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Int. J. Environ. Res. Public Health 2018, 15(9), 1899; https://doi.org/10.3390/ijerph15091899

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

1
Division of Medical Sciences, University of Victoria, Victoria, BC V8W 2Y2, Canada
2
Postgraduate Program in Collective Health, Faculty of Health Sciences of Trairi (UFRN-FACISA), Federal University of Rio Grande do Norte, Santa Cruz 59200-000, Brazil
3
Federal Scientific Center of Rehabilitation of the Disabled named after G.A. Albrecht, Saint Petersburg 195067, Russia
4
The Step by Step Association for Help of Disabled Children, Zamość 22-400, Poland
5
Health School Science, Polytechnic Institute of Leiria, Leiria 2411-901, Portugal
6
RIPPLE Africa, Limbe 431136, Malawi, Africa
7
Department of Education, Catholic University of Malawi, Limbe 431136, Malawi, Africa
*
Author to whom correspondence should be addressed.
Received: 24 July 2018 / Revised: 11 August 2018 / Accepted: 16 August 2018 / Published: 1 September 2018
(This article belongs to the Special Issue Disability and Global Health)
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Abstract

Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contributions to clinical practice and challenges in their implementation. Methods: This is a descriptive cross-sectional study. Ongoing initiatives applying the ICF Core Sets for CP in Russia, Poland, Malawi, and Brazil are included. Results: The main contributions of applying the ICF Core Sets for children and youth with CP include: (1) an objective description of abilities and limitations in everyday activities; (2) a consistent identification of facilitators and barriers influencing functioning; (3) a practical communication tool promoting client-centered care and multidisciplinary teamwork; and, (4) a useful guideline for measurement selection. The main challenges of adopting the ICF Core Sets are related to lack of ICF knowledge requiring intense training and translating results from standardized measures into the ICF qualifiers in a consistent way. Conclusions: Global initiatives include research and clinical applications at the program, service and system levels. The ICF Core Sets for CP are useful tools to guide service provision and build profiles of functioning and disability. Global interprofessional collaboration, capacity training, and informatics (e-records) will maximize their applications and accelerate adoption.
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Keywords: ICF Core Sets; child; cerebral palsy; disability; functioning; abilities; global health; service provision ICF Core Sets; child; cerebral palsy; disability; functioning; abilities; global health; service provision
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Schiariti, V.; Longo, E.; Shoshmin, A.; Kozhushko, L.; Besstrashnova, Y.; Król, M.; Neri Correia Campos, T.; Náryma Confessor Ferreira, H.; Verissimo, C.; Shaba, D.; Mwale, M.; Amado, S. Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning. Int. J. Environ. Res. Public Health 2018, 15, 1899.

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