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Geriatrics 2016, 1(4), 28; doi:10.3390/geriatrics1040028

Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service

1
Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust P.O. Box 2136 NO-3103 Tonsberg, Norway
2
Norwegian Social Research (NOVA), University College of Oslo and Akershus, Oslo 0001, Norway
*
Author to whom correspondence should be addressed.
Academic Editor: Daniel Kam Yin CHAN
Received: 23 September 2016 / Revised: 20 October 2016 / Accepted: 31 October 2016 / Published: 5 November 2016
(This article belongs to the Special Issue The Challenges of Caring of Neurodegenerative Diseases)
View Full-Text   |   Download PDF [206 KB, uploaded 5 November 2016]

Abstract

Background: Family carers and people with young-onset dementia (YOD) require tailored assistance as dementia progresses. A variety of health care services is needed, including supporter services. To our knowledge, research focusing on experiences with the supporter service is scarce. Aim: To evaluate the supporter service by examining how primary family carers experience the assistance provided. Method: Qualitative interviews with 16 primary family carers of people with YOD were performed from 2014 to 2015. Content analysis was used to analyze the data. Results: Three main themes emerged from the interviews. First, a good match focused on the carers’ experiences of the relationship between the supporter and the person with YOD and included three subthemes: a nice, empathetic personality, a friendship-like relationship, and the content of the meetings. The second theme, relief, addressed the carers’ experiences with the service. The third, coordination, concerned the carers’ relationship with the health care service. Conclusion: Developing tailored services and assistance initiatives is important. A well-organized supporter service is a valuable supplement to formal programs and should be developed as part of an overall support package. View Full-Text
Keywords: accessibility; caregivers; early onset dementia; public health; qualitative study; respite care; volunteers accessibility; caregivers; early onset dementia; public health; qualitative study; respite care; volunteers
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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MDPI and ACS Style

Johannessen, A.; Engedal, K.; Thorsen, K. Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service. Geriatrics 2016, 1, 28.

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