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Laws 2017, 6(3), 9; doi:10.3390/laws6030009

Drawing the Line: Disability, Genetic Intervention and Bioethics

Graduate student, Melbourne Law School, University of Melbourne, 185 Pelham St., Carlton, VIC 3053, Australia
Received: 2 June 2017 / Revised: 9 July 2017 / Accepted: 10 July 2017 / Published: 17 July 2017
(This article belongs to the Special Issue Disability Human Rights Law)
View Full-Text   |   Download PDF [280 KB, uploaded 26 July 2017]

Abstract

Meteoric scientific advances in genetic technologies with the potential for human gene editing intervention pose tremendous legal, medical, social, ethical and moral issues for society as a whole. Persons with disabilities in particular have a significant stake in determining how these technologies are governed at the international, domestic and individual levels in the future. However, the law cannot easily keep up with the rate of scientific progression. This paper aims to posit a methodology of reform, based on a core value of human dignity, as the optimal course of action to ensure that the interests of persons with disabilities, other possibly marginalised groups, and the scientific community, are balanced fairly. The paper critically analyses the current law and varying bioethical perspectives to ultimately conclude that a clear principled approach toward open discussion and consensus is of paramount importance to have any chance of devising an effective regulatory regime over human gene editing technology. View Full-Text
Keywords: disability; human rights; genetics; gene editing; bioethics; governance; human dignity; eugenics; germline; Convention on the Rights of Persons with Disabilities disability; human rights; genetics; gene editing; bioethics; governance; human dignity; eugenics; germline; Convention on the Rights of Persons with Disabilities
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (CC BY 4.0).

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Conti, A. Drawing the Line: Disability, Genetic Intervention and Bioethics. Laws 2017, 6, 9.

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