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Children 2017, 4(5), 35; doi:10.3390/children4050035

After the Visit: An Overview of Government and Community Programs Supporting Children with Medical Complexity

Department of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago, Northwestern University Feinberg School of Medicine, 225 E Chicago Ave, Box 152, Chicago, IL 60611, USA
Academic Editor: David E. Hall
Received: 28 February 2017 / Revised: 24 April 2017 / Accepted: 25 April 2017 / Published: 4 May 2017
(This article belongs to the Special Issue Children with Complex Health Care Needs)
View Full-Text   |   Download PDF [157 KB, uploaded 4 May 2017]

Abstract

The optimal care of children with medical complexity (CMC) requires involvement from a network of professionals that includes physicians, nurses, ancillary service providers, and educators. Pediatric health care providers typically have early and frequent contact with the families of CMC. Therefore, they are in a unique position to connect families to developmental, educational, and psychosocial supports. This article reviews important government and community programs that support CMC living in the United States. It outlines the educational rights of children with disabilities and offers practical tips for collaborating with Early Intervention and the public school system. The article also provides an overview of financial assistance programs, respite care services, and support groups that are beneficial to CMC and their families. View Full-Text
Keywords: children with medical complexity; developmental disability; Early Intervention; legal rights; psychosocial support systems; special education; technology dependence children with medical complexity; developmental disability; Early Intervention; legal rights; psychosocial support systems; special education; technology dependence
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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Olson, K.B. After the Visit: An Overview of Government and Community Programs Supporting Children with Medical Complexity. Children 2017, 4, 35.

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