The Luminos Project: Co-Designing a Short-Stay Suicide Support Model for Young People
Abstract
1. Introduction
2. Methods
2.1. Participants
2.2. Procedure
2.3. Analysis
3. Results
3.1. Benefits
“I think it’s really important to facilitate support services and accessible resources that are created as a preventive measure instead of a crisis management measure so that we instill a lot of skills and things like that for people to not have to get to the point of crisis.”(Aboriginal young person 26)
“I personally have been into a psych ward through the emergency department. It’s not a great experience so I understand why young people especially would want a space to actually go and deal with their mental health crisis.”(Young person 16)
“Once you’re going through mental health units, that’s often more traumatizing than the feelings of suicide and emptiness…”(Stakeholder 4)
“[My ideal outcome would be] respite for the family knowing that their beloved is in an environment that’s safe for them... and… the individual needs of the child have been met.”(Parent 1)
3.2. Design
3.2.1. Information Prior to Staying at Luminos
3.2.2. Physical Aspects
3.2.3. Triggering Aspects of Physical Design
3.2.4. Other Design Aspects
3.2.5. Rules
3.2.6. Alcohol, Illegal Drug Use and Smoking/Vaping
3.2.7. Mobile Phones and Technology
“I think with phones, it’s not saying yes or no to a phone. I think it’s saying, ‘how are we using this? And how can we utilise this tool in a way that is helpful and not disruptive?’”(Young person 3)
3.2.8. Contact with Family and Friends
3.2.9. Unsupervised Leave
3.2.10. Interactions and Engagement
3.3. Staffing
3.3.1. Staff Roles
3.3.2. Staff to Patient Ratio and Shift Pattern
3.3.3. Staff Qualities
3.3.4. Lived Experience in the Workforce
“Not everyone has to have had mental health experience, or they might have a family member or someone else going through that…I just feel like if you can relate to them on some level, you can be buddies, I guess, and you feel like more comfortable with that.”(Young person 27)
“I think I would just say around safely sharing… not talking potentially triggering things like methods or things in details but making sure they’re fostering hope.”(Young person 31)
“It might work, but then it might all end up being about them if they keep talking about it and it could be reliving the trauma.”(Carer 11)
“Certain ones might react really well to it, and others it might bring up emotions, it might enhance their feelings by listening to someone else. So, it’s getting a feel for who’s there first before you make that decision about talking about it.”(Stakeholder 10)
3.3.5. Recruitment, Training and Appearance
3.4. Operations
3.4.1. Structure and Activities
3.4.2. Meal Planning and Mealtimes
3.4.3. Pets
3.4.4. Rejection from Service
3.4.5. Onboarding
3.4.6. Distress Management
3.4.7. Staff Contact with Family and Others
3.4.8. Length and Timing of Stay
3.4.9. Gendered Intake
3.4.10. Other Activity Related Concepts
3.5. Accessing and Exiting Luminos
3.5.1. Referrals into Luminos
3.5.2. Exiting Luminos
3.5.3. Follow-Up
3.5.4. Re-Using the Service
3.5.5. Linking to Other Services
3.6. Challenges and Safety
3.6.1. Operational Challenges
3.6.2. Interactions with Others
“If you’ve got someone who is, let’s say, depressed and anxious, and then you’ve got someone who is really out there, who is a real extrovert… How do you set the culture of the sanctuary? How do you work out what that culture is and keep it? Because the dynamic is absolutely contagious. And if you’ve got two people who have a history of eating disorders, how do you make sure that can’t flourish in this environment? And what do you allow? Can they go into each other’s rooms?”(Carer 1)
“Sometimes the group dynamics can be a little bit complicated… I know of kids who meet each other and then go on to form friendships that are potentially not the healthiest connections. I guess it would be a bit of a concern that there is scope for that to happen again.”(Stakeholder 14)
3.6.3. Eligibility for Service
3.6.4. What Would Prevent People from Using Luminos?
3.7. Measuring Outcomes
3.7.1. Measures of Success
“With my child, we talk about bees in a bonnet. At some point, she’s got too many bees and she has to get rid of them. So, I think my expectation is that some of the bees just disappear.”(Carer 7)
“Not to be consumed by your mental health.” (Young person 33). Followed by: “Exactly, just be a normal person.”(Young person 35)
“I would like you to come away with a sense that, ‘hey, look, things are pretty crap at the moment, but it’s not always going to be like this, and there’s other people that feel like this as well’”(Carer 8)
3.7.2. Data Collection Methods
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Acknowledgments
Conflicts of Interest
References
- Australian Institute of Health and Welfare. Suicide & Self-Harm Monitoring. Available online: https://www.aihw.gov.au/suicide-self-harm-monitoring/data/intentional-self-harm-hospitalisations/intentional-self-harm-hospitalisations-by-states (accessed on 11 June 2024).
- Freeman, J.; Strauss, P.; Hamilton, S.; Pugh, C.; Browne, K.; Caren, S.; Harris, C.; Millett, L.; Smith, W.; Lin, A. They told me “This Isn’t a Hotel”: Young people’s experiences and perceptions of care when presenting to the emergency department with suicide-related behaviour. Int. J. Environ. Res. Public Health 2022, 19, 1377. [Google Scholar] [CrossRef]
- Watling, D.; Preece, M.; Hawgood, J.; Bloomfield, S.; Kolves, K. Developing an intervention for suicide prevention: A rapid review of lived experience involvement. Arch. Suicide Res. 2022, 26, 465–480. [Google Scholar] [CrossRef]
- Procter, N.; Wilson, R.L.; Hamer, H.P.; McGarry, D.; Loughhead, M. Mental Health: A Person-Centred Approach; Cambridge University Press: Cambridge, UK, 2022. [Google Scholar]
- Jobes, D.A. Collaborating to prevent suicide: A clinical-research perspective. Suicide Life-Threat. Behav. 2000, 30, 8–17. [Google Scholar] [CrossRef] [PubMed]
- Fitzpatrick, S.J.; River, J. Beyond the medical model: Future directions for suicide intervention services. Int. J. Health Serv. 2018, 48, 189–203. [Google Scholar] [CrossRef]
- Haw, R.; Hartley, S.; Trelfa, S.; Taylor, P.J. A systematic review and meta-ethnography to explore people’s experiences of psychotherapy for self-harm. Br. J. Clin. Psychol. 2023, 62, 392–410. [Google Scholar] [CrossRef] [PubMed]
- White, J.; Marsh, I.; Kral, M.J.; Morris, J. Critical Suicidology: Transforming Suicide Research and Prevention for the 21st Century; UBC Press: Vancouver, BC, Canada, 2015. [Google Scholar]
- Briggs, S.; Webb, L.; Buhagiar, J.; Braun, G. Maytree: A respite center for the suicidal: An evaluation. Crisis 2007, 28, 140–147. [Google Scholar] [CrossRef]
- Oostermeijer, S.; Morgan, A.; Cheesmond, N.; Green, R.; Reavley, N. The Effects of Australia’s First Residential Peer-Support Suicide Prevention and Recovery Centre (SPARC). Crisis 2024, 45, 217–224. [Google Scholar] [CrossRef] [PubMed]
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef]
- Braun, V.; Clarke, V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual. Res. Psychol. 2021, 18, 328–352. [Google Scholar] [CrossRef]
- Saunders, B.; Sim, J.; Kingstone, T.; Baker, S.; Waterfield, J.; Bartlam, B.; Burroughs, H.; Jinks, C. Saturation in qualitative research: Exploring its conceptualization and operationalization. Qual. Quant. 2018, 52, 1893–1907. [Google Scholar] [CrossRef]
- Gilmour, L.; Ring, N.; Maxwell, M. The views and experiences of suicidal children and young people of mental health support services: A meta-ethnography. Child Adolesc. Ment. Health 2019, 24, 217–229. [Google Scholar] [CrossRef]
- McGorry, P.D.; Mei, C.; Chanen, A.; Hodges, C.; Alvarez-Jimenez, M.; Killackey, E. Designing and scaling up integrated youth mental health care. World Psychiatry 2022, 21, 61–76. [Google Scholar] [CrossRef]
- Rice, J.L.; Tan, T.X.; Li, Y. In their voices: Experiences of adolescents during involuntary psychiatric hospitalization. Child. Youth Serv. Rev. 2021, 126, 106045. [Google Scholar] [CrossRef]
- Schlagbaum, P.; Tissue, J.L.; Sheftall, A.H.; Ruch, D.A.; Ackerman, J.P.; Bridge, J.A. The impact of peer influencing on adolescent suicidal ideation and suicide attempts. J. Psychiatr. Res. 2021, 140, 529–532. [Google Scholar] [CrossRef]
- Reavey, P.; Poole, J.; Corrigall, R.; Zundel, T.; Byford, S.; Sarhane, M.; Taylor, E.; Ivens, J.; Ougrin, D. The ward as emotional ecology: Adolescent experiences of managing mental health and distress in psychiatric inpatient settings. Health Place 2017, 46, 210–218. [Google Scholar] [CrossRef]
- Abbott-Smith, S.; Ring, N.; Dougall, N.; Davey, J. Suicide prevention: What does the evidence show for the effectiveness of safety planning for children and young people?—A systematic scoping review. J. Psychiatr. Ment. Health Nurs. 2023, 30, 899–910. [Google Scholar] [CrossRef] [PubMed]
- Cadorna, G.; Vera San Juan, N.; Staples, H.; Johnson, S.; Appleton, R. Review: Systematic review and metasynthesis of qualitative literature on young people’s experiences of going to A&E/emergency departments for mental health support. Child Adolesc. Ment. Health 2024, 29, 266–275. [Google Scholar] [CrossRef]
- O’Brien, J.; Fossey, E.; Palmer, V.J. A scoping review of the use of co-design methods with culturally and linguistically diverse communities to improve or adapt mental health services. Health Soc. Care Community 2021, 29, 1–17. [Google Scholar] [CrossRef] [PubMed]
- Wright, M.; Brown, A.; Dudgeon, P.; McPhee, R.; Coffin, J.; Pearson, G.; Lin, A.; Newnham, E.; Baguley, K.K.; Webb, M. Our journey, our story: A study protocol for the evaluation of a co-design framework to improve services for Aboriginal youth mental health and well-being. BMJ Open 2021, 11, e042981. [Google Scholar] [CrossRef] [PubMed]
- Anderson, K.; Gall, A.; Butler, T.; Ngampromwongse, K.; Hector, D.; Turnbull, S.; Lucas, K.; Nehill, C.; Boltong, A.; Keefe, D. Development of key principles and best practices for co-design in health with First Nations Australians. Int. J. Environ. Res. Public Health 2022, 20, 147. [Google Scholar] [CrossRef]
- Thomas, K.A.; Rickwood, D. Clinical and cost-effectiveness of acute and subacute residential mental health services: A systematic review. Psychiatr. Serv. 2013, 64, 1140–1149. [Google Scholar] [CrossRef] [PubMed]
Characteristic | ||
---|---|---|
Age | M = 20.5 years (SD = 2.5) Range 16–25 | |
N | ||
Gender Identity | Female Male Non-binary Transmasculine Gender-fluid | 19 8 7 2 1 |
Identity | Aboriginal and/or Torres Strait Islander | 3 |
LGBTQA+ | 20 | |
Neurodivergent | 16 | |
Migrant or Refugee Background | 8 | |
Disability | 13 | |
Care and Justice Experience | Experience in Out-Of-Home Care | 5 |
Involvement with Justice System | 6 | |
Living Circumstances | Parents On Own Partner Friends Supported Accommodation Other Family | 15 7 4 3 3 3 |
Category | |
---|---|
Structured/Organized Activities |
|
Unstructured Activities |
|
Therapeutic Activities |
|
Training Activities |
|
Young People | Carers | Stakeholders | |
---|---|---|---|
Satisfaction | Did you enjoy your stay? What did you enjoy about the sanctuary? How satisfied were you with your stay? What workshop or activity stood out to you and why? | How do you feel about your stay? | What did you like or dislike? What was your favorite part? |
Would you recommend this service to friends? | Would you recommend this service to friends? | ||
Did you enjoy the structure and build of the building and outdoor area? Did you enjoy the structure of the activities and the independence you had? | Would you come back again? | ||
Did you feel this was relevant to you? | Do you feel your culture and identity were respected and valued? | ||
Changes to service | What would you change? What do you think can be improved? What services do you think need to be added? | How can we improve this service? Is there anything that you’d change? Is there anything that can be done better? | |
Skills learnt | What have you learnt? Has the stay benefitted your child? What did you find helpful? | Current coping strategies | What have you learnt? |
Connections | Did you enjoy the company of other young people/other workers—why/why not? | Is there someone you connected with in this program? | |
Improved MH/wellbeing | How are you feeling? Validated mental health scales, e.g., depression, anxiety, suicide | What are your energy levels like? Recency/frequency/intensity of suicidal thoughts | |
Other outcomes | Where do you see yourself in a month? What are you looking forward to? What do you like doing? What interests you? What drives you? What’s your passion? | ||
Long term | Have you found any areas improved? Has anything come up that you learnt how to navigate better while in the service? How did you find your transition back into your home environment? | What did you do today (e.g., did you leave the house)? | Do you feel like the supports and skills provided to you are going to benefit your recovery in the long run? Do you feel like your mental health is going to improve if you apply these skills? |
Safety | Did you feel hurt? How safe did you feel? |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Hansen, A.; Speirs, S.; Panton, K.; Freeman, J.; Highfield, Z.; Marshall, K.; Tighe, E.; Hemming, L.; Uink, B.; Mitrou, F.; et al. The Luminos Project: Co-Designing a Short-Stay Suicide Support Model for Young People. Int. J. Environ. Res. Public Health 2025, 22, 1449. https://doi.org/10.3390/ijerph22091449
Hansen A, Speirs S, Panton K, Freeman J, Highfield Z, Marshall K, Tighe E, Hemming L, Uink B, Mitrou F, et al. The Luminos Project: Co-Designing a Short-Stay Suicide Support Model for Young People. International Journal of Environmental Research and Public Health. 2025; 22(9):1449. https://doi.org/10.3390/ijerph22091449
Chicago/Turabian StyleHansen, Aims, Samantha Speirs, Kirsten Panton, Jacinta Freeman, Zrinka Highfield, Kieren Marshall, Eleanor Tighe, Laura Hemming, Bep Uink, Francis Mitrou, and et al. 2025. "The Luminos Project: Co-Designing a Short-Stay Suicide Support Model for Young People" International Journal of Environmental Research and Public Health 22, no. 9: 1449. https://doi.org/10.3390/ijerph22091449
APA StyleHansen, A., Speirs, S., Panton, K., Freeman, J., Highfield, Z., Marshall, K., Tighe, E., Hemming, L., Uink, B., Mitrou, F., Vuong, V., & Lin, A. (2025). The Luminos Project: Co-Designing a Short-Stay Suicide Support Model for Young People. International Journal of Environmental Research and Public Health, 22(9), 1449. https://doi.org/10.3390/ijerph22091449