Health Information Use and Trust: The Role of Health Literacy and Patient Activation in a Multilingual European Region
Abstract
1. Introduction
- What sociodemographic factors influence health information use and trust in health sources?
- How do health literacy and patient activation relate to health information use?
- What factors predict trust in health information sources, and how does trust influence engagement with information sources?
2. Materials and Methods
2.1. Study Design, Setting, and Sample
2.2. Participant Survey
2.2.1. Health Information Use and Trust
2.2.2. HLS-EU-Q16
2.2.3. Patient Activation Measure 10 (PAM-10)
- Level 1 (≤47.0): Disengaged and overwhelmed.
- Level 2 (47.1–55.1): Becoming aware but still struggling.
- Level 3 (55.2–72.4): Taking action.
- Level 4 (≥72.5): Maintaining behaviours and pushing further.
2.2.4. Demographic and Health Characteristics
2.3. Statistical Analysis
3. Results
3.1. Characteristics of the Study Sample
3.2. Health Information Sources and Trust
3.3. Correlations of Health Activation, Health Literacy, and Health Status with Use of Information Sources
3.4. Predictors of the Use of Health Information Sources
3.5. Predictors of Trust in Sources of Health Information
4. Discussion
4.1. The Role of Health Literacy and Patient Activation
4.2. Age and Education
4.3. Trust in Health Information Sources
4.4. Linguistic and Regional Differences in Health Information-Seeking and Trust
4.5. Strengths and Limitations
4.6. Implications for Public Health Strategies
- Linguistic differences: Health information campaigns should ensure equitable access to accurate and reliable health information across German and Italian-speaking populations.
- Education-based disparities: Efforts should focus on simplifying complex health information for lower-educated populations, while providing advanced resources for highly educated individuals.
- Age-related digital engagement: Strategies should emphasise bridging the digital divide for older adults while ensuring that younger individuals critically evaluate online health sources.
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
AIC | Akaike Information Criterion |
ANOVA | Analysis of Variance |
ASTAT | Istituto Provinciale di Statistica-Landesinstitut für Statistik |
BIC | Bayesian Information Criterion |
COVID-19 | Coronavirus Disease-2019 |
HISB | Health Information-Seeking Behaviour |
HLS-EU-Q16 | Health Literacy Survey-European Union-16 Items |
HSD | Honestly Significant Difference |
IQR | Interquartile Range |
JASP | Jeffreys’ Amazing Statistics Program |
OR | Odds Ratio |
PAM-10 | Patient Activation Measure-10 Items |
VIF | Variance Inflation Factor |
SD | Standard Deviation |
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Variable | Category | Weighted n | Weighted Proportion % | 95% CI Low % | 95% CI High % |
---|---|---|---|---|---|
Gender | Female | 1158 | 55.5 | 54.2 | 56.8 |
Male | 932 | 44.5 | 43.2 | 45.8 | |
Age Group (Years) 1 | 18–34 | 378 | 18.1 | 16.9 | 19.3 |
35–54 | 643 | 30.7 | 29.3 | 32.1 | |
55+ | 1070 | 51.2 | 49.7 | 52.7 | |
Native Language | German | 1395 | 66.8 | 65.5 | 68.1 |
Italian | 499 | 23.9 | 22.7 | 25.1 | |
Other | 194 | 9.3 | 8.5 | 10.1 | |
Citizenship | Italian | 2009 | 96.1 | 95.4 | 96.8 |
Other | 81 | 3.9 | 3.2 | 4.6 | |
Community Type | Urban | 387 | 18.5 | 17.3 | 19.7 |
Rural | 1703 | 81.5 | 80.3 | 82.7 | |
Living Situation | Alone | 378 | 18.1 | 17.0 | 19.3 |
With partner/family | 1327 | 63.5 | 62.1 | 64.9 | |
With children | 787 | 37.7 | 36.3 | 39.1 | |
Educational Level | Middle school or lower | 487 | 23.3 | 22.0 | 24.6 |
Vocational school | 670 | 32.1 | 30.7 | 33.5 | |
High school | 533 | 25.6 | 24.3 | 26.9 | |
University | 396 | 19.0 | 17.9 | 20.1 | |
Health Literacy 2 | Inadequate | 262 | 12.5 | 11.6 | 13.4 |
Problematic | 570 | 27.2 | 26.0 | 28.4 | |
Adequate | 823 | 39.3 | 38.0 | 40.6 | |
PAM-10 3 | Disengaged | 340 | 16.3 | 15.3 | 17.3 |
Becoming aware | 888 | 42.6 | 41.2 | 44.0 | |
Taking action | 648 | 31.1 | 29.8 | 32.4 | |
Maintaining | 204 | 9.8 | 9.0 | 10.6 | |
Health Status(0–100) 4 | Poor (0–50) | 255 | 12.2 | 11.3 | 13.1 |
Fair (51–75) | 625 | 29.8 | 28.5 | 31.1 | |
Good (76–90) | 820 | 39.1 | 37.8 | 40.4 | |
Excellent (91–100) | 390 | 18.9 | 17.9 | 19.9 |
Item 1 | Median | IQR | Mean | SD |
---|---|---|---|---|
How do you generally engage with health information? | ||||
Conversations with friends or acquaintances | 2 | 1 | 2.35 | 0.81 |
Discussions with specialists, e.g., doctors or nursing staff | 2 | 1 | 2.40 | 0.89 |
Targeted internet searches for health information | 2 | 1 | 2.50 | 1.01 |
Television or radio programmes on health topics | 3 | 1 | 2.65 | 0.91 |
Articles in newspapers or magazines | 3 | 1 | 2.69 | 0.90 |
Incidental exposure to health information online (e.g., while browsing) | 3 | 2 | 2.80 | 0.93 |
Specialist literature, e.g., health encyclopaedias or how-to books | 3 | 2 | 3.10 | 0.94 |
Social networks (Facebook, Instagram, etc.) | 4 | 1 | 3.28 | 0.93 |
Events or courses | 4 | 1 | 3.32 | 0.86 |
In internet forums in which personal questions are asked or answered | 4 | 1 | 3.33 | 0.89 |
How much do you trust the following sources for health information? | ||||
The specialists in the outpatient clinics or hospitals | 2 | 1 | 1.70 | 0.68 |
Your family doctor | 2 | 1 | 1.72 | 0.72 |
Your own feeling or experience | 2 | 1 | 1.85 | 0.64 |
The pharmacists | 2 | 0 | 1.95 | 0.65 |
The nurses | 2 | 0 | 1.97 | 0.69 |
Information from books | 2 | 1 | 2.38 | 0.83 |
The advice of friends or relatives | 3 | 1 | 2.56 | 0.69 |
Health information from the Internet | 3 | 1 | 2.97 | 0.74 |
Information Source | n | Patient Activation (PAM-10) | Health Literacy (HLS-EU-Q16) | Health Status (0–100 Scale) | |||
ρ | p-Value | ρ | p-Value | ρ | p-Value | ||
Newspapers/Magazines | 2079 | −0.145 | <0.001 | −0.191 | <0.001 | −0.127 | <0.001 |
TV/Radio | 2079 | −0.083 | <0.001 | −0.111 | <0.001 | −0.094 | <0.001 |
Friends/Acquaintances | 2079 | −0.157 | <0.001 | −0.121 | <0.001 | −0.134 | <0.001 |
Healthcare Professionals | 2079 | −0.255 | <0.001 | −0.167 | <0.001 | −0.201 | <0.001 |
Events/Courses | 2079 | −0.176 | <0.001 | −0.133 | <0.001 | −0.116 | <0.001 |
Specialist Literature | 2079 | −0.143 | <0.001 | −0.143 | <0.001 | −0.099 | <0.001 |
Incidental Exposure to Health Information Online | 2079 | −0.097 | <0.001 | −0.097 | <0.001 | −0.076 | <0.001 |
Targeted Internet Search | 2079 | −0.130 | <0.001 | −0.130 | <0.001 | −0.090 | <0.001 |
Internet Forums | 2079 | −0.071 | <0.001 | −0.071 | <0.001 | −0.053 | <0.001 |
Social Media | 2079 | −0.058 | <0.001 | −0.058 | <0.001 | −0.044 | <0.001 |
Information Source | Regression Coefficient β, Odds Ratio [95% Confidence Interval], p-Value 1 | ||||||||
---|---|---|---|---|---|---|---|---|---|
Intercept | HLS-EU-Q16 | PAM-10 | Health Status | Age | Gender 2 | Education 3 | Language 4 | Rural/Urban 5 | |
Mass Media | |||||||||
Newspapers/Magazines | −8.012 [−9.920; −6.104] <0.001 | 0.205 [0.125; 0.284] <0.001 | 0.016 [0.000; 0.033] n.s. | 0.003 [−0.010; 0.016] n.s. | 0.057 [0.042; 0.072] <0.001 | −1.037 [−1.513; −0.561] <0.001 | 1.000 6 [0.612; 1.387] <0.001 | −0.140 [−0.515; 0.235] n.s. | 0.431 [−0.217; 1.043] n.s. |
TV/Radio | −5.924 [−7.706; −4.142] <0.001 | 0.105 [0.036; 0.174] 0.003 | 0.013 [−0.004; 0.029] n.s. | 0.003 [−0.010; 0.015] n.s. | 0.050 [0.036; 0.064] <0.001 | −0.970 [−1.407; −0.533] <0.001 | −0.316 6 [−0.676; 0.045] n.s. | −0.089 [−0.476; 0.279] n.s. | 0.818 [0.181; 1.455] 0.012 |
Personal Contacts | |||||||||
Friends/Acquaintances | 1.115 [−0.707; 2.937] n.s. | 0.109 [0.036; 0.182] 0.004 | 0.008 [−0.011; 0.027] n.s. | 0.016 7 [0.004; 0.028] 0.007 | −0.037 [−0.052; −0.022] <0.001 | −1.215 [−1.700; −0.730] <0.001 | 0.274 8 [−0.260; 0.808] n.s. | 0.199 [−0.343; 0.741] n.s. | −0.029 [−0.694; 0.636] n.s. |
Healthcare Professionals | −3.132 [−4.714; −1.550] <0.001 | 0.134 [0.070; 0.197] <0.001 | 0.036 [0.019; 0.053] <0.001 | −0.023 [−0.034; −0.011] <0.001 | 0.011 [−0.001; 0.024] n.s. | −0.034 [−0.437; 0.368] n.s. | 1.449 6 [0.870;2.028] <0.001 | 0.126 [−0.347; 0.598] n.s. | 0.422 [−0.139; 0.984] n.s. |
Educational and Academic Sources | |||||||||
Events/Courses | −4.567 [−6.694; −2.439] <0.001 | 0.073 [−0.025; 0.171] n.s. | 0.044 [0.025; 0.063] <0.001 | −0.007 [−0.023; 0.009] n.s. | −0.026 [−0.044; −0.008] 0.005 | −0.805 [−1.376; −0.234] 0.006 | 1.449 6 [0.870; 2.028] <0.001 | 0.046 [−0.327; 0.418] n.s. | 0.063 [−0.669; 0.796] n.s. |
Specialist Literature | −5.971 [−7.712; −4.229] <0.001 | 0.061 [−0.012; 0.134] n.s. | 0.044 [0.029; 0.060] <0.001 | −0.007 [−0.020; 0.006] n.s. | 0.017 [0.003; 0.031] 0.015 | −0.774 [−1.220; −0.328] <0.001 | 1.051 6 [0.693; 1.410] <0.001 | −0.579 [0.936; 0.221] <0.001 | 0.237 [−0.374; 0.848] n.s. |
Online Sources | |||||||||
Incidental Exposure to Health Information Online | 0.049 [−1.645; 1.744] n.s. | 0.111 [0.038; 0.184] 0.003 | 0.005 [−0.012; 0.022] n.s. | 0.000 [−0.013; 0.012] n.s. | −0.060 [−0.074; -0.046] <0.001 | −0.239 [−0.678; 0.199] n.s. | 0.442 6 [0.071; 0.813] 0.020 | 0.380 [0.022; 0.738] 0.037 | 0.002 [−0.603; 0.607] n.s. |
Targeted internet Search | 1.550 [0.033; 3.066] 0.045 | 0.083 [0.026; 0.141] 0.005 | 0.009 [−0.006; 0.024] n.s. | 0.002 [−0.008; 0.013] n.s. | −0.070 [−0.082; −0.057] <0.001 | −0.265 [−0.628; 0.098] n.s. | 1.479 6 [0.902; 2.055] <0.001 | 0.386 [−0.031; 0.802] n.s. | 0.211 [−0.335; 0.757] n.s. |
Internet Forums | −2.071 [−4.182; 0.040] n.s. | 0.084 [−0.006; 0.173] n.s. | 0.000 [−0.020; 0.021] n.s. | −0.003 [−0.020; 0.014] n.s. | −0.032 [−0.049; −0.015] <0.001 | −0.535 [−1.079; 0.008] n.s. | 0.579 6 [−0.088;1.246] n.s. | 0.300 [−0.056; 0.656] n.s. | 0.124 [−0.610; 0.857] n.s. |
Social Media | −0.095 [−1.907; 1.718] n.s. | 0.105 [0.024; 0.186] 0.011 | 0.002 [−0.016; 0.020] n.s. | 0.000 [−0.015; 0.013] n.s. | −0.067 [−0.083; −0.052] <0.001 | −0.796 [−1.279; −0.312] 0.001 | −0.355 6 [−0.950; 0.241] n.s. | 0.640 9 [0.288; 0.992] <0.001 | −0.008 [−0.667; 0.651] n.s. |
Information Source | Regression Coefficient β, Odds Ratio [95% Confidence Interval], p-Value 1 | ||||||||
---|---|---|---|---|---|---|---|---|---|
Intercept | HLS-EU-Q16 | PAM-10 | Health Status | Age | Gender 2 | Education 3 | Language 4 | Rural/Urban 5 | |
Healthcare Professionals | |||||||||
Family Doctor | −3.628 [−6.458; −0.798] 0.012 | 0.284 [0.174; 0.393] <0.001 | −0.005 [−0.039; 0.029] n.s. | 0.033 [0.016; 0.050] <0.001 | 0.034 [0.009; 0.059] 0.007 | −0.272 [−1.095; 0.551] n.s. | 0.745 6 [−0.465;1.954] n.s. | −0.233 [−1.326; 0.860] n.s. | 0.228 [−0.913; 1.369] n.s. |
Hospital Specialists | −2.651 [−5.888; 0.585] n.s. | 0.144 [0.023; 0.265] 0.019 | 0.033 [−0.008; 0.074] n.s. | 0.013 [−0.008; 0.034] n.s. | 0.031 [0.004; 0.058] 0.023 | −0.144 [−1.016; 0.728] n.s. | 1.181 6 [−0.130;2.492] n.s. | 0.352 [−1.039; 1.744] n.s. | −0.279 [−1.648; 1.089] n.s. |
Pharmacists | 0.584 [−2.914; 4.083] n.s. | 0.193 [0.065; 0.322] 0.003 | 0.007 [−0.033; 0.047] n.s. | 0.005 [−0.018; 0.028] n.s. | −0.016 [−0.045; 0.014] n.s. | −0.886 [−1.537; 0.032] n.s. | 1.181 6 [−0.130; 2.492] n.s. | 0.773 [−0.618; 2.164] n.s. | 0.581 [−0.691; 1.852] n.s. |
Nurses | 0.922 [−1.942; 3.785] n.s. | 0.055 [−0.052; 0.161] n.s. | 0.040 [0.007; 0.073] 0.017 | 0.000 [−0.020; 0.019] n.s. | −0.020 [−0.042; 0.003] n.s. | −0.298 [−0.993; 0.398] n.s. | 0.911 6 [−0.185; 2.008] n.s. | 0.969 [−0.197; 2.136] n.s. | −0.527 [−1.699; 0.645] n.s. |
Personal and Social Trust | |||||||||
Personal Experience | −2.698 [−5.924; 0.528] n.s. | 0.116 [0.013; 0.244] n.s. | 0.052 [0.009; 0.095] 0.017 | 0.026 [0.007; 0.046] 0.008 | 0.009 [−0.019; 0.038] n.s. | −1.214 [−2.217; −0.210] 0.018 | 0.721 6 [−0.618; 2.059] n.s. | −0.188 [−1.519; 1.143] n.s. | 0.293 [−0.965; 1.552] n.s. |
Family and Friends | −0.394 [−3.018; 2.231] n.s. | 0.116 7 [0.051; 0.181] <0.001 | 0.018 [−0.008; 0.044] n.s. | 0.000 [−0.019; 0.018] n.s. | −0.019 [−0.040; 0.002] n.s. | 0.031 [−0.622; 0.684] n.s. | 1.032 6 [0.367;1.698] 0.002 | −1.125 [−1.663; −0.586] <0.001 | −0.323 [−1.349; 0.704] n.s. |
Educational and Media Sources | |||||||||
Books and Literature | −2.318 [−4.120; −0.517] 0.012 | 0.108 [0.038; 0.177] 0.002 | 0.022 [0.003; 0.041] 0.021 | 0.017 [0.004; 0.030] 0.010 | −0.032 [−0.046; −0.018] <0.001 | −0.504 [−0.951; −0.057] 0.027 | 1.522 [0.833; 2.211] <0.001 8 | 0.095 [−0.395; 0.505] n.s. | 0.228 [−0.418; 0.874] n.s. |
Internet Information | −2.514 [−5.817; 0.790] n.s. | 0.136 [0.000; 0.271] 0.049 | 0.000 [−0.020; 0.006] n.s. | 0.008 [−0.007; 0.011] n.s. | −0.038 [−0.063; −0.013] 0.003 | −0.010 [−0.787; 0.766] n.s. | 0.593 5 [0.241; 0.945] <0.001 | −0.313 [−1.428; 0.803] n.s. | −0.038 [−1.204: 1.127] n.s. |
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Wiedermann, C.J.; Barbieri, V.; Lombardo, S.; Gärtner, T.; Rina, P.; Eisendle, K.; Piccoliori, G.; Engl, A.; Ausserhofer, D. Health Information Use and Trust: The Role of Health Literacy and Patient Activation in a Multilingual European Region. Int. J. Environ. Res. Public Health 2025, 22, 570. https://doi.org/10.3390/ijerph22040570
Wiedermann CJ, Barbieri V, Lombardo S, Gärtner T, Rina P, Eisendle K, Piccoliori G, Engl A, Ausserhofer D. Health Information Use and Trust: The Role of Health Literacy and Patient Activation in a Multilingual European Region. International Journal of Environmental Research and Public Health. 2025; 22(4):570. https://doi.org/10.3390/ijerph22040570
Chicago/Turabian StyleWiedermann, Christian J., Verena Barbieri, Stefano Lombardo, Timon Gärtner, Patrick Rina, Klaus Eisendle, Giuliano Piccoliori, Adolf Engl, and Dietmar Ausserhofer. 2025. "Health Information Use and Trust: The Role of Health Literacy and Patient Activation in a Multilingual European Region" International Journal of Environmental Research and Public Health 22, no. 4: 570. https://doi.org/10.3390/ijerph22040570
APA StyleWiedermann, C. J., Barbieri, V., Lombardo, S., Gärtner, T., Rina, P., Eisendle, K., Piccoliori, G., Engl, A., & Ausserhofer, D. (2025). Health Information Use and Trust: The Role of Health Literacy and Patient Activation in a Multilingual European Region. International Journal of Environmental Research and Public Health, 22(4), 570. https://doi.org/10.3390/ijerph22040570