuable to reach positive results. This is in accordance with the Self-Efficacy Theory [
18] recommended by a Delphi I judge and in andragogy, which discusses the education of younger adults, in this case, PHC nurses. The TML is also associated with this aspect of the research, as it generates a more robust cognitive structure by joining new and old knowledge [
16,
17].
This point meets the need to educate patients to be at the center of their care in an effective and safe manner, which is included as one of the teaching topics in the course and gives nurses a broader and more relevant understanding of the process of training expert patients in the context of PHC, with the aim of making them increasingly involved in self-management of care and safely assisting others in similar conditions [
28,
29,
30,
33].
Another idea from the judges was presenting and/or succinctly mentioning the concept of expert patients, which is the base of the course elaborated here, since the activities of the course aim to enable nurses to identify, recruit, and train this new patient profile. These patients would be able to self-manage their care, helping others in similar situations, have a more active attitude in regard to their own clinical conditions, and, although the topic is addressed during the meetings of the course, the target audience must have a general awareness about the contents to be addressed [
1,
2].
Concerning this suggestion, we would like to highlight the fact that this course is destined for PHC nurses because we want to encourage the community to recognize and use the PHC as the entryway to other health services. Moreover, there is a higher number of individuals who are potential expert patients, especially considering their characteristics, including having some chronic disease and being attended to in Primary Health Units [
5,
8,
26].
Therefore, the relationship between PHC professionals and patients must be horizontal and based on trust and mutual responsibility, in order to bring short, medium, and long-term benefits to all those involved in the care process, even if there are some difficulties [
6].
In general, all comments made by the judges were considered by the authors and promoted significant reflections, with the aim of improving the material developed and facilitating its applicability in other areas. In addition, even those observations that were redundant or refuted in Delphi II were given attention and, consequently, a plausible justification for not being accepted.
Limitations found in the development of this study include the impossibility of monitoring training sessions to form expert patients in the health centers and schools visited, since, at the time the visits were carried out, no session was being held; this prevented us from observing these sessions, which could help apprehend new ideas and experiences. Furthermore, the different understandings and experiences of the specialists during the evaluation process could generate mistaken interpretations.
Nevertheless, the results found here contribute to increasing the importance of seeing the patient as the center of their own self-care; to fostering reflections in nurses about the fast and constant epidemiological transitions and the need to update and adapt work strategies; to encouraging the building and validation of teaching tools for continued education in health services; and to increasing knowledge and, therefore, strengthen the activities carried out by health care professionals.
It is also intended to consider the construction and validation of this material as an initial subsidy for the elaboration of a practical action plan within the national health education program of the Ministry of Health, with the aim of overcoming cultural and linguistic barriers in a continental territory with wide epidemiological differences.