Enablers of and Barriers to Perinatal Mental Healthcare Access and Healthcare Provision for Refugee and Asylum-Seeking Women in the WHO European Region: A Scoping Review
Abstract
:1. Introduction
2. Materials and Methods
2.1. Eligibility Criteria
2.2. Information Sources and Searches
2.3. Selection of Evidence
2.4. Data-Charting Process and Data Items
2.5. Synthesis of Results
3. Results
3.1. Characteristics of Sources of Evidence/Study Characteristics
3.2. Synthesis of Results Using the Candidacy Framework
3.2.1. Identification of Candidacy: Enablers and Barriers
3.2.2. Navigating Services: Enablers and Barriers
3.2.3. Permeability of Services: Enablers and Barriers
3.2.4. Appearing at Services and Asserting Candidacy: Enablers and Barriers
3.2.5. Adjudication by Professionals: Enablers and Barriers
3.2.6. Offers of and Resistance to Services: Enablers and Barriers
3.2.7. Operating Conditions and Local Production of Candidacy: Enablers and Barriers
3.2.8. Summary of Findings
4. Discussion
Strengths and Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Data Availability Statement
Conflicts of Interest
References
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Refugee | The United Nations High Commissioner for Refugees defines a refugee as ‘a person who owing to a well-founded fear of being persecuted for reasons of race, religion, nationality, membership of a particular social group, or political opinion, is outside the country of their nationality and is unable to or, owing to such fear, is unwilling to avail himself/herself of the protection of that country’ [35]. |
Asylum seeker | An asylum seeker is ‘an individual who has applied for asylum on the grounds of persecution in their home country relating to their race, religion, nationality, political belief, or membership of a particular social group. This population remains classified as asylum seeking for as long as the asylum application is pending’ [35]. |
Dimensions of Candidacy | Adapted Description of Stages |
---|---|
Identification of candidacy | The process by which refugee/asylum-seeking women come to view themselves as suitable candidates for perinatal mental healthcare. The process by which healthcare professionals come to view refugee/asylum-seeking women as suitable candidates for perinatal mental healthcare. 1. How refugee/asylum-seeking women recognise their perinatal mental illness symptoms as needing healthcare services and support. 2. How refugee/asylum-seeking women perceive perinatal mental health and appraise their perinatal mental illness symptoms as requiring help, which legitimises them as candidates for perinatal mental healthcare services. 3. How healthcare professionals identify refugee and asylum-seeking women as candidates for perinatal mental healthcare. 4. How voluntary and charity organisations’ professionals identify refugee and asylum-seeking women as candidates for perinatal mental healthcare. |
Navigating services | Knowledge among refugee/asylum-seeking women of perinatal mental healthcare services and how to contact and gain access to these services. 1. The awareness among refugee/asylum-seeking women regarding available support and services for those experiencing perinatal mental health concerns. 2. Knowledge among refugee/asylum-seeking women as to how to contact perinatal mental healthcare services. 3. Appraisal of the practicalities of contacting and accessing perinatal mental healthcare services. |
Permeability of services | The ease with which refugee/asylum-seeking women can use perinatal mental healthcare services. 1. The levels of gatekeeping and referral processes/pathways for refugee/asylum-seeking women experiencing perinatal mental concerns. 2. How well configured services are in meeting the specific needs of refugee/asylum-seeking women experiencing perinatal mental health concerns. 3. The degree of ‘cultural alignment’ between refugee/asylum-seeking women and perinatal mental healthcare services (how services align to the cultural/linguistic needs of refugee and refugee/asylum-seeking women). |
Appearing at services and asserting candidacy | The actions that refugee/asylum-seeking women must take to assert their candidacy by presenting at services, articulating their issues and their need for care. 1. Factors influencing refugee/asylum-seeking women’s ability to articulate their perinatal mental health concerns and need for care. 2. The work that refugee/asylum-seeking women must do to assert their candidacy and be acknowledged and understood during interactions with healthcare professionals. |
Adjudication by professionals | A judgment is made by healthcare professionals that allows or inhibits continued progression of candidacy, and this influences subsequent healthcare access. Processes by which healthcare professionals make decisions that subsequently influence the refugee/asylum-seeking women’s progression through healthcare services and access/eligibility for further perinatal mental healthcare. |
Offers of/resistance to services | Offers of perinatal mental healthcare/services are provided by healthcare professionals, which are considered and subsequently accepted or refused by refugee/asylum-seeking women. 1. Factors influencing the type of perinatal healthcare/services offered. 2. The appropriateness and acceptability of offers of perinatal mental healthcare. 3. Factors influencing refugee/asylum-seeking women’s acceptance/rejection of offers for appointments, follow-ups, referral pathways, and perinatal mental health treatment. |
Operating conditions and local production of candidacy | Societal and system-level issues that influence perinatal mental healthcare services’ availability and provision for refugee and asylum-seeking women. 1. Factors contributing to the availability and ease of obtaining perinatal mental healthcare services. 2. Factors influencing the availability of resources (i.e., professionally trained interpreters; time) to provide perinatal mental healthcare for refugee and asylum-seeking women. 3. Relational aspects between health professionals and refugee/asylum-seeking women experiencing perinatal mental health concerns (i.e., locally specific influences on interactions during caring encounters). |
Variable | No (%) | Author(s) and Year |
---|---|---|
Data source type | Empirical evidence n = 14 (77.8%) Non-empirical evidence n = 4 (22.2%) | |
Geographical location of data sources | United Kingdom n = 9 (50%) Germany n = 3 (16.7%) Denmark n = 2 (11.1%) Norway n = 1 (5.6%) Greece n = 1 (5.6%) Sweden n = 1 (5.6%) Switzerland n = 1 (5.6%) | |
Empirical study designs | Qualitative studies n = 10 (55.6%) | [36,37,38,39,40,41,42,43,44,45] |
Quantitative studies n = 4 (22.2%) | [46,47,48,49] | |
Non-empirical data sources | Discussion paper n = 2 (11.1%) | [50,51] |
Policy paper n = 1 (5.6%) | [52] | |
Editorial n = 1 (5.6%) | [53] |
Africa | Asia | Europe |
---|---|---|
Ethiopia, Eritrea, Gambia, Ivory Coast, Liberia Sierra Leone, Morocco, Nigeria, Somalia, Somaliland, Sudan, Sierra Leone, Zimbabwe | Afghanistan, Iraq, Palestine, Syria | Albania, Bosnia, Chechnya, Kosovo, Macedonia, Romania, Serbia |
Enablers | Examples from Data Sources |
---|---|
Trusting relationships and advocacy | Feeling like someone cares reduces stress [45]. Support from a befriender/advocate who speaks the same language can help reduce the sense of loneliness, and as a result one may be more likely to reveal difficulties that would otherwise be hidden [43]. A befriender/advocate can listen to experiences and help with signposting appropriate health services [43]. Women valued being a member of a trusted support group [44]. Women shared more about their perinatal experiences in one-to-one settings compared to group settings [44]. |
Candidacy initiated by others | Professionals picking up on perinatal mental health needs and initiating care [41]. Low-threshold support such as psychosocial walk-in clinics at refugee centres can reduce barriers to perinatal mental health screening and perinatal mental health support [47]. Professional support initiated by social workers, psychologists, and midwives played a significant part in reducing psychological stressors in accessing care [41]. Voluntary workers went out of their way to support women [38]. |
Barriers | Examples from Data Sources |
Fear and avoidance | Fear of being exposed and vulnerable [40]. Avoiding talking about one’s own circumstances [40]. Sense of loneliness and feeling unable to share one’s plight [40]. Cultural beliefs that talking about oneself may invite the ‘evil eye’ [44]. Unwillingness to attend unfamiliar support groups at unfamiliar premises without a trusted recommendation or companion [44]. Difficulties sharing very personal information in a group whilst claiming asylum [44]. Of the 80 eligible refugee women identified to participate in this study, only 39 (49%) completed the self-reported perinatal mental health questionnaire [48]. |
Shame and stigma | Loss of independence [40]. Difficulty talking about feelings [40]. Feeling bad when asking for help [45]. The stigma of mental illness in women from diverse cultural backgrounds [39]. Unwillingness to disclose mental health problems in the postpartum period due to stigma of mental illness [39]. |
Language barriers | Due to linguistic barriers, women may be unwilling or feel unable to seek help [52]. Less likely to disclose information with the use of an interpreter; concerns regarding the lack of confidentiality and lack of code of conduct training for interpreters [43]. Results show that refugee women who resided in Denmark for <5 years faced language barriers, and this may explain why refugee women were less likely to engage in perinatal mental health screening [46]. |
Perceptions of perinatal mental health | Self-rated perceptions of health are varied [37]. Different perspectives and expectations on how postpartum health and wellbeing should be experienced [37]. Lack of understanding and awareness of postpartum depression [49]. Instead of identifying as ‘sick’, women would express a need for practical help and support instead [49]. A significant association was seen between migration status and lack of perinatal mental health screening. There are more barriers to perinatal mental health screening for refugee women compared to Danish-born women [46]. Poor experiences in their country of origin led to avoiding maternity care as a refugee or asylum seeker in a new country, e.g., deficient care, dirty hospitals, and corruption where women only receive care if money is offered to staff [52]. Of the 39 respondents, only 3 (7.7%) were assessed as having a possible perinatal mental illness. This unexpectedly low result might reflect a difference in expectations among the refugee women of how the postpartum period should be experienced [48]. |
Enablers | Examples from Data Sources |
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Community support | A specialist antenatal support group run by the voluntary sector provided the opportunity to gain support from peers [38]. A local church was a place of support and an opportunity to meet people from the same background/country [38]. Women appreciated when people from the local community reached out with support [41]. Volunteers helped refugee and asylum-seeking women to access health services, including maternity care and mental health service support [43]. |
Referrals by healthcare professionals | Clarifying healthcare professionals’ roles and responsibilities, clarifying their influence on immigration proceedings, and clarifying their role in helping access to free care can increase a woman’s engagement with services [50]. Healthcare professionals referred women to specialist services; 74% of the refugee women were advised to undergo outpatient psychotherapy after transferring to municipal accommodation because of their severe mental health problems [47]. Professionals providing psychosocial walk-in clinics for pregnant refugees and new mothers referred patients to other care providers, including specialists, midwives, mother–child facilities, support offers provided by churches, and counselling and outreach centres, as well as charitable organisations such as the German Caritas Association, when necessary [47]. |
Barriers | Examples from Data Sources |
Lack of awareness of the healthcare system | Lack of knowledge of the role of healthcare professionals (e.g., midwives) and lack of knowledge of the healthcare system [50]. Unrealistic expectations of the health system due to misinformation or excessive optimism, resulting in disappointment [37]. Lack of understanding of the policies and capacity of the country of destination [37]. |
Moving locations | Moving location (e.g., due to accommodation issues) meant losing social support and established relationships with healthcare workers such as midwives, GPs, or doulas [38]. Negative impact of moving during pregnancy, leading to loss of social support and continuity of care with healthcare professionals [53]. Women must relearn how to navigate health services in the new location [53]. |
Language barriers | It is very difficult to navigate healthcare services when you do not speak the language [41]. Due to linguistic barriers, women are often not aware of the services available to them [53]. Language as a barrier to perinatal mental healthcare [37]. |
Enablers | Examples from Data Sources |
---|---|
Cultural mediation support | Engagement with other services helps with understanding [45]. Engagement with community support and voluntary groups supports cultural mediation [38,41]. Practical and social support is particularly beneficial [52]. Support from community volunteers is valued [43]. Engagement initiated by healthcare professional [41]. |
Barriers | Examples from Data Sources |
Lack of cultural alignment of services | Limitations to approaches to perinatal mental health screening [46,52]. Lack of meaningful engagement with healthcare professionals [36]. Perceptions that women do not meet Western diagnostic criteria [36]. Services lack empathy and compassion for the lived experience of refugee and asylum seekers [36]. Discriminatory attitudes of staff [36]. Over-focus on pharmaceutical interventions [52]. Experiencing neglectful care encounters [36,40]. Prioritising physical care at the detriment of emotional care [36]. Not being understood [38,40]. Unaddressed language barriers [36,39,41]. Women raised issues of safety and a lack of trust in healthcare professionals [44]. |
Capabilities of healthcare professionals | Feelings of intimidation during care encounters [38]. Healthcare professionals’ prejudices [42]. Healthcare professionals’ over-focus on cultural differences [42]. Ill-prepared healthcare professionals [52]. Lack of awareness among HCPs of cultural and religious factors that influence healthcare expectations [39]. |
Enablers | Examples from Data Sources |
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Advocacy support | Healthcare professionals initiating professional support and perinatal mental healthcare [41]. |
Supported by community volunteers [38,43]. | |
Engagement with community support and voluntary groups supports ease in appearing at services [38,41]. | |
Barriers | Examples from Data Sources |
Lack of attention to cultural differences | Cultural or religious notions may lead to perceiving healthcare as unacceptable when not given by a same-sex care provider [39]. |
Gender was a barrier for women whose tradition or religion does not allow interactions with men [37]. | |
There were cultural barriers in the relationships between women and healthcare professionals, with a lack of understanding of culture and traditions related to pregnancy and birth [37]. | |
Language barriers | Language barriers with women compromised their ability to articulate their needs [36]. |
The language barrier posed a particular problem [39]. | |
Difficulty in articulating needs [52]. | |
Busyness of services | The busyness of services and healthcare professionals meant a lack of time spent with women, so less opportunity to share their mental health worries [36]. |
Woman did not want to bother midwives with their problems, as they appeared so busy [36]. | |
Woman downplayed their symptoms, so as not to bother the busy healthcare professionals, with a sense of being less eligible for care [36]. |
Enabler | Examples from Data Sources |
---|---|
Commitment to woman-centred care | Women felt respected, acknowledged, ‘seen’, and ‘heard’ by the midwife [40]. Midwives come to your rescue and care for women [38]. |
Specialist services for refugee and asylum-seeking women | Specialist services at detention centres (in collaboration with maternity care services) support women with perinatal mental health concerns [47]. |
Barriers | Examples from Data Sources |
Negative attitudes towards refugees and asylum seekers | Intimidation by social workers implying that they would take children from women [38]. Intimidation implying that women were not entitled to public funds [38]. Healthcare professionals lack cultural awareness of cultural factors that influence perinatal mental healthcare expectations [39]. Healthcare professionals’ prejudices and biases [36,42]. |
Ill-prepared healthcare professionals | Complex factors (e.g., the reason for migration, social situations, and cultural constructions of mental health) can present challenges for midwives who care for vulnerable migrant women [50]. Lack of preparation among healthcare professionals, with training, preparation, and education inadequate for supporting pregnant migrant and refugee women [52]. Minimal investment in the interdisciplinary and interprofessional training of the perinatal mental healthcare team [37]. Midwives reported that women are seen as one-dimensional by other professionals, with migrant status superseding mental health needs [36]. |
Enablers | Examples from Data Sources |
---|---|
Being understood | Being understood by the healthcare professional [40]. Engaging in meaningful discussions about perinatal mental health [50]. Culturally competent healthcare professionals [41,45]. Continuity of care is more likely to lead to a trusting relationship and the ability to have sensitive discussions [50]. |
Barriers | Examples from Data Sources |
Over-focus on pharmacological interventions | Prescribed medicines that cannot be taken due to breastfeeding [40]. Women present with somatic symptoms and tend to prefer practical help instead of pharmacological interventions [52]. |
Difficulty finding appropriate services for referral | Midwives expressed feeling responsible for finding a service that would accept a referral for a woman with refugee or asylum-seeking status; midwives often ended up using their personal contacts, networks, and experiences to source appropriate care offers for women [36]. |
Enablers | Examples from Data Sources |
---|---|
Dedicating time | Structure, extra time, and training in cultural competence helped in understanding and building trust with refugee and asylum-seeking women [45]. Dedicated time during care encounters [45]. |
Barriers | Examples from Data Sources |
Lack of appropriate services | Services not suitable for refugee and asylum-seeking women, who would therefore be less likely to discuss their mood or disclose information [36]. Lack of screening for refugee women compared to women living in their country of origin [46]. Culturally appropriate services, with high cultural understanding and informed consent practices, are needed [37]. Referral numbers for asylum-seeking mothers into perinatal mental health services are low. Sensitive service models and referral mechanisms responsive to the specific needs of vulnerable people are needed [44]. Lack of service integration and continuity of care [37]. If healthcare professionals lack cultural awareness and knowledge, then cultural misunderstandings and conflicts occur [49]. |
Lack of funding for time in consultations | There is evidence of the need to develop relationship-centred interventions with refugee and asylum-seeking mothers and their infants, and this requires resources in terms of time [44]. Pregnant asylum-seeking and refugee women often have complex health and social care needs that midwives may have difficulty in meeting due to the resources needed in terms of managing workloads and limitations of time [43]. Low engagement during crisis—healthcare professionals’ burnout due to workload [37]. Limitations of allocated resources result in a lack of time to meet the healthcare needs of women in a culturally appropriate manner [37]. |
Western diagnostic and management criteria | Western diagnostic criteria used for acceptance into general perinatal mental health services may not be suitable for refugee or asylum-seeking women [36]. Refugee women are less likely to engage in perinatal mental health screening [46]. Doctor-centred and patriarchal systems of care [37]. Focus on pharmaceutical interventions [40,52]. |
Wider societal influences | Midwives were cautious about who they sought support or guidance from, due to the discriminatory attitudes of other staff members [36]. The asylum seeker is seen as different, and the difference is often expressed negatively. A general prejudice against asylum seekers [39]. Poor attitudes and a lack of understanding of their needs [43]. Fear of financial charges for healthcare [50]. Migration status supersedes perinatal mental health needs [36]. |
Identification | Navigation | Permeability | Appearances at Health Services | Adjudication | Offers and Resistance | Operating Conditions and the Local Production of Candidacy | |
---|---|---|---|---|---|---|---|
Enablers | Trusting relationships and advocacy Candidacy initiated by others | Community support Referrals by healthcare professionals | Cultural mediation supports | Advocacy and support | Commitment to women-centred care Specialist services for refugee and asylum-seeking women | Being understood | Dedicating time |
Barriers | Fear and avoidance Shame and stigma Language barriers Perceptions of perinatal mental health | Lack of awareness of the healthcare system Moving locations Language barriers | Lack of cultural alignment of services Capabilities of healthcare professionals | Lack of attention to cultural differences Language barriers Busyness of services | Negative attitudes towards refugees and asylum seekers Ill-prepared healthcare professionals | Over-focus on pharmacological interventions Difficulty providing appropriate services for referral | Lack of appropriate services Lack of funding for time in consultations Western diagnostic and management criteria Wider societal influences |
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Markey, K.; Moloney, M.; O’Donnell, C.A.; Noonan, M.; O’Donnell, C.; Tuohy, T.; MacFarlane, A.; Huschke, S.; Mohamed, A.H.; Doody, O. Enablers of and Barriers to Perinatal Mental Healthcare Access and Healthcare Provision for Refugee and Asylum-Seeking Women in the WHO European Region: A Scoping Review. Healthcare 2024, 12, 1742. https://doi.org/10.3390/healthcare12171742
Markey K, Moloney M, O’Donnell CA, Noonan M, O’Donnell C, Tuohy T, MacFarlane A, Huschke S, Mohamed AH, Doody O. Enablers of and Barriers to Perinatal Mental Healthcare Access and Healthcare Provision for Refugee and Asylum-Seeking Women in the WHO European Region: A Scoping Review. Healthcare. 2024; 12(17):1742. https://doi.org/10.3390/healthcare12171742
Chicago/Turabian StyleMarkey, Kathleen, Mairead Moloney, Catherine A. O’Donnell, Maria Noonan, Claire O’Donnell, Teresa Tuohy, Anne MacFarlane, Susann Huschke, Ahmed Hassan Mohamed, and Owen Doody. 2024. "Enablers of and Barriers to Perinatal Mental Healthcare Access and Healthcare Provision for Refugee and Asylum-Seeking Women in the WHO European Region: A Scoping Review" Healthcare 12, no. 17: 1742. https://doi.org/10.3390/healthcare12171742
APA StyleMarkey, K., Moloney, M., O’Donnell, C. A., Noonan, M., O’Donnell, C., Tuohy, T., MacFarlane, A., Huschke, S., Mohamed, A. H., & Doody, O. (2024). Enablers of and Barriers to Perinatal Mental Healthcare Access and Healthcare Provision for Refugee and Asylum-Seeking Women in the WHO European Region: A Scoping Review. Healthcare, 12(17), 1742. https://doi.org/10.3390/healthcare12171742