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Int. J. Environ. Res. Public Health 2015, 12(2), 2120-2134; doi:10.3390/ijerph120202120

Exploring the Care Relationship between Grandparents/Older Carers and Children Infected with HIV in South-Western Uganda: Implications for Care for Both the Children and Their Older Carers

1
Medical Research Council, Uganda Virus Research Institute, P.O. Box 49, Entebbe, Uganda
2
Department of International Public Health, Liverpool School of Tropical Medicine, Pembroke Place, Liverpool L3 5QA, UK
3
Department of Global Health and Development, London School of Hygiene and Tropical Medicine, London WC1E 7HT, UK
These authors contributed equally to this work.
*
Author to whom correspondence should be addressed.
Academic Editor: Paul B. Tchounwou
Received: 12 December 2014 / Revised: 19 January 2015 / Accepted: 5 February 2015 / Published: 13 February 2015
(This article belongs to the Special Issue HIV/AIDS: Social Perspectives)
View Full-Text   |   Download PDF [660 KB, uploaded 13 February 2015]

Abstract

The care of children orphaned by HIV/AIDS in sub-Saharan Africa is often undertaken by grandparents, yet little is known about the care relationship between grandparent and grandchild. Our aim was to examine this relationship to understand the needs and responsibilities of both the HIV positive child and older carer and the nature of the relationship, and to assess the implications for care for the children and the older carers. A qualitative study was conducted with 40 purposively sampled children (13–17 years) and their older carers (50 years and above). Participants were recruited from two clinics in south-western Uganda. Up to three semi-structured interviews were held with each participant. Data were analysed using a thematic framework approach. We found that the care relationship was mostly reciprocal: HIV positive children depended on carers for basic and health needs and carers counted on the children for performing tedious household tasks. The relationship was also characterised by challenges, sometimes causing tension between child and carer. We conclude that: (1) interventions targeting HIV positive children need to also address the needs of older carers, and (2) carers and children would benefit from psychosocial support and social protection. View Full-Text
Keywords: children; older carers; grandparents; reciprocity; care relationship; HIV/AIDS; Uganda; sub-Saharan Africa children; older carers; grandparents; reciprocity; care relationship; HIV/AIDS; Uganda; sub-Saharan Africa
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

Rutakumwa, R.; Zalwango, F.; Richards, E.; Seeley, J. Exploring the Care Relationship between Grandparents/Older Carers and Children Infected with HIV in South-Western Uganda: Implications for Care for Both the Children and Their Older Carers. Int. J. Environ. Res. Public Health 2015, 12, 2120-2134.

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