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Open AccessArticle

Mining Facebook Data of People with Rare Diseases: A Content-Based and Temporal Analysis

Eurecat, Centre Tecnològic de Catalunya, Unitat de eHealth, C/Bilbao, 72, 08005 Barcelona, Spain
eHealth Center, Universitat Oberta de Catalunya, Rambla del Poblenou, 156, 08018 Barcelona, Spain
Department of Philology, Almería University, Ctra. Sacramento, s/n, La Cañada, 04120 Almería, Spain
Authors to whom correspondence should be addressed.
Int. J. Environ. Res. Public Health 2018, 15(9), 1877;
Received: 26 June 2018 / Revised: 25 August 2018 / Accepted: 28 August 2018 / Published: 30 August 2018
This research characterized how Facebook deals with rare diseases. This characterization included a content-based and temporal analysis, and its purpose was to help users interested in rare diseases to maximize the engagement of their posts and to help rare diseases organizations to align their priorities with the interests expressed in social networks. This research used Netvizz to download Facebook data, word clouds in R for text mining, a log-likelihood measure in R to compare texts and TextBlob Python library for sentiment analysis. The Facebook analysis shows that posts with photos and positive comments have the highest engagement. We also observed that words related to diseases, attention, disability and services have a lot of presence in the decalogue of priorities (which serves for all associations to work on the same objectives and provides the lines of action to be followed by political decision makers) and little on Facebook, and words of gratitude are more present on Facebook than in the decalogue. Finally, the temporal analysis shows that there is a high variation between the polarity average and the hour of the day. View Full-Text
Keywords: social media; Facebook; rare diseases; data mining social media; Facebook; rare diseases; data mining
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Subirats, L.; Reguera, N.; Bañón, A.M.; Gómez-Zúñiga, B.; Minguillón, J.; Armayones, M. Mining Facebook Data of People with Rare Diseases: A Content-Based and Temporal Analysis. Int. J. Environ. Res. Public Health 2018, 15, 1877.

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