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J. Pers. Med. 2015, 5(1), 3-21; doi:10.3390/jpm5010003

Public Trust in Health Information Sharing: Implications for Biobanking and Electronic Health Record Systems

1
Department of Health Management and Policy, University of Michigan School of Public Health, 1415 Washington Heights, Ann Arbor, MI 48109, USA
2
Department of Learning Health Sciences, University of Michigan Medical School, 1111 E. Catherine Street, Ann Arbor, MI 48109, USA
3
Department of Epidemiology, University of Michigan School of Public Health, 1415 Washington Heights, Ann Arbor, MI 48109, USA
*
Author to whom correspondence should be addressed.
Academic Editor: Lori A. Orlando
Received: 25 November 2014 / Revised: 19 December 2014 / Accepted: 7 January 2015 / Published: 3 February 2015
(This article belongs to the Special Issue Biobanking and EHR/EMR)
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Abstract

Biobanks are made all the more valuable when the biological samples they hold can be linked to health information collected in research, electronic health records, or public health practice. Public trust in such systems that share health information for research and health care practice is understudied. Our research examines characteristics of the general public that predict trust in a health system that includes researchers, health care providers, insurance companies and public health departments. We created a 119-item survey of predictors and attributes of system trust and fielded it using Amazon’s MTurk system (n = 447). We found that seeing one’s primary care provider, having a favorable view of data sharing and believing that data sharing will improve the quality of health care, as well as psychosocial factors (altruism and generalized trust) were positively and significantly associated with system trust. As expected, privacy concern, but counterintuitively, knowledge about health information sharing were negatively associated with system trust. We conclude that, in order to assure the public’s trust, policy makers charged with setting best practices for governance of biobanks and access to electronic health records should leverage critical access points to engage a diverse public in joint decision making. View Full-Text
Keywords: trust; biobanks; health systems trust; biobanks; health systems
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

Platt, J.; Kardia, S. Public Trust in Health Information Sharing: Implications for Biobanking and Electronic Health Record Systems. J. Pers. Med. 2015, 5, 3-21.

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