J. Pers. Med. 2014, 4(1), 20-34; doi:10.3390/jpm4010020
Article

Barriers and Motivators for Referral of Patients with Suspected Lynch Syndrome to Cancer Genetic Services: A Qualitative Study

Received: 27 November 2013; in revised form: 5 January 2014 / Accepted: 7 January 2014 / Published: 18 February 2014
(This article belongs to the Special Issue Bringing Personalized Medicine into Clinical Practice)
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Abstract: This article explores the views of general practitioners and specialists on their referral of patients with suspected Lynch syndrome to cancer genetic services. Using a purposive maximum variation sampling strategy, we conducted semi-structured interviews face-to-face with 28 general practitioners and specialists in public or private hospitals and specialist clinics between March and August 2011. General practitioners and specialists were recruited in a major metropolitan area in Australia. Interview transcripts were reviewed by two independent researchers, and thematic analysis was performed using NVivo10 software. The main barriers and motivators identified were: (1) clinician-related (e.g., familiarity with Lynch syndrome and family history knowledge); (2) patient-related (e.g., patients’ interests and personal experience with cancer); and (3) organizational-related (e.g., access to services, guidelines and referral pathway). Referral of patients with suspected Lynch syndrome to cancer genetic services is motivated and hindered by a range of individual, interpersonal and organizational factors. In order to improve the care and quality of life of patients and family with suspected Lynch syndrome, further research is needed to develop supportive tools for clinicians.
Keywords: Lynch syndrome; clinical genetics; referral; barriers and motivators knowledge; attitudes and referral practice
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MDPI and ACS Style

Tan, Y.Y.; Fitzgerald, L.J. Barriers and Motivators for Referral of Patients with Suspected Lynch Syndrome to Cancer Genetic Services: A Qualitative Study. J. Pers. Med. 2014, 4, 20-34.

AMA Style

Tan YY, Fitzgerald LJ. Barriers and Motivators for Referral of Patients with Suspected Lynch Syndrome to Cancer Genetic Services: A Qualitative Study. Journal of Personalized Medicine. 2014; 4(1):20-34.

Chicago/Turabian Style

Tan, Yen Y.; Fitzgerald, Lisa J. 2014. "Barriers and Motivators for Referral of Patients with Suspected Lynch Syndrome to Cancer Genetic Services: A Qualitative Study." J. Pers. Med. 4, no. 1: 20-34.

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