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Authors = J. Nyhof–Young

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7 pages, 411 KiB  
Article
Informational Stories: A Complementary Strategy for Patients and Caregivers with Brain Metastases
by A. D. Chung, D. Ng, L. Wang, C. Garraway, A. Bezjak, J. Nyhof–Young and Rebecca K. S. Wong
Curr. Oncol. 2009, 16(3), 33-39; https://doi.org/10.3747/co.v16i3.397 - 1 May 2009
Cited by 4 | Viewed by 777
Abstract
Objective: We compared the efficacy of a story-based writing style with that of a fact-based writing style for educational material on brain metastases. Methods: Identical informational content on four topics—radiation therapy, side effects, steroid tapering, and palliative care—was constructed into equivalent story-based and [...] Read more.
Objective: We compared the efficacy of a story-based writing style with that of a fact-based writing style for educational material on brain metastases. Methods: Identical informational content on four topics—radiation therapy, side effects, steroid tapering, and palliative care—was constructed into equivalent story-based and fact-based materials. The content and reader preference for style were evaluated using a questionnaire of 20 + 1 items. Cancer patients and caregivers were invited to evaluate the materials. Results: A total of 47 participants completed the questionnaire. The recorded preferences for facts, stories, or both were 42%, 7%, and 51% respectively (p = 0.0004). The fact-based materials were rated superior in providing factual information (for example, discussion of treatment, side effects) and selected general characteristics (clarity of information, for instance). A rating trend suggested that story-based materials were superior in describing “how it feels to have brain metastases” (21/40 fact-based vs. 26/43 story-based) and “how brain metastases affected a spouse” (17/41 fact-based vs. 21/47 story-based), and in being “sensitive to the frustrations of a patient with brain metastases” (25/40 fact-based vs. 30/44 story-based). Conclusions: Half the participants preferred to read both fact-based and story-based materials. A combined story-based and fact-based educational resource may be more effective in conveying sensitive information and should be further investigated. Full article
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