Co-Designing Research for Sustainable Food Systems and Diets with Aboriginal Communities: A Study Protocol
Abstract
:1. Introduction
2. Materials and Methods
2.1. Community Settings
2.2. Methods
2.2.1. Phase I: Preparation
Training/Developing Research Team Cultural Competency
Building a Trusting Relationship
2.2.2. Phase II: Community Involvement and Governance
Letter of Support and Research Agreement
Inclusion and Exclusion Criteria
Aboriginal Reference Group
Ethics Approval
2.2.3. Phase III: Data Collection
Participant Recruitment and Consent
Structure of Focus Groups and Interviews
Documenting the Focus Groups and Interviews
2.2.4. Phase IV: Data Analysis and Dissemination of Results
Data Analysis
Dissemination of Results
2.2.5. Phase V: Implementation of the Case Studies
3. Discussion
Limitations
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
References
- Fanzo, J.; Bellows, A.L.; Spiker, M.L.; Thorne-Lyman, A.L.; Bloem, M.W. The importance of food systems and the environment for nutrition. Am. J. Clin. Nutr. 2021, 113, 7–16. Available online: https://www.sciencedirect.com/science/article/pii/S0002916522005536?via%3Dihub (accessed on 12 September 2023). [CrossRef]
- Swinburn, B.A.; Kraak, V.I.; Allender, S.; Atkins, V.J.; Baker, P.I.; Bogard, J.R.; Brinsden, H.; Calvillo, A.; De Schutter, O.; Devarajan, R.; et al. The global syndemic of obesity, undernutrition, and climate change: The Lancet Commission report. Lancet 2019, 393, 791–846. Available online: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)32822-8/fulltext (accessed on 12 September 2023). [CrossRef]
- Binns, C.W.; Lee, M.K.; Maycock, B.; Torheim, L.E.; Nanishi, K.; Duong, D.T.T. Climate change, food supply, and dietary guidelines. Annu. Rev. Public Health 2021, 42, 233–255. Available online: https://www.annualreviews.org/doi/10.1146/annurev-publhealth-012420-105044 (accessed on 12 September 2023). [CrossRef]
- Lindgren, E.; Harris, F.; Dangour, A.D.; Gasparatos, A.; Hiramatsu, M.; Javadi, F.; Loken, B.; Murakami, T.; Scheelbeek, P.; Haines, A. Sustainable food systems—A health perspective. Sustain. Sci. 2018, 13, 1505–1517. Available online: https://link.springer.com/article/10.1007/s11625-018-0586-x (accessed on 12 September 2023). [CrossRef]
- Australian Bureau of Statistics. National Health Survey: First Results, 2017–2018; Australian Bureau of Statistics: Canberra, Australia, 2018.
- Fitzgerald, K.C.; Pit, S.W.; Rolfe, M.; McKenzie, J.; Matthews, V.; Longman, J.; Bailie, R. Cross sectional analysis of depression amongst Australian rural business owners following cyclone-related flooding. J. Occup. Med. Toxicol. 2020, 15, 12. Available online: https://occup-med.biomedcentral.com/articles/10.1186/s12995-020-00264-1 (accessed on 12 September 2023). [CrossRef]
- Hanna, E.G.; McIver, L.J. Climate change: A brief overview of the science and health impacts for Australia. Med. J. Aust. 2018, 208, 311–315. [Google Scholar] [CrossRef] [PubMed]
- Davey, R.X. Health Disparities among Australia’s Remote-Dwelling Aboriginal People: A Report from 2020. J. Appl. Lab. Med. 2021, 6, 125–141. Available online: https://academic.oup.com/jalm/article/6/1/125/6006392?login=true (accessed on 12 September 2023). [CrossRef]
- Thurber, K.A.; Joshy, G.; Korda, R.; Eades, S.J.; Wade, V.; Bambrick, H.; Liu, B.; Banks, E. Obesity and its association with sociodemographic factors, health behaviours and health status among Aboriginal and non-Aboriginal adults in New South Wales, Australia. J. Epidemiol. Community Health 2018, 72, 491–498. Available online: https://jech.bmj.com/content/72/6/491 (accessed on 12 September 2023). [CrossRef]
- Christidis, R.; Lock, M.; Walker, T.; Egan, M.; Browne, J. Concerns and priorities of Aboriginal and Torres Strait Islander peoples regarding food and nutrition: A systematic review of qualitative evidence. Int. J. Equity Health 2021, 20, 220. Available online: https://equityhealthj.biomedcentral.com/articles/10.1186/s12939-021-01551-x (accessed on 12 September 2023). [CrossRef] [PubMed]
- Lansbury Hall, N.; Crosby, L. Climate Change Impacts on Health in Remote Indigenous Communities in Australia. Int. J. Environ. Health Res. 2022, 32, 487–502. Available online: https://www.tandfonline.com/doi/full/10.1080/09603123.2020.1777948 (accessed on 12 September 2023). [CrossRef] [PubMed]
- Standen, J.C.; Spencer, J.; Lee, G.W.; Van Buskirk, J.; Matthews, V.; Hanigan, I.; Boylan, S.; Jegasothy, E.; Breth-Petersen, M.; Morgan, G.G. Aboriginal Population and Climate Change in Australia: Implications for Health and Adaptation Planning. Int. J. Environ. Res. Public Health 2022, 19, 7502. Available online: https://www.mdpi.com/1660-4601/19/12/7502 (accessed on 12 September 2023). [CrossRef] [PubMed]
- Redmond, L.C.; Jock, B.; Gadhoke, P.; Chiu, D.T.; Christiansen, K.; Pardilla, M.; Swartz, J.; Platero, H.; Caulfield, L.E.; Gittelsohn, J. OPREVENT (Obesity Prevention and Evaluation of InterVention Effectiveness in NaTive North Americans): Design of a multilevel, multicomponent obesity intervention for Native American adults and households. Curr. Dev. Nutr. 2019, 3 (Suppl. S2), 81–93. Available online: https://www.sciencedirect.com/science/article/pii/S2475299122137029?via%3Dihub (accessed on 12 September 2023). [CrossRef] [PubMed]
- Lewis, M.E.; Volpert-Esmond, H.I.; Deen, J.F.; Modde, E.; Warne, D. Stress and cardiometabolic disease risk for indigenous populations throughout the lifespan. Int. J. Environ. Res. Public Health 2021, 18, 1821. Available online: https://www.mdpi.com/1660-4601/18/4/1821 (accessed on 12 September 2023). [CrossRef] [PubMed]
- Clark, M.A.; Springmann, M.; Hill, J.; Tilman, D. Multiple health and environmental impacts of foods. Proc. Natl. Acad. Sci. USA 2019, 116, 23357–23362. Available online: https://www.pnas.org/doi/10.1073/pnas.1906908116 (accessed on 12 September 2023). [CrossRef]
- Willett, W.; Rockström, J.; Loken, B.; Springmann, M.; Lang, T.; Vermeulen, S.; Garnett, T.; Tilman, D.; DeClerck, F.; Wood, A. Food in the Anthropocene: The EAT—Lancet Commission on healthy diets from sustainable food systems. Lancet 2019, 393, 447–492. Available online: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(18)31788-4/fulltext (accessed on 12 September 2023). [CrossRef]
- Kennedy, G.; Kanter, R.; Chotiboriboon, S.; Covic, N.; Delormier, T.; Longvah, T.; Maundu, P.; Omidvar, N.; Vish, P.; Kuhnlein, H. Traditional and indigenous fruits and vegetables for food system transformation. Curr. Dev. Nutr. 2021, 5, nzab092. Available online: https://www.sciencedirect.com/science/article/pii/S2475299122105755?via%3Dihub (accessed on 12 September 2023). [CrossRef]
- Sarkar, D.; Walker-Swaney, J.; Shetty, K. Food diversity and indigenous food systems to combat diet-linked chronic diseases. Curr. Dev. Nutr. 2020, 4 (Suppl. S1), 3–11. Available online: https://www.sciencedirect.com/science/article/pii/S2475299122121104?via%3Dihub (accessed on 12 September 2023). [CrossRef]
- Flanagan, H.; Frizzell, L.B.; Kassi, N.; Nuvayestewa Sr, L.; Warne, B.S.; Kurzer, M.S. Elder voices: Wisdom about Indigenous peoples’ food systems from the holders of knowledge. Curr. Dev. Nutr. 2021, 5 (Suppl. S4), 5–12. Available online: https://www.sciencedirect.com/science/article/pii/S2475299122119505?via%3Dihub (accessed on 12 September 2023). [CrossRef]
- Lopes, C.V.A.; Mihrshahi, S.; Ronto, R.; Hunter, J. Aboriginal Food Practices and Australian Native Plant-Based Foods: A Step toward Sustainable Food Systems. Sustainability 2023, 15, 11569. [Google Scholar] [CrossRef]
- Fletcher, M.-S.; Hall, T.; Alexandra, A.N. The loss of an indigenous constructed landscape following British invasion of Australia: An insight into the deep human imprint on the Australian landscape. Ambio 2021, 50, 138–149. Available online: https://link.springer.com/article/10.1007/s13280-020-01339-3 (accessed on 15 September 2023). [CrossRef] [PubMed]
- Wilson, A.; Wilson, R.; Delbridge, R.; Tonkin, E.; Palermo, C.; Coveney, J.; Hayes, C.; Mackean, T. Resetting the narrative in Australian Aboriginal and Torres Strait Islander nutrition research. Curr. Dev. Nutr. 2020, 4, nzaa080. Available online: https://www.sciencedirect.com/science/article/pii/S2475299122120160?via%3Dihub (accessed on 15 September 2023). [CrossRef]
- Braun, K.L.; Browne, C.V.; Ka‘opua, L.S.; Kim, B.J.; Mokuau, N. Research on indigenous elders: From positivistic to decolonizing methodologies. Gerontologist 2014, 54, 117–126. Available online: https://academic.oup.com/gerontologist/article/54/1/117/559329?login=true (accessed on 15 September 2023). [CrossRef]
- Datta, R. Decolonizing both researcher and research and its effectiveness in Indigenous research. Res. Ethics 2018, 14, 1–24. Available online: https://journals.sagepub.com/doi/10.1177/1747016117733296 (accessed on 15 September 2023). [CrossRef]
- Kovach, M. Emerging from the margins: Indigenous methodologies. In Research as Resistance: Revisiting Critical, Indigenous, and Anti-Oppressive Approaches; Canadian Scholars’ Press: Toronto, ON, Canada, 2015; Volume 2, pp. 43–64. [Google Scholar]
- United Nations General Assembly. United Nations Declaration on the Rights of Indigenous Peoples; United Nations: New York, NY, USA, 2007; pp. 1–18. Available online: https://social.desa.un.org/issues/indigenous-peoples/united-nations-declaration-on-the-rights-of-indigenous-peoples (accessed on 13 September 2023).
- Macaulay, A.C. Participatory research: What is the history? Has the purpose changed? Fam. Pract. 2016, 34, 256–258. Available online: https://academic.oup.com/fampra/article/34/3/256/2706412 (accessed on 15 September 2023). [CrossRef] [PubMed]
- Freire, P. The Pedagogy of the Oppressed; Herder and Herder: New York, NY, USA, 1970. [Google Scholar]
- Minkler, M.; Wallerstein, N. Community-Based Participatory Research for Health: From Process to Outcomes; John Wiley & Sons: Hoboken, NJ, USA, 2011. [Google Scholar]
- Tobias, J.K.; Richmond, C.A.; Luginaah, I. Community-based participatory research (CBPR) with indigenous communities: Producing respectful and reciprocal research. J. Empir. Res. Hum. Res. Ethics 2013, 8, 129–140. Available online: https://journals.sagepub.com/doi/10.1525/jer.2013.8.2.129 (accessed on 15 September 2023). [CrossRef] [PubMed]
- Carins, J.; Bogomolova, S. Co-designing a community-wide approach to encouraging healthier food choices. Appetite 2021, 162, 105167. Available online: https://www.sciencedirect.com/science/article/pii/S0195666321000751?via%3Dihub (accessed on 15 September 2023). [CrossRef]
- Hickey, G.; Brearley, S.; Coldham, T.; Denegri, S.; Green, G.; Staniszewska, S.; Tembo, D.; Torok, K.; Turner, K. Guidance on Co-Producing a Research Project; Involve: Southampton, UK, 2018. [Google Scholar]
- Browne, J.; Gilmore, M.; Lock, M.; Backholer, K. First nations peoples’ participation in the development of population-wide food and nutrition policy in Australia: A political economy and cultural safety analysis. Int. J. Health Policy Manag. 2021, 10, 871–885. Available online: https://www.ijhpm.com/article_3916.html (accessed on 15 September 2023). [CrossRef]
- The Australian Institute of Aboriginal and Torres Strait Islander Studies. Australia’s First Peoples; Australian Institute of Aboriginal and Torres Strait Islander Studies: Canberra, Australia, 2022. Available online: https://aiatsis.gov.au/explore/australias-first-peoples (accessed on 8 February 2024).
- Lambert, S.D.; Loiselle, C.G. Combining individual interviews and focus groups to enhance data richness. J. Adv. Nurs. 2008, 62, 228–237. Available online: https://onlinelibrary.wiley.com/doi/10.1111/j.1365-2648.2007.04559.x (accessed on 15 September 2023). [CrossRef] [PubMed]
- Walker, M.; Fredericks, B.; Mills, K.; Anderson, D. “Yarning” as a method for community-based health research with Indigenous women: The Indigenous Women’s Wellness Research Program. Health Care Women Int. 2014, 35, 1216–1226. Available online: https://www.tandfonline.com/doi/full/10.1080/07399332.2013.815754 (accessed on 15 September 2023). [CrossRef]
- Australian Bureau of Statistics. Blacktown. 2021 Census Aboriginal and/or Torres Strait Islander People Quickstats; Australian Bureau of Statistics: Canberra, Australia, 2021. Available online: https://abs.gov.au/census/find-census-data/quickstats/2021/IARE107003 (accessed on 8 February 2024).
- Australian Bureau of Statistics. Penrith. 2021 Census Aboriginal and/or Torres Strait Islander People QuickStats; Australian Bureau of Statistics: Canberra, Australia, 2021. Available online: https://abs.gov.au/census/find-census-data/quickstats/2021/IQSLGA16350 (accessed on 8 February 2024).
- Muru, W. Manawari Cultural Safety Training: Macquarie University. 2023. Available online: https://www.mq.edu.au/about/about-the-university/commitment-indigenous-australians/manawari-cultural-safety-training#:~:text=Manawari%20Staff%20Aboriginal%20Cultural%20Safety,%2C%20practices%2C%20knowledges%20and%20philosophies (accessed on 13 September 2023).
- National Health and Medical Research Council. Ethical Guidelines for Research with Aboriginal and Torres Strait Islander Peoples; Commonwealth of Australia: Canberra, Australia, 2018. Available online: https://www.nhmrc.gov.au/research-policy/ethics/ethical-guidelines-research-aboriginal-and-torres-strait-islander-peoples (accessed on 13 September 2023).
- Nguyen, H. Sustainable Food Systems: Concept and Framework; FAO: Rome, Italy, 2018. [Google Scholar]
- Hutchinson, P.J.; McIlduff, C.D.; Legare, M.; Keewatin, M.; Hagel, M.; Chapados, M.; Acharibasam, J.B. Indigenous knowledge mobilization: Reflection on context, content, and relationship. AlterNative Int. J. Indig. Peoples 2023, 19, 902–913. [Google Scholar] [CrossRef]
- Gareth Terry, N.H.; Clarke, V.; Braun, V. Thematic Analysis. In The SAGE Handbook of Qualitative Research in Psychology, 2nd ed.; Willing, C., Stainton-Rogers, W., Eds.; SAGE Publications Ltd.: London, UK, 2017. [Google Scholar]
- Troman, G.; Jeffrey, B. Qualitative data analysis in cross-cultural projects. Comp. Educ. 2007, 43, 511–525. Available online: https://www.jstor.org/stable/29727853 (accessed on 8 February 2024). [CrossRef]
- Wasser, J.D.; Bresler, L. Working in the interpretive zone: Conceptualizing collaboration in qualitative research teams. Educ. Res. 1996, 25, 5–15. Available online: https://journals.sagepub.com/doi/10.3102/0013189X025005005 (accessed on 8 February 2024). [CrossRef]
- Döös, M.; Wilhelmson, L. Proximity and distance: Phases of intersubjective qualitative data analysis in a research team. Qual. Quant. 2014, 48, 1089–1106. Available online: https://link.springer.com/article/10.1007/s11135-012-9816-y (accessed on 8 February 2024). [CrossRef]
- Anderson, K.; Gall, A.; Butler, T.; Ngampromwongse, K.; Hector, D.; Turnbull, S.; Lucas, K.; Nehill, C.; Boltong, A.; Keefe, D.; et al. Development of Key Principles and Best Practices for Co-Design in Health with First Nations Australians. Int. J. Environ. Res. Public Health 2022, 20, 147. Available online: https://www.mdpi.com/1660-4601/20/1/147 (accessed on 17 September 2023). [CrossRef] [PubMed]
- Ferguson, M.; Tonkin, E.; Brimblecombe, J.; Lee, A.; Fredericks, B.; Cullerton, K.; Mah, C.L.; Brown, C.; McMahon, E.; Chatfield, M.D.; et al. Communities Setting the Direction for Their Right to Nutritious, Affordable Food: Co-Design of the Remote Food Security Project in Australian Indigenous Communities. Int. J. Environ. Res. Public Health 2023, 20, 2936. Available online: https://www.mdpi.com/1660-4601/20/4/2936 (accessed on 17 September 2023). [CrossRef]
- Domingo, A.; Charles, K.A.; Jacobs, M.; Brooker, D.; Hanning, R.M. Indigenous Community Perspectives of Food Security, Sustainable Food Systems and Strategies to Enhance Access to Local and Traditional Healthy Food for Partnering Williams Treaties First Nations (Ontario, Canada). Int. J. Environ. Res. Public Health 2021, 18, 4404. Available online: https://www.mdpi.com/1660-4601/18/9/4404 (accessed on 8 February 2024). [CrossRef]
- Richmond, C.; Dokis, B. “We Make It Work Because We Must”: Narrating the Creation of an Urban Indigenous Food Bank in London, Ontario, Canada. Land 2023, 12, 2028. [Google Scholar] [CrossRef]
- Browne, J.; Hayes, R.; Gleeson, D. Aboriginal health policy: Is nutrition the ‘gap’ in ‘Closing the Gap’? Aust. N. Z. J. Public Health 2014, 38, 362–369. Available online: https://www.sciencedirect.com/science/article/pii/S1326020023022690?via%3Dihub (accessed on 17 September 2023). [CrossRef]
- Meharg, D.P.; Dennis, S.M.; McNab, J.; Gwynne, K.G.; Jenkins, C.R.; Maguire, G.P.; Jan, S.; Shaw, T.; McKeough, Z.; Rambaldini, B.; et al. A mixed methods study of Aboriginal health workers’ and exercise physiologists’ experiences of co-designing chronic lung disease ‘yarning’ education resources. BMC Public Health 2023, 23, 612. Available online: https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-023-15508-y (accessed on 17 September 2023). [CrossRef]
- Jeyakumar, R.; Patel, B.; Coombes, J.; Madden, T.; Joshi, R. “We’re on the ground, we know what needs to be done”: Exploring the role of Aboriginal Health Workers in primary health care. Front. Public Health 2022, 10, 1010301. Available online: https://www.frontiersin.org/articles/10.3389/fpubh.2022.1010301/full (accessed on 17 September 2023). [CrossRef]
- Bessarab, D.; Ng’andu, B. Yarning About Yarning as a Legitimate Method in Indigenous Research. Int. J. Crit. Indig. Stud. 2010, 3, 37–50. Available online: https://ijcis.qut.edu.au/article/view/57 (accessed on 17 September 2023). [CrossRef]
- Tamwoy, N.; Rosas, S.; Davis, S.; Farthing, A.; Houghton, C.; Johnston, H.; Maloney, C.; Samulkiewicz, N.; Seaton, J.; Tuxworth, G.; et al. Co-design with aboriginal and torres strait islander communities: A Journey. Aust. J. Rural Health 2022, 30, 816–822. Available online: https://onlinelibrary.wiley.com/doi/10.1111/ajr.12918 (accessed on 17 September 2023). [CrossRef] [PubMed]
- Ruwhiu, D.; Arahanga-Doyle, H.; Donaldson-Gush, R.; Bragg, C.; Kapa, J.; Puketeraki, K.H.R.k. Enhancing the sustainability science agenda through Indigenous methodology. Sustain. Sci. 2021, 17, 403–414. Available online: https://link.springer.com/article/10.1007/s11625-021-01054-2 (accessed on 17 September 2023). [CrossRef]
- Lindsjö, C.; Sjögren Forss, K.; Kumlien, C.; Rämgård, M. Health promotion focusing on migrant women through a community based participatory research approach. BMC Womens Health 2021, 21, 365. [Google Scholar] [CrossRef]
- Cristiani, V.; Kumbamu, A.; Asiedu, G.B.; Johnson, S.K.; Gewirtz O’Brien, J.R.; Ziebart, G.; Mogen, M.R.; Lynch, B.; Kumar, S. Use of Community Based Participatory Research to Design Interventions for Healthy Lifestyle in an Alternative Learning Environment. J. Prim. Care Community Health 2021, 12, 21501327211014749. [Google Scholar] [CrossRef]
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Lopes, C.V.A.; Mihrshahi, S.; Hunter, J.; Ronto, R.; Cawthorne, R. Co-Designing Research for Sustainable Food Systems and Diets with Aboriginal Communities: A Study Protocol. Int. J. Environ. Res. Public Health 2024, 21, 298. https://doi.org/10.3390/ijerph21030298
Lopes CVA, Mihrshahi S, Hunter J, Ronto R, Cawthorne R. Co-Designing Research for Sustainable Food Systems and Diets with Aboriginal Communities: A Study Protocol. International Journal of Environmental Research and Public Health. 2024; 21(3):298. https://doi.org/10.3390/ijerph21030298
Chicago/Turabian StyleLopes, Carla Vanessa Alves, Seema Mihrshahi, John Hunter, Rimante Ronto, and Renee Cawthorne. 2024. "Co-Designing Research for Sustainable Food Systems and Diets with Aboriginal Communities: A Study Protocol" International Journal of Environmental Research and Public Health 21, no. 3: 298. https://doi.org/10.3390/ijerph21030298