Cultural Adaptation and Validation of the Quality of Dying in Long-Term Care Scale (QoD-LTC) for Spanish Nursing Homes
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Sample
2.3. Procedure
2.3.1. Cultural Adaptation
2.3.2. Validation
2.4. Tools
- -
- Edmonton Symptom Assessment System (ESAS) [33]. The ESAS scale has been validated to be filled in by professionals, patients, and caregivers with different diseases, being easily completed and interpreted [35]. ESAS was used regularly in all the nursing homes that participated in the study for symptom assessment. Symptoms have been observed on a conceptual level that may interfere with quality of dying [10].
- -
- Integrated Palliative Outcome Scale (IPOS)[34]: IPOS evaluates palliative care needs in the domains of physical and psychosocial functioning. It is a 17-item scale. Symptoms are assessed on a 0–4 Likert scale. The IPOS was found to be internally consistent, α = 0.77. Lower scores indicate a better palliative care outcome, the maximum score would be 68. The QoD-LTC scale has been considered to assess the quality of care [9]. In order to assess convergent validity, we have used the IPOS scale.
- -
- Eastern Cooperative Oncology Group Scale of Performance Status (ECOG): it was developed in 1982 and assessing performance status is one such measurement [36]. It describes a patient’s level of functioning in terms of their ability to care for him/herself, daily activity, and physical ability (walking, working, etc.). Functional status has been associated with quality of the dying [16].
- -
- Quality of dying during the last month (QoD-LM): How do you consider the quality of the patient’s death process to have been during his last month? It was evaluated by means of a Likert scale of 1 Terrible, 2 Bad, 3 Normal, 4 Good, 5 Very Good.
2.5. Data Analysis
3. Results
3.1. Cultural Adaptation
3.2. Validation
3.2.1. Sample Description
3.2.2. Factorial Analysis
3.2.3. Reliability
3.2.4. Convergent Validity
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Appendix A
Original | Adaptation. |
---|---|
[RESIDENT] had treatment preferences in writing. | [Resident] communicated their preferences with respect to treatment. |
[RESIDENT] had named a decision-maker in the event that [HE/SHE] was no longer able to make decisions. | Someone was designated to make decisions in their place [Resident] in the case that they could no longer do so. |
[RESIDENT] had funeral arrangements planned. | [Resident] expressed how they wanted their funeral and/or other matters concerning their body to be after their death |
Appendix B
Ítem ¿Cómo de Cierto es Que (el Paciente)…? Item How True Is It That (the Patient)… | Para Nada/Not at All | Completamente/Completely | ||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
1 | Se mantuvo aseado. | |||||||||||
[RESIDENT] was kept clean. | ||||||||||||
2 | Se le proporcionó un contacto físico cariñoso todos los días. | |||||||||||
[RESIDENT] received compassionate physical touch daily. | ||||||||||||
3 | Se preservó su dignidad. | |||||||||||
[RESIDENT’s] dignity was maintained. | ||||||||||||
4 | Su médico lo trato de forma integral, atendiendo a todas sus facetas. | |||||||||||
[RESIDENT’s] physician knew [HIM/HER] as a whole person. | ||||||||||||
5 | Tenía un enfermero o auxiliar con quien se sentía cómodo. | |||||||||||
There was a nurse or aide with whom [RESIDENT] felt comfortable. | ||||||||||||
6 | Mantuvo el sentido del humor que lo caracterizaba. | |||||||||||
[RESIDENT] was able to retain [HIS/HER] sense of humor. [RESIDENT] | ||||||||||||
7 | Expresó que estaba preparado para morir. | |||||||||||
[RESIDENT] indicated [HE/SHE] was prepared to die. | ||||||||||||
8 | Parecía estar en paz. | |||||||||||
[HE/SHE] appeared to be at peace. [RESIDENT] | ||||||||||||
9 | Comunicó sus preferencias con respecto al tratamiento. | |||||||||||
[Resident] communicated their preferences with respect to treatment. | ||||||||||||
10 | Se nombró a alguien que tomara las decisiones en su lugar en caso de que ya no pudiera. | |||||||||||
Someone was designated to make decisions in their place [Resident] in the case that they could no longer do so. | ||||||||||||
11 | Expresó como quería que fuera su funeral y/o otras cuestiones relativas a su cuerpo después de su fallecimiento. | |||||||||||
[Resident] expressed how they wanted their funeral and/or other matters concerning their body to be after their death. |
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Variables | Total Sample n = 153 | |
---|---|---|
Age, M (SD) | 87.62 | (11.56) |
Female, n (%) | 91 | (59.5) |
Marital status widower, n (%) | 92 | (60.7) |
Place of death | ||
Home, n (%) | 1 | (7) |
Hospital, n (%) | 64 | (41.8) |
Nursing-Home, n (%) | 88 | (57.5) |
Coexisting conditions | ||
Oncologic disease, n (%) | 26 | (17) |
Chronic lung disease | 22 | (14.4) |
Chronic heart disease | 61 | (39.9) |
Dementia | 84 | (54.9) |
Vascular neurological disease | 31 | (20.3) |
Degenerative neurological disease | 21 | (13.7) |
Chronic liver disease | 2 | (1.3) |
Chronic kidney failure | 19 | (12.4) |
Items | Factor 1. Quality of Care | Factor 2. End-of-Life Communication by the Resident | Factor 3. End-of-Life Appearance |
---|---|---|---|
[RESIDENT] received compassionate physical touch daily. | 0.593 | −0.154 | 0.351 |
[RESIDENT’s] dignity was maintained. | 0.730 | 0.074 | 0.136 |
[RESIDENT’s] physician knew [HIM/HER] as a whole person. | 0.848 | −0.177 | 0.096 |
There was a nurse or aide with whom [RESIDENT] felt comfortable. | 0.737 | 0.136 | 0.020 |
Someone was designated to make decisions in their place [Resident] in the case that they could no longer do so. | 0.647 | 0.100 | 0.082 |
[RESIDENT] indicated [HE/SHE] was prepared to die. | −0.182 | 0.728 | 0.178 |
[Resident] communicated their preferences with respect to treatment. | 0.094 | 0.820 | 0.085 |
[Resident] expressed how they wanted their funeral and/or other matters concerning their body to be after their death. | 0.258 | 0.638 | −0.419 |
[RESIDENT] was kept clean. | 0.362 | −0.094 | 0.410 |
[RESIDENT] was able to retain [HIS/HER] sense of humor. | 0.085 | 0.333 | 0.763 |
[HE/SHE] appeared to be at peace. | 0.316 | 0.113 | 0.785 |
Items | Intra-Observer (n = 46) | Inter-Observer (n = 65) | ||
---|---|---|---|---|
ICC | p | ICC | p | |
[RESIDENT] was kept clean. | 0.588 ** | 0.002 | 0.371 * | 0.033 |
[RESIDENT] received compassionate physical touch daily. | 0.755 *** | 0.000 | 0.637 ** | 0.000 |
[RESIDENT’s] dignity was maintained. | 0.672 ** | 0.000 | 0.404 * | 0.022 |
[RESIDENT’s] physician knew [HIM/HER] as a whole person. | 0.714 ** | 0.000 | 0.548 * | 0.001 |
There was a nurse or aide with whom [RESIDENT] felt comfortable. | 0.440 * | 0.027 | 0.741 ** | 0.000 |
[RESIDENT] was able to retain [HIS/HER] sense of humor. | 0.615 ** | 0.000 | 0.773 *** | 0.000 |
[RESIDENT] indicated [HE/SHE] was prepared to die. | 0.758 *** | 0.000 | 0.660 ** | 0.000 |
[HE/SHE] appeared to be at peace. | 0.411 * | 0.040 | 0.421 * | 0.015 |
[Resident] communicated their preferences with respect to treatment. | 0.726 ** | 0.000 | 0.823 *** | 0.000 |
Someone was designated to make decisions in their place [Resident] in the case that they could no longer do so. | 0.633 ** | 0.026 | 0.837 *** | 0.000 |
[Resident] expressed how they wanted their funeral and/or other matters concerning their body to be after their death. | 0.915 **** | 0.000 | 0.787 *** | 0.001 |
Scales | ECOG | ESAS | IPOS | Mono-Item | |||||
---|---|---|---|---|---|---|---|---|---|
r | p | r | p | r | p | r | p | ||
QoD-LTC | Total score | −0.321 * | 0.000 | −0.153 | 0.067 | −0.252 * | 0.002 | 0.322 * | 0.000 |
Factor 1 | −0.157 | 0.120 | −0.237 * | 0.004 | −0.303 * | 0.000 | 0.210* | 0.010 | |
Factor 2 | −0.190 * | 0.019 | 0.272 * | 0.001 | 0.232 * | 0.005 | 0.235 * | 0.004 | |
Factor 3 | −0.292 * | 0.000 | −0.198 * | 0.017 | −0.298 * | 0.000 | 0.270 * | 0.001 |
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Puente-Fernández, D.; Jimeno-Ucles, R.; Mota-Romero, E.; Roldán, C.; Froggatt, K.; Montoya-Juárez, R. Cultural Adaptation and Validation of the Quality of Dying in Long-Term Care Scale (QoD-LTC) for Spanish Nursing Homes. Int. J. Environ. Res. Public Health 2021, 18, 5287. https://doi.org/10.3390/ijerph18105287
Puente-Fernández D, Jimeno-Ucles R, Mota-Romero E, Roldán C, Froggatt K, Montoya-Juárez R. Cultural Adaptation and Validation of the Quality of Dying in Long-Term Care Scale (QoD-LTC) for Spanish Nursing Homes. International Journal of Environmental Research and Public Health. 2021; 18(10):5287. https://doi.org/10.3390/ijerph18105287
Chicago/Turabian StylePuente-Fernández, Daniel, Rosel Jimeno-Ucles, Emilio Mota-Romero, Concepción Roldán, Katherine Froggatt, and Rafael Montoya-Juárez. 2021. "Cultural Adaptation and Validation of the Quality of Dying in Long-Term Care Scale (QoD-LTC) for Spanish Nursing Homes" International Journal of Environmental Research and Public Health 18, no. 10: 5287. https://doi.org/10.3390/ijerph18105287