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Int. J. Neonatal Screen. 2018, 4(1), 1; doi:10.3390/ijns4010001

NewSTEPs: The Establishment of a National Newborn Screening Technical Assistance Resource Center

Association of Public Health Laboratories, 8515 Georgia Avenue, Suite 700, Silver Spring, MD 20910, USA
Colorado School of Public Health, University of Colorado Denver, Anschutz Medical Campus, Aurora, CO 80045, USA
Wisconsin State Laboratory of Hygiene and Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI 53706, USA
Author to whom correspondence should be addressed.
Received: 16 November 2017 / Revised: 8 December 2017 / Accepted: 15 December 2017 / Published: 22 December 2017
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As newborn screening (NBS) programs in the US implement expanded screening panels, utilize emerging technologies and identify areas for improvement, the need to establish and maintain a community engagement based national technical assistance center becomes apparent. The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs)—a program of the Association of Public Health Laboratories (APHL) in partnership with the Colorado School of Public Health (ColoradoSPH), offers expertise in newborn screening program development, member connection, data analysis, and program evaluation. NewSTEPs provides a secure online data repository designed to collect comprehensive data on newborn screening programs in three strata: state profiles (description of each state program including program hours, fees, and disorders screened), quality indicators (metrics of program performance encompassing screening accuracy and timeliness) and NBS public health surveillance case definitions. NewSTEPs was created in 2012 under a cooperative agreement with the United States Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Successful activities of NewSTEPs have resulted in the establishment of a technical assistance resource center and the organization of a network of newborn screening experts. In addition, NewSTEPs coordinates efforts with other federally funded programs in order to maximize resources and to ensure a unified approach to data collection and information sharing. View Full-Text
Keywords: newborn screening; data repository; continuous quality improvement; evaluation; technical assistance newborn screening; data repository; continuous quality improvement; evaluation; technical assistance

This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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Ojodu, J.; Singh, S.; Kellar-Guenther, Y.; Yusuf, C.; Jones, E.; Wood, T.; Baker, M.; Sontag, M.K. NewSTEPs: The Establishment of a National Newborn Screening Technical Assistance Resource Center. Int. J. Neonatal Screen. 2018, 4, 1.

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Int. J. Neonatal Screen. EISSN 2409-515X Published by MDPI AG, Basel, Switzerland RSS E-Mail Table of Contents Alert
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