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Healthcare 2015, 3(2), 324-337; doi:10.3390/healthcare3020324

Survey on Addressing the Information and Support Needs of Jewish Women at Increased Risk for or Diagnosed with Breast Cancer: The Sharsheret Experience

1
Division of Population Sciences, Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, Washington, DC 20007, USA
2
Sharsheret, Teaneck, NJ 07666, USA
*
Author to whom correspondence should be addressed.
Academic Editors: Joanne Reid and Helen Noble
Received: 19 March 2015 / Revised: 13 May 2015 / Accepted: 15 May 2015 / Published: 22 May 2015
(This article belongs to the Special Issue Holistic Needs of Those Living with and beyond Breast Cancer)
View Full-Text   |   Download PDF [444 KB, uploaded 27 May 2015]   |  

Abstract

Approximately 12% of women living in the United States will be diagnosed with breast cancer during their lifetimes. While all women face formidable challenges posed by the threat of living with or at increased risk for breast cancer, those of Ashkenazi Jewish descent face additional challenges owing to higher BRCA1/2 mutation prevalence in this population. Amidst calls for population-based screening for hereditary breast cancer risk, much can be learned from the experiences of Jewish women about their needs. The present study is a secondary analysis of psychoeducational program satisfaction and evaluation data previously collected by a community organization dedicated to serving women of all Jewish backgrounds facing, or at risk for, breast cancer. Among respondents (n = 347), over one-third were referred to the organization by family or friends, most often after a cancer crisis. Of the information and support resources offered, the greatest level of engagement occurred with the one-on-one peer support and health care symposia resources. Respondents endorsed high levels of satisfaction with the programs and services, and a strong desire to give back to the community. These data suggest that culturally-relevant information and support services for Jewish women could be scaled-up for larger dissemination to meet the anticipated needs in this special population. View Full-Text
Keywords: breast cancer; genetic risk; education; support; quality of life breast cancer; genetic risk; education; support; quality of life
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This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

Tercyak, K.P.; Silber, E.; Johnson, A.C.; Fleischmann, A.; Murphy, S.E.; Mays, D.; O’Neill, S.C.; Sharkey, C.M.; Shoretz, R. Survey on Addressing the Information and Support Needs of Jewish Women at Increased Risk for or Diagnosed with Breast Cancer: The Sharsheret Experience. Healthcare 2015, 3, 324-337.

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